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Published in: BMC Women's Health 1/2015

Open Access 01-12-2015 | Research article

Women’s experiences of using vaginal trainers (dilators) to treat vaginal penetration difficulties diagnosed as vaginismus: a qualitative interview study

Authors: Kat Macey, Angela Gregory, David Nunns, Roshan das Nair

Published in: BMC Women's Health | Issue 1/2015

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Abstract

Background

Recent research has highlighted controversies in the conceptualisation, diagnosis and treatment of vaginismus. Vaginal trainers are currently the most widely used treatment. Critiques have highlighted concerns that the evidence-base of its effectiveness is limited, with controlled trials reporting disappointing results, and its prescription promotes ‘performance-based’ sexuality which may be detrimental. Despite this, little has been done to seek women’s views about their treatment. This study set out to explore women’s experiences of vaginismus treatment with vaginal trainers, and to use their voices to propose guidelines for improving treatment.

Methods

13 women who had used vaginal trainers for vaginal penetration difficulties diagnosed as vaginismus were recruited through a specialist clinic, university campuses, and online forums. The women took part in semi-structured individual interviews (face-to-face/telephone/Skype), which were audio-recorded, transcribed verbatim and analysed using Thematic Analysis.

Results

Four superordinate themes were elicited and used to draft ‘better treatment’ guidelines. Themes were: (1) Lack of knowledge, (2) Invalidation of suffering by professionals, (3) Difficult journey, and (4) Making the journey easier. This paper describes themes (3) and (4). Difficult Journey describes the long and arduous ‘Journey into treatment’, including difficulties asking for help, undergoing physical investigations and negotiating ‘the system’ of medical referrals. It also describes the sometimes demoralising process of ‘being in treatment’, which includes emotional and practical demands of treatment. Making the journey easier highlights the importance of and limits to ‘partner support’. ‘Professional support’ comprises personal qualities of professionals/therapeutic relationship, the value of specialist skills and knowledge and the need for facilitating couple communication about vaginismus. ‘Peer support/helping each other’ describes the importance of supportive vaginimus networks and sharing tips with other women.

Conclusions

Accessing effective treatment for vaginal penetration difficulties is difficult. The practical and emotional demands of using vaginal trainers may be underestimated by professionals, resulting in inadequate provision of support and information in practice. At times vaginal trainers may be prescribed to women who are unlikely to benefit from this treatment in isolation. Core communication skills like non-judgemental listening are important for supporting women through treatment. However professionals also need greater specialist knowledge, which in turn requires more detailed research. New ways to disseminate specialist knowledge and suggestions for further research are discussed.
Appendix
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Footnotes
1
We use both numeric (1, 2, 3, etc.) and quantity terms (some, majority, etc.) only as narrative descriptors, but not for the purpose of quantification.
 
2
The participant number is indicated by a number following P (P1-13); the number following the colon indicates the transcript page number.
 
