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Published in: BMC Geriatrics 1/2020

Open Access 01-12-2020 | Care | Research article

A concept analysis of dignity-protective continence care for care dependent older people in long-term care settings

Authors: Joan Ostaszkiewicz, Virginia Dickson-Swift, Alison Hutchinson, Adrian Wagg

Published in: BMC Geriatrics | Issue 1/2020

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Abstract

Background

Although codes of conduct, guidelines and standards call for healthcare practitioners to protect patients’ dignity, there are widespread concerns about a lack of attention to the dignity of older people who need assistance with toileting, incontinence or bladder or bowel care in health or social care settings that provide long-term care. Incontinence and care dependence threatens patient dignity. The aim of this research was to explore, describe and explain the concept of dignity as it relates to continence care for older people requiring long-term care.

Methods

The first four steps of Rodgers evolutionary method of concept analysis were followed. First, a comprehensive and systematic search of databases and key guidelines about continence care was undertaken to identify empirical research about dignity and continence care in older people in facilities that provide permanent residential or inpatient care of older people for day-to-day living. Data were extracted on the authors, date, sample, country of origin, and key definitions, attributes, contexts and consequences from each included record. Findings were inductively analysed and grouped according to whether they were the key attributes and antecedents of dignity in relation to continence care or the consequences of undignified continence care.

Results

Of 625 articles identified, 18 were included in the final analysis. Fifty individual attributes were identified that were categorised in 6 domains (respect, empathy, trust, privacy, autonomy and communication). A further 15 were identified that related to the environment (6 physical and 9 social). Key consequences of undignified continence care were also identified and categorised into 3 levels of impact (resident/family member, staff or organisation).

Conclusions

This research resulted in a conceptual understanding of dignity that can be used as a value or guiding principle in an ethic of care for older people who need assistance with toileting, incontinence or bladder or bowel care in long-term care settings.
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Literature
1.
go back to reference Baillie L, Gallagher A. Respecting dignity in care in diverse care settings: strategies of UK nurses. Int J Nurs Pract. 2011;17(4):336–41.PubMed Baillie L, Gallagher A. Respecting dignity in care in diverse care settings: strategies of UK nurses. Int J Nurs Pract. 2011;17(4):336–41.PubMed
2.
go back to reference Baillie L, Ford P, Gallagher A, Wainwright P, et al. Nurs Older People. 2009;21(8):23–9. Baillie L, Ford P, Gallagher A, Wainwright P, et al. Nurs Older People. 2009;21(8):23–9.
3.
go back to reference Chochinov HM. Dignity therapy: final words for final days. Oxford: Oxford University Press View Article; 2012. Chochinov HM. Dignity therapy: final words for final days. Oxford: Oxford University Press View Article; 2012.
4.
go back to reference Baillie L. Patient dignity in an acute hospital setting: a case study. Int J Nurs Stud. 2009;46(1):23–37.PubMed Baillie L. Patient dignity in an acute hospital setting: a case study. Int J Nurs Stud. 2009;46(1):23–37.PubMed
5.
go back to reference Chochinov HM, Hack T, McClement S, Kristjanson L, Harlos M. Dignity in the terminally ill: a developing empirical model. Soc Sci Med. 2002;54(3):433–43.PubMed Chochinov HM, Hack T, McClement S, Kristjanson L, Harlos M. Dignity in the terminally ill: a developing empirical model. Soc Sci Med. 2002;54(3):433–43.PubMed
6.
go back to reference Kitson AL, Dow C, Calabrese JD, Locock L, Athlin ÅM. Stroke survivors’ experiences of the fundamentals of care: a qualitative analysis. Int J Nurs Stud. 2013;50(3):392–403.PubMed Kitson AL, Dow C, Calabrese JD, Locock L, Athlin ÅM. Stroke survivors’ experiences of the fundamentals of care: a qualitative analysis. Int J Nurs Stud. 2013;50(3):392–403.PubMed
7.
go back to reference Franklin L-L, Ternestedt B-M, Nordenfelt L. Views on dignity of elderly nursing home residents. Nurs Ethics. 2006;13(2):130–46.PubMed Franklin L-L, Ternestedt B-M, Nordenfelt L. Views on dignity of elderly nursing home residents. Nurs Ethics. 2006;13(2):130–46.PubMed
8.
