Skip to main content
Key Specialties
Cardiology Diabetology Endocrinology Gastroenterology Geriatrics and Gerontology Gynecology and Obstetrics Hematology Infectious Disease Internal Medicine Nephrology Neurology Oncology Pediatrics Respiratory Medicine Rheumatology Surgery
Congress Coverage
2024 ACC Congress 2023 ESMO Congress 2023 EASD Congress 2023 ERS Congress 2023 ESC Congress 2023 EHA Congress 2023 ASCO Annual Meeting
Clinical Collections
Advances in Alzheimer’s

Keynote webinar | Spotlight on sleep in brain health

LIVE: Thursday 2nd May 2024, 18:00-19:30 (CEST)

Quality sleep is essential for health. But what happens to our brains when sleep patterns are disturbed? Join our experts to explore the interplay between sleep disruption and neurological diseases, and the questions that you need to be asking your patients to help you prevent the harmful effects of sleep deprivation.
ADVANCED SEARCH
Log in
Top
BMC Psychiatry
Published in: BMC Psychiatry 1/2019

Open Access 01-12-2019 | Research article

A qualitative exploration of service user views about using digital health interventions for self-management in severe mental health problems

Authors: Natalie Berry, Fiona Lobban, Sandra Bucci

Published in: BMC Psychiatry | Issue 1/2019

Login to get access

Abstract

Background

The development of digital health interventions (DHIs) for severe mental health problems is fast-paced. Researchers are beginning to consult service users to inform DHIs; however, much of this involvement has been limited to feedback on specific interventions post-DHI development. This study had two aims: 1. explore service user views towards DHIs for severe mental health problems; and 2. make recommendations for specific content within DHIs based on service user needs and suggestions.

Methods

Qualitative interviews with eighteen people with severe mental health problems focussed on two domains: 1) views about DHIs for severe mental health problems; and 2) ideas for future DHI content and design features. Data were analysed thematically.

Results

Participants responses were captured in five key themes: 1) DHIs could be empowering tools that instigate reflection and change; 2) society is already divided; DHIs will further increase this divide; 3) considerations must be made about who has access to DHI data and how this data may be used; 4) DHIs should not be delivered without other support options; and 5) DHIs should provide a positive, fun, practical and interactive method for self-management.

