Skip to main content
Top
Published in: Israel Journal of Health Policy Research 1/2019

Open Access 01-12-2019 | Public Health | Integrative article

Fake bus stops for persons with dementia? On truth and benevolent lies in public health

Author: Pauline Lorey

Published in: Israel Journal of Health Policy Research | Issue 1/2019

Login to get access

Abstract

Fake bus stops are one strategy to keep persons with dementia (PwD) from wandering. By setting up authentic looking shelters and benches in hallways or gardens, nursing homes create the illusion of bus stops, for the purpose of preventing wandering PwD from leaving the facility and getting lost. By attracting wandering PwD to sit down and wait for the bus, they can be supervised more easily by caregivers. However, concerns are expressed that the use of fake bus stops could cause more harm than good for PwD, due to their deceptive nature and the potential stigmatisation of individuals seated at a fake bus stop. This article discusses the ethical aspects of using fake bus stops and outlines considerations prior to setting up fake bus stops in nursing homes in keeping with good clinical practice in dementia care. Moreover, the article assesses whether or not fake bus stops can be ethically justifiable, and if so, how they can be ethically justified and implemented in Israeli and other facilities for PwD.
Literature
4.
go back to reference Studios W. A bus to nowhere. In: Radiolab; 2011. Studios W. A bus to nowhere. In: Radiolab; 2011.
5.
go back to reference Tuckett AG. The experience of lying in dementia care: a qualitative study. Nurs Ethics. 2012;19(1):7–20.PubMed Tuckett AG. The experience of lying in dementia care: a qualitative study. Nurs Ethics. 2012;19(1):7–20.PubMed
6.
go back to reference Solanas A, Martinez-Balleste A, Perez-Martinez P, Fernandez de la Pena A, Ramos J. M-Carer: privacy-aware monitoring for people with mild cognitive impairment and dementia. IEEE Journal on Selected Areas in Communications. 2013;31(9). Solanas A, Martinez-Balleste A, Perez-Martinez P, Fernandez de la Pena A, Ramos J. M-Carer: privacy-aware monitoring for people with mild cognitive impairment and dementia. IEEE Journal on Selected Areas in Communications. 2013;31(9).
7.
go back to reference Beckett S. Waiting for Godot. New York: Grove Press; 1954. Beckett S. Waiting for Godot. New York: Grove Press; 1954.
8.
go back to reference Binz M: Placebus – waiting for Godot's bus. In. Germany; 2010. Binz M: Placebus – waiting for Godot's bus. In. Germany; 2010.
9.
go back to reference Graf-Wäspe J. The Real Truman Show? Über die Legitimität von Schein-Elementen in der Betreuung von Menschen mit Demenz. Ethik in der Medizin. 2016;28(1):5–19. Graf-Wäspe J. The Real Truman Show? Über die Legitimität von Schein-Elementen in der Betreuung von Menschen mit Demenz. Ethik in der Medizin. 2016;28(1):5–19.
10.
go back to reference Niccol A: The Truman Show. In. Edited by Weir P: Roadshow Distribution; 1998. Niccol A: The Truman Show. In. Edited by Weir P: Roadshow Distribution; 1998.
11.
go back to reference Brodsky J, Shnoor Y, Beer S, Neville A: The 65+ Population in Israel 2018. In.: Myers-JDC-Brookdale; 2018. Brodsky J, Shnoor Y, Beer S, Neville A: The 65+ Population in Israel 2018. In.: Myers-JDC-Brookdale; 2018.
12.
go back to reference Statista: Share of the population aged 65 and over in European countries in 2017 [Anteil der Bevölkerung im Alter ab 65 Jahren in Ländern Europas im Jahr 2016]. In. Hamburg; 2017. Statista: Share of the population aged 65 and over in European countries in 2017 [Anteil der Bevölkerung im Alter ab 65 Jahren in Ländern Europas im Jahr 2016]. In. Hamburg; 2017.
13.
go back to reference Chernichovsky D, Kaplan A, Regev E, Stessman J. Long-term Care in Israel: funding and organization issues. Jerusalem: Taub Center for Social Policy Studies in Israel; 2017. Chernichovsky D, Kaplan A, Regev E, Stessman J. Long-term Care in Israel: funding and organization issues. Jerusalem: Taub Center for Social Policy Studies in Israel; 2017.
