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Published in: Substance Abuse Treatment, Prevention, and Policy 1/2012

Open Access 01-12-2012 | Review

Engaging people who use drugs in policy and program development: A review of the literature

Authors: Lianping Ti, Despina Tzemis, Jane A Buxton

Published in: Substance Abuse Treatment, Prevention, and Policy | Issue 1/2012

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Abstract

Health policies and programs are increasingly being driven by people from the community to more effectively address their needs. While a large body of evidence supports peer engagement in the context of policy and program development for various populations, little is known about this form of engagement among people who use drugs (PWUD). Therefore, a narrative literature review was undertaken to provide an overview of this topic. Searches of PubMed and Academic Search Premier databases covering 1995–2010 were conducted to identify articles assessing peer engagement in policy and program development. In total, 19 articles were included for review. Our findings indicate that PWUD face many challenges that restrict their ability to engage with public health professionals and policy makers, including the high levels of stigma and discrimination that persist among this population. Although the literature shows that many international organizations are recommending the involvement of PWUD in policy and program development, our findings revealed a lack of published data on the implementation of these efforts. Gaps in the current evidence highlight the need for additional research to explore and document the engagement of PWUD in the areas of policy and program development. Further, efforts to minimize stigmatizing barriers associated with illicit drug use are urgently needed to improve the engagement of PWUD in decision making processes.
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Literature
1.
go back to reference Broadhead R, Heckathorn D, Anthony D, Madray H, Mills R, Hughes J: Harnessing peer networks as an instrument for AIDS prevention: Results from a peer-driven intervention. Public Health Rep. 1998, 113: 42-57.PubMedCentralPubMed Broadhead R, Heckathorn D, Anthony D, Madray H, Mills R, Hughes J: Harnessing peer networks as an instrument for AIDS prevention: Results from a peer-driven intervention. Public Health Rep. 1998, 113: 42-57.PubMedCentralPubMed
2.
go back to reference Needle R, Burrows D, Friedman S, Dorabjee J, Touze G, Badrieva L, Grund J, Kumar M, Nigro L, Manning G, Latkin C: Effectiveness of community-based outreach in preventing HIV/AIDS among injecting drug users. Int J Drug Policy. 2005, 16: 45-57.CrossRef Needle R, Burrows D, Friedman S, Dorabjee J, Touze G, Badrieva L, Grund J, Kumar M, Nigro L, Manning G, Latkin C: Effectiveness of community-based outreach in preventing HIV/AIDS among injecting drug users. Int J Drug Policy. 2005, 16: 45-57.CrossRef
3.
go back to reference Garfein RS, Golub ET, Greenberg AE, Hagan H, Hanson DL, Hudson SM, Kapadia F, Latka MH, Ouellet LJ, Purcell DW: A peer-education intervention to reduce injection risk behaviors for HIV and hepatitis C virus infection in young injection drug users. AIDS. 2007, 21 (14): 1923-10.1097/QAD.0b013e32823f9066.CrossRefPubMed Garfein RS, Golub ET, Greenberg AE, Hagan H, Hanson DL, Hudson SM, Kapadia F, Latka MH, Ouellet LJ, Purcell DW: A peer-education intervention to reduce injection risk behaviors for HIV and hepatitis C virus infection in young injection drug users. AIDS. 2007, 21 (14): 1923-10.1097/QAD.0b013e32823f9066.CrossRefPubMed
4.
go back to reference Kirby P, Lanyon C, Cronin K, Sinclair R: Building a Culture of Participation: Involving children and young people in policy, service planning, delivery and evaluation. 2003, London: National Children’s Bureau & PK Research Consultancy Kirby P, Lanyon C, Cronin K, Sinclair R: Building a Culture of Participation: Involving children and young people in policy, service planning, delivery and evaluation. 2003, London: National Children’s Bureau & PK Research Consultancy
5.
