Skip to main content
Top
Published in: BMC Health Services Research 1/2017

Open Access 01-12-2017 | Research article

Who is responsible for providing care? Investigating the role of care tasks and past experiences in a cross-sectional survey in the Netherlands

Authors: R. J. Hoefman, T. M. Meulenkamp, J. D. De Jong

Published in: BMC Health Services Research | Issue 1/2017

Login to get access

Abstract

Background

Many countries face substitution from formal to informal care. It is essential that a sufficient number of caregivers, such as family, friends or neighbors, are willing and able to lend care to address the needs of ill or elderly persons. We investigated whether the general public, who might become caregivers in the future, and current informal caregivers align with the shift to more informal caregiving.

Methods

We studied the views on the responsibility for care of the general public versus the government, and whether these views differed among groups with diverse past experiences with care in terms of own health problems or previous caregiving activities. Data (n = 1097) was collected among the Dutch Health Care Consumer Panel with a survey in October 2015. Multivariate analyses of the views on responsibility for care in general and for different types of care were performed using (i) health, (ii) informal care, and (iii) general background characteristics, among a sample of the general public and among a subgroup of current caregivers.

Results

The majority (67%) of the respondents would be willing to provide informal care in the future, when necessary. Respondents were more willing to provide support tasks than personal or nursing care activities. Among current caregivers, views on responsibility for care were associated with their past experience. Experiencing less burden of caregiving was associated with perceiving the general public as more responsible for personal or nursing care.

