Skip to main content
Top
Published in: BMC Health Services Research 1/2019

Open Access 01-12-2019 | Care | Research article

Older persons’ experiences of adapting to daily life at home after hospital discharge: a qualitative metasummary

Authors: Christine Hillestad Hestevik, Marianne Molin, Jonas Debesay, Astrid Bergland, Asta Bye

Published in: BMC Health Services Research | Issue 1/2019

Login to get access

Abstract

Background

Researchers have shown that hospitalisation can decrease older persons’ ability to manage life at home after hospital discharge. Inadequate practices of discharge can be associated with adverse outcomes and an increased risk of readmission. This review systematically summarises qualitative findings portraying older persons’ experiences adapting to daily life at home after hospital discharge.

Methods

A metasummary of qualitative findings using Sandelowski and Barroso’s method. Data from 13 studies are included, following specific selection criteria, and categorised into four main themes.

Results

Four main themes emerged from the material: (1) Experiencing an insecure and unsafe transition, (2) settling into a new situation at home, (3) what would I do without my informal caregiver? and (4) experience of a paternalistic medical model.

Conclusions

The results emphasise the importance of assessment and planning, information and education, preparation of the home environment, the involvement of the older person and caregivers and supporting self-management in the discharge and follow-up care processes at home. Better communication between older persons, hospital providers and home care providers is needed to improve the coordination of care and facilitate recovery at home. The organisational structure may need to be redefined and reorganised to secure continuity of care and the wellbeing of older persons in transitional care situations.
Appendix
Available only for authorised users
Literature
1.
go back to reference Coleman EA, Smith JD, Frank JC, Eilertsen TB, Thiare JN, Kramer AM. Development and testing of a measure designed to assess the quality of care transitions. Int J Integr Care. 2002;2:e02.PubMedPubMedCentral Coleman EA, Smith JD, Frank JC, Eilertsen TB, Thiare JN, Kramer AM. Development and testing of a measure designed to assess the quality of care transitions. Int J Integr Care. 2002;2:e02.PubMedPubMedCentral
2.
go back to reference Volpato S, Onder G, Cavalieri M, Guerra G, Sioulis F, Maraldi C, Zuliani G, Fellin R. Italian Group of Pharmacoepidemiology in the elderly. Characteristics of nondisabled older patients developing new disability associated with medical illnesses and hospitalization. J Gen Intern Med. 2007;22(5):668–74.CrossRef Volpato S, Onder G, Cavalieri M, Guerra G, Sioulis F, Maraldi C, Zuliani G, Fellin R. Italian Group of Pharmacoepidemiology in the elderly. Characteristics of nondisabled older patients developing new disability associated with medical illnesses and hospitalization. J Gen Intern Med. 2007;22(5):668–74.CrossRef
3.
go back to reference Haines TP, Russell T, Brauer SG, Erwin S, Lane P, Urry S, Jasiewicz J, Condie P. Effectiveness of a video-based exercise programme to reduce falls and improve health-related quality of life among older adults discharged from hospital: a pilot randomized controlled trial. Clin Rehabil. 2009;23(11):973–85.CrossRef Haines TP, Russell T, Brauer SG, Erwin S, Lane P, Urry S, Jasiewicz J, Condie P. Effectiveness of a video-based exercise programme to reduce falls and improve health-related quality of life among older adults discharged from hospital: a pilot randomized controlled trial. Clin Rehabil. 2009;23(11):973–85.CrossRef
4.
go back to reference Hofhuis JG, Spronk PE, van Stel HF, Schrijvers GJ, Rommes JH, Bakker J. The impact of critical illness on perceived health-related quality of life during ICU treatment, hospital stay, and after hospital discharge: a long-term follow-up study. Chest. 2008;133(2):377–85.CrossRef Hofhuis JG, Spronk PE, van Stel HF, Schrijvers GJ, Rommes JH, Bakker J. The impact of critical illness on perceived health-related quality of life during ICU treatment, hospital stay, and after hospital discharge: a long-term follow-up study. Chest. 2008;133(2):377–85.CrossRef
