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Published in: BMC Geriatrics 1/2020

Open Access 01-12-2020 | Care | Research article

Identifying and understanding the health and social care needs of Indigenous older adults with multiple chronic conditions and their caregivers: a scoping review

Authors: Sharlene Webkamigad, Robyn Rowe, Shanna Peltier, Amanda Froehlich Chow, Katherine S. McGilton, Jennifer D. Walker

Published in: BMC Geriatrics | Issue 1/2020

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Abstract

Background

Indigenous people continue to experience high rates of multiple chronic conditions (MCC) at younger ages than other populations, resulting in an increase in health and social care needs. Those who provide services designed to address MCC for Indigenous communities require synthesized information to develop interventions that meet the needs of their older adult population. This review seeks to answer the research question: What are the health and social care needs, priorities and preferences of Indigenous older adults (living outside of long-term care settings) with MCC and their caregivers?

Methods

A scoping review, guided by a refinement of the Arksey & O’Malley framework, was conducted. Articles were included if the authors reported on health and social care needs and priorities of older Indigenous adults. We also included articles that focused on Indigenous conceptions of wellness, resilience, well-being, and/or balance within the context of aging, and articles where authors drew from Indigenous specific worldviews, ways of knowing, cultural safety, cultural competence, cultural appropriateness, cultural relevance and community needs.

Results

This scoping review included 9 articles that were examined using an Indigenous determinants of health (IDH) theoretical framework to analyze the needs of older adults and CGs. Five areas of needs were identified: accessible health services; building community capacity; improved social support networks; preservation of cultural values in health care; and wellness-based approaches.

