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Open Access 01-12-2014 | Oral presentation

Social profiles project - only the strong survive

Author: Birthe Byskov Holm

Published in: Orphanet Journal of Rare Diseases | Special Issue 1/2014

Excerpt

Rare Diseases Denmark has developed a tool, Social Profiles, to promote the dialogue between the rare disease patients and their social workers conducted. This is more necessary than ever - an interview study during the fall 2013 shows substantial problems in the interaction between the families and the health care sector and social services. …

Title: Social profiles project - only the strong survive
Author: Birthe Byskov Holm
Publication date: 01-12-2014
Publisher: BioMed Central
Published in: Orphanet Journal of Rare Diseases / Issue Special Issue 1/2014
Electronic ISSN: 1750-1172
DOI: https://doi.org/10.1186/1750-1172-9-S1-O32

At a glance: The STEP trials

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Social profiles project - only the strong survive

Excerpt

At a glance: The STEP trials

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Excerpt

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