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Published in: Reproductive Health 1/2015

Open Access 01-12-2015 | Study protocol

Beyond repair - family and community reintegration after obstetric fistula surgery: study protocol

Authors: Josaphat Byamugisha, Alison El Ayadi, Susan Obore, Haruna Mwanje, Othman Kakaire, Justus Barageine, Felicia Lester, Elizabeth Butrick, Abner Korn, Hadija Nalubwama, Sharon Knight, Suellen Miller

Published in: Reproductive Health | Issue 1/2015

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Abstract

Background

Obstetric fistula is a debilitating birth injury that affects an estimated 2–3 million women globally, most in sub-Saharan Africa and Asia. The urinary and/or fecal incontinence associated with fistula affects women physically, psychologically and socioeconomically. Surgical management of fistula is available with clinical success rates ranging from 65–95 %. Previous research on fistula repair outcomes has focused primarily on clinical outcomes without considering the broader goal of successful reintegration into family and community.
The objectives for this study are to understand the process of family and community reintegration post fistula surgery and develop a measurement tool to assess long-term success of post-surgical family and community reintegration.

Methods

This study is an exploratory sequential mixed-methods design including a preliminary qualitative component comprising in-depth interviews and focus group discussions to explore reintegration to family and community after fistula surgery. These results will be used to develop a reintegration tool, and the tool will be validated within a small longitudinal cohort (n = 60) that will follow women for 12 months after obstetric fistula surgery. Medical record abstraction will be conducted for patients managed within the fistula unit. Ethical approval for the study has been granted.