Conclusions

The results of this study show that substitution from formal to informal care is more in line with public views when support activities are concerned than personal or nursing care. In addition, burdened caregivers also consider the government more responsible for personal or nursing care. When handing over care tasks to the public domain a critical view is needed on which care tasks are most appropriate for this.
Appendix
Available only for authorised users
Literature
1.
go back to reference de Klerk M, de Boer A, Plaisier I, Schyns P, Kooiker S. Informal care: who performs what? [Informele hulp: wie doet er wat?]. The Netherlands Institute for Social Research. 2015; de Klerk M, de Boer A, Plaisier I, Schyns P, Kooiker S. Informal care: who performs what? [Informele hulp: wie doet er wat?]. The Netherlands Institute for Social Research. 2015;
2.
go back to reference Brouwer WB, Van Exel NJ, Van den Berg B, Van den Bos GA, Koopmanschap MA. Process utility from providing informal care: the benefit of caring. Health Policy. 2005;74(1):85–99.CrossRefPubMed Brouwer WB, Van Exel NJ, Van den Berg B, Van den Bos GA, Koopmanschap MA. Process utility from providing informal care: the benefit of caring. Health Policy. 2005;74(1):85–99.CrossRefPubMed
3.
go back to reference Chappell NL, Reid RC. Burden and well-being among caregivers: examining the distinction. Gerontologist. 2002;42(6):772–80.CrossRefPubMed Chappell NL, Reid RC. Burden and well-being among caregivers: examining the distinction. Gerontologist. 2002;42(6):772–80.CrossRefPubMed
4.
go back to reference van der Lee J, Bakker TJ, Duivenvoorden HJ, Dröes R. Multivariate models of subjective caregiver burden in dementia: a systematic review. Ageing Res Rev. 2014;15:76–93.CrossRefPubMed van der Lee J, Bakker TJ, Duivenvoorden HJ, Dröes R. Multivariate models of subjective caregiver burden in dementia: a systematic review. Ageing Res Rev. 2014;15:76–93.CrossRefPubMed
5.
go back to reference Schulz R, Beach SR. Caregiving as a risk factor for mortality: the caregiver health effects study. JAMA. 1999;282(23):2215–9.CrossRefPubMed Schulz R, Beach SR. Caregiving as a risk factor for mortality: the caregiver health effects study. JAMA. 1999;282(23):2215–9.CrossRefPubMed
6.
go back to reference Pinquart M, Sorensen S. Correlates of physical health of informal caregivers: a meta-analysis. J Gerontol B Psychol Sci Soc Sci 2007;62(2):P126–37. Pinquart M, Sorensen S. Correlates of physical health of informal caregivers: a meta-analysis. J Gerontol B Psychol Sci Soc Sci 2007;62(2):P126–37.
7.
go back to reference Beach SR, Schulz R, Yee JL, Jackson S. Negative and positive health effects of caring for a disabled spouse: longitudinal findings from the caregiver health effects study. Psychol Aging. 2000;15(2):259.CrossRefPubMed Beach SR, Schulz R, Yee JL, Jackson S. Negative and positive health effects of caring for a disabled spouse: longitudinal findings from the caregiver health effects study. Psychol Aging. 2000;15(2):259.CrossRefPubMed
8.
go back to reference Pinquart M, Sörensen S. Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis. Psychol Aging. 2003;18(2):250.CrossRefPubMed Pinquart M, Sörensen S. Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis. Psychol Aging. 2003;18(2):250.CrossRefPubMed
9.
go back to reference Joling KJ, van Hout HPJ, Schellevis FG, van der Horst HE, Scheltens P, Knol DL, van Marwijk HWJ. Incidence of depression and anxiety in the spouses of patients with dementia: a naturalistic cohort study of recorded morbidity with a 6-year follow-up. American Journal of Geriatric Psych. 2010;18(2):146.CrossRef Joling KJ, van Hout HPJ, Schellevis FG, van der Horst HE, Scheltens P, Knol DL, van Marwijk HWJ. Incidence of depression and anxiety in the spouses of patients with dementia: a naturalistic cohort study of recorded morbidity with a 6-year follow-up. American Journal of Geriatric Psych. 2010;18(2):146.CrossRef
10.
go back to reference Adelman RD, Tmanova LL, Delgado D, Dion S, Lachs MS. Caregiver burden: a clinical review. JAMA. 2014;311(10):1052–60.CrossRefPubMed Adelman RD, Tmanova LL, Delgado D, Dion S, Lachs MS. Caregiver burden: a clinical review. JAMA. 2014;311(10):1052–60.CrossRefPubMed
11.
go back to reference Hajek A, König H. Informal caregiving and subjective well-being: evidence of a population-based longitudinal study of older adults in Germany. J Am Med Dir Assoc. 2016;17(4):300–5.CrossRefPubMed Hajek A, König H. Informal caregiving and subjective well-being: evidence of a population-based longitudinal study of older adults in Germany. J Am Med Dir Assoc. 2016;17(4):300–5.CrossRefPubMed
