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Published in: BMC Palliative Care 1/2020

Open Access 01-12-2020 | Care | Research article

Supporting patient access to medicines in community palliative care: on-line survey of health professionals’ practice, perceived effectiveness and influencing factors

Authors: Sue Latter, Natasha Campling, Jacqueline Birtwistle, Alison Richardson, Michael I. Bennett, Sean Ewings, David Meads, Miriam Santer

Published in: BMC Palliative Care | Issue 1/2020

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Abstract

Background

Patient access to medicines at home during the last year of life is critical for symptom control, but is thought to be problematic. Little is known about healthcare professionals’ practices in supporting timely medicines access and what influences their effectiveness. The purpose of the study was to evaluate health professionals’ medicines access practices, perceived effectiveness and influencing factors.

Methods

On-line questionnaire survey of health care professionals (General Practitioners, Community Pharmacists, community-based Clinical Nurse Specialists and Community Nurses) delivering end-of-life care in primary and community care settings in England. Quantitative data were analysed using descriptive statistics.

Results

One thousand three hundred twenty-seven responses were received. All health professional groups are engaged in supporting access to prescriptions, using a number of different methods. GPs remain a predominant route for patients to access new prescriptions in working hours. However, nurses and, increasingly, primary care-based pharmacists are also actively contributing. However, only 42% (160) of Clinical Nurse Specialists and 27% (27) of Community Nurses were trained as prescribers. The majority (58% 142) of prescribing nurses and pharmacists did not have access to an electronic prescribing system. Satisfaction with access to shared patient records to facilitate medicines access was low: 39% (507) were either Not At All or only Slightly satisfied. Out-of-hours specialist cover was reported by less than half (49%; 656) and many General Practitioners and pharmacists lacked confidence advising about out-of-hours services. Respondents perceived there would be a significant improvement in pain control if access to medicines was greater. Those with shared records access reported significantly lower pain estimates for their caseload patients.

Conclusions

Action is required to support a greater number of nurses and pharmacists to prescribe end-of-life medicines. Solutions are also required to enable shared access to patient records across health professional groups. Coverage and awareness of out-of-hours services to access medicines needs to be improved.
Appendix
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Footnotes
1
We define ‘access’ as patient and / or carer ability to obtain medicines from a prescriber and a
dispenser together with any information and skills about medicines given at that point.
 
2
A number of standard medicines prescribed in advance - often in a specially marked container - specifically for the last days of life.
 