Discussion

This study will provide information regarding the success of family and community reintegration among women returning home after obstetric fistula surgery. The clinical and research community can utilize the standardized measurement tool in future studies of this patient population.
Literature
1.
go back to reference Wall LL. Obstetric vesicovaginal fistula as an international public-health problem. Lancet. 2006;368(9542):1201–9.CrossRefPubMed Wall LL. Obstetric vesicovaginal fistula as an international public-health problem. Lancet. 2006;368(9542):1201–9.CrossRefPubMed
2.
go back to reference Maheu-Giroux M, Filippi V, Samadoulougou S, Castro MC, Maulet N, Meda N, et al. Prevalence of symptoms of vaginal fistula in 19 sub-Saharan Africa countries: a meta-analysis of national household survey data. Lancet Glob Health. 2015;3(5):e271–8.CrossRefPubMed Maheu-Giroux M, Filippi V, Samadoulougou S, Castro MC, Maulet N, Meda N, et al. Prevalence of symptoms of vaginal fistula in 19 sub-Saharan Africa countries: a meta-analysis of national household survey data. Lancet Glob Health. 2015;3(5):e271–8.CrossRefPubMed
3.
go back to reference Adler AJ, Ronsmans C, Calvert C, Filippi V. Estimating the prevalence of obstetric fistula: a systematic review and meta-analysis. BMC Pregnancy Childbirth. 2013;13:246.CrossRefPubMedPubMedCentral Adler AJ, Ronsmans C, Calvert C, Filippi V. Estimating the prevalence of obstetric fistula: a systematic review and meta-analysis. BMC Pregnancy Childbirth. 2013;13:246.CrossRefPubMedPubMedCentral
4.
go back to reference Stanton C, Holtz SA, Ahmed S. Challenges in measuring obstetric fistula. Int J Gynaecol Obstet. 2007;99 Suppl 1:S4–9.CrossRefPubMed Stanton C, Holtz SA, Ahmed S. Challenges in measuring obstetric fistula. Int J Gynaecol Obstet. 2007;99 Suppl 1:S4–9.CrossRefPubMed
5.
go back to reference Tuncalp O, Tripathi V, Landry E, Stanton CK, Ahmed S. Measuring the incidence and prevalence of obstetric fistula: approaches, needs and recommendations. Bull World Health Organ. 2015;93(1):60–2.CrossRefPubMed Tuncalp O, Tripathi V, Landry E, Stanton CK, Ahmed S. Measuring the incidence and prevalence of obstetric fistula: approaches, needs and recommendations. Bull World Health Organ. 2015;93(1):60–2.CrossRefPubMed
6.
go back to reference Ahmed S, Holtz SA. Social and economic consequences of obstetric fistula: life changed forever? Int J Gynaecol Obstet. 2007;99 Suppl 1:S10–5.CrossRefPubMed Ahmed S, Holtz SA. Social and economic consequences of obstetric fistula: life changed forever? Int J Gynaecol Obstet. 2007;99 Suppl 1:S10–5.CrossRefPubMed
7.
go back to reference Browning A, Menber B. Women with obstetric fistula in Ethiopia: a 6-month follow-up after surgical treatment. BJOG. 2008;115:1564–9.CrossRefPubMed Browning A, Menber B. Women with obstetric fistula in Ethiopia: a 6-month follow-up after surgical treatment. BJOG. 2008;115:1564–9.CrossRefPubMed
8.
go back to reference Arrowsmith S, Hamlin EC, Wall LL. Obstructed labor injury complex: obstetric fistula formation and the multifaceted morbidity of maternal birth trauma in the developing world. Obstet Gynecol Surv. 1996;51(9):568–74.CrossRefPubMed Arrowsmith S, Hamlin EC, Wall LL. Obstructed labor injury complex: obstetric fistula formation and the multifaceted morbidity of maternal birth trauma in the developing world. Obstet Gynecol Surv. 1996;51(9):568–74.CrossRefPubMed
9.
go back to reference Roush KM. Social implications of obstetric fistula: an integrative review. J Midwifery Womens Health. 2009;54(2):e21–33.CrossRefPubMed Roush KM. Social implications of obstetric fistula: an integrative review. J Midwifery Womens Health. 2009;54(2):e21–33.CrossRefPubMed
10.
go back to reference Turan JM, Johnson K, Polan ML. Experiences of women seeking medical care for obstetric fistula in Eritrea: implications for prevention, treatment, and social reintegration. Glob Public Health. 2007;2(1):64–77.CrossRefPubMed Turan JM, Johnson K, Polan ML. Experiences of women seeking medical care for obstetric fistula in Eritrea: implications for prevention, treatment, and social reintegration. Glob Public Health. 2007;2(1):64–77.CrossRefPubMed
11.
go back to reference Siddle K, Mwambingu S, Malinga T, Fiander A. Psychosocial impact of obstetric fistula in women presenting for surgical care in Tanzania. Int Urogynecol J. 2013;24(7):1215–20.CrossRefPubMed Siddle K, Mwambingu S, Malinga T, Fiander A. Psychosocial impact of obstetric fistula in women presenting for surgical care in Tanzania. Int Urogynecol J. 2013;24(7):1215–20.CrossRefPubMed
12.
go back to reference Ashford, L. Obstetric fistula: cause of stigma and disability in less developed countries. Washington, D.C.: Population Reference Bureau; 2002. Ashford, L. Obstetric fistula: cause of stigma and disability in less developed countries. Washington, D.C.: Population Reference Bureau; 2002.
15.