go back to reference Pringle J, Johnston B, Buchanan D. Dignity and patient-centred care for people with palliative care needs in the acute hospital setting: a systematic review. Palliat Med. 2015;29(8):675–94.PubMed Pringle J, Johnston B, Buchanan D. Dignity and patient-centred care for people with palliative care needs in the acute hospital setting: a systematic review. Palliat Med. 2015;29(8):675–94.PubMed
9.
go back to reference Gallagher A. Dignity and respect for dignity-two key health professional values: implications for nursing practice. Nurs Ethics. 2004;11(6):587–99.PubMed Gallagher A. Dignity and respect for dignity-two key health professional values: implications for nursing practice. Nurs Ethics. 2004;11(6):587–99.PubMed
10.
go back to reference Gallagher A, Li S, Wainwright P, Jones IR, Lee D. Dignity in the care of older people–a review of the theoretical and empirical literature. BMC Nurs. 2008;7(1):11.PubMedPubMedCentral Gallagher A, Li S, Wainwright P, Jones IR, Lee D. Dignity in the care of older people–a review of the theoretical and empirical literature. BMC Nurs. 2008;7(1):11.PubMedPubMedCentral
11.
go back to reference Barclay L. In sickness and in dignity: a philosophical account of the meaning of dignity in health care. Int J Nurs Stud. 2016;61:136–41.PubMed Barclay L. In sickness and in dignity: a philosophical account of the meaning of dignity in health care. Int J Nurs Stud. 2016;61:136–41.PubMed
12.
go back to reference Joffe S, Manocchia M, Weeks J, Cleary P. What do patients value in their hospital care? An empirical perspective on autonomy centred bioethics. J Med Ethics. 2003;29(2):103–8.PubMedPubMedCentral Joffe S, Manocchia M, Weeks J, Cleary P. What do patients value in their hospital care? An empirical perspective on autonomy centred bioethics. J Med Ethics. 2003;29(2):103–8.PubMedPubMedCentral
15.
go back to reference Galvin K, Todres L. Dignity as honour-wound: an experiential and relational view. J Eval Clin Pract. 2015;21(3):410–9.PubMed Galvin K, Todres L. Dignity as honour-wound: an experiential and relational view. J Eval Clin Pract. 2015;21(3):410–9.PubMed
16.
go back to reference Macklin R. Dignity is a useless concept. Br Med J. 2003;327:1419. Macklin R. Dignity is a useless concept. Br Med J. 2003;327:1419.
17.
go back to reference Tranvåg O, Petersen KA, Nåden D. Dignity-preserving dementia care: a metasynthesis. Nurs Ethics. 2013;20(8):861–80.PubMed Tranvåg O, Petersen KA, Nåden D. Dignity-preserving dementia care: a metasynthesis. Nurs Ethics. 2013;20(8):861–80.PubMed
18.
go back to reference Agich GJ. Reflections on the function of dignity in the context of caring for old people. J Med Philos. 2007;32(5):483–94.PubMed Agich GJ. Reflections on the function of dignity in the context of caring for old people. J Med Philos. 2007;32(5):483–94.PubMed
19.
go back to reference Griffin-Heslin VL. An analysis of the concept dignity. Accid Emerg Nurs. 2005;13(4):251–7.PubMed Griffin-Heslin VL. An analysis of the concept dignity. Accid Emerg Nurs. 2005;13(4):251–7.PubMed
20.
go back to reference Jacelon CS. The dignity of elders in an acute care hospital. Qual Health Res. 2003;13(4):543–56.PubMed Jacelon CS. The dignity of elders in an acute care hospital. Qual Health Res. 2003;13(4):543–56.PubMed
21.
go back to reference Alaszewski H, Holdsworth L, Billings J, Wagg A. Privacy and dignity in continence care: research review. Nurs Residential Care. 2009;11(8):393–6. Alaszewski H, Holdsworth L, Billings J, Wagg A. Privacy and dignity in continence care: research review. Nurs Residential Care. 2009;11(8):393–6.
22.
go back to reference Guo Q, Jacelon CS. An integrative review of dignity in end-of-life care. Palliat Med. 2014;28(7):931–40.PubMed Guo Q, Jacelon CS. An integrative review of dignity in end-of-life care. Palliat Med. 2014;28(7):931–40.PubMed
23.
go back to reference Ostaszkiewicz J, Tomlinson E, Hutchinson A. “Dignity”: a central construct in nursing home staff understandings of quality continence care. J Clin Nurs. 2018;27(11–12):2425–37.PubMed Ostaszkiewicz J, Tomlinson E, Hutchinson A. “Dignity”: a central construct in nursing home staff understandings of quality continence care. J Clin Nurs. 2018;27(11–12):2425–37.PubMed
24.
go back to reference Cheraghi MA, Manookian A, Nasrabadi AN. Patients’ lived experiences regarding maintaining dignity. J Med Ethics History Med. 2015;8(6):1–7. Cheraghi MA, Manookian A, Nasrabadi AN. Patients’ lived experiences regarding maintaining dignity. J Med Ethics History Med. 2015;8(6):1–7.