5.
go back to reference McKeown F. The experiences of older people on discharge from hospital following assessment by the public health nurse. J Clin Nurs. 2007;16(3):469–76.CrossRef McKeown F. The experiences of older people on discharge from hospital following assessment by the public health nurse. J Clin Nurs. 2007;16(3):469–76.CrossRef
6.
go back to reference Forster AJ, Rose NGW, Van Walraven C, Stiell I. Adverse events following an emergency department visit. Qual Saf Health Care. 2007;16(1):17–22.CrossRef Forster AJ, Rose NGW, Van Walraven C, Stiell I. Adverse events following an emergency department visit. Qual Saf Health Care. 2007;16(1):17–22.CrossRef
7.
go back to reference Thorslund M, Silverstein M. Care for older adults in the welfare state: theories, policies and realities. In: Bengtson VL, Gans D, Putney NM, Silverstein M, editors. Handbook of theories of aging. 2nd ed. New York: Springer; 2009. p. 629–39. Thorslund M, Silverstein M. Care for older adults in the welfare state: theories, policies and realities. In: Bengtson VL, Gans D, Putney NM, Silverstein M, editors. Handbook of theories of aging. 2nd ed. New York: Springer; 2009. p. 629–39.
10.
go back to reference Mansah M, Fernandez R, Griffiths R, Chang E. Effectiveness of strategies to promote safe transition of elderly people across care settings. JBI Libr Syst Rev. 2009;7(24):1036–90.PubMed Mansah M, Fernandez R, Griffiths R, Chang E. Effectiveness of strategies to promote safe transition of elderly people across care settings. JBI Libr Syst Rev. 2009;7(24):1036–90.PubMed
11.
go back to reference Perry MA, Hudson S, Ardis K. ‘If I didn’t have anybody, what would I have done?’: Experiences of older adults and their discharge home after lower limb orthopaedic surgery. J Rehabil Med. 2011;43(10):916–22.CrossRef Perry MA, Hudson S, Ardis K. ‘If I didn’t have anybody, what would I have done?’: Experiences of older adults and their discharge home after lower limb orthopaedic surgery. J Rehabil Med. 2011;43(10):916–22.CrossRef
12.
go back to reference Rustad EC, Furnes B, Cronfalk BS, Dysvik E. Older patients’ experiences during care transition. Patient Prefer Adherence. 2016;10:769–79.CrossRef Rustad EC, Furnes B, Cronfalk BS, Dysvik E. Older patients’ experiences during care transition. Patient Prefer Adherence. 2016;10:769–79.CrossRef
13.
go back to reference Dossa A, Bokhour B, Hoenig H. Care transitions from the hospital to home for patients with mobility impairments: patient and family caregiver experiences. Rehabil Nurs. 2012;37(6):277–85.CrossRef Dossa A, Bokhour B, Hoenig H. Care transitions from the hospital to home for patients with mobility impairments: patient and family caregiver experiences. Rehabil Nurs. 2012;37(6):277–85.CrossRef
14.
go back to reference Knight DA, Thompson D, Mathie E, Dickinson A. ‘Seamless care? Just a list would have helped!’ Older people and their carer’s experiences of support with medication on discharge home from hospital. Health Expect. 2013;16(3):277–91.CrossRef Knight DA, Thompson D, Mathie E, Dickinson A. ‘Seamless care? Just a list would have helped!’ Older people and their carer’s experiences of support with medication on discharge home from hospital. Health Expect. 2013;16(3):277–91.CrossRef
15.
go back to reference Neiterman E, Wodchis WP, Bourgeault IL. Experiences of older adults in transition from hospital to community. Can J Aging. 2015;34(1):90–9.CrossRef Neiterman E, Wodchis WP, Bourgeault IL. Experiences of older adults in transition from hospital to community. Can J Aging. 2015;34(1):90–9.CrossRef
16.
go back to reference Rennke S, Ranji SR. Transitional care strategies from hospital to home: a review for the neurohospitalist. Neurohospitalist. 2015;5(1):35–42.CrossRef Rennke S, Ranji SR. Transitional care strategies from hospital to home: a review for the neurohospitalist. Neurohospitalist. 2015;5(1):35–42.CrossRef