12.
go back to reference Mladovsky P, Srivastava D, Cylus J, Karanikolos M, Evetovits T, Thomson S, McKee M. Health policy responses to the financial crisis in Europe. World Health Organization 2012 and World Health. 2012. Mladovsky P, Srivastava D, Cylus J, Karanikolos M, Evetovits T, Thomson S, McKee M. Health policy responses to the financial crisis in Europe. World Health Organization 2012 and World Health. 2012.
13.
go back to reference Colombo F, Llena-Nozal A, Mercier J, Tjadens F. Help wanted?: providing and paying for long-term care. OECD Publishing. 2011; Colombo F, Llena-Nozal A, Mercier J, Tjadens F. Help wanted?: providing and paying for long-term care. OECD Publishing. 2011;
15.
go back to reference Riedel M. Kraus M. Informal care provision in Europe: regulation and profile of providers. 2011;96 Riedel M. Kraus M. Informal care provision in Europe: regulation and profile of providers. 2011;96
17.
go back to reference National Alliance for Caregiving. Caregiving in the U.S., 2009.. 2009. National Alliance for Caregiving. Caregiving in the U.S., 2009.. 2009.
18.
go back to reference Verbeek-Oudijk D, Woittiez I, Eggink E, Putman L. Who cares in Europe? The Netherlands Institute for Social Research. 2014. Verbeek-Oudijk D, Woittiez I, Eggink E, Putman L. Who cares in Europe? The Netherlands Institute for Social Research. 2014.
19.
go back to reference Oudijk D, Woittiez I, de Boer A. More family responsibility, more informal care? The effect of motivation on the giving of informal care by people aged over 50 in the Netherlands compared to other European countries. Health Policy. 2011;101(3):228–35.CrossRefPubMed Oudijk D, Woittiez I, de Boer A. More family responsibility, more informal care? The effect of motivation on the giving of informal care by people aged over 50 in the Netherlands compared to other European countries. Health Policy. 2011;101(3):228–35.CrossRefPubMed
20.
go back to reference Daatland SO, Herlofson K. ‘lost solidarity’or ‘changed solidarity’: a comparative European view of normative family solidarity. Ageing Soc. 2003;23(05):537–60.CrossRef Daatland SO, Herlofson K. ‘lost solidarity’or ‘changed solidarity’: a comparative European view of normative family solidarity. Ageing Soc. 2003;23(05):537–60.CrossRef
21.
go back to reference Silverstein M, Parrott TM, Bengtson VL. Factors that predispose middle-aged sons and daughters to provide social support to older parents. J Marriage Fam. 1995:465–75. Silverstein M, Parrott TM, Bengtson VL. Factors that predispose middle-aged sons and daughters to provide social support to older parents. J Marriage Fam. 1995:465–75.
22.
go back to reference Doekhie KD, de Veer AJ, Rademakers JJ, Schellevis FG, Francke AL. Future elderly [Ouderen van de toekomst]. Netherlands institute for Health Services Research (NIVEL). 2014; Doekhie KD, de Veer AJ, Rademakers JJ, Schellevis FG, Francke AL. Future elderly [Ouderen van de toekomst]. Netherlands institute for Health Services Research (NIVEL). 2014;
23.
go back to reference Sadiraj K, Timmermans J, Ras M, de Boer A. The future of informal care. The Netherlands Institute for Social Research. 2009;16 Sadiraj K, Timmermans J, Ras M, de Boer A. The future of informal care. The Netherlands Institute for Social Research. 2009;16
24.
go back to reference Pickard L, Wittenberg R, Comas-Herrera A, Davies B, Darton R. Relying on informal care in the new century? Informal care for elderly people in England to 2031. Ageing Soc. 2000;20:745.CrossRef Pickard L, Wittenberg R, Comas-Herrera A, Davies B, Darton R. Relying on informal care in the new century? Informal care for elderly people in England to 2031. Ageing Soc. 2000;20:745.CrossRef
25.
go back to reference Mensink W, Boele A, van Houwelingen P. Voluntary help and support initiatives [Vrijwillige inzet en ondersteuningsinitiatieven]. The Netherlands Institute for Social Research. 2013; Mensink W, Boele A, van Houwelingen P. Voluntary help and support initiatives [Vrijwillige inzet en ondersteuningsinitiatieven]. The Netherlands Institute for Social Research. 2013;
26.
go back to reference Kolmer BG, Deirdre M, Tellings A, Gelissen J. Partnership in health care: views of family caregivers on sharing care responsibility with government, clients and health insurers. Med.& L. 2008;27:705. Kolmer BG, Deirdre M, Tellings A, Gelissen J. Partnership in health care: views of family caregivers on sharing care responsibility with government, clients and health insurers. Med.& L. 2008;27:705.
27.