go back to reference Tayler-Smith K, Zachariah R, Manzi M, van den Boogaard W, Vandeborne A, Bishinga A, et al. Obstetric Fistula in Burundi: a comprehensive approach to managing women with this neglected disease -- R1. BMC Pregnancy Childbirth. 2013;13(1):164.CrossRefPubMedPubMedCentral Tayler-Smith K, Zachariah R, Manzi M, van den Boogaard W, Vandeborne A, Bishinga A, et al. Obstetric Fistula in Burundi: a comprehensive approach to managing women with this neglected disease -- R1. BMC Pregnancy Childbirth. 2013;13(1):164.CrossRefPubMedPubMedCentral
16.
go back to reference Arrowsmith, S.D., Ruminjo, J, Landry, E.G.. Current practices in treatment of female genital fistula: a cross sectional study. BMC Pregnancy Childbirth, 2010;10:73. doi:10.1186/1471-2393-10-73. Arrowsmith, S.D., Ruminjo, J, Landry, E.G.. Current practices in treatment of female genital fistula: a cross sectional study. BMC Pregnancy Childbirth, 2010;10:73. doi:10.​1186/​1471-2393-10-73.
17.
go back to reference Browning A. Risk factors for developing residual urinary incontinence after obstetric fistula repair. Br J Obstet Gynaecol. 2006;113:482–5.CrossRef Browning A. Risk factors for developing residual urinary incontinence after obstetric fistula repair. Br J Obstet Gynaecol. 2006;113:482–5.CrossRef
18.
go back to reference Wall, L.L., S.D. Arrowsmith, N.D. Briggs, and A. Lassey. Urinary incontinence in the developing world: The Obstetric Fistula, in Incontinence, P. Abrams, et al., Editors. 2002, Health Publication Ltd: Plymouth, U.K. Wall, L.L., S.D. Arrowsmith, N.D. Briggs, and A. Lassey. Urinary incontinence in the developing world: The Obstetric Fistula, in Incontinence, P. Abrams, et al., Editors. 2002, Health Publication Ltd: Plymouth, U.K.
19.
go back to reference Wall LL. Dead mothers and injured wives: the social context of maternal morbidity and mortality among the Hausa of northern Nigeria. Stud Fam Plann. 1998;29(4):341–59.CrossRefPubMed Wall LL. Dead mothers and injured wives: the social context of maternal morbidity and mortality among the Hausa of northern Nigeria. Stud Fam Plann. 1998;29(4):341–59.CrossRefPubMed
20.
go back to reference Pope R, Bangser M, Requejo JH. Restoring dignity: Social reintegration after obstetric fistula repair in Ukerewe, Tanzania. Glob Public Health. 2011;6(8):859–73.CrossRefPubMed Pope R, Bangser M, Requejo JH. Restoring dignity: Social reintegration after obstetric fistula repair in Ukerewe, Tanzania. Glob Public Health. 2011;6(8):859–73.CrossRefPubMed
21.
go back to reference Landry E, Frajzyngier V, Ruminjo J, Asiimwe F, Barry TH, Bello A, et al. Profiles and experiences of women undergoing genital fistula repair: Findings from five countries. Glob Public Health. 2013;8(8):926–42.CrossRefPubMedPubMedCentral Landry E, Frajzyngier V, Ruminjo J, Asiimwe F, Barry TH, Bello A, et al. Profiles and experiences of women undergoing genital fistula repair: Findings from five countries. Glob Public Health. 2013;8(8):926–42.CrossRefPubMedPubMedCentral
22.
go back to reference Nielsen HS, Lindberg L, Nygaard U, Aytenfisu H, Johnston OL, Sorensen B, et al. A community-based long-term follow up of women undergoing obstetric fistula repair in rural Ethiopia. BJOG. 2009;116(9):1258–64.CrossRefPubMed Nielsen HS, Lindberg L, Nygaard U, Aytenfisu H, Johnston OL, Sorensen B, et al. A community-based long-term follow up of women undergoing obstetric fistula repair in rural Ethiopia. BJOG. 2009;116(9):1258–64.CrossRefPubMed
23.
go back to reference Maulet N, Keita M, Macq J. Medico-social pathways of obstetric fistula patients in Mali and Niger: an 18-month cohort follow-up. Trop Med Int Health. 2013;18(5):524–33.CrossRefPubMed Maulet N, Keita M, Macq J. Medico-social pathways of obstetric fistula patients in Mali and Niger: an 18-month cohort follow-up. Trop Med Int Health. 2013;18(5):524–33.CrossRefPubMed
24.
go back to reference Mselle LT, Moland KM, Evjen-Olsen B, Mvungi A, Kohi TW. “I am nothing”: experiences of loss among women suffering from severe birth injuries in Tanzania. BMC Womens Health. 2011;11:49.CrossRefPubMedPubMedCentral Mselle LT, Moland KM, Evjen-Olsen B, Mvungi A, Kohi TW. “I am nothing”: experiences of loss among women suffering from severe birth injuries in Tanzania. BMC Womens Health. 2011;11:49.CrossRefPubMedPubMedCentral
25.
go back to reference Creswell JW, Clark VLP. Designing and conducting mixed methods research. Thousand Oaks: SAGE Publications, Inc.; 2011. Creswell JW, Clark VLP. Designing and conducting mixed methods research. Thousand Oaks: SAGE Publications, Inc.; 2011.
26.
go back to reference Klovning A, Avery K, Sandvik H, Hunskaar S. Comparison of two questionnaires for assessing the severity of urinary incontinence: The ICIQ-UI SF versus the incontinence severity index. Neurourol Urodyn. 2009;28(5):411–5.CrossRefPubMed Klovning A, Avery K, Sandvik H, Hunskaar S. Comparison of two questionnaires for assessing the severity of urinary incontinence: The ICIQ-UI SF versus the incontinence severity index. Neurourol Urodyn. 2009;28(5):411–5.CrossRefPubMed
27.