17.
go back to reference Mesteig M, Helbostad JL, Sletvold O, Rosstad T, Saltvedt I. Unwanted incidents during transition of geriatric patients from hospital to home: a prospective observational study. BMC Health Serv Res. 2010;10:1.CrossRef Mesteig M, Helbostad JL, Sletvold O, Rosstad T, Saltvedt I. Unwanted incidents during transition of geriatric patients from hospital to home: a prospective observational study. BMC Health Serv Res. 2010;10:1.CrossRef
19.
go back to reference Foss C, Hofoss D. Elderly persons’ experiences of participation in hospital discharge process. Patient Educ Couns. 2011;85(1):68–73.CrossRef Foss C, Hofoss D. Elderly persons’ experiences of participation in hospital discharge process. Patient Educ Couns. 2011;85(1):68–73.CrossRef
20.
go back to reference Efraimsson E, Sandman P-O, Rasmussen BH. ‘They were talking about me’ – elderly women’s experiences of taking part in a discharge planning conference. Scand J Caring Sci. 2006;20(1):68–78.CrossRef Efraimsson E, Sandman P-O, Rasmussen BH. ‘They were talking about me’ – elderly women’s experiences of taking part in a discharge planning conference. Scand J Caring Sci. 2006;20(1):68–78.CrossRef
21.
go back to reference Bynum JP, Barre L, Reed C, Passow H. Participation of very old adults in healthcare decisions. Med Decis Mak. 2014;34(2):216–30.CrossRef Bynum JP, Barre L, Reed C, Passow H. Participation of very old adults in healthcare decisions. Med Decis Mak. 2014;34(2):216–30.CrossRef
22.
go back to reference Halvorsen K, Eide HK, Sortland K, Almendingen K. Documentation and communication of nutritional care for elderly hospitalized patients: perspectives of nurses and undergraduate nurses in hospitals and nursing homes. BMC Nurs. 2016;15:70.CrossRef Halvorsen K, Eide HK, Sortland K, Almendingen K. Documentation and communication of nutritional care for elderly hospitalized patients: perspectives of nurses and undergraduate nurses in hospitals and nursing homes. BMC Nurs. 2016;15:70.CrossRef
23.
go back to reference Bull MJ, Roberts J. Components of a proper hospital discharge for elders. J Adv Nurs. 2001;35(4):571–81.CrossRef Bull MJ, Roberts J. Components of a proper hospital discharge for elders. J Adv Nurs. 2001;35(4):571–81.CrossRef
24.
go back to reference Almborg AH, Ulander K, Thulin A, Berg S. Patients’ perceptions of their participation in discharge planning after acute stroke. J Clin Nurs. 2009;18(2):199–209.CrossRef Almborg AH, Ulander K, Thulin A, Berg S. Patients’ perceptions of their participation in discharge planning after acute stroke. J Clin Nurs. 2009;18(2):199–209.CrossRef
25.
go back to reference Birmingham J. Discharge planning: a collaboration between provider and payer case managers using Medicare’s conditions of participation. Lippincotts Case Manag. 2004;9(3):147–51.CrossRef Birmingham J. Discharge planning: a collaboration between provider and payer case managers using Medicare’s conditions of participation. Lippincotts Case Manag. 2004;9(3):147–51.CrossRef
26.
go back to reference Laugaland K, Aase K, Barach P. Interventions to improve patient safety in transitional care—a review of the evidence. Work. 2012;41(Suppl 1):2915–24.PubMed Laugaland K, Aase K, Barach P. Interventions to improve patient safety in transitional care—a review of the evidence. Work. 2012;41(Suppl 1):2915–24.PubMed
27.
go back to reference Allen J, Hutchinson AM, Brown R, Livingston PM. Quality care outcomes following transitional care interventions for older people from hospital to home: a systematic review. BMC Health Serv Res. 2014;14:346.CrossRef Allen J, Hutchinson AM, Brown R, Livingston PM. Quality care outcomes following transitional care interventions for older people from hospital to home: a systematic review. BMC Health Serv Res. 2014;14:346.CrossRef
28.