go back to reference Mair CA, Quinones AR, Pasha MA. Care preferences among middle-aged and older adults with chronic disease in Europe: individual health care needs and National Health Care Infrastructure. Gerontologist. 2016;56(4):687–701.CrossRefPubMed Mair CA, Quinones AR, Pasha MA. Care preferences among middle-aged and older adults with chronic disease in Europe: individual health care needs and National Health Care Infrastructure. Gerontologist. 2016;56(4):687–701.CrossRefPubMed
28.
go back to reference Pinquart M, Sörensen S. Older adults' preferences for informal, formal, and mixed support for future care needs: a comparison of Germany and the United States. Int J Aging Hum Dev. 2002;54(4):291–314.CrossRefPubMed Pinquart M, Sörensen S. Older adults' preferences for informal, formal, and mixed support for future care needs: a comparison of Germany and the United States. Int J Aging Hum Dev. 2002;54(4):291–314.CrossRefPubMed
29.
go back to reference Verbakel C. Increasing public support for own responsibility in care? [Toenemende publieke steun voor meer eigen verantwoordelijkheid in de zorg?]. Bestuurswetenschappen. 2014;68(3):5–23.CrossRef Verbakel C. Increasing public support for own responsibility in care? [Toenemende publieke steun voor meer eigen verantwoordelijkheid in de zorg?]. Bestuurswetenschappen. 2014;68(3):5–23.CrossRef
30.
go back to reference Silverstein M, Gans D, Yang FM. Intergenerational support to aging parents: the role of norms and needs. J Fam Issues. 2006;27(8):1068–84.CrossRef Silverstein M, Gans D, Yang FM. Intergenerational support to aging parents: the role of norms and needs. J Fam Issues. 2006;27(8):1068–84.CrossRef
31.
go back to reference Santoro MS, Van Liew C, Holloway B, McKinnon S, Little T, Cronan TA. Honor thy parents: an ethnic multigroup analysis of filial responsibility, health perceptions, and caregiving decisions. Res Aging. 2016;38(6):665–88.CrossRefPubMed Santoro MS, Van Liew C, Holloway B, McKinnon S, Little T, Cronan TA. Honor thy parents: an ethnic multigroup analysis of filial responsibility, health perceptions, and caregiving decisions. Res Aging. 2016;38(6):665–88.CrossRefPubMed
32.
go back to reference Dellmann-Jenkins M, Brittain L. Young adults' attitudes toward filial responsibility and actual assistance to elderly family members. J Appl Gerontol. 2003;22(2):214–29.CrossRef Dellmann-Jenkins M, Brittain L. Young adults' attitudes toward filial responsibility and actual assistance to elderly family members. J Appl Gerontol. 2003;22(2):214–29.CrossRef
33.
go back to reference Gans D, Silverstein M. Norms of filial responsibility for aging parents across time and generations. J Marriage Fam. 2006;68(4):961–76.CrossRef Gans D, Silverstein M. Norms of filial responsibility for aging parents across time and generations. J Marriage Fam. 2006;68(4):961–76.CrossRef
34.
go back to reference Fokkema T, Ter Bekke S, Dykstra PA. Solidarity between parents and their adult children in Europe. NIDI report. 2008;76 Fokkema T, Ter Bekke S, Dykstra PA. Solidarity between parents and their adult children in Europe. NIDI report. 2008;76
35.
go back to reference Greenberg JS, Seltzer MM, Orsmond GI, Krauss MW. Siblings of adults with mental illness or mental retardation: current involvement and expectation of future caregiving. Psychiatr Serv. 1999;50(9):1214–9.CrossRefPubMed Greenberg JS, Seltzer MM, Orsmond GI, Krauss MW. Siblings of adults with mental illness or mental retardation: current involvement and expectation of future caregiving. Psychiatr Serv. 1999;50(9):1214–9.CrossRefPubMed
36.
go back to reference Burke MM, Taylor JL, Urbano R, Hodapp RM. Predictors of future caregiving by adult siblings of individuals with intellectual and developmental disabilities. American Journal on Intellectual and Developmental Disabilities. 2012;117(1):33–47.CrossRefPubMed Burke MM, Taylor JL, Urbano R, Hodapp RM. Predictors of future caregiving by adult siblings of individuals with intellectual and developmental disabilities. American Journal on Intellectual and Developmental Disabilities. 2012;117(1):33–47.CrossRefPubMed
37.
go back to reference Blekesaune M. Economic conditions and public attitudes to welfare policies. Eur Sociol Rev. 2007;23(3):393–403.CrossRef Blekesaune M. Economic conditions and public attitudes to welfare policies. Eur Sociol Rev. 2007;23(3):393–403.CrossRef
38.
go back to reference Heid AR, Eshraghi K, Duntzee CI, Abbott K, Curyto K, Van Haitsma K. "it depends": reasons why nursing home residents change their minds about care preferences. Gerontologist. 2016;56(2):243–55.CrossRefPubMed Heid AR, Eshraghi K, Duntzee CI, Abbott K, Curyto K, Van Haitsma K. "it depends": reasons why nursing home residents change their minds about care preferences. Gerontologist. 2016;56(2):243–55.CrossRefPubMed