Conclusion

The review highlights key determinants of health that influenced older adults’ needs: education and literacy, ethnicity, and social support/network (proximal); health promotion and health care (intermediate); and a combination of historical and contemporary structures (distal). The findings highlight the importance of local Indigenous knowledge and perspectives to improve accessibility of culturally relevant health and social services.
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Literature
1.
go back to reference Waugh E, Mackenzie L. Ageing well from an urban Indigenous Australian perspective. Aust Occup Ther J. 2011;58(1):25–33. Waugh E, Mackenzie L. Ageing well from an urban Indigenous Australian perspective. Aust Occup Ther J. 2011;58(1):25–33.
2.
go back to reference Aspin C, Brown N, Jowsey T, Yen L, Leeder S. Strategic approaches to enhanced health service delivery for Aboriginal and Torres Strait Islander people with chronic illness: a qualitative study. BMC Health Serv Res. 2012;12:143.CrossRef Aspin C, Brown N, Jowsey T, Yen L, Leeder S. Strategic approaches to enhanced health service delivery for Aboriginal and Torres Strait Islander people with chronic illness: a qualitative study. BMC Health Serv Res. 2012;12:143.CrossRef
3.
go back to reference Davis R. Voices of native Hawaiian kupuna (elders) living with chronic illness: "knowing who I am". J Transcult Nurs. 2010;21(3):237–45.CrossRef Davis R. Voices of native Hawaiian kupuna (elders) living with chronic illness: "knowing who I am". J Transcult Nurs. 2010;21(3):237–45.CrossRef
4.
go back to reference Cooke M, Mitrou F, Lawrence D, Guimond E, Beavon D. Indigenous well-being in four countries: an application of the UNDP'S human development index to Indigenous peoples in Australia, Canada, New Zealand, and the United States. BMC Int Health Hum Rights. 2007;7(1):9. Cooke M, Mitrou F, Lawrence D, Guimond E, Beavon D. Indigenous well-being in four countries: an application of the UNDP'S human development index to Indigenous peoples in Australia, Canada, New Zealand, and the United States. BMC Int Health Hum Rights. 2007;7(1):9.
5.
go back to reference Bloom DE, Canning D, Fink G. Implications of population aging for economic growth. Oxf Rev Econ Policy. 2010;26(4):583–612.CrossRef Bloom DE, Canning D, Fink G. Implications of population aging for economic growth. Oxf Rev Econ Policy. 2010;26(4):583–612.CrossRef
6.
go back to reference Schure MB, Conte KP, Goins RT. Unmet assistance need among older American Indians: the native elder care study. Gerontologist. 2015;55(6):920–8.CrossRef Schure MB, Conte KP, Goins RT. Unmet assistance need among older American Indians: the native elder care study. Gerontologist. 2015;55(6):920–8.CrossRef
7.
go back to reference de Leeuw S, Lindsay NM, Greenwood M. Rethinking determinants of Indigenous Peoples' health in Canada. In: Greenwood M, De Leeuw S, Lindeman MA, Reading C, editors. Determinants of Indigenous Peoples' Health in Canada: Beyond the Social. Toronto: Canadian Scholars' Press Inc; 2015. p. XI–XXIX. de Leeuw S, Lindsay NM, Greenwood M. Rethinking determinants of Indigenous Peoples' health in Canada. In: Greenwood M, De Leeuw S, Lindeman MA, Reading C, editors. Determinants of Indigenous Peoples' Health in Canada: Beyond the Social. Toronto: Canadian Scholars' Press Inc; 2015. p. XI–XXIX.
8.
go back to reference Ward NJ, Jowsey T, Haora PJ, Aspin C, Yen LE. With good intentions: complexity in unsolicited informal support for aboriginal and Torres Strait islander peoples. A qualitative study. BMC Public Health. 2011;11:686.CrossRef Ward NJ, Jowsey T, Haora PJ, Aspin C, Yen LE. With good intentions: complexity in unsolicited informal support for aboriginal and Torres Strait islander peoples. A qualitative study. BMC Public Health. 2011;11:686.CrossRef
9.
go back to reference Habjan S, Prince H, Kelley ML. Caregiving for elders in first nations communities: social system perspective on barriers and challenges. Can J Aging. 2012;31(2):209–22.CrossRef Habjan S, Prince H, Kelley ML. Caregiving for elders in first nations communities: social system perspective on barriers and challenges. Can J Aging. 2012;31(2):209–22.CrossRef
10.
go back to reference Loppie Reading C, Wien F. Health inequalities and social determinants of aboriginal peoples' health. Prince George: National Collaborating Centre for Aboriginal Health; 2009. Loppie Reading C, Wien F. Health inequalities and social determinants of aboriginal peoples' health. Prince George: National Collaborating Centre for Aboriginal Health; 2009.
11.
go back to reference Reading C. Structural determinants of Aboriginal peoples’ health. In: Greenwood M, de Leeuw S, Lindsay NM, Reading C, editors. Determinants of Indigenous peoples’ health: Beyond the social. Toronto: Canadian Scholars’ Press; 2015. p. 3–15. Reading C. Structural determinants of Aboriginal peoples’ health. In: Greenwood M, de Leeuw S, Lindsay NM, Reading C, editors. Determinants of Indigenous peoples’ health: Beyond the social. Toronto: Canadian Scholars’ Press; 2015. p. 3–15.
12.
go back to reference World Health Organization. Towards a common language for functioning, disability, and health: ICF. Geneva: World Health Organization; 2002. World Health Organization. Towards a common language for functioning, disability, and health: ICF. Geneva: World Health Organization; 2002.
13.
go back to reference Krieger N. Proximal, distal, and the politics of causation: what’s level got to do with it? Am J Public Health. 2008;98(2):221–30.CrossRef Krieger N. Proximal, distal, and the politics of causation: what’s level got to do with it? Am J Public Health. 2008;98(2):221–30.CrossRef
14.
go back to reference Lowry KA, Vallejo AN, Studenski SA. Successful aging as a continuum of functional independence: lessons from physical disability models of aging. Aging Dis. 2012;3(1):5.PubMed Lowry KA, Vallejo AN, Studenski SA. Successful aging as a continuum of functional independence: lessons from physical disability models of aging. Aging Dis. 2012;3(1):5.PubMed
15.