Literature
1.
go back to reference Reissing ED, Binik YM, Khalifé S, Cohen D, Amsel R. Vaginal spasm, pain, and behavior: an empirical investigation of the diagnosis of vaginismus. Arch Sex Behav. 2004;33:5–17.CrossRefPubMed Reissing ED, Binik YM, Khalifé S, Cohen D, Amsel R. Vaginal spasm, pain, and behavior: an empirical investigation of the diagnosis of vaginismus. Arch Sex Behav. 2004;33:5–17.CrossRefPubMed
2.
go back to reference Engman M, Lindehammar H, Wijma B. Surface electromyography diagnostics in women with partial vaginismus with or without vulvar vestibulitis and in asymptomatic women. J Psychosom Obstet Gynecol. 2004;25:281–94.CrossRef Engman M, Lindehammar H, Wijma B. Surface electromyography diagnostics in women with partial vaginismus with or without vulvar vestibulitis and in asymptomatic women. J Psychosom Obstet Gynecol. 2004;25:281–94.CrossRef
3.
go back to reference Binik YM. The DSM diagnostic criteria for vaginismus. Arch Sex Behav. 2009;39:278–91.CrossRef Binik YM. The DSM diagnostic criteria for vaginismus. Arch Sex Behav. 2009;39:278–91.CrossRef
4.
go back to reference Binik YM, Bergeron S, Khalifé S. Dyspareunia and Vaginismus: So-called Sexual Pain. Priniciples Pract Sex Ther; 2007;124–156. Binik YM, Bergeron S, Khalifé S. Dyspareunia and Vaginismus: So-called Sexual Pain. Priniciples Pract Sex Ther; 2007;124–156.
5.
go back to reference American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders. 5th ed. Arlington, VA: American Psychiatric Publishing; 2013. American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders. 5th ed. Arlington, VA: American Psychiatric Publishing; 2013.
6.
go back to reference Reissing ED, Borg C, Spoelstra SK, Ter Kuile MM, Both S, de Jong PJ, et al. “Throwing the baby out with the bathwater”: the demise of vaginismus in favor of genito-pelvic pain/penetration disorder. Arch Sex Behav. 2014;43:1209–13.CrossRefPubMed Reissing ED, Borg C, Spoelstra SK, Ter Kuile MM, Both S, de Jong PJ, et al. “Throwing the baby out with the bathwater”: the demise of vaginismus in favor of genito-pelvic pain/penetration disorder. Arch Sex Behav. 2014;43:1209–13.CrossRefPubMed
7.
8.
go back to reference Binik YM, Reissing E, Pukall C, Flory N, Payne KA, Khalife S. The female sexual pain disorders: genital pain or sexual dysfunction? Arch Sex Behav. 2002;31:425–9.CrossRefPubMed Binik YM, Reissing E, Pukall C, Flory N, Payne KA, Khalife S. The female sexual pain disorders: genital pain or sexual dysfunction? Arch Sex Behav. 2002;31:425–9.CrossRefPubMed
9.
go back to reference Reissing ED, Binik YM, Khalifé S. Does vaginismus exist? A critical review of the literature. J Nerv Ment Dis. 1999;187:261–74.CrossRefPubMed Reissing ED, Binik YM, Khalifé S. Does vaginismus exist? A critical review of the literature. J Nerv Ment Dis. 1999;187:261–74.CrossRefPubMed
10.
go back to reference Crowley T, Goldmeier D, Hiller J. Diagnosing and managing vaginismus. BMJ. 2009;338:b2284–4. Crowley T, Goldmeier D, Hiller J. Diagnosing and managing vaginismus. BMJ. 2009;338:b2284–4.
11.
go back to reference Wijma B, Engman M, Wijma K. A model for critical review of literature - with vaginismus as an example. J Psychosom Obstet Gynaecol. 2007;28:21–36.CrossRefPubMed Wijma B, Engman M, Wijma K. A model for critical review of literature - with vaginismus as an example. J Psychosom Obstet Gynaecol. 2007;28:21–36.CrossRefPubMed
12.
go back to reference Heiman JR. Psychologic Treatments for Female Sexual Dysfunction: Are They Effective and Do We Need Them? October. 2002;31:445–50. Heiman JR. Psychologic Treatments for Female Sexual Dysfunction: Are They Effective and Do We Need Them? October. 2002;31:445–50.
13.
go back to reference Melnik T, McGuire H, Hawton K. Interventions for vaginismus. Cochrane Database Syst Rev. 2012 Issue 12. Art. No.: CD001760. doi:10.1002/14651858.CD001760.pub2. Melnik T, McGuire H, Hawton K. Interventions for vaginismus. Cochrane Database Syst Rev. 2012 Issue 12. Art. No.: CD001760. doi:10.1002/14651858.CD001760.pub2.
14.
go back to reference Masters WH, Johnson V. Human Sexual Inadequacy. 1st ed. Boston: Little Brown; 1970. Masters WH, Johnson V. Human Sexual Inadequacy. 1st ed. Boston: Little Brown; 1970.