Literature
1.
go back to reference Campling N, Richardson A, Mulvey M, et al. Self-management support at the end of life: patients’, carers’ and professionals’ perspectives on managing medicines. Int J Nurs Stud. 2017;76:45–54.PubMedCrossRef Campling N, Richardson A, Mulvey M, et al. Self-management support at the end of life: patients’, carers’ and professionals’ perspectives on managing medicines. Int J Nurs Stud. 2017;76:45–54.PubMedCrossRef
6.
go back to reference Ziegler L, Bennett M, Blenkinsopp A, et al. Non-medical prescribing in palliative care: A regional survey. Palliat Med. 2015;29(2):177–81.PubMedCrossRef Ziegler L, Bennett M, Blenkinsopp A, et al. Non-medical prescribing in palliative care: A regional survey. Palliat Med. 2015;29(2):177–81.PubMedCrossRef
7.
go back to reference Savage I, Blenkinsopp A, Closs SJ, et al. ‘Like doing a jigsaw with half the parts missing’: community pharmacists and the management of cancer pain in the community. Int J Pharm Pract. 2013;21(3):151–60.PubMedCrossRef Savage I, Blenkinsopp A, Closs SJ, et al. ‘Like doing a jigsaw with half the parts missing’: community pharmacists and the management of cancer pain in the community. Int J Pharm Pract. 2013;21(3):151–60.PubMedCrossRef
8.
go back to reference Akram G, Bennie M, McKellar S, et al. Effective delivery of pharmaceutical palliative care: challenges in the community pharmacy setting. J Palliat Med. 2012;15(3):317–21.PubMedCrossRef Akram G, Bennie M, McKellar S, et al. Effective delivery of pharmaceutical palliative care: challenges in the community pharmacy setting. J Palliat Med. 2012;15(3):317–21.PubMedCrossRef
10.
go back to reference Walker KAMM. Perceived value and cost of providing emergency medication kits to home hospice patients in Maryland. Am J Hosp Palliat Care. 2010;27(4):254–60.PubMedCrossRef Walker KAMM. Perceived value and cost of providing emergency medication kits to home hospice patients in Maryland. Am J Hosp Palliat Care. 2010;27(4):254–60.PubMedCrossRef
11.
go back to reference Bishop MFSL, Goodrich M, et al. Medication kits for managing symptomatic emergencies in the home: a survey of common hospice practice. J Palliat Med. 2009;12(1):37–44.PubMedCrossRef Bishop MFSL, Goodrich M, et al. Medication kits for managing symptomatic emergencies in the home: a survey of common hospice practice. J Palliat Med. 2009;12(1):37–44.PubMedCrossRef
13.
go back to reference Eysenbach G. Improving the quality of Web surveys: the Checklist for Reporting Results of Internet E Surveys (CHERRIES). J Med Internet Res. 2004;6(3):e34.PubMedPubMedCentralCrossRef Eysenbach G. Improving the quality of Web surveys: the Checklist for Reporting Results of Internet E Surveys (CHERRIES). J Med Internet Res. 2004;6(3):e34.PubMedPubMedCentralCrossRef
14.
go back to reference Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15:1277–88.CrossRef Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15:1277–88.CrossRef
17.
go back to reference Hazen ACM, de Bont AA, Boelman L, et al. The degree of integration of non-dispensing pharmacists in primary care practice and the impact on health outcomes: A systematic review. Res Social Adm Pharm. 2018;14(3):228–40.PubMedCrossRef Hazen ACM, de Bont AA, Boelman L, et al. The degree of integration of non-dispensing pharmacists in primary care practice and the impact on health outcomes: A systematic review. Res Social Adm Pharm. 2018;14(3):228–40.PubMedCrossRef
18.
go back to reference Mitchell GK. How well do general practitioners deliver palliative care? A systematic review. Palliat Med. 2002;16:457–64.PubMedCrossRef Mitchell GK. How well do general practitioners deliver palliative care? A systematic review. Palliat Med. 2002;16:457–64.PubMedCrossRef
19.
go back to reference British Medical Association End-of-life care and physician assisted dying, Volume 3: reflections and recommendations, 2016. https://www.bma.org.uk › files › pdfs › elcpad. British Medical Association End-of-life care and physician assisted dying, Volume 3: reflections and recommendations, 2016. https://​www.​bma.​org.​uk › files › pdfs › elcpad.
20.
go back to reference Tait P, Horwood C, Hakendorf P, et al. Improving community access to terminal phase medicines through the implementation of a ‘Core Medicines List’ in South Australian community pharmacies. BMJ Support Palliat Care. 2017;0:1–8. Tait P, Horwood C, Hakendorf P, et al. Improving community access to terminal phase medicines through the implementation of a ‘Core Medicines List’ in South Australian community pharmacies. BMJ Support Palliat Care. 2017;0:1–8.
22.
go back to reference Williams H, Donaldson L, Noble S, et al. Quality improvement priorities for safer out-of-hours palliative care: lessons from a mixed-methods analysis of a national incident-reporting database. Palliat Med. 2019;33(3):346–56.PubMedCrossRef Williams H, Donaldson L, Noble S, et al. Quality improvement priorities for safer out-of-hours palliative care: lessons from a mixed-methods analysis of a national incident-reporting database. Palliat Med. 2019;33(3):346–56.PubMedCrossRef
Metadata
Title
Supporting patient access to medicines in community palliative care: on-line survey of health professionals’ practice, perceived effectiveness and influencing factors
Authors
Sue Latter
Natasha Campling
Jacqueline Birtwistle
Alison Richardson
Michael I. Bennett
Sean Ewings
David Meads
Miriam Santer
Publication date
01-12-2020
Publisher
BioMed Central
Keyword
Care
Published in
BMC Palliative Care / Issue 1/2020
Electronic ISSN: 1472-684X
DOI
https://doi.org/10.1186/s12904-020-00649-3

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