go back to reference Commisso E, McGilton KS, Ayala AP, Andrew MK, Bergman H, Beaudet L, et al. Identifying and understanding the health and social care needs of older adults with multiple chronic conditions and their caregivers: a protocol for a scoping review. BMJ Open. 2017;7(12):e018247.CrossRef Commisso E, McGilton KS, Ayala AP, Andrew MK, Bergman H, Beaudet L, et al. Identifying and understanding the health and social care needs of older adults with multiple chronic conditions and their caregivers: a protocol for a scoping review. BMJ Open. 2017;7(12):e018247.CrossRef
16.
go back to reference McGilton KS, Vellani S, Yeung L, Chishtie J, Commisso E, Ploeg J, et al. Identifying and understanding the health and social care needs of older adults with multiple chronic conditions and their caregivers: A scoping review. BMC Geriatr. 2018;18:231.CrossRef McGilton KS, Vellani S, Yeung L, Chishtie J, Commisso E, Ploeg J, et al. Identifying and understanding the health and social care needs of older adults with multiple chronic conditions and their caregivers: A scoping review. BMC Geriatr. 2018;18:231.CrossRef
17.
go back to reference Arksey H, O'Malley L. Scoping studies: towards a methodological framework. Int J Soc Res Methodol. 2005;8(1):19–32.CrossRef Arksey H, O'Malley L. Scoping studies: towards a methodological framework. Int J Soc Res Methodol. 2005;8(1):19–32.CrossRef
18.
go back to reference Levac D, Colquhoun H, O'Brien KK. Scoping studies: advancing the methodology. Implement Sci. 2010;5(1):69.CrossRef Levac D, Colquhoun H, O'Brien KK. Scoping studies: advancing the methodology. Implement Sci. 2010;5(1):69.CrossRef
19.
go back to reference Colquhoun HL, Levac D, O'Brien KK, Straus S, Tricco AC, Perrier L, et al. Scoping reviews: time for clarity in definition, methods, and reporting. J Clin Epidemiol. 2014;67(12):1291–4.CrossRef Colquhoun HL, Levac D, O'Brien KK, Straus S, Tricco AC, Perrier L, et al. Scoping reviews: time for clarity in definition, methods, and reporting. J Clin Epidemiol. 2014;67(12):1291–4.CrossRef
20.
go back to reference Daudt HM, van Mossel C, Scott SJ. Enhancing the scoping study methodology: a large, inter-professional team’s experience with Arksey and O’Malley’s framework. BMC Med Res Methodol. 2013;13(1):48.CrossRef Daudt HM, van Mossel C, Scott SJ. Enhancing the scoping study methodology: a large, inter-professional team’s experience with Arksey and O’Malley’s framework. BMC Med Res Methodol. 2013;13(1):48.CrossRef
21.
go back to reference Moher D, Shamseer L, Clarke M, Ghersi D, Liberati A, Petticrew M, et al. Preferred reporting items for systematic review and meta-analysis protocols (PRISMA-P) 2015 statement. Syst Rev. 2015;4(1):1.CrossRef Moher D, Shamseer L, Clarke M, Ghersi D, Liberati A, Petticrew M, et al. Preferred reporting items for systematic review and meta-analysis protocols (PRISMA-P) 2015 statement. Syst Rev. 2015;4(1):1.CrossRef
22.
go back to reference Kastner M, Wilczynski NL, Walker-Dilks C, McKibbon KA, Haynes B. Age-specific search strategies for Medline. J Med Internet Res. 2006;8(4). Kastner M, Wilczynski NL, Walker-Dilks C, McKibbon KA, Haynes B. Age-specific search strategies for Medline. J Med Internet Res. 2006;8(4).
24.
go back to reference Solar O, Irwin A. A conceptual framework for action on the social determinants of health. Social Determinants of Health Discussion Paper. 2010;2 (Policy and Practice):79. Solar O, Irwin A. A conceptual framework for action on the social determinants of health. Social Determinants of Health Discussion Paper. 2010;2 (Policy and Practice):79.
25.
go back to reference Pluye P, Robert E, Cargo M, Bartlett G, O’cathain A, Griffiths F, et al. Proposal: a mixed methods appraisal tool for systematic mixed studies reviews, vol. 2. Montréal: McGill University; 2011. p. 1–8. Pluye P, Robert E, Cargo M, Bartlett G, O’cathain A, Griffiths F, et al. Proposal: a mixed methods appraisal tool for systematic mixed studies reviews, vol. 2. Montréal: McGill University; 2011. p. 1–8.
26.
go back to reference Bell D, Lindeman MA, Reid JB. The (mis) matching of resources and assessed need in remote aboriginal community aged care. Australas J Ageing. 2015;34(3):171–6.CrossRef Bell D, Lindeman MA, Reid JB. The (mis) matching of resources and assessed need in remote aboriginal community aged care. Australas J Ageing. 2015;34(3):171–6.CrossRef
27.
go back to reference Browne CV, Mokuau N, Ka'opua LS, Kim BJ, Higuchi P, Braun KL. Listening to the voices of native Hawaiian elders and 'ohana caregivers: discussions on aging, health, and care preferences. J Cross Cult Gerontol. 2014;29(2):131–51.CrossRef Browne CV, Mokuau N, Ka'opua LS, Kim BJ, Higuchi P, Braun KL. Listening to the voices of native Hawaiian elders and 'ohana caregivers: discussions on aging, health, and care preferences. J Cross Cult Gerontol. 2014;29(2):131–51.CrossRef
28.
go back to reference Lowell A, Maypilama E, Yikaniwuy S, Rrapa E, Williams R, Dunn S. "hiding the story": Indigenous consumer concerns about communication related to chronic disease in one remote region of Australia. Int J Speech Lang Pathol. 2012;14(3):200–8. Lowell A, Maypilama E, Yikaniwuy S, Rrapa E, Williams R, Dunn S. "hiding the story": Indigenous consumer concerns about communication related to chronic disease in one remote region of Australia. Int J Speech Lang Pathol. 2012;14(3):200–8.
29.
go back to reference Smye V, Browne A. 'Cultural safety' and the analysis of health policy affecting aboriginal people. Nurse Res. 2002;9(3):42–56.CrossRef Smye V, Browne A. 'Cultural safety' and the analysis of health policy affecting aboriginal people. Nurse Res. 2002;9(3):42–56.CrossRef
Metadata
Title
Identifying and understanding the health and social care needs of Indigenous older adults with multiple chronic conditions and their caregivers: a scoping review
Authors
Sharlene Webkamigad
Robyn Rowe
Shanna Peltier
Amanda Froehlich Chow
Katherine S. McGilton
Jennifer D. Walker
Publication date
01-12-2020
Publisher
BioMed Central
Keyword
Care
Published in
BMC Geriatrics / Issue 1/2020
Electronic ISSN: 1471-2318
DOI
https://doi.org/10.1186/s12877-020-01552-5

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