go back to reference Lorig K, Steward A, Ritter P, Gonzalez V, Laurent D, Lynch J, et al. Outcome measures for health education and other health care interventions. Thousand Oaks: Sage Publications; 1996. Lorig K, Steward A, Ritter P, Gonzalez V, Laurent D, Lynch J, et al. Outcome measures for health education and other health care interventions. Thousand Oaks: Sage Publications; 1996.
28.
go back to reference Bolton P, Wilk CM, Ndogoni L. Assessment of depression prevalence in rural Uganda using symptom and function criteria. Soc Psychiatry Psychiatr Epidemiol. 2004;39(6):442–7.CrossRefPubMed Bolton P, Wilk CM, Ndogoni L. Assessment of depression prevalence in rural Uganda using symptom and function criteria. Soc Psychiatry Psychiatr Epidemiol. 2004;39(6):442–7.CrossRefPubMed
29.
go back to reference Derogatis LR, Lipman RS, Rickels K, Uhlenhuth EH, Covi L. The Hopkins Symptom Checklist (HSCL): a self-report symptom inventory. Behav Sci. 1974;19(1):1–15.CrossRefPubMed Derogatis LR, Lipman RS, Rickels K, Uhlenhuth EH, Covi L. The Hopkins Symptom Checklist (HSCL): a self-report symptom inventory. Behav Sci. 1974;19(1):1–15.CrossRefPubMed
30.
go back to reference Martin F, Russell S, Seeley J. The WHOQOL BREF questionnaire in Luganda: Validation with a sample including people living with HIV in Uganda. Working Paper 46. Norwich: School of International Development, University of East Anglia; 2013. Martin F, Russell S, Seeley J. The WHOQOL BREF questionnaire in Luganda: Validation with a sample including people living with HIV in Uganda. Working Paper 46. Norwich: School of International Development, University of East Anglia; 2013.
31.
go back to reference Webster J, Nicholas C, Velacott C, Cridland N, Fawcett L. Validation of the WHOQOL-BREF among women following childbirth. Aust N Z J Obstet Gynaecol. 2010;50(2):132–7.CrossRefPubMed Webster J, Nicholas C, Velacott C, Cridland N, Fawcett L. Validation of the WHOQOL-BREF among women following childbirth. Aust N Z J Obstet Gynaecol. 2010;50(2):132–7.CrossRefPubMed
32.
go back to reference Rosenberg M. Society and the adolescent self-image. Princeton: Princeton University Press; 1965.CrossRef Rosenberg M. Society and the adolescent self-image. Princeton: Princeton University Press; 1965.CrossRef
33.
go back to reference Holzemer WL, Uys LR, Chirwa ML, Greeff M, Makoae LN, Kohi TW, et al. Validation of the HIV/AIDS Stigma Instrument - PLWA (HASI-P). AIDS Care. 2007;19(8):1002–12.CrossRefPubMed Holzemer WL, Uys LR, Chirwa ML, Greeff M, Makoae LN, Kohi TW, et al. Validation of the HIV/AIDS Stigma Instrument - PLWA (HASI-P). AIDS Care. 2007;19(8):1002–12.CrossRefPubMed
34.
go back to reference Schnurr PP, Friedman MJ, Bernardy NC. Research on posttraumatic stress disorder: epidemiology, pathophysiology, and assessment. J Clin Psychol. 2002;58(8):877–89.CrossRefPubMed Schnurr PP, Friedman MJ, Bernardy NC. Research on posttraumatic stress disorder: epidemiology, pathophysiology, and assessment. J Clin Psychol. 2002;58(8):877–89.CrossRefPubMed
35.
go back to reference Prins A, Ouimette P, Kimerling R, Cameron RP, Hugelshofer DS, Shwaw-Hegwer J, et al. The primary care PTSD screen (PC_PTSD): development and operating characteristics. Primary Care Psychiatry. 2003;9:9–14.CrossRef Prins A, Ouimette P, Kimerling R, Cameron RP, Hugelshofer DS, Shwaw-Hegwer J, et al. The primary care PTSD screen (PC_PTSD): development and operating characteristics. Primary Care Psychiatry. 2003;9:9–14.CrossRef
36.
go back to reference Zimet GD, Powell SS, Farley GK, Werkman S, Berkoff KA. Psychometric characteristics of the Multidimensional Scale of Perceived Social Support. J Pers Assess. 1990;55(3–4):610–7.CrossRefPubMed Zimet GD, Powell SS, Farley GK, Werkman S, Berkoff KA. Psychometric characteristics of the Multidimensional Scale of Perceived Social Support. J Pers Assess. 1990;55(3–4):610–7.CrossRefPubMed
37.
go back to reference Nakigudde J, Musisi S, Ehnvall A, Airaksinen E, Agren H. Adaptation of the multidimensional scale of perceived social support in a Ugandan setting. Afr Health Sci. 2009;9 Suppl 1:S35–41.PubMedPubMedCentral Nakigudde J, Musisi S, Ehnvall A, Airaksinen E, Agren H. Adaptation of the multidimensional scale of perceived social support in a Ugandan setting. Afr Health Sci. 2009;9 Suppl 1:S35–41.PubMedPubMedCentral
38.
go back to reference Wood-Dauphinee S, Williams JI. Reintegration to Normal Living as a proxy to quality of life. J Chronic Dis. 1987;40(6):491–502.CrossRefPubMed Wood-Dauphinee S, Williams JI. Reintegration to Normal Living as a proxy to quality of life. J Chronic Dis. 1987;40(6):491–502.CrossRefPubMed
Metadata
Title
Beyond repair - family and community reintegration after obstetric fistula surgery: study protocol
Authors
Josaphat Byamugisha
Alison El Ayadi
Susan Obore
Haruna Mwanje
Othman Kakaire
Justus Barageine
Felicia Lester
Elizabeth Butrick
Abner Korn
Hadija Nalubwama
Sharon Knight
Suellen Miller
Publication date
01-12-2015
Publisher
BioMed Central
Published in
Reproductive Health / Issue 1/2015
Electronic ISSN: 1742-4755
DOI
https://doi.org/10.1186/s12978-015-0100-1

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