15.
go back to reference Finkel SI, Costa E Silva J, Cohen G, Miller S, Sartorius N. Behavioral and psychological signs and symptoms of dementia: a consensus statement on current knowledge and implications for research and treatment. Int Psychogeriatr. 1997;8(S3):497–500. Finkel SI, Costa E Silva J, Cohen G, Miller S, Sartorius N. Behavioral and psychological signs and symptoms of dementia: a consensus statement on current knowledge and implications for research and treatment. Int Psychogeriatr. 1997;8(S3):497–500.
16.
go back to reference Cohen-Mansfield J, Dakheel-Ali M, Marx MS, Thein K, Regier NG. Which unmet needs contribute to behavior problems in persons with advanced dementia? Psychiatry Res. 2015;228(1):59–64.PubMedPubMedCentral Cohen-Mansfield J, Dakheel-Ali M, Marx MS, Thein K, Regier NG. Which unmet needs contribute to behavior problems in persons with advanced dementia? Psychiatry Res. 2015;228(1):59–64.PubMedPubMedCentral
17.
go back to reference Sourial R, McCusker J, Cole M, Abrahamowicz M. Agitation in demented patients in an acute care hospital: prevalence, disruptiveness, and staff burden. Int Psychogeriatr. 2001;13(2):183–97.PubMed Sourial R, McCusker J, Cole M, Abrahamowicz M. Agitation in demented patients in an acute care hospital: prevalence, disruptiveness, and staff burden. Int Psychogeriatr. 2001;13(2):183–97.PubMed
18.
go back to reference Foster C, Herring J, Doron I. The law and ethics of dementia. Oxford: Hart Publishing; 2014. Foster C, Herring J, Doron I. The law and ethics of dementia. Oxford: Hart Publishing; 2014.
19.
go back to reference Herrmann N, Lanctôt KL, Sambrook R, Lesnikova N, Hébert R, McCracken P, Robillard A, Nguyen E. The contribution of neuropsychiatric symptoms to the cost of dementia care. Int J Geriatr Psychiatry. 2006;21(10):972–6.PubMed Herrmann N, Lanctôt KL, Sambrook R, Lesnikova N, Hébert R, McCracken P, Robillard A, Nguyen E. The contribution of neuropsychiatric symptoms to the cost of dementia care. Int J Geriatr Psychiatry. 2006;21(10):972–6.PubMed
20.
go back to reference Livingston G, Kelly L, Lewis-Holmes E, Baio G, Morris S, Patel N, Omar RZ, Katona C, Cooper C. A systematic review of the clinical effectiveness and cost-effectiveness of sensory, psychological and behavioural interventions for managing agitation in older adults with dementia. Health Technol Assess. 2014;18(39):1.PubMedPubMedCentral Livingston G, Kelly L, Lewis-Holmes E, Baio G, Morris S, Patel N, Omar RZ, Katona C, Cooper C. A systematic review of the clinical effectiveness and cost-effectiveness of sensory, psychological and behavioural interventions for managing agitation in older adults with dementia. Health Technol Assess. 2014;18(39):1.PubMedPubMedCentral
21.
go back to reference Creese B, Da Silva MV, Johar I, Ballard C. The modern role of antipsychotics for the treatment of agitation and psychosis in Alzheimer's disease. Expert Rev Neurother. 2018;18(6):461–7.PubMed Creese B, Da Silva MV, Johar I, Ballard C. The modern role of antipsychotics for the treatment of agitation and psychosis in Alzheimer's disease. Expert Rev Neurother. 2018;18(6):461–7.PubMed
22.
go back to reference Frankenthal D, Zandman-Goddard G, Ben-Muvhar Y, Porat-Katz BS. The impact of facility characteristics on the use of antipsychotic medications in nursing homes: a cross-sectional study. Isr J Health Policy Res. 2016;5(1):12.PubMedPubMedCentral Frankenthal D, Zandman-Goddard G, Ben-Muvhar Y, Porat-Katz BS. The impact of facility characteristics on the use of antipsychotic medications in nursing homes: a cross-sectional study. Isr J Health Policy Res. 2016;5(1):12.PubMedPubMedCentral
23.
go back to reference Blum NS. Deceptive practices in managing a family member with Alzheimer’s disease. Symb Interact. 1994;17:21–36. Blum NS. Deceptive practices in managing a family member with Alzheimer’s disease. Symb Interact. 1994;17:21–36.
24.