25.
go back to reference Manookian A, Cheraghi MA, Nasrabadi AN. Factors influencing patients’ dignity: a qualitative study. Nurs Ethics. 2014;21(3):323–34.PubMed Manookian A, Cheraghi MA, Nasrabadi AN. Factors influencing patients’ dignity: a qualitative study. Nurs Ethics. 2014;21(3):323–34.PubMed
26.
go back to reference Commonwealth of Australia. Royal Commission into Aged Care Quality and Safety. In: Neglect, vol. 1. Canberra: Department of Prime Minister and Cabinet; 2019. Commonwealth of Australia. Royal Commission into Aged Care Quality and Safety. In: Neglect, vol. 1. Canberra: Department of Prime Minister and Cabinet; 2019.
27.
go back to reference NHS Care Quality Commission. 2018 Adult Inpatient Survey 2018. NHS Care Quality Commission. 2018 Adult Inpatient Survey 2018.
28.
go back to reference Mid Staffordshire NHS Foundation trust public inquiry. Report of the Mid Staffordshire NHS Foundation Trust Public Inquiry 2013. Mid Staffordshire NHS Foundation trust public inquiry. Report of the Mid Staffordshire NHS Foundation Trust Public Inquiry 2013.
29.
go back to reference Social Care Institute for Excellence. Dignity in Care 2013. Social Care Institute for Excellence. Dignity in Care 2013.
30.
go back to reference Ostaszkiewicz J. Reframing continence care in care-dependence. Geriatr Nurs. 2017;38(6):520–6.PubMed Ostaszkiewicz J. Reframing continence care in care-dependence. Geriatr Nurs. 2017;38(6):520–6.PubMed
31.
go back to reference Department of Health. Good Practice in Continence Services London: Department of Health, The Stationery Office 2010. Department of Health. Good Practice in Continence Services London: Department of Health, The Stationery Office 2010.
32.
go back to reference Ostaszkiewicz J, O'Connell B, Dunning T. ‘We just do the dirty work’: dealing with incontinence, courtesy stigma and the low occupational status of carework in long-term aged care facilities. J Clin Nurs. 2016;25(17–18):2528–41.PubMed Ostaszkiewicz J, O'Connell B, Dunning T. ‘We just do the dirty work’: dealing with incontinence, courtesy stigma and the low occupational status of carework in long-term aged care facilities. J Clin Nurs. 2016;25(17–18):2528–41.PubMed
33.
go back to reference Ostaszkiewicz J. A conceptual model of the risk of elder abuse posed by incontinence and care dependence. Int J Older People Nursing. 2018;13(2):e12182. Ostaszkiewicz J. A conceptual model of the risk of elder abuse posed by incontinence and care dependence. Int J Older People Nursing. 2018;13(2):e12182.
34.
go back to reference Abrams P, Cardoza L, Fall M, Griffiths D, Rosier P, Ulmsten U, et al. The standardisation of terminology of lower urinary tract function: report from the standardisation sub-committee of the international continence society. Neurourol Urodyn. 2002;21:156–78. Abrams P, Cardoza L, Fall M, Griffiths D, Rosier P, Ulmsten U, et al. The standardisation of terminology of lower urinary tract function: report from the standardisation sub-committee of the international continence society. Neurourol Urodyn. 2002;21:156–78.
35.
go back to reference Bliss D, Mimura T, Berghmans B, Bharucha A, Chiarioni A, Emmanuel A, et al. Assessment and conservative management of faecal incontinence and qualtiy of life in adults. In: Abrams P, Cardoza L, Wagg A, Wein A, editors. Incontinence. 6th ed: ICS/ICUD; 2017. p. 1996–2087. Bliss D, Mimura T, Berghmans B, Bharucha A, Chiarioni A, Emmanuel A, et al. Assessment and conservative management of faecal incontinence and qualtiy of life in adults. In: Abrams P, Cardoza L, Wagg A, Wein A, editors. Incontinence. 6th ed: ICS/ICUD; 2017. p. 1996–2087.