go back to reference To T, Cicutto L, Degani N, McLimont S, Beyene J: Can a community evidence-based asthma care program improve clinical outcomes?: a longitudinal study. Med Care. 2008, 46: 1257-1266. 10.1097/MLR.0b013e31817d6990.CrossRefPubMed To T, Cicutto L, Degani N, McLimont S, Beyene J: Can a community evidence-based asthma care program improve clinical outcomes?: a longitudinal study. Med Care. 2008, 46: 1257-1266. 10.1097/MLR.0b013e31817d6990.CrossRefPubMed
6.
go back to reference Rhodes SD, Malow RM, Jolly C: Community-based participatory research: A new and not-so-new approach to HIV/AIDS prevention, care, and treatment. AIDS Educ Prev. 2010, 22: 173-183. 10.1521/aeap.2010.22.3.173.PubMedCentralCrossRefPubMed Rhodes SD, Malow RM, Jolly C: Community-based participatory research: A new and not-so-new approach to HIV/AIDS prevention, care, and treatment. AIDS Educ Prev. 2010, 22: 173-183. 10.1521/aeap.2010.22.3.173.PubMedCentralCrossRefPubMed
7.
go back to reference Minogue V, Boness J, Brown A, Girdlestone J: The impact of service user involvement in research. Int J Health Care Qual Assur. 2005, 18: 103-112. 10.1108/09526860510588133.CrossRef Minogue V, Boness J, Brown A, Girdlestone J: The impact of service user involvement in research. Int J Health Care Qual Assur. 2005, 18: 103-112. 10.1108/09526860510588133.CrossRef
9.
go back to reference Economic and Social Commission for Asia and the Pacific: Life Skills Training Guide for Young People: HIV/AIDS and Substance Use Prevention. 2003, Bangkok: Economic and Social Commission for Asia and the Pacific Economic and Social Commission for Asia and the Pacific: Life Skills Training Guide for Young People: HIV/AIDS and Substance Use Prevention. 2003, Bangkok: Economic and Social Commission for Asia and the Pacific
10.
go back to reference Goffman E: Stigma: Notes on the Management of Spoiled Identity. 1st Printing. Touchstone. 1986 Goffman E: Stigma: Notes on the Management of Spoiled Identity. 1st Printing. Touchstone. 1986
11.
go back to reference Canadian HIV/AIDS Legal Network: Nothing About Us Without Us”: Greater, Meaningful Involvement of People Who Use Illegal Drugs: A Public Health, Ethical, and Human Rights Imperative. 2006, Canada: Canadian HIV/AIDS Legal Network Canadian HIV/AIDS Legal Network: Nothing About Us Without Us”: Greater, Meaningful Involvement of People Who Use Illegal Drugs: A Public Health, Ethical, and Human Rights Imperative. 2006, Canada: Canadian HIV/AIDS Legal Network
12.
go back to reference Fischer JA, Neale J: Involving drug users in treatment decisions: An exploration of potential problems. Drugs Educ Prev Pol. 2008, 15: 161-175. 10.1080/09687630701391604.CrossRef Fischer JA, Neale J: Involving drug users in treatment decisions: An exploration of potential problems. Drugs Educ Prev Pol. 2008, 15: 161-175. 10.1080/09687630701391604.CrossRef
13.
go back to reference Bryant J, Saxton M, Madden A, Bath N, Robinson S: Consumers’ and providers’ perspectives about consumer participation in drug treatment services: is there support to do more? What are the obstacles?. Drug Alcohol Rev. 2008, 27: 138-144. 10.1080/09595230701829405.CrossRefPubMed Bryant J, Saxton M, Madden A, Bath N, Robinson S: Consumers’ and providers’ perspectives about consumer participation in drug treatment services: is there support to do more? What are the obstacles?. Drug Alcohol Rev. 2008, 27: 138-144. 10.1080/09595230701829405.CrossRefPubMed
14.
go back to reference Halloran JP, Ross MW, Huffman L: Training people with HIV disease for involvement in community planning process: Project LEAP. J Assoc Nurses AIDS Care. 1996, 7: 39-47. 10.1016/S1055-3290(96)80023-9.CrossRefPubMed Halloran JP, Ross MW, Huffman L: Training people with HIV disease for involvement in community planning process: Project LEAP. J Assoc Nurses AIDS Care. 1996, 7: 39-47. 10.1016/S1055-3290(96)80023-9.CrossRefPubMed
15.
go back to reference Roy CM, Cain R: The involvement of people living with HIV/AIDS in community-based organizations: contributions and constraints. AIDS Care. 2001, 13: 421-432. 10.1080/09540120120057950.CrossRefPubMed Roy CM, Cain R: The involvement of people living with HIV/AIDS in community-based organizations: contributions and constraints. AIDS Care. 2001, 13: 421-432. 10.1080/09540120120057950.CrossRefPubMed
16.