Conclusions

Participants found DHIs acceptable due to the empowering nature of self-management and ability to take ownership of their own healthcare needs. However, concerns included the potential for digital exclusion, privacy and confidentiality and fears about DHIs being used to replace other mental health services. Service users want tools to help them self-manage their mental health, but also provide positive and recovery-focussed content that can be used in conjunction with other support options.
Appendix
Available only for authorised users
Literature
1.
2.
3.
4.
5.
6.
Cowdrey FA, Hogg L, Chapman K. Is there a choice to make? A pilot study investigating attitudes towards treatment in an Early Intervention for Psychosis service. Mental Health Rev J. 2018;23(2):110-20.
7.
Fisher A, Manicavasagar V, Sharpe L, Laidsaar-Powell R, Juraskova I. A qualitative exploration of patient and family views and experiences of treatment decision-making in bipolar II disorder. J Mental Health. 2017;27(1):66-79.
8.
Todd NJ, Jones SH, Lobban FA. What Do Service Users with Bipolar Disorder Want from a Web-Based Self-Management Intervention? A Qualitative Focus Group Study. Clin Psychol Psychother. 2013;20(6):531-43.
9.
Pedley R, McWilliams C, Lovell K, Brooks H, Rushton K, Drake RJ, Rumbold B, Bell V, Bee P. Qualitative systematic review of barriers and facilitators to patient-involved antipsychotic prescribing. BJPsych Open. 2018;4(01):5-14.
10.
11.
12.
Stovell D, Morrison AP, Panayiotou M, Hutton P. Shared treatment decision-making and empowerment related outcomes in psychosis: Systematic review and meta-analysis. Br J Psychiatry. 2016;209(01):23-8.
13.
Zisman-Ilani Y, Roe D, Elwyn G, Kupermintz H, Patya N, Peleg I, Karnieli-Miller O. Shared Decision Making for Psychiatric Rehabilitation Services Before Discharge from Psychiatric Hospitals. Health Commun. 2018:1-7
14.
Hollis C, Morriss R, Martin J, Amani S, Cotton R, Denis M, Lewis S. Technological innovations in mental healthcare: harnessing the digital revolution. Br J Psychiatry. 2015;206(4):263-5.
15.
16.
Faurholt-Jepsen M, Frost M, Vinberg M, Christensen EM, Bardram JE, Kessing LV. Smartphone data as objective measures of bipolar disorder symptoms. Psychiatry Res. 2014;217(1-2):124-7.
17.
Niendam TA, Tully LM, Iosif AM, Kumar D, Nye KE, Denton JC, Zakskorn LN, Fedechko TL, Pierce KM. Enhancing early psychosis treatment using smartphone technology: A longitudinal feasibility and validity study. J Psychiatr Res. 2018;96:239-46.
18.
Palmier-Claus JE, Ainsworth J, Machin M, Barrowclough C, Dunn G, Barkus E, Rogers A, Wykes T, Kapur S, Buchan I, Salter E, Lewis SW. The feasibility and validity of ambulatory self-report of psychotic symptoms using a smartphone software application. BMC Psychiatry. 2012;12(1).
19.
Ben-Zeev D, Brian RM, Jonathan G, Razzano L, Pashka N, Carpenter-Song E, Drake RE, Scherer EA. Mobile Health (mHealth) Versus Clinic-Based Group Intervention for People With Serious Mental Illness: A Randomized Controlled Trial. Psychiatric Services. 2018;69(9):978-85.
20.
Depp CA, Perivoliotis D, Holden J, Dorr J, Granholm EL. Single-Session Mobile-Augmented Intervention in Serious Mental Illness: A Three-Arm Randomized Controlled Trial. Schizophrenia Bulletin. 2018.
21.
Bucci S, Barrowclough C, Ainsworth J, Machin M, Morris R, Berry K, Emsley R, Lewis S, Edge D, Buchan I, Haddock G. Actissist: Proof-of-Concept Trial of a Theory-Driven Digital Intervention for Psychosis. Schizophrenia Bull. 2018;44(5):1070-80.
22.
Krzystanek M, Borkowski M, Skałacka K, Krysta K. A telemedicine platform to improve clinical parameters in paranoid schizophrenia patients: Results of a one-year randomized study. Schizophrenia Res. 2018.
23.
Hidalgo-Mazzei D, Reinares M, Mateu A, Nikolova VL, del Mar Bonnín C, Samalin L, García-Estela A, Pérez-Solá V, Young AH, Strejilevich S, Vieta E, Colom F. OpenSIMPLe: A real-world implementation feasibility study of a smartphone-based psychoeducation programme for bipolar disorder. J Affect Disord. 2018;241:436-45.
24.
Firth J, Torous J. Smartphone Apps for Schizophrenia: A Systematic Review. JMIR mHealth and uHealth. 2015;3(4):e102.
