Published in:

Open Access 01-12-2014 | Oral presentation

RARE-Bestpractices: a platform for sharing best practices for the management of rare diseases

Authors: D Taruscio, C Morciano, P Laricchiuta, P Mincarone, F Palazzo, CG Leo, S Sabina, R Guarino, J Auld, T Sejersen, D Gavhed, K Ritchie, M Hilton-Boon, J Manson, PG Kanavos, D Tordrup, V Tzouma, Y Le Cam, J Senecat, G Filippini, S Minozzi, C Del Giovane, H Schünemann, JJ Meerpohl, B Prediger, L Schell, R Stefanov, G Iskrov, T Miteva-Katrandzhieva, P Serrano-Aguilar, L Perestelo-Perez, MM Trujillo-Martín, J Pérez-Ramos, A Rivero-Santana, A Brand, H van Kranen, K Bushby, A Atalaia, J Ramet, L Siderius, M Posada, I Abaitua-Borda, V Alonso Ferreira, M Hens-Pérez, FJ Manzanares

Published in: Orphanet Journal of Rare Diseases | Special Issue 1/2014