36.
go back to reference Australian Institute of Health and Welfare (AIHW). Incontinence in Australia. Canberra: AIHW; 2013. Australian Institute of Health and Welfare (AIHW). Incontinence in Australia. Canberra: AIHW; 2013.
37.
go back to reference Harris-Kojetin L, Sengupta M, Park-Lee E, Valverde R, Caffrey C, Rome V, et al. Long-term care providers and services users in the United States: data from the National Study of Long-Term Care Providers, 2013–2014. Vital & health statistics Series 3, Analytical and epidemiological studies. 2016(38):x-xii; 1–105. Harris-Kojetin L, Sengupta M, Park-Lee E, Valverde R, Caffrey C, Rome V, et al. Long-term care providers and services users in the United States: data from the National Study of Long-Term Care Providers, 2013–2014. Vital & health statistics Series 3, Analytical and epidemiological studies. 2016(38):x-xii; 1–105.
38.
go back to reference Saga S, Vinsnes AG, Mørkved S, Norton C, Seim A. Prevalence and correlates of fecal incontinence among nursing home residents: a population-based cross-sectional study. BMC Geriatr. 2013;13(1):87.PubMedPubMedCentral Saga S, Vinsnes AG, Mørkved S, Norton C, Seim A. Prevalence and correlates of fecal incontinence among nursing home residents: a population-based cross-sectional study. BMC Geriatr. 2013;13(1):87.PubMedPubMedCentral
39.
go back to reference Gorina Y, Schappert SM, Bercovitz A, Elgaddal N, Kramarow EA. Prevalence of incontinence among older Americans. Vital Health Stat 3. 2014;36:1–33. Gorina Y, Schappert SM, Bercovitz A, Elgaddal N, Kramarow EA. Prevalence of incontinence among older Americans. Vital Health Stat 3. 2014;36:1–33.
40.
go back to reference Higami Y, Yamakawa M, Kang Y, Kobayashi S, Liao X-Y, Sung H-C, et al. Prevalence of incontinence among cognitively impaired older residents in long-term care facilities in East Asia: a cross-sectional study. Geriatr Gerontol Int. 2019;19(5):444–50.PubMed Higami Y, Yamakawa M, Kang Y, Kobayashi S, Liao X-Y, Sung H-C, et al. Prevalence of incontinence among cognitively impaired older residents in long-term care facilities in East Asia: a cross-sectional study. Geriatr Gerontol Int. 2019;19(5):444–50.PubMed
41.
go back to reference Anderberg P, Lepp M, Berglund AL, Segesten K. Preserving dignity in caring for older adults: a concept analysis. J Adv Nurs. 2007;59(6):635–43.PubMed Anderberg P, Lepp M, Berglund AL, Segesten K. Preserving dignity in caring for older adults: a concept analysis. J Adv Nurs. 2007;59(6):635–43.PubMed
42.
go back to reference Fenton E, Mitchell T. Growing old with dignity: a concept analysis. Nurs Older People (through 2013). 2002;14(4):19. Fenton E, Mitchell T. Growing old with dignity: a concept analysis. Nurs Older People (through 2013). 2002;14(4):19.
43.
go back to reference Kadivar M, Mardani-Hamooleh M, Kouhnavard M. Concept analysis of human dignity in patient care: Rodgers' evolutionary approach. J Med Ethics History Med. 2018;11:4. Kadivar M, Mardani-Hamooleh M, Kouhnavard M. Concept analysis of human dignity in patient care: Rodgers' evolutionary approach. J Med Ethics History Med. 2018;11:4.
44.
go back to reference Shanahan D. A concept analysis of poor care using Rodgers’ evolutionary cycle. J Adult Prot. 2019;21(2):111–25. Shanahan D. A concept analysis of poor care using Rodgers’ evolutionary cycle. J Adult Prot. 2019;21(2):111–25.
45.
go back to reference Hasegawa N, Ota K. Concept synthesis of dignity in care for elderly facility residents. Nurs Ethics. 2019;26(7–8):2016–34.PubMed Hasegawa N, Ota K. Concept synthesis of dignity in care for elderly facility residents. Nurs Ethics. 2019;26(7–8):2016–34.PubMed
46.
go back to reference Dombrowsky T, Gray J. Continence and incontinence: a concept analysis. J Theory Construction Test. 2012;16(2):31. Dombrowsky T, Gray J. Continence and incontinence: a concept analysis. J Theory Construction Test. 2012;16(2):31.