go back to reference James I, Wood-Mitchell A, Waterworth AM, Mackenzie L, Cunningham J. Lying to people with dementia: developing ethical guidelines for care settings. Int J Geriatr Psychiatry. 2006;21:800–1.PubMed James I, Wood-Mitchell A, Waterworth AM, Mackenzie L, Cunningham J. Lying to people with dementia: developing ethical guidelines for care settings. Int J Geriatr Psychiatry. 2006;21:800–1.PubMed
25.
go back to reference Tuckett A. Truth-telling in clinical practice and the arguments for and against: a review of the literature. Nurs Ethics. 2004;11:500–13.PubMed Tuckett A. Truth-telling in clinical practice and the arguments for and against: a review of the literature. Nurs Ethics. 2004;11:500–13.PubMed
26.
go back to reference Ekman P. Telling lies: clues to deceit in the marketplace, politics and marriage. New York: Norton; 1985. Ekman P. Telling lies: clues to deceit in the marketplace, politics and marriage. New York: Norton; 1985.
27.
go back to reference Kant I, Weischedel W. Schriften zur Ethik und Religionsphilosophie: zweiter Teil. Darmstadt: Wissenschaftliche Buchgesellschaft. 1786:1983. Kant I, Weischedel W. Schriften zur Ethik und Religionsphilosophie: zweiter Teil. Darmstadt: Wissenschaftliche Buchgesellschaft. 1786:1983.
28.
go back to reference Pendleton J: Truth telling and dementia: A qualitative study. Manchester, UK: Univesity of Manchester; 2006. Pendleton J: Truth telling and dementia: A qualitative study. Manchester, UK: Univesity of Manchester; 2006.
29.
go back to reference Elvisha R, James I, Milnea D. Lying in dementia care: an example of a culture that deceives in people’s best interests. Aging Ment Health. 2010;14(3):255–62. Elvisha R, James I, Milnea D. Lying in dementia care: an example of a culture that deceives in people’s best interests. Aging Ment Health. 2010;14(3):255–62.
30.
go back to reference James I, Caiazza R. Therapeutic lies in dementia care: should psychologists teach others to be person-Centred liars? Behav Cogn Psychother. 2018;46:454–62.PubMed James I, Caiazza R. Therapeutic lies in dementia care: should psychologists teach others to be person-Centred liars? Behav Cogn Psychother. 2018;46:454–62.PubMed
31.
go back to reference Day AM, James IA, Meyer TD, Lee DR. Do people with dementia find lies and deception in dementia care acceptable? Aging Ment Health. 2011;15(7):822–9.PubMed Day AM, James IA, Meyer TD, Lee DR. Do people with dementia find lies and deception in dementia care acceptable? Aging Ment Health. 2011;15(7):822–9.PubMed
32.
go back to reference Sherratt C. More questions than answers. J Dement Care. 2007;15(4):12. Sherratt C. More questions than answers. J Dement Care. 2007;15(4):12.
33.
go back to reference Walker B. Communication: building up a toolkit of helpful responses. J Dement Care. 2007;15(1):28–31. Walker B. Communication: building up a toolkit of helpful responses. J Dement Care. 2007;15(1):28–31.
34.
go back to reference Pool J. Facts or feelings: do we need to choose? J Dement Care. 2007;15(2):27. Pool J. Facts or feelings: do we need to choose? J Dement Care. 2007;15(2):27.
35.
go back to reference Mueller-Hergl C. Distress does not justify lying. J Dement Care. 2007;15(4):10–1. Mueller-Hergl C. Distress does not justify lying. J Dement Care. 2007;15(4):10–1.
36.
go back to reference Kirtley A, Williamson T. What is truth? An inquiry about truth and lying in dementia care. London, UK: Mental Health Foundation; 2016. Kirtley A, Williamson T. What is truth? An inquiry about truth and lying in dementia care. London, UK: Mental Health Foundation; 2016.
37.
go back to reference Schermer M. Nothing but the truth? On truth and deception in dementia care. Bioethics. 2007;21(1):13–22.PubMed Schermer M. Nothing but the truth? On truth and deception in dementia care. Bioethics. 2007;21(1):13–22.PubMed
38.