go back to reference Mistiaen P, Francke AL, Poot E. Interventions aimed at reducing problems in adult patients discharged from hospital to home: a systematic meta-review. BMC Health Serv Res. 2007;7:47.CrossRef Mistiaen P, Francke AL, Poot E. Interventions aimed at reducing problems in adult patients discharged from hospital to home: a systematic meta-review. BMC Health Serv Res. 2007;7:47.CrossRef
29.
go back to reference Bauer M, Fitzgerald L, Haesler E, Manfrin M. Hospital discharge planning for frail older people and their family. Are we delivering best practice? A review of the evidence. J Clin Nurs. 2009;18(18):2539–46.CrossRef Bauer M, Fitzgerald L, Haesler E, Manfrin M. Hospital discharge planning for frail older people and their family. Are we delivering best practice? A review of the evidence. J Clin Nurs. 2009;18(18):2539–46.CrossRef
30.
go back to reference Andreasen J, Lund H, Aadahl M, Sorensen EE. The experience of daily life of acutely admitted frail elderly patients one week after discharge from the hospital. Int J Qual Stud Health Well-being. 2015;10:27370.CrossRef Andreasen J, Lund H, Aadahl M, Sorensen EE. The experience of daily life of acutely admitted frail elderly patients one week after discharge from the hospital. Int J Qual Stud Health Well-being. 2015;10:27370.CrossRef
31.
go back to reference Sandelowski M, Barroso J. Handbook for synthesizing qualitative research. New York: Springer; 2007. Sandelowski M, Barroso J. Handbook for synthesizing qualitative research. New York: Springer; 2007.
33.
go back to reference Lewin S, Glenton C, Munthe-Kaas H, Carlsen B, Colvin CJ, Gulmezoglu M, Noyes J, Booth A, Garside R, Rashidian A. Using qualitative evidence in decision making for health and social interventions: an approach to assess confidence in findings from qualitative evidence syntheses (GRADE-CERQual). PLoS Med. 2015;12(10):e1001895.CrossRef Lewin S, Glenton C, Munthe-Kaas H, Carlsen B, Colvin CJ, Gulmezoglu M, Noyes J, Booth A, Garside R, Rashidian A. Using qualitative evidence in decision making for health and social interventions: an approach to assess confidence in findings from qualitative evidence syntheses (GRADE-CERQual). PLoS Med. 2015;12(10):e1001895.CrossRef
34.
go back to reference Creswell JW, Poth CN. Qualitative inquiry & research design: choosing among five approaches. 4th ed. SAGE: Los Angeles; 2018. Creswell JW, Poth CN. Qualitative inquiry & research design: choosing among five approaches. 4th ed. SAGE: Los Angeles; 2018.
35.
go back to reference Waibel S, Henao D, Aller MB, Vargas I, Vazquez ML. What do we know about patients’ perceptions of continuity of care? A meta-synthesis of qualitative studies. Int J Qual Health Care. 2012;24(1):39–48.CrossRef Waibel S, Henao D, Aller MB, Vargas I, Vazquez ML. What do we know about patients’ perceptions of continuity of care? A meta-synthesis of qualitative studies. Int J Qual Health Care. 2012;24(1):39–48.CrossRef
36.
go back to reference Allen J, Hutchinson AM, Brown R, Livingston APM. User experience and care integration in transitional care for older people from hospital to home: A meta-synthesis. Qual Health Res. 2017;27(1):24–36.CrossRef Allen J, Hutchinson AM, Brown R, Livingston APM. User experience and care integration in transitional care for older people from hospital to home: A meta-synthesis. Qual Health Res. 2017;27(1):24–36.CrossRef
37.
go back to reference Slatyer S, Toye C, Popescu A, Young J, Matthews A, Hill A, Williamson D. Early representation to hospital after discharge from an acute medical unit: perspectives of older patients, their family caregivers and health professionals. J Clin Nurs. 2013;22(3–4):445–55.CrossRef Slatyer S, Toye C, Popescu A, Young J, Matthews A, Hill A, Williamson D. Early representation to hospital after discharge from an acute medical unit: perspectives of older patients, their family caregivers and health professionals. J Clin Nurs. 2013;22(3–4):445–55.CrossRef
38.
go back to reference Jones GB. Older persons’ experiences of hospital patient education and self-management of their chronic diseases once discharged home. Dissertation Abstracts International: Section B: The Sciences and Engineering. 2016;77(2-B [E]). Jones GB. Older persons’ experiences of hospital patient education and self-management of their chronic diseases once discharged home. Dissertation Abstracts International: Section B: The Sciences and Engineering. 2016;77(2-B [E]).
