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Archives of Public Health
Published in: Archives of Public Health 1/2018

Open Access 01-12-2018 | Research

Cardiovascular diseases monitoring: lessons from population-based registries to address future opportunities and challenges in Europe

Authors: Luigi Palmieri, Giovanni Veronesi, Giovanni Corrao, Giuseppe Traversa, Marco M. Ferrario, Giovanni Nicoletti, Anna Di Lonardo, Chiara Donfrancesco, Flavia Carle, Simona Giampaoli

Published in: Archives of Public Health | Issue 1/2018

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Abstract

Background

Population-based registries implement the comprehensive collection of all disease events that occur in a well-characterized population within a certain time period and represent the preferred tools for disease monitoring at a population level. Main characteristics of a Population-based registry are to provide answers to defined research questions, also related to clinical and health policy purposes, assuring completeness of event identification, and implementing a process of case adjudication (validation) according to standardised diagnostic criteria.

Methods

The application of a standard methodology results in the availability of reliable and comparable data and facilitates the transferability of health information for research and evidence-based health policies. Although registries are extremely useful, they require considerable resources to be implemented and maintained, high cost and efforts, to produce stable and reliable indicators.

Results

Thanks to available health information and information technology, current administrative databases on hospital admissions and discharges, medication use, in-patient care utilization, surgical operations, drug dispensations, ticket exemption and invasive procedures are increasingly available. They represent basic sources of information for implementing Population-based registries.
Main strengths and limitations of Population-based registries are described taking into consideration the example of cardiovascular diseases, as well as future challenges and opportunities for implementing Population-based registries at European level.

