Empowerment Weekends for young adults

Excerpt

SoMA is the German patient organization for people with an anorectal malformation (children born without an anus or with an anus ending in a wrong location) and Hirschsprung’s disease. Anorectal malformations may be associated with further malformations (e.g. bladder, sexual organs, spine, or cardiac defects) and the patients often face lifelong problems such as incontinence. Because of the lack of medical centres and as physicians for adults, who do not know much about the treatment, there are special problems during transition. Due to legal retention periods for medical reports a retrospective access is often impossible. But precise medical reports are of high importance, and the patients should know their correct diagnosis and what kind of surgery they went through. …