25.
Hidalgo-Mazzei D, Mateu A, Reinares M, Matic A, Vieta E, Colom F. Internet-based psychological interventions for bipolar disorder: Review of the present and insights into the future. J Affect Disord. 2015;188:1-13.
26.
Naslund JA, Marsch LA, McHugo GJ, Bartels SJ. Emerging mHealth and eHealth interventions for serious mental illness: a review of the literature. J Mental Health. 2015;24(5):321-32.
27.
Laine A, Anttila M, Välimäki M. Modification of an internet-based patient education program for adults with schizophrenia spectrum disorder to suit adolescents with psychosis. Inform Health Soc Care. 2016:1-17
28.
Schlosser D, Campellone T, Kim D, Truong B, Vergani S, Ward C, Vinogradov S. Feasibility of PRIME: A Cognitive Neuroscience-Informed Mobile App Intervention to Enhance Motivated Behavior and Improve Quality of Life in Recent Onset Schizophrenia. JMIR Res Protocols. 2016;5(2):e77.
29.
Simpson S, Barnes E, Griffiths E, Hood K, Cohen D, Craddock N, Jones I, Smith DJ. The Bipolar Interactive Psychoeducation (BIPED) study: trial design and protocol. BMC Psychiatry. 2009;9(1).
30.
Terp M, Bjørnes CD, Jørgensen R, Mainz J, Laursen BS. Collaborating with Young Adults Diagnosed with Schizophrenia: A Participatory Design Study to Shape the Healthcare System. Open J Nurs. 2017;7(07):743-58.
31.
Bonet L, Llácer B, Hernandez-Viadel M, Arce D, Blanquer I, Cañete C, Escartí M, AM González-Pinto, Sanjuán J. Differences in the Use and Opinions About New eHealth Technologies Among Patients With Psychosis: Structured Questionnaire. JMIR Mental Health. 2018;5(3):e51.
32.
Lal S, Dell’Elce J, Tucci N, Fuhrer R, Tamblyn R, Malla A. Preferences of Young Adults With First-Episode Psychosis for Receiving Specialized Mental Health Services Using Technology: A Survey Study. JMIR Mental Health. 2015;2(2):e18.
33.
Nicholas J, Boydell K, Christensen H. Beyond symptom monitoring: Consumer needs for bipolar disorder self-management using smartphones. Eur Psychiatry. 2017;44:210-6.
34.
Gay K, Torous J, Joseph A, Pandya A, Duckworth K. Digital Technology Use Among Individuals with Schizophrenia: Results of an Online Survey. JMIR Mental Health. 2016;3(2):e15
35.
Torous J, Roux S. Patient-Driven Innovation for Mobile Mental Health Technology: Case Report of Symptom Tracking in Schizophrenia. JMIR Mental Health. 2017;4(3):e27.
36.
Berry N, Lobban F, Emsley R, Bucci S. Acceptability of Interventions Delivered Online and Through Mobile Phones for People Who Experience Severe Mental Health Problems: A Systematic Review. J Med Internet Res. 2016;18(5):e121.
37.
38.
39.
Bucci S, Lewis S, Ainsworth J, Haddock G, Machin M, Berry K. Digital interventions in severe mental health problems: lessons from the Actissist development and trial. World Psychiatry. 2018;17(2):230-1.
40.
Smith JA. Semi-structured interviewing and qualitative analysis. In: Smith JA, Harre R, Van Lagenhove L, editors. Rethinking Methods in Psychology. London: SAGE Publications; 1995. p. 9-26.
41.
Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77-101.
42.
Stovell D, Wearden A, Morrison AP, Hutton P. Service users’ experiences of the treatment decision-making process in psychosis: a phenomenological analysis. Psychosis. 2016.
43.
Velligan DI, Roberts DL, Sierra C, Fredrick MM, Roach MJ. What Patients With Severe Mental Illness Transitioning From Hospital to Community Have to Say About Care and Shared Decision-Making. Issues in Mental Health Nursing. 2016;37(6):400-5.
44.
45.
46.
Firth J, Cotter J, Torous J, Bucci S, Firth JA, Yung AR. Mobile phone ownership and endorsement of “mHealth” among people with psychosis: a meta-analysis of cross-sectional studies. Schizophr Bull. 2016.
47.
Robotham D, Satkunanathan S, Doughty L, Wykes T. Do We Still Have a Digital Divide in Mental Health? A Five-Year Survey Follow-up. J Med Internet Res. 2016;18(11):e309.
48.
Bell IH, Lim MH, Rossell SL, Thomas N. Ecological Momentary Assessment and Intervention in the Treatment of Psychotic Disorders: A Systematic Review. Psychiatr Serv. 2017;68(11):1172-81.
49.