39.
go back to reference Hiedemann B, Sovinsky M, Stern S. Will you still want me tomorrow? The dynamics of families’ long-term care arrangements. J Hum Resour. 2017; 0213-5454R1 Hiedemann B, Sovinsky M, Stern S. Will you still want me tomorrow? The dynamics of families’ long-term care arrangements. J Hum Resour. 2017; 0213-5454R1
40.
go back to reference de Klerk M, Schellingerhout R. Support needed [Ondersteuning gewenst]. The Netherlands Institute for Social Research. 2006; de Klerk M, Schellingerhout R. Support needed [Ondersteuning gewenst]. The Netherlands Institute for Social Research. 2006;
41.
go back to reference Brouwer WB, Van Exel NJ, Van Gorp B, Redekop WK. The CarerQol instrument: a new instrument to measure care-related quality of life of informal caregivers for use in economic evaluations. Qual Life Res. 2006;15(6):1005–21.CrossRefPubMed Brouwer WB, Van Exel NJ, Van Gorp B, Redekop WK. The CarerQol instrument: a new instrument to measure care-related quality of life of informal caregivers for use in economic evaluations. Qual Life Res. 2006;15(6):1005–21.CrossRefPubMed
42.
go back to reference Hoefman RJ, van Exel J, Brouwer WB. Measuring care-related quality of life of caregivers for use in economic evaluations: CarerQol tariffs for Australia, Germany, Sweden, UK, and US. PharmacoEconomics. 2016:1–10. Hoefman RJ, van Exel J, Brouwer WB. Measuring care-related quality of life of caregivers for use in economic evaluations: CarerQol tariffs for Australia, Germany, Sweden, UK, and US. PharmacoEconomics. 2016:1–10.
43.
go back to reference Hoefman RJ, Van Exel NJA, Rose JM. Lawerman-van de Wetering EJ, Brouwer WBF. A discrete choice experiment to obtain a tariff for valuing informal care situations measured with the CarerQol instrument. Med Decis Mak. 2014;34(1):84–96.CrossRef Hoefman RJ, Van Exel NJA, Rose JM. Lawerman-van de Wetering EJ, Brouwer WBF. A discrete choice experiment to obtain a tariff for valuing informal care situations measured with the CarerQol instrument. Med Decis Mak. 2014;34(1):84–96.CrossRef
44.
go back to reference Klerk MMY, Boer AH, Kooiker SE, Plaisier I, Schyns P, Ross JA. Support provided: exploring the possibilities and boundaries of (more) informal care [Hulp geboden: een verkenning van de mogelijkheden en grenzen van (meer) informele hulp]. The Netherlands Institute for Social Research. 2014; Klerk MMY, Boer AH, Kooiker SE, Plaisier I, Schyns P, Ross JA. Support provided: exploring the possibilities and boundaries of (more) informal care [Hulp geboden: een verkenning van de mogelijkheden en grenzen van (meer) informele hulp]. The Netherlands Institute for Social Research. 2014;
45.
go back to reference Bakx P, Meijer C, Schut F, Doorslaer E. Going formal or informal, who cares? The influence of public long-term care insurance. Health Econ. 2015;24(6):631–43.CrossRefPubMed Bakx P, Meijer C, Schut F, Doorslaer E. Going formal or informal, who cares? The influence of public long-term care insurance. Health Econ. 2015;24(6):631–43.CrossRefPubMed
46.
go back to reference Bolin K, Lindgren B, Lundborg P. Informal and formal care among single-living elderly in Europe. Health Econ. 2008;17(3):393–409.CrossRefPubMed Bolin K, Lindgren B, Lundborg P. Informal and formal care among single-living elderly in Europe. Health Econ. 2008;17(3):393–409.CrossRefPubMed
47.
go back to reference Jiménez-Martín S, Prieto CV. The trade-off between formal and informal care in Spain. Eur J Health Econ. 2012;13(4):461–90.CrossRefPubMed Jiménez-Martín S, Prieto CV. The trade-off between formal and informal care in Spain. Eur J Health Econ. 2012;13(4):461–90.CrossRefPubMed
48.
go back to reference Carmichael F, Charles S, Hulme C. Who will care? Employment participation and willingness to supply informal care. J Health Econ. 2010;29(1):182–90.CrossRefPubMed Carmichael F, Charles S, Hulme C. Who will care? Employment participation and willingness to supply informal care. J Health Econ. 2010;29(1):182–90.CrossRefPubMed
Metadata
Title
Who is responsible for providing care? Investigating the role of care tasks and past experiences in a cross-sectional survey in the Netherlands
Authors
R. J. Hoefman
T. M. Meulenkamp
J. D. De Jong
Publication date
01-12-2017
Publisher
BioMed Central
Published in
BMC Health Services Research / Issue 1/2017
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/s12913-017-2435-5

Other articles of this Issue 1/2017

BMC Health Services Research 1/2017 Go to the issue