15.
go back to reference Van Lankveld JJDM, ter Kuile MM, de Groot HE, Melles R, Nefs J, Zandbergen M. Cognitive-behavioral therapy for women with lifelong vaginismus: a randomized waiting-list controlled trial of efficacy. J Consult Clin Psychol. 2006;74:168–78.CrossRefPubMed Van Lankveld JJDM, ter Kuile MM, de Groot HE, Melles R, Nefs J, Zandbergen M. Cognitive-behavioral therapy for women with lifelong vaginismus: a randomized waiting-list controlled trial of efficacy. J Consult Clin Psychol. 2006;74:168–78.CrossRefPubMed
16.
go back to reference Ter Kuile MM, Melles R, de Groot HE, Tuijnman-Raasveld CC, van Lankveld JJD. Therapist-aided exposure for women with lifelong vaginismus: A randomized waiting-list control trial of efficacy. J Consult Clin Psychol. 2013;81:1127–36.CrossRefPubMed Ter Kuile MM, Melles R, de Groot HE, Tuijnman-Raasveld CC, van Lankveld JJD. Therapist-aided exposure for women with lifelong vaginismus: A randomized waiting-list control trial of efficacy. J Consult Clin Psychol. 2013;81:1127–36.CrossRefPubMed
17.
go back to reference Kleinplatz PJ. Sex Therapy for vaginismus: A review, critique, and humanistic alternative. J Humanist Psychol. 1998;38:51–81.CrossRef Kleinplatz PJ. Sex Therapy for vaginismus: A review, critique, and humanistic alternative. J Humanist Psychol. 1998;38:51–81.CrossRef
18.
go back to reference Engman M, Wijma K, Wijma B. Long-term coital behaviour in women treated with cognitive behaviour therapy for superficial coital pain and vaginismus. Cogn Behav Ther. 2010;39:193–202.CrossRefPubMed Engman M, Wijma K, Wijma B. Long-term coital behaviour in women treated with cognitive behaviour therapy for superficial coital pain and vaginismus. Cogn Behav Ther. 2010;39:193–202.CrossRefPubMed
19.
go back to reference Bergeron S, Morin M, Lord M-J. Integrating pelvic floor rehabilitation and cognitive-behavioural therapy for sexual pain: what have we learned and were do we go from here? Sex Relatsh Ther. 2010;25:289–98.CrossRef Bergeron S, Morin M, Lord M-J. Integrating pelvic floor rehabilitation and cognitive-behavioural therapy for sexual pain: what have we learned and were do we go from here? Sex Relatsh Ther. 2010;25:289–98.CrossRef
20.
21.
go back to reference Reissing ED, Armstrong HL, Allen C. Pelvic floor physical therapy for lifelong vaginismus: a retrospective chart review and interview study. J Sex Marital Ther. 2013;39:306–20.CrossRefPubMed Reissing ED, Armstrong HL, Allen C. Pelvic floor physical therapy for lifelong vaginismus: a retrospective chart review and interview study. J Sex Marital Ther. 2013;39:306–20.CrossRefPubMed
22.
go back to reference Reissing ED. Consultation and treatment history and causal attributions in an online sample of women with lifelong and acquired vaginismus. J Sex Med. 2012;9:251–8.CrossRefPubMed Reissing ED. Consultation and treatment history and causal attributions in an online sample of women with lifelong and acquired vaginismus. J Sex Med. 2012;9:251–8.CrossRefPubMed
23.
go back to reference Ward E, Ogden J. Experiencing vaginismus-sufferers’ beliefs about causes and effects. Sex Marital Ther. 1994;9:33–45.CrossRef Ward E, Ogden J. Experiencing vaginismus-sufferers’ beliefs about causes and effects. Sex Marital Ther. 1994;9:33–45.CrossRef
24.
go back to reference Ogden J, Ward E. Help-seeking behavior in sufferers of vaginismus. Sex Marital Ther. 1995;10:23–30.CrossRef Ogden J, Ward E. Help-seeking behavior in sufferers of vaginismus. Sex Marital Ther. 1995;10:23–30.CrossRef
25.
go back to reference Pope C, Campbell R. Qualitative research in obstetrics and gynaecology. BJOG. 2001;108:233–7.PubMed Pope C, Campbell R. Qualitative research in obstetrics and gynaecology. BJOG. 2001;108:233–7.PubMed
26.
28.
go back to reference Guest G. How Many Interviews Are Enough?: An Experiment with Data Saturation and Variability. Field methods. 2006;18:59–82.CrossRef Guest G. How Many Interviews Are Enough?: An Experiment with Data Saturation and Variability. Field methods. 2006;18:59–82.CrossRef
29.