Berry N, Bucci S, Lobban F. Use of the Internet and Mobile Phones for Self-Management of Severe Mental Health Problems: Qualitative Study of Staff Views. JMIR Mental Health. 2017;4(4):e52.
50.
Switsers L, Dauwe A, Varhoudt A, Van Dyck H, Lombaerts K, Oldenburg JFE. Users’ perspectives on mHealth self-management of bipolar disorder: qualitative focus group study. JMIR Mhealth Uhealth. 2018.
51.
Bucci S, Morris R, Berry K, Berry N, Haddock G, Barrowclough C, Lewis S, Edge D. Early Psychosis Service User Views on Digital Technology: Qualitative Analysis. JMIR Mental Health. 2018;5(4):e10091.
52.
Nicholas J, Fogarty AS, Boydell K, Christensen H. The Reviews Are in: A Qualitative Content Analysis of Consumer Perspectives on Apps for Bipolar Disorder. J Med Internet Res. 2017;19(4):e105.
53.
Lobban F, Dodd AL, Sawczuk AP, Ozgur A, Dagnan D, Diggle PJ, et al. Assessing Feasibility and Acceptability of Web-Based Enhanced Relapse Prevention for Bipolar Disorder (ERPonline): A Randomized Controlled Trial. J Med Internet Res. 2017;19(3):e85.
54.
Aref-Adib G, O’Hanalon P, Fullarton K, Morant N, Sommerland A, Johnson S, et al. A qualitative study of online mental health information seeking behaviour by those with psychosis. BMC Psychiatry. 2016;16(1).
55.
Palmier-Claus JE, Rogers A, Ainsworth J, Machin M, Barrowclough C, Laverty L, et al. Integrating mobile-phone based assessment for psychosis into everyday lives and clinical care: a qualitative study. BMC Psychiatr. 2013.
56.
Lloyd-Evans B, Mayo-Wilson E, Harrison B, Istead H, Brown E, Pilling S. A systematic review and meta-analysis of randomised controlled trials of peer support for people with severe mental illness. BMC Psychiatry. 2014;14(1).
57.
Berry N, Lobban F, Belousov M, Emsley R, Nenadic G, Bucci S. #WhyWeTweetMH: Understanding Why People Use Twitter to Discuss Mental Health Problems. J Med Internet Res. 2017;19(4):e107.
58.
Killikelly C, He Z, Reeder C, Wykes T. Improving Adherence to Web-Based and Mobile Technologies for People With Psychosis: Systematic Review of New Potential Predictors of Adherence. JMIR mHealth uHealth. 2017;5(7):e94.
59.
Li J, Theng Y-L, Foo S. Game-Based Digital Interventions for Depression Therapy: A Systematic Review and Meta-Analysis. Cyberpsychology Behav Soc Netw. 2014;17(8):519-27.
60.
Fleming TM, Bavin L, Stasiak K, Hermansson-Webb E, Merry SN, Cheek C, et al. Serious Games and Gamification for Mental Health: Current Status and Promising Directions. Front Psychiatry. 2017;7.
61.
Barnett I, Torous J, Staples P, Sandoval L, Keshavan M, Onnela J-P. Relapse prediction in schizophrenia through digital phenotyping: a pilot study. Neuropsychopharmacology. 2018;43(8):1660-6.
62.
Doyle S. Member Checking With Older Women: A Framework for Negotiating Meaning. Health Care Women Int. 2007;28(10):888-908.
63.
Metadata
Title
A qualitative exploration of service user views about using digital health interventions for self-management in severe mental health problems
Authors
Natalie Berry
Fiona Lobban
Sandra Bucci
Publication date
01-12-2019
Publisher
BioMed Central
Published in
BMC Psychiatry / Issue 1/2019
Electronic ISSN: 1471-244X
DOI
https://doi.org/10.1186/s12888-018-1979-1

Other articles of this Issue 1/2019

BMC Psychiatry 1/2019 Go to the issue

Research article

A qualitative study of the acceptability of cognitive bias modification for paranoia (CBM-pa) in patients with psychosis

Debate

Guidelines for the pharmacological acute treatment of major depression: conflicts with current evidence as demonstrated with the German S3-guidelines

Research article

Patient characteristics, burden and pharmacotherapy of treatment-resistant schizophrenia: results from a survey of 204 US psychiatrists

Research article

Illness management and recovery: one-year follow-up of a randomized controlled trial in Danish community mental health centers: long-term effects on clinical and personal recovery

Research article

Somatic and sociodemographic predictors of depression outcome among depressed patients with coronary artery disease - a secondary analysis of the SPIRR-CAD study

Debate

Current state of evidence of cannabis utilization for treatment of autism spectrum disorders