go back to reference Travers R, Wilson MG, Flicker S, Guta A, Bereket T, McKay C, van der Meulen A, Cleverly S, Dickie M, Globerman J, Rourke SB: The Greater Involvement of People Living with AIDS principle: theory versus practice in Ontario’s HIV/AIDS community-based research sector. AIDS Care. 2008, 20: 615-624. 10.1080/09540120701661690.CrossRefPubMed Travers R, Wilson MG, Flicker S, Guta A, Bereket T, McKay C, van der Meulen A, Cleverly S, Dickie M, Globerman J, Rourke SB: The Greater Involvement of People Living with AIDS principle: theory versus practice in Ontario’s HIV/AIDS community-based research sector. AIDS Care. 2008, 20: 615-624. 10.1080/09540120701661690.CrossRefPubMed
17.
go back to reference Hayashi K, Wood E, Wiebe L, Qi J, Kerr T: An external evaluation of a peer-run outreach-based syringe exchange in Vancouver, Canada. Int J Drug Policy. 2010, 21: 418-421. 10.1016/j.drugpo.2010.03.002.PubMedCentralCrossRefPubMed Hayashi K, Wood E, Wiebe L, Qi J, Kerr T: An external evaluation of a peer-run outreach-based syringe exchange in Vancouver, Canada. Int J Drug Policy. 2010, 21: 418-421. 10.1016/j.drugpo.2010.03.002.PubMedCentralCrossRefPubMed
18.
go back to reference Weeks M, Li J, Dickson-Gomez J, Convey M, Martinez M, Radda K, Clair S: Outcomes of a Peer HIV Prevention Program with Injection Drug and Crack Users: The Risk Avoidance Partnership. Subst Use Misuse. 2009, 44: 253-281. 10.1080/10826080802347677.PubMedCentralCrossRefPubMed Weeks M, Li J, Dickson-Gomez J, Convey M, Martinez M, Radda K, Clair S: Outcomes of a Peer HIV Prevention Program with Injection Drug and Crack Users: The Risk Avoidance Partnership. Subst Use Misuse. 2009, 44: 253-281. 10.1080/10826080802347677.PubMedCentralCrossRefPubMed
19.
go back to reference Latkin CA, Sherman S, Knowlton A: HIV prevention among drug users: Outcome of a network-oriented peer outreach intervention. Health Psychol. 2003, 22: 332-CrossRefPubMed Latkin CA, Sherman S, Knowlton A: HIV prevention among drug users: Outcome of a network-oriented peer outreach intervention. Health Psychol. 2003, 22: 332-CrossRefPubMed
20.
go back to reference Purcell DW, Latka MH, Metsch LR, Latkin CA, Gómez CA, Mizuno Y, Arnsten JH, Wilkinson JD, Knight KR, Knowlton AR, Santibanez S, Tobin KE, Rose CD, Valverde EE, Gourevitch MN, Eldred L, Borkowf CB: Results from a randomized controlled trial of a peer-mentoring intervention to reduce HIV transmission and increase access to care and adherence to HIV medications among HIV-seropositive injection drug users. J Acquir Immune Defic Syndr. 2007, 46 (Suppl 2): S35-S47.CrossRefPubMed Purcell DW, Latka MH, Metsch LR, Latkin CA, Gómez CA, Mizuno Y, Arnsten JH, Wilkinson JD, Knight KR, Knowlton AR, Santibanez S, Tobin KE, Rose CD, Valverde EE, Gourevitch MN, Eldred L, Borkowf CB: Results from a randomized controlled trial of a peer-mentoring intervention to reduce HIV transmission and increase access to care and adherence to HIV medications among HIV-seropositive injection drug users. J Acquir Immune Defic Syndr. 2007, 46 (Suppl 2): S35-S47.CrossRefPubMed
21.
go back to reference Booth RE, Lehman WEK, Latkin CA, Brewster JT, Sinitsyna L, Dvoryak S: Use of a Peer Leader Intervention Model to Reduce Needle-Related Risk Behaviors Among Drug Injectors in Ukraine. J Drug Issues. 2009, 39 (3): 607-625. 10.1177/002204260903900307.CrossRef Booth RE, Lehman WEK, Latkin CA, Brewster JT, Sinitsyna L, Dvoryak S: Use of a Peer Leader Intervention Model to Reduce Needle-Related Risk Behaviors Among Drug Injectors in Ukraine. J Drug Issues. 2009, 39 (3): 607-625. 10.1177/002204260903900307.CrossRef
22.
go back to reference Canadian Public Health Association: Leading together: Canada takes action on HIV/AIDS (2005–2010). 2005, Ottawa: Canadian Public Health Association Canadian Public Health Association: Leading together: Canada takes action on HIV/AIDS (2005–2010). 2005, Ottawa: Canadian Public Health Association
23.
go back to reference Crofts N, Herkt D: A history of peer-based drug-user groups in Australia. J Drug Issues. 1995, 25 (3): 599-616. Crofts N, Herkt D: A history of peer-based drug-user groups in Australia. J Drug Issues. 1995, 25 (3): 599-616.
24.
go back to reference Charlois T: Drug user participation and European cities: 6th EXASS Net meeting in Amsterdam. 2009, the Netherlands: EXASS Net Charlois T: Drug user participation and European cities: 6th EXASS Net meeting in Amsterdam. 2009, the Netherlands: EXASS Net
25.