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BMC Neurology
Published in: BMC Neurology 1/2024

Open Access 01-12-2024 | Multiple Sclerosis | Research

Validity and reliability of the Persian version of Recce stigma scale in people with multiple sclerosis and its impact on quality of life

Authors: Mohammad Amin Habibi, Mohammad Yazdan Panah, Saeed Vaheb, Meysam Olfatifar, Aysa Shaygannejad, Yousef Mokary, Majid Ghasemi, Sangharsha Thapa, Vahid Shaygannejad, Omid Mirmosayyeb

Published in: BMC Neurology | Issue 1/2024

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Abstract

Background

There is often a fear of social stigma experienced by people with multiple sclerosis (pwMS), which negatively impacts the quality of their lives (QoL). Currently, no Persian-validated questionnaire is available to assess this issue in pwMS. This study aimed to assess the validaty and reliability of the Persian version of Reece Stigma Scale Multiple Sclerosis (RSS-MS) questionnaire for pwMS.

Method

This cross-sectional was conducted between January and February 2023 in Isfahan, Iran. The demographic and clinical information and the RSS-MS and Multiple Sclerosis Impact Scale-29 (MSIS-29) questionnaires were recorded from pwMS. The content validity index (CVI) and content validity ratio (CVR) have been used to evaluate validity. To identify the factors supporting the MS-related stigma, an exploratory factor analysis (EFA) was conducted.

Results

The present study recruited 194 pwMS. Based on factor analysis, only two factors had eigenvalues ≥ 1.0 and exhibited high internal consistency. The Cronbach’s α coefficient for internal consistency of the RSS-MS scale was 0.822. More evidence for the construct validity suggested that having higher levels of stigma is significantly correlated with psychological (r = 0.468, p-value < 0.001) and physical dimensions (r = 0.585, p-value < 0.001) of MSIS-29. Expanded Disability Status Scale, disease duration, and treatment duration did not show a significant correlation with stigma (p-value > 0.05).

Conclusion

This study indicated that the modified version of the RSS-MS scale in the Persian language showed acceptable validity and reliability for evaluating the stigma among Persian pwMS. Furthermore, this study emphasizes the cruciality of monitoring and addressing stigma among pwMS, as it can potentially enhance medical, psychological, physical, and QoL outcomes.
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Metadata
Title
Validity and reliability of the Persian version of Recce stigma scale in people with multiple sclerosis and its impact on quality of life
Authors
Mohammad Amin Habibi
Mohammad Yazdan Panah
Saeed Vaheb
Meysam Olfatifar
Aysa Shaygannejad
Yousef Mokary
Majid Ghasemi
Sangharsha Thapa
Vahid Shaygannejad
Omid Mirmosayyeb
Publication date
01-12-2024
Publisher
BioMed Central
Published in
BMC Neurology / Issue 1/2024
Electronic ISSN: 1471-2377
DOI
https://doi.org/10.1186/s12883-024-03544-z

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