47.
go back to reference Zhang N. An evolutionary concept analysis of urinary incontinence. Urol Nurs. 2018;38(6):289–295, 306. Zhang N. An evolutionary concept analysis of urinary incontinence. Urol Nurs. 2018;38(6):289–295, 306.
48.
go back to reference Continence Care Steering Group UK. Revised minimum standards for continence care in the UK. London: Continence Care Steering Group; 2014. Continence Care Steering Group UK. Revised minimum standards for continence care in the UK. London: Continence Care Steering Group; 2014.
49.
go back to reference England NHS. Excellence in Continence Care: Practical guidance for commissioners, and leaders in health and social care UK: NHS England; 2018. England NHS. Excellence in Continence Care: Practical guidance for commissioners, and leaders in health and social care UK: NHS England; 2018.
50.
go back to reference Healthcare Quality Improvement Partnership, Royal College of Physicians. National Audit of Continence Care. London: Royal College of Physicans; 2010. Healthcare Quality Improvement Partnership, Royal College of Physicians. National Audit of Continence Care. London: Royal College of Physicans; 2010.
51.
go back to reference Assocation for Continence Advice, Royal College of Nursing. Guidance for the provision of absorbent pads for adult incontinence: A consensus document London Association for Continence Advice and Royal College of Nursing; 2017. Assocation for Continence Advice, Royal College of Nursing. Guidance for the provision of absorbent pads for adult incontinence: A consensus document London Association for Continence Advice and Royal College of Nursing; 2017.
52.
go back to reference Rantell A, Dolan L, Bonner L, Knight S, Ramage C, Toozs-Hobson P. Minimum standards for continence care in the UK. Neurourol Urodyn. 2016;35(3):400–6.PubMed Rantell A, Dolan L, Bonner L, Knight S, Ramage C, Toozs-Hobson P. Minimum standards for continence care in the UK. Neurourol Urodyn. 2016;35(3):400–6.PubMed
53.
go back to reference Sykes S, Wills J, Rowlands G, Popple K. Understanding critical health literacy: a concept analysis. BMC Public Health. 2013;13(1):150.PubMedPubMedCentral Sykes S, Wills J, Rowlands G, Popple K. Understanding critical health literacy: a concept analysis. BMC Public Health. 2013;13(1):150.PubMedPubMedCentral
54.
go back to reference Henderson S, Horne M, Hills R, Kendall E. Cultural competence in healthcare in the community: a concept analysis. Health Soc Care Community. 2018;26(4):590–603.PubMed Henderson S, Horne M, Hills R, Kendall E. Cultural competence in healthcare in the community: a concept analysis. Health Soc Care Community. 2018;26(4):590–603.PubMed
55.
go back to reference Rodgers BL. Concepts, analysis and the development of nursing knowledge: the evolutionary cycle. J Adv Nurs. 1989;14(4):330–5.PubMed Rodgers BL. Concepts, analysis and the development of nursing knowledge: the evolutionary cycle. J Adv Nurs. 1989;14(4):330–5.PubMed
56.
go back to reference Rodgers BL. Concept analysis. An evolutionary view. In: Rodxgers BL, Knafl KA, editors. Concept development in nursing: foundation, techniques, and applications. 2nd ed. Philadelphia: W-B Saunders Company; 2000. p. 77–102. Rodgers BL. Concept analysis. An evolutionary view. In: Rodxgers BL, Knafl KA, editors. Concept development in nursing: foundation, techniques, and applications. 2nd ed. Philadelphia: W-B Saunders Company; 2000. p. 77–102.
57.
go back to reference Rodgers BL, Jacelon C, Knafl KA. Concept analysis and the advance of nursing knowledge: state of the science. J Nurs Scholarsh. 2018;50(4):451–9.PubMed Rodgers BL, Jacelon C, Knafl KA. Concept analysis and the advance of nursing knowledge: state of the science. J Nurs Scholarsh. 2018;50(4):451–9.PubMed
58.
go back to reference Morse JM, Hupcey JE, Mitcham C, Lenz ER. Concept analysis in nursing research: a critical appraisal. Sch Inq Nurs Pract. 1996;10(3):253–77.PubMed Morse JM, Hupcey JE, Mitcham C, Lenz ER. Concept analysis in nursing research: a critical appraisal. Sch Inq Nurs Pract. 1996;10(3):253–77.PubMed
59.
go back to reference Fitzpatrick JJ, Wallace M. Encyclopaedia of nursing research. New York: Springer Publishing Company; 2006. Fitzpatrick JJ, Wallace M. Encyclopaedia of nursing research. New York: Springer Publishing Company; 2006.