39.
go back to reference Reay PA, Horner B, Duggan R. The patient’s experience of early discharge following total hip replacement. Int J Orthop Trauma Nurs. 2015;19(3):131–9.CrossRef Reay PA, Horner B, Duggan R. The patient’s experience of early discharge following total hip replacement. Int J Orthop Trauma Nurs. 2015;19(3):131–9.CrossRef
40.
go back to reference Dilworth S, Higgins I, Parker V. Feeling let down: an exploratory study of the experiences of older people who were readmitted to hospital following a recent discharge. Contemp Nurse. 2012;42(2):280–8.CrossRef Dilworth S, Higgins I, Parker V. Feeling let down: an exploratory study of the experiences of older people who were readmitted to hospital following a recent discharge. Contemp Nurse. 2012;42(2):280–8.CrossRef
41.
go back to reference Bagge M, Norris P, Heydon S, Tordoff J. Older people’s experiences of medicine changes on leaving hospital. RSAP. 2014;10(5):791–800.PubMed Bagge M, Norris P, Heydon S, Tordoff J. Older people’s experiences of medicine changes on leaving hospital. RSAP. 2014;10(5):791–800.PubMed
42.
go back to reference Rydeman I, Tornkvist L. Getting prepared for life at home in the discharge process—from the perspective of the older persons and their relatives. Int J Older People Nursing. 2010;5(4):254–64.CrossRef Rydeman I, Tornkvist L. Getting prepared for life at home in the discharge process—from the perspective of the older persons and their relatives. Int J Older People Nursing. 2010;5(4):254–64.CrossRef
43.
go back to reference Karlsson V, Bergbom I, Ringdal M, Jonsson A. After discharge home: a qualitative analysis of older ICU patients’ experiences and care needs. Scand J Caring Sci. 2016;30(4):749–56.CrossRef Karlsson V, Bergbom I, Ringdal M, Jonsson A. After discharge home: a qualitative analysis of older ICU patients’ experiences and care needs. Scand J Caring Sci. 2016;30(4):749–56.CrossRef
44.
go back to reference Calkins DR, Davis RB, Reiley P, Phillips RS, Pineo KL, Delbanco TL, Iezzoni LI. Patient-physician communication at hospital discharge and patients’ understanding of the postdischarge treatment plan. Arch Intern Med. 1997;157(9):1026–30.CrossRef Calkins DR, Davis RB, Reiley P, Phillips RS, Pineo KL, Delbanco TL, Iezzoni LI. Patient-physician communication at hospital discharge and patients’ understanding of the postdischarge treatment plan. Arch Intern Med. 1997;157(9):1026–30.CrossRef
45.
go back to reference Mavis B, Holmes Rovner M, Jorgenson S, Coffey J, Anand N, Bulica E, Gaulden CM, Peacock J, Ernst A. Patient participation in clinical encounters: a systematic review to identify self-report measures. Health Expect. 2015;18(6):1827–43.CrossRef Mavis B, Holmes Rovner M, Jorgenson S, Coffey J, Anand N, Bulica E, Gaulden CM, Peacock J, Ernst A. Patient participation in clinical encounters: a systematic review to identify self-report measures. Health Expect. 2015;18(6):1827–43.CrossRef
46.
47.
go back to reference O’Connor AM, Wennberg JE, Legare F, Llewellyn-Thomas HA, Moulton BW, Sepucha KR, Sodano AG, King JS. Toward the ‘tipping point’: decision aids and informed patient choice. Health Aff (Millwood). 2007;26(3):716–25.CrossRef O’Connor AM, Wennberg JE, Legare F, Llewellyn-Thomas HA, Moulton BW, Sepucha KR, Sodano AG, King JS. Toward the ‘tipping point’: decision aids and informed patient choice. Health Aff (Millwood). 2007;26(3):716–25.CrossRef
48.
go back to reference Hibbard JH, Peters E, Slovic P, Tusler M. Can patients be part of the solution? Views on their role in preventing medical errors. Med Care Res Rev. 2005;62(5):601–16.CrossRef Hibbard JH, Peters E, Slovic P, Tusler M. Can patients be part of the solution? Views on their role in preventing medical errors. Med Care Res Rev. 2005;62(5):601–16.CrossRef
49.