go back to reference Fossey J, Ballard C, Juszczak E, James I, Alder N, Jacoby R, Howard R. Effect of enhanced psychosocial care on antipsychotic use in nursing home residents with severe dementia: cluster randomised trial. Bmj. 2006;332(7544):756–61.PubMedPubMedCentral Fossey J, Ballard C, Juszczak E, James I, Alder N, Jacoby R, Howard R. Effect of enhanced psychosocial care on antipsychotic use in nursing home residents with severe dementia: cluster randomised trial. Bmj. 2006;332(7544):756–61.PubMedPubMedCentral
39.
go back to reference Waldemar G, Dubois B, Emre M, Georges J, McKeith I, Rossor M, Scheltens P, Tariska P, Winblad B. Recommendations for the diagnosis and management of Alzheimer's disease and other disorders associated with dementia: EFNS guideline. Eur J Neurol. 2007;14(1):e1–e26.PubMed Waldemar G, Dubois B, Emre M, Georges J, McKeith I, Rossor M, Scheltens P, Tariska P, Winblad B. Recommendations for the diagnosis and management of Alzheimer's disease and other disorders associated with dementia: EFNS guideline. Eur J Neurol. 2007;14(1):e1–e26.PubMed
41.
go back to reference Culley H, Barber R, Hope A. Therapeutic lying in dementia care. Nurs Stand. 2013;28(1):35–9.PubMed Culley H, Barber R, Hope A. Therapeutic lying in dementia care. Nurs Stand. 2013;28(1):35–9.PubMed
42.
go back to reference Mackenzie L, James I, Morse R, Mukaetova-Ladinska E, Reichelt F. A pilot study on the use of dolls for peoplec with dementia. Age Ageing. 2006;35(2):441–4.PubMed Mackenzie L, James I, Morse R, Mukaetova-Ladinska E, Reichelt F. A pilot study on the use of dolls for peoplec with dementia. Age Ageing. 2006;35(2):441–4.PubMed
43.
go back to reference Livingston G, Johnston K, Katona C, Paton J, Lyketsos CG, Psychiatry OATFWFB. Systematic review of psychological approaches to the management of neuropsychiatric symptoms of dementia. Am J Psychiatr. 2005;162(11):1996–2021.PubMed Livingston G, Johnston K, Katona C, Paton J, Lyketsos CG, Psychiatry OATFWFB. Systematic review of psychological approaches to the management of neuropsychiatric symptoms of dementia. Am J Psychiatr. 2005;162(11):1996–2021.PubMed
44.
go back to reference Price J, Hermans D, Grimley EJ. Subjective barriers to prevent wandering of cognitively impaired people. Cochrane Database Syst Rev. 2000;(4):1–12. Price J, Hermans D, Grimley EJ. Subjective barriers to prevent wandering of cognitively impaired people. Cochrane Database Syst Rev. 2000;(4):1–12.
45.
go back to reference Landau R, Werner S. Ethical aspects of using GPS for tracking people with dementia: recommendations for practice. Int Psychogeriatr. 2012;24(3):358–66.PubMed Landau R, Werner S. Ethical aspects of using GPS for tracking people with dementia: recommendations for practice. Int Psychogeriatr. 2012;24(3):358–66.PubMed
48.
go back to reference Hurley D. Village of the demented’ draws praise as new care model. In: Neurology today; 2012. p. 12–3. Hurley D. Village of the demented’ draws praise as new care model. In: Neurology today; 2012. p. 12–3.
49.
go back to reference Glass A. Innovative seniors housing and care models: what we can learn from the Netherlands. Seniors Housing and Care Journal. 2014;22(1):74–81. Glass A. Innovative seniors housing and care models: what we can learn from the Netherlands. Seniors Housing and Care Journal. 2014;22(1):74–81.
50.
go back to reference Pusch A, Naumann A, Brandt M, Hurtienne J. Towards designing a long-term assistive environment for people with dementia: Include; 2013. Pusch A, Naumann A, Brandt M, Hurtienne J. Towards designing a long-term assistive environment for people with dementia: Include; 2013.
51.
go back to reference Beauchamp TL, Childress JF: Principles of biomedical ethics: Oxford University Press, USA; 2001. Beauchamp TL, Childress JF: Principles of biomedical ethics: Oxford University Press, USA; 2001.
Metadata
Title
Fake bus stops for persons with dementia? On truth and benevolent lies in public health
Author
Pauline Lorey
Publication date
01-12-2019
Publisher
BioMed Central
Published in
Israel Journal of Health Policy Research / Issue 1/2019
Electronic ISSN: 2045-4015
DOI
https://doi.org/10.1186/s13584-019-0301-0

Other articles of this Issue 1/2019

Israel Journal of Health Policy Research 1/2019 Go to the issue