Conclusions

The integration of population-based registries and current administrative health databases may help to complete the picture of the disease rebuilding the evolution of the disease as a continuum from the onset to the possible consequent complications.
Literature
1.
World Health Organization. Global action plan for the prevention and control of noncommunicable diseases 2013–2020. Geneva: WHO; 2013.
2.
Tunstall-Pedoe H, Kuulasmaa K, Mähönen M, et al. Contribution of trends in survival and coronary-event rates to changes in coronary heart disease mortality: 10-year results from 37 WHO MONICA project populations. Monitoring trends and determinants in cardiovascular disease. Lancet. 1999;353:1547–57.CrossRefPubMed
3.
4.
Gliklich R, Dreyer N, Leavy M, eds. Registries for Evaluating Patient Outcomes: A User's Guide. Third edition. Two volumes. (Prepared by the Outcome DEcIDE Center [Outcome Sciences, Inc., a Quintiles company] under Contract No. 290 2005 00351 TO7.) AHRQ Publication No. 13(14)-EHC111. Rockville, MD: Agency for Healthcare Research and Quality. April 2014. http://​www.​effectivehealthc​are.​ahrq.​gov/​registries-guide-3.​cfm;
5.
6.
7.
Wilkins E, Wilson L, Wickramasinghe K, Bhatnagar P, Leal J, Luengo-Fernandez R, Burns R, Rayner M, Townsend N. European Cardiovascular Disease Statistics 2017. Brussels: European Heart Network; 2017.
8.
Luepker RV, Evans A, McKeigue P, Srinath Reddy K. Cardiovascular survey methods. 3rd ed. Geneva: World Health Organization; 2004. p. 185.
9.
10.
Solomon DJ, Henry RC, Hogan JG, Van Amburg GH, Taylor J. Evaluation and implementation of public health registries. Public Health Rep. 1991;106:142–50.PubMedPubMedCentral
11.
Glaser SL, Clarke CA, Gomez SL, O’Malley CD, Purdie DM, West DW. Cancer surveillance research: a vital subdiscipline of cancer epidemiology. Cancer Causes Control. 2005;16:1009–19.CrossRefPubMed
12.
World Health Organisation Regional Office for Europe. Myocardial infarction community registers. Copenhagen: WHO, 1976, Public Health in Europe report No 5;
13.
Tunstall-Pedoe H, Kuulasmaa K, Tolonen H, Davidson M. Mendis S with 64 other contributors for the WHO MONICA project. MONICA monograph and multimedia sourcebook. Geneva: WHO; 2003.
14.
Beaglehole R, Stewart A, Butler M. Comparability of old and new world health organization criteria for definite myocardial infarction. Int J Epidemiol. 1987;16(3):373–6.CrossRefPubMed
15.
The EUROCISS Working Group. Coronary and cerebrovascular population-based registers in Europe: are morbidity indicators comparable? Results from the EUROCISS project. Eur J Pub Health. 2003;13(Suppl 3):55–60.CrossRef
16.
17.
Madsen M, Gudnason V, Pajak A, Palmieri L, Rocha EC, Salomaa V, et al. EUROCISS research group. Population-based register of acute myocardial infarction: manual of operations. Eur J Cardiovasc Prev Rehabil. 2007;14(Suppl 3):S3–S22.CrossRefPubMed
18.
Giampaoli S, Hammar N, Adany R, De Peretti C. EUROCISS research group. Population-based register of stroke: manual of operations. Eur J Cardiovasc Prev Rehabil. 2007;14:S23–41.CrossRefPubMed
19.
Primatesta P, Allender S, Ciccarelli P, Doring A, Graff-Iversen S, Holub J, et al. EUROCISS research group. Cardiovascular surveys: manual of operations. Eur J Cardiovasc Prev Rehabil. 2007;14(Suppl 3):S43–61.CrossRefPubMed
20.
Gruppo di Ricerca del Progetto Registro per gli Eventi Coronarici e Cerebrovascolari. Registro Nazionale italiano degli eventi coronarici maggiori: tassi di attacco e letalità nelle diverse aree del paese. Ital Heart J. 2005;6:667–73.
21.
Palmieri L, Barchielli A, Cesana G, de Campora E, Goldoni CA, Spolaore P, et al. The Italian register of cardiovascular diseases: attack rates and case fatality for cerebrovascular events. Cerebrovasc Dis. 2007;24:530–9.CrossRefPubMedPubMedCentral
22.
Picciotto S, Forastiere F, Stafoggia M, D'Ippoliti D, Ancona C, Perucci CA. Associations of area based deprivation status and individual educational attainment with incidence, treatment, and prognosis of first coronary event in Rome, Italy. J Epidemiol Community Health. 2006;60:37–43.CrossRefPubMedPubMedCentral
23.
Simonato L, Baldi I, Balzi D, Barchielli A, Battistella G, Canova C, et al. Objectives, tools and methods for an epidemiological use of electronic health archives in various areas of Italy. Epidemiol Prev 2008; 32(3) suppl 1: 5–14;
24.
Fornari C, Madotto F, Demaria M, Romanelli A, Pepe P, Raciti M, Tancioni V, Chini F, Trerotoli P, Bartolomeo N, Serio G, Cesana G, Corrao G. Record-linkage procedures in epidemiology: an Italian multicentre study. Epidemiol Prev. 2008;32:79–88.PubMed
25.
26.
Tunstall-Pedoe H. Diagnosis, measurements and surveillance of coronary events. Int J Epidemiol. 1989;18(Suppl 1):169–73.CrossRef
27.
Tunstall-Pedoe H. Problems with criteria and quality control in the registration of coronary events in the MONICA study. Acta Med Scand Suppl. 1998;728:17–25.
28.
Bonzini M, Ferrario MM, Bertù L, Bono G, Vidale S, Veronesi G, Chambless L, Cesana GC. Temporal trends in ischemic and hemorrhagic strokes in northern Italy: results from the cardiovascular monitoring unit in northern Italy population-based register, 1998–2004. Neuroepidemiology. 2012;39:35–42.CrossRefPubMed
29.
Austin PC, Tu JV. Comparing clinical data with administrative data for producing acute myocardial infarction report cards. J R Stat Soc. 2006;169:115–26.CrossRef
30.
Dunlay SM, Redfield MM, Weston SA, Therneau TM, Hall Long K, et al. Hospitalizations after heart failure diagnosis a community perspective. J Am Coll Cardiol. 2009;54:1695–702.CrossRefPubMedPubMedCentral
31.
McCormick N, Lacaille D, Bhole V, Avina-Zubieta JA. Validity of heart failure diagnoses in administrative databases: a systematic review and meta-analysis. PLoS One. 2014;9:e104519.CrossRefPubMedPubMedCentral
32.
Rosvall M, Ohlsson H, Hansen O, Chaix B, Merlo J. Auditing patient registration in the Swedish quality register for acute coronary syndrome. Scand J Public Health. 2010;38:533–40.CrossRefPubMed
33.
Ladouceur M, Rahme E, Pineau CA, Joseph L. Robustness of prevalence estimates derived from misclassified data from administrative databases. Biometrics. 2007;63:272–9.CrossRefPubMed
34.
Lin KJ, Garcia Rodriguez LA, Hernandez-Diaz S. Systematic review of peptic ulcer disease incidence rates: do studies without validation provide reliable estimates? Pharmacoepidemiol Drug Saf. 2011;20:718–28.CrossRefPubMed
35.
36.
Metzger MH, Durand T, Lallich S, Salamon R, Castets P. The use of regional platforms for managing electronic health records for the production of regional public health indicators in France. BMC Med Inform Decis Mak. 2012;12:28.CrossRefPubMedPubMedCentral
37.
REGULATION (EU) 2016/679 OF THE EUROPEAN PARLIAMENT AND OF THE COUNCIL of 27 April 2016 on the protection of natural persons with regard to the processing of personal data and on the free movement of such data, and repealing Directive 95/46/EC (General Data Protection Regulation).
Metadata
Title
Cardiovascular diseases monitoring: lessons from population-based registries to address future opportunities and challenges in Europe
Authors
Luigi Palmieri
Giovanni Veronesi
Giovanni Corrao
Giuseppe Traversa
Marco M. Ferrario
Giovanni Nicoletti
Anna Di Lonardo
Chiara Donfrancesco
Flavia Carle
Simona Giampaoli
Publication date
01-12-2018
Publisher
BioMed Central
Published in
Archives of Public Health / Issue 1/2018
Electronic ISSN: 2049-3258
DOI
https://doi.org/10.1186/s13690-018-0283-3

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