go back to reference Kristensson J, Hallberg IR, Ekwall AK. Frail older adults’ experiences of receiving healthcare and social services. J Gerontol Nurs. 2010;36(10):20–8 quiz 30-21.CrossRef Kristensson J, Hallberg IR, Ekwall AK. Frail older adults’ experiences of receiving healthcare and social services. J Gerontol Nurs. 2010;36(10):20–8 quiz 30-21.CrossRef
52.
go back to reference Pelikan JM, Röthlin F, Ganahl K. Comparative report of health literacy in eight EU member states. The HLS-EU Consortium; 2012. Pelikan JM, Röthlin F, Ganahl K. Comparative report of health literacy in eight EU member states. The HLS-EU Consortium; 2012.
53.
go back to reference Hesselink G, Zegers M, Vernooij-Dassen M, Barach P, Kalkman C, Flink M, Ohlen G, Olsson M, Bergenbrant S, Orrego C, et al. Improving patient discharge and reducing hospital readmissions by using intervention mapping. BMC Health Serv Res. 2014;14:389.CrossRef Hesselink G, Zegers M, Vernooij-Dassen M, Barach P, Kalkman C, Flink M, Ohlen G, Olsson M, Bergenbrant S, Orrego C, et al. Improving patient discharge and reducing hospital readmissions by using intervention mapping. BMC Health Serv Res. 2014;14:389.CrossRef
54.
go back to reference Coleman EA. Falling through the cracks: challenges and opportunities for improving transitional care for persons with continuous complex care needs. J Am Geriatr Soc. 2003;51(4):549–55.CrossRef Coleman EA. Falling through the cracks: challenges and opportunities for improving transitional care for persons with continuous complex care needs. J Am Geriatr Soc. 2003;51(4):549–55.CrossRef
55.
go back to reference Belcher VN, Fried TR, Agostini JV, Tinetti ME. Views of older adults on patient participation in medication-related decision making. J Gen Intern Med. 2006;21(4):298–303.CrossRef Belcher VN, Fried TR, Agostini JV, Tinetti ME. Views of older adults on patient participation in medication-related decision making. J Gen Intern Med. 2006;21(4):298–303.CrossRef
56.
go back to reference Ekdahl AW, Andersson L, Friedrichsen M. ‘They do what they think is the best for me.’ Frail elderly patients’ preferences for participation in their care during hospitalization. Patient Educ Couns 2010;80(2):233–240.CrossRef Ekdahl AW, Andersson L, Friedrichsen M. ‘They do what they think is the best for me.’ Frail elderly patients’ preferences for participation in their care during hospitalization. Patient Educ Couns 2010;80(2):233–240.CrossRef
57.
go back to reference Richardson S, Casey M, Hider P. Following the patient journey: older persons’ experiences of emergency departments and discharge. Accid Emerg Nursing. 2007;15(3):134–40.CrossRef Richardson S, Casey M, Hider P. Following the patient journey: older persons’ experiences of emergency departments and discharge. Accid Emerg Nursing. 2007;15(3):134–40.CrossRef
58.
go back to reference Bridges J, Flatley M, Meyer J. Older people’s and relatives’ experiences in acute care settings: systematic review and synthesis of qualitative studies. Int J Nurs Stud. 2010;47(1):89–107.CrossRef Bridges J, Flatley M, Meyer J. Older people’s and relatives’ experiences in acute care settings: systematic review and synthesis of qualitative studies. Int J Nurs Stud. 2010;47(1):89–107.CrossRef
60.
go back to reference Ebrahimi Z, Wilhelmson K, Moore CD, Jakobsson A. Frail elders’ experiences with and perceptions of health. Qual Health Res. 2012;22(11):1513–23.CrossRef Ebrahimi Z, Wilhelmson K, Moore CD, Jakobsson A. Frail elders’ experiences with and perceptions of health. Qual Health Res. 2012;22(11):1513–23.CrossRef
Metadata
Title
Older persons’ experiences of adapting to daily life at home after hospital discharge: a qualitative metasummary
Authors
Christine Hillestad Hestevik
Marianne Molin
Jonas Debesay
Astrid Bergland
Asta Bye
Publication date
01-12-2019
Publisher
BioMed Central
Keyword
Care
Published in
BMC Health Services Research / Issue 1/2019
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/s12913-019-4035-z

Other articles of this Issue 1/2019

BMC Health Services Research 1/2019 Go to the issue