60.
go back to reference Rodgers BL. Philosophical foundations of concept development. In: Rodgers BL, Knaff KA, editors. Concept development in nursing. 2nd ed. Philadelphia: Philadephia WB Saunders; 2000. p. 7–37. Rodgers BL. Philosophical foundations of concept development. In: Rodgers BL, Knaff KA, editors. Concept development in nursing. 2nd ed. Philadelphia: Philadephia WB Saunders; 2000. p. 7–37.
61.
go back to reference Tofthagen R, Fagerstrøm LM. Rodgers’ evolutionary concept analysis – a valid method for developing knowledge in nursing science. Scand J Caring Sci. 2010;24(s1):21–31.PubMed Tofthagen R, Fagerstrøm LM. Rodgers’ evolutionary concept analysis – a valid method for developing knowledge in nursing science. Scand J Caring Sci. 2010;24(s1):21–31.PubMed
62.
go back to reference Walker L, Avant K. Strategies for theory construction in nursing. 4th ed. Upper Saddle RIver, New Jersey: Pearson Prentice Hall; 2005. Walker L, Avant K. Strategies for theory construction in nursing. 4th ed. Upper Saddle RIver, New Jersey: Pearson Prentice Hall; 2005.
63.
go back to reference Continence Nurses Society Australia (CoNSA). Practice Standards for Nurse Continence Specialists: Melbourne Continence Nurses Society of Australia; 2017. Continence Nurses Society Australia (CoNSA). Practice Standards for Nurse Continence Specialists: Melbourne Continence Nurses Society of Australia; 2017.
64.
go back to reference Wound Ostomy and Continence Nurses Society (WOCN). WOCN Society Position Statement: Competency and WOC Nursing. Glenview, IL: Wound Ostomy and Continence Nurses Society; 2017. Wound Ostomy and Continence Nurses Society (WOCN). WOCN Society Position Statement: Competency and WOC Nursing. Glenview, IL: Wound Ostomy and Continence Nurses Society; 2017.
65.
go back to reference British Geriatrics Society. Behind Closed Doors: The Use of the Toilet as a Marker of Human Rights. 2006. British Geriatrics Society. Behind Closed Doors: The Use of the Toilet as a Marker of Human Rights. 2006.
66.
go back to reference Abrams P, Cardozo L, Wagg A, Wein AJ, editors. Incontinence. 6th ed. Anheim, The Netherlands: ICS-ICUD; 2017. Abrams P, Cardozo L, Wagg A, Wein AJ, editors. Incontinence. 6th ed. Anheim, The Netherlands: ICS-ICUD; 2017.
67.
go back to reference Veritas Health Innovation. Covidence systematic review software. Melbourne: Covidence systematic review software, Veritas Health Innovation; 2019. Available at www.covidence.org. Veritas Health Innovation. Covidence systematic review software. Melbourne: Covidence systematic review software, Veritas Health Innovation; 2019. Available at www.​covidence.​org.
68.
go back to reference Borglin G, Hew Thach E, Jeppsson M, Sjögren Forss K. Registered nurse’s experiences of continence care for older people: a qualitative descriptive study. Int J Older People Nursing. 2019;0(0):e12275. Borglin G, Hew Thach E, Jeppsson M, Sjögren Forss K. Registered nurse’s experiences of continence care for older people: a qualitative descriptive study. Int J Older People Nursing. 2019;0(0):e12275.
69.
go back to reference Buswell M, Goodman C, Roe B, Russell B, Norton C, Harwood R, et al. What works to mprove and manage fecal incontinence in care home residents liwing with dementia? A Realist Synthesis of the Evidence. J Am Med Dir Assoc. 2020;15(1):E12275. Buswell M, Goodman C, Roe B, Russell B, Norton C, Harwood R, et al. What works to mprove and manage fecal incontinence in care home residents liwing with dementia? A Realist Synthesis of the Evidence. J Am Med Dir Assoc. 2020;15(1):E12275.
