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Published in: BMC Health Services Research 1/2014

Open Access 01-12-2014 | Research article

Meeting patients’ health information needs in breast cancer center hospitals - a multilevel analysis

Authors: Christoph Kowalski, Shoou-Yih D Lee, Lena Ansmann, Simone Wesselmann, Holger Pfaff

Published in: BMC Health Services Research | Issue 1/2014

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Abstract

Background

Breast cancer patients are confronted with a serious diagnosis that requires them to make important decisions throughout the journey of the disease. For these decisions to be made it is critical that the patients be well informed. Previous studies have been consistent in their findings that breast cancer patients have a high need for information on a wide range of topics. This paper investigates (1) how many patients feel they have unmet information needs after initial surgery, (2) whether the proportion of patients with unmet information needs varies between hospitals where they were treated and (3) whether differences between the hospitals account for some of these variation.

Methods

Data from 5,024 newly-diagnosed breast cancer patients treated in 111 breast center hospitals in Germany were analyzed and combined with data on hospital characteristics. Multilevel linear regression models were calculated taking into account hospital characteristics and adjusting for patient case mix.

Results

Younger patients, those receiving mastectomy, having statutory health insurance, not living with a partner and having a foreign native language report higher unmet information needs. The data demonstrate small between-hospital variation in unmet information needs. In hospitals that provide patient-specific information material and that offer health fairs as well as those that are non-teaching or have lower patient-volume, patients are less likely to report unmet information needs.

Conclusion

We found differences in proportions of patients with unmet information needs between hospitals and that hospitals’ structure and process-related attributes of the hospitals were associated with these differences to some extent. Hospitals may contribute to reducing the patients’ information needs by means that are not necessarily resource-intensive.
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Metadata
Title
Meeting patients’ health information needs in breast cancer center hospitals - a multilevel analysis
Authors
Christoph Kowalski
Shoou-Yih D Lee
Lena Ansmann
Simone Wesselmann
Holger Pfaff
Publication date
01-12-2014
Publisher
BioMed Central
Published in
BMC Health Services Research / Issue 1/2014
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/s12913-014-0601-6

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