go back to reference Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3:77–101.CrossRef Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3:77–101.CrossRef
30.
go back to reference Bhaskar R. A Realist Theory of Science. London: Verso; 1975. Bhaskar R. A Realist Theory of Science. London: Verso; 1975.
31.
go back to reference Boyatis RE. Transforming Qualitative Information. London: SAGE Publications; 1998. Boyatis RE. Transforming Qualitative Information. London: SAGE Publications; 1998.
32.
go back to reference Huber JD, Pukall CF, Boyer SC, Reissing ED, Chamberlain SM. “Just relax”: physicians’ experiences with women who are difficult or impossible to examine gynecologically. J Sex Med. 2009;6:791–9.CrossRefPubMed Huber JD, Pukall CF, Boyer SC, Reissing ED, Chamberlain SM. “Just relax”: physicians’ experiences with women who are difficult or impossible to examine gynecologically. J Sex Med. 2009;6:791–9.CrossRefPubMed
33.
go back to reference Kaler A. Unreal women: Sex, Gender, Identity and the Lived Experience of Vulvar pain. Fem Rev. 2006;50–75. Kaler A. Unreal women: Sex, Gender, Identity and the Lived Experience of Vulvar pain. Fem Rev. 2006;50–75.
34.
go back to reference Ayling K, Ussher JM. “If sex hurts, am I still a woman?” the subjective experience of vulvodynia in hetero-sexual women. Arch Sex Behav. 2008;37:294–304.CrossRefPubMed Ayling K, Ussher JM. “If sex hurts, am I still a woman?” the subjective experience of vulvodynia in hetero-sexual women. Arch Sex Behav. 2008;37:294–304.CrossRefPubMed
35.
go back to reference Price J, Farmer G, Harris J, Hope T, Kennedy S, Mayou R. Attitudes of women with chronic pelvic pain to the gynaecological consultation: a qualitative study. BJOG. 2006;113:446–52.CrossRefPubMed Price J, Farmer G, Harris J, Hope T, Kennedy S, Mayou R. Attitudes of women with chronic pelvic pain to the gynaecological consultation: a qualitative study. BJOG. 2006;113:446–52.CrossRefPubMed
36.
go back to reference Archer M, Bhaskar R, Collier A, Lawson T, Norrie A. Critical Realism: Essential Readings. Volume 6. Routledge; 1998:756. [Critical Realism--Interventions] Archer M, Bhaskar R, Collier A, Lawson T, Norrie A. Critical Realism: Essential Readings. Volume 6. Routledge; 1998:756. [Critical Realism--Interventions]
37.
go back to reference Gott M, Galena E, Hinchliff S, Elford H. “Opening a can of worms”: GP and practice nurse barriers to talking about sexual health in primary care. Fam Pract. 2004;21:528–36.CrossRefPubMed Gott M, Galena E, Hinchliff S, Elford H. “Opening a can of worms”: GP and practice nurse barriers to talking about sexual health in primary care. Fam Pract. 2004;21:528–36.CrossRefPubMed
38.
go back to reference Bandura A, OLeary A, Taylor CB, Gauthier J, Gossard D. Perceived self-efficacy and pain control: opioid and nonopioid mechanisms. J Pers Soc Psychol. 1987;53:563–71.CrossRefPubMed Bandura A, OLeary A, Taylor CB, Gauthier J, Gossard D. Perceived self-efficacy and pain control: opioid and nonopioid mechanisms. J Pers Soc Psychol. 1987;53:563–71.CrossRefPubMed
39.
go back to reference Abramson LY, Seligman ME, Teasdale JD. Learned helplessness in humans: critique and reformulation. J Abnorm Psychol. 1978;87:49–74.CrossRefPubMed Abramson LY, Seligman ME, Teasdale JD. Learned helplessness in humans: critique and reformulation. J Abnorm Psychol. 1978;87:49–74.CrossRefPubMed
40.
go back to reference Arnstein P, Vidal M, Wells-Federman C, Morgan B, Caudill M. From chronic pain patient to peer: Benefits and risks of volunteering. Pain Manag Nurs. 2002;3:94–103.CrossRefPubMed Arnstein P, Vidal M, Wells-Federman C, Morgan B, Caudill M. From chronic pain patient to peer: Benefits and risks of volunteering. Pain Manag Nurs. 2002;3:94–103.CrossRefPubMed
Metadata
Title
Women’s experiences of using vaginal trainers (dilators) to treat vaginal penetration difficulties diagnosed as vaginismus: a qualitative interview study
Authors
Kat Macey
Angela Gregory
David Nunns
Roshan das Nair
Publication date
01-12-2015
Publisher
BioMed Central
Published in
BMC Women's Health / Issue 1/2015
Electronic ISSN: 1472-6874
DOI
https://doi.org/10.1186/s12905-015-0201-6

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