70.
go back to reference Goodman C, Norton C, Buswell M, Russell B, Harari D, Harwood R, et al. Managing faecal incontinence in people with advanced dementia resident in care homes (FINCH) study: a realist synthesis of the evidence. Health Technol Assess 2017;21(42):1–219. Goodman C, Norton C, Buswell M, Russell B, Harari D, Harwood R, et al. Managing faecal incontinence in people with advanced dementia resident in care homes (FINCH) study: a realist synthesis of the evidence. Health Technol Assess 2017;21(42):1–219.
71.
go back to reference Manthorpe J, Iliffe S, Samsi K, Cole L, Goodman C, Drennan V, et al. Dementia, dignity and quality of life: nursing practice and its dilemmas. Int J Older People Nursing. 2010;5(3):235–44. Manthorpe J, Iliffe S, Samsi K, Cole L, Goodman C, Drennan V, et al. Dementia, dignity and quality of life: nursing practice and its dilemmas. Int J Older People Nursing. 2010;5(3):235–44.
72.
go back to reference Ostaszkiewicz J, O'Connell B, Dunning T. Ethical challenges associated with providing continence care in residential aged care facilities: findings from a grounded theory study. Aust N Z Continence J. 2014;20(4):179–86. Ostaszkiewicz J, O'Connell B, Dunning T. Ethical challenges associated with providing continence care in residential aged care facilities: findings from a grounded theory study. Aust N Z Continence J. 2014;20(4):179–86.
73.
go back to reference Ostaszkiewicz J, O'Connell B, Dunning T. Night-time continence care in Australian residential aged care facilities: findings from a grounded theory study. Contemp Nurse. 2016;52(2–3):152–62.PubMed Ostaszkiewicz J, O'Connell B, Dunning T. Night-time continence care in Australian residential aged care facilities: findings from a grounded theory study. Contemp Nurse. 2016;52(2–3):152–62.PubMed
74.
go back to reference Ostaszkiewicz J, O'Connell B, Dunning T. Residents' perspectives on urinary incontinence: A review of literature. Scand J Caring Sci. 2012;26:761–72.PubMed Ostaszkiewicz J, O'Connell B, Dunning T. Residents' perspectives on urinary incontinence: A review of literature. Scand J Caring Sci. 2012;26:761–72.PubMed
75.
go back to reference Ostaszkiewicz J, Tomlinson E, Hutchinson A. Learning to accept incontinence and continence care in residential aged care facilities: family members' experiences. Aust N Z Continence J. 2016;22(3):66–73. Ostaszkiewicz J, Tomlinson E, Hutchinson A. Learning to accept incontinence and continence care in residential aged care facilities: family members' experiences. Aust N Z Continence J. 2016;22(3):66–73.
76.
go back to reference Roe B, Flanagan L, Maden M. Systematic review of systematic reviews for the management of urinary incontinence and promotion of continence using conservative behavioural approaches in older people in care homes. J Adv Nurs. 2015;71(7):1464–83.PubMed Roe B, Flanagan L, Maden M. Systematic review of systematic reviews for the management of urinary incontinence and promotion of continence using conservative behavioural approaches in older people in care homes. J Adv Nurs. 2015;71(7):1464–83.PubMed
77.
go back to reference Roe B, Goodman C, Russell B, Buswell M, Norton C, Harari D, et al. Management of Fecal Incontinence in older people with dementia resident in care homes: a realist synthesis-the FINCH study. J Am Med Dir Assoc. 2017;18(9):750–1.PubMed Roe B, Goodman C, Russell B, Buswell M, Norton C, Harari D, et al. Management of Fecal Incontinence in older people with dementia resident in care homes: a realist synthesis-the FINCH study. J Am Med Dir Assoc. 2017;18(9):750–1.PubMed
78.
go back to reference Smith N, Hunter K, Rajabali S, Fainsinger R, Wagg A. Preferences for continence care experienced at end of life: a qualitative study. J Pain Symptom Manage. 2019;57(6):1099–105. e3.PubMed Smith N, Hunter K, Rajabali S, Fainsinger R, Wagg A. Preferences for continence care experienced at end of life: a qualitative study. J Pain Symptom Manage. 2019;57(6):1099–105. e3.PubMed
79.
go back to reference Wijk H, Corazzini K, Lindström Kjellberg I, Kinnander A, Alexiou E, Swedberg K. Person-centered incontinence Care in Residential Care Facilities for older adults with cognitive decline: feasibility and preliminary effects on quality of life and quality of care. J Gerontol Nurs. 2018;44(11):10–9.PubMed Wijk H, Corazzini K, Lindström Kjellberg I, Kinnander A, Alexiou E, Swedberg K. Person-centered incontinence Care in Residential Care Facilities for older adults with cognitive decline: feasibility and preliminary effects on quality of life and quality of care. J Gerontol Nurs. 2018;44(11):10–9.PubMed
80.
