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Published in: BMC Health Services Research 1/2015

Open Access 01-06-2015 | Research article

Introducing the chronic disease self-management program in Switzerland and other German-speaking countries: findings of a cross-border adaptation using a multiple-methods approach

Authors: Jörg Haslbeck, Sylvie Zanoni, Uwe Hartung, Margot Klein, Edith Gabriel, Manuela Eicher, Peter J. Schulz

Published in: BMC Health Services Research | Issue 1/2015

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Abstract

Background

Stanford’s Chronic Disease Self-Management Program (CDSMP) stands out as having a large evidence-base and being broadly disseminated across various countries. To date, neither evidence nor practice exists of its systematic adaptation into a German-speaking context. The objective of this paper is to describe the systematic German adaptation and implementation process of the CDSMP (2010–2014), report the language-specific adaptation of Franco-Canadian CDSMP for the French-speaking part of Switzerland and report findings from the initial evaluation process.

Methods

Multiple research methods were integrated to explore the perspective of workshop attendees, combining a longitudinal quantitative survey with self-report questionnaires, qualitative focus groups, and interviews. The evaluation process was conducted in for both the German and French adapted versions to gain insights into participants’ experiences in the program and to evaluate its impact. Perceived self-efficacy was measured using the German version of the Self-Efficacy for Managing Chronic Disease 6-Item Scale (SES6G).

Results

Two hundred seventy eight people attending 35 workshops in Switzerland and Austria participated in the study. The study participants were receptive to the program content, peer-led approach and found principal methods useful, yet the structured approach did not address all their needs or expectations. Both short and long-term impact on self-efficacy were observed following the workshop participation (albeit with a minor decrease at 6-months). Participants reported positive impacts on aspects of coping and self-care, but limited effects on healthcare service utilization.

Conclusions

Our findings suggest that the process for cross-border adaptation was effective, and that the CDSMP can successfully be implemented in diverse healthcare and community settings. The adapted CDSMP can be considered an asset for supporting self-management in both German-and French-speaking central European countries. It could have meaningful, wide-ranging implications for chronic illness care and primary prevention and potentially tertiary prevention of chronic disease. Further investigations are needed to tailor the program for better access to vulnerable and disadvantaged groups who might benefit the most, in terms of facilitating their health literacy in chronic illness.
Footnotes
1
«Evivo» is the brand used in Switzerland along with the Stanford workshop that is labeled «Gesund und aktiv leben» (English translation: «Living healthy and actively»). Evivo symbolizes empowerment (“e”) as well as living with chronic conditions (derived from Latin, “vivo” meaning “I live”) in one word. It has been developed so the program has an empowerment notion and its name can be used in four national languages in Switzerland (German, French, Italian and also Rhaeto-Romanic). Organisations running the adapted Stanford program are embedded in the non-profit association «Evivo Network», which was founded in 2014 to promote patient empowerment and the sustainable future implementation of the Stanford model in Switzerland and German-speaking Europe. For more information: www.​evivo.​ch (visited December 2015).
 
2
Since 2015, there have been new efforts to deliver CDSMP workshops in Germany, which are not part of the study at-hand. The program «Living healthy and actively» is disseminated by the multi-stakeholder consortium INSEA (accronym stands for «Initiative für Selbstmanagement/Selbsthilfe, Empowerment und Aktiv Leben»; English Translation: «Initiative for Self-Management/Self-help, Empowerment and Active Living»). It currently consists of a regional self-help organization (Selbsthilfekontaktstelle Bayern, Germany) and the first mini-med school in Germany (Patient University, Hannover), which are delivering the workshops and are supported by two non-profit foundations (Robert Bosch Foundation, Germany; Careum Foundation, Switzerland) and a health insurance fund (Barmer GEK, Germany). Unlike the unsuccsessful 1st attempt in Germany, the two organisations now delivering the workshops have sustainable field access at their disposal and additional funding at hand. For more information, visit www.​insea-aktiv.​de (visited December 2015)
 
3
See www.​patientuddannels​e.​info (visited December 2015)
 
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Metadata
Title
Introducing the chronic disease self-management program in Switzerland and other German-speaking countries: findings of a cross-border adaptation using a multiple-methods approach
Authors
Jörg Haslbeck
Sylvie Zanoni
Uwe Hartung
Margot Klein
Edith Gabriel
Manuela Eicher
Peter J. Schulz
Publication date
01-06-2015
Publisher
BioMed Central
Published in
BMC Health Services Research / Issue 1/2015
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/s12913-015-1251-z

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