go back to reference Xu D, Kane RL. Effect of urinary incontinence on older nursing home residents' self-reported quality of life. J Am Geriatr Soc. 2013;61:1473–81.PubMed Xu D, Kane RL. Effect of urinary incontinence on older nursing home residents' self-reported quality of life. J Am Geriatr Soc. 2013;61:1473–81.PubMed
81.
go back to reference Fazio S, Pace D, Flinner J, Kallmyer B. The fundamentals of person-centered care for individuals with dementia. Gerontologist. 2018;58(suppl_1):S10–S9.PubMed Fazio S, Pace D, Flinner J, Kallmyer B. The fundamentals of person-centered care for individuals with dementia. Gerontologist. 2018;58(suppl_1):S10–S9.PubMed
82.
go back to reference Kitson A, Conroy T, Kuluski K, Locock L, Lyons R. Reclaiming and redefining the Fundamentals of Care: Nursing's response to meeting patients' basic human needs. The University of Adelaide; 2013. Report No.: 0987212621. Kitson A, Conroy T, Kuluski K, Locock L, Lyons R. Reclaiming and redefining the Fundamentals of Care: Nursing's response to meeting patients' basic human needs. The University of Adelaide; 2013. Report No.: 0987212621.
83.
go back to reference Kogan AC, Wilber K, Mosqueda L. Person-centered care for older adults with chronic conditions and functional impairment: a systematic literature review. J Am Geriatr Soc. 2016;64(1):e1–7.PubMed Kogan AC, Wilber K, Mosqueda L. Person-centered care for older adults with chronic conditions and functional impairment: a systematic literature review. J Am Geriatr Soc. 2016;64(1):e1–7.PubMed
84.
go back to reference Mitchell G, Agnelli J. Person-centred care for people with dementia: Kitwood reconsidered. Nurs Stand (2014+). 2015;30(7):46. Mitchell G, Agnelli J. Person-centred care for people with dementia: Kitwood reconsidered. Nurs Stand (2014+). 2015;30(7):46.
85.
go back to reference Morgan S, Yoder LH. A concept analysis of person-centered care. J Holist Nurs. 2012;30(1):6–15.PubMed Morgan S, Yoder LH. A concept analysis of person-centered care. J Holist Nurs. 2012;30(1):6–15.PubMed
86.
go back to reference Åstedt-Kurki P, Isola A, Tammentie T, Kervinen U. Importance of humour to client–nurse relationships and clients’ well-being. Int J Nurs Pract. 2001;7(2):119–25.PubMed Åstedt-Kurki P, Isola A, Tammentie T, Kervinen U. Importance of humour to client–nurse relationships and clients’ well-being. Int J Nurs Pract. 2001;7(2):119–25.PubMed
87.
go back to reference Wagg A. Why incontinence gets no respect: an international and multidisciplinary perspective. Aust N Z Continence J. 2018;24(1):4. Wagg A. Why incontinence gets no respect: an international and multidisciplinary perspective. Aust N Z Continence J. 2018;24(1):4.
88.
go back to reference Matiti MR, Trorey G. Perceptual adjustment levels: patients’ perception of their dignity in the hospital setting. Int J Nurs Stud. 2004;41(7):735–44.PubMed Matiti MR, Trorey G. Perceptual adjustment levels: patients’ perception of their dignity in the hospital setting. Int J Nurs Stud. 2004;41(7):735–44.PubMed
89.
go back to reference Rubin EB, Buehler AE, Halpern SD. States worse than death among hospitalized patients with serious illnesses. JAMA Intern Med. 2016;176(10):1557–9.PubMedPubMedCentral Rubin EB, Buehler AE, Halpern SD. States worse than death among hospitalized patients with serious illnesses. JAMA Intern Med. 2016;176(10):1557–9.PubMedPubMedCentral
Metadata
Title
A concept analysis of dignity-protective continence care for care dependent older people in long-term care settings
Authors
Joan Ostaszkiewicz
Virginia Dickson-Swift
Alison Hutchinson
Adrian Wagg
Publication date
01-12-2020
Publisher
BioMed Central
Keyword
Care
Published in
BMC Geriatrics / Issue 1/2020
Electronic ISSN: 1471-2318
DOI
https://doi.org/10.1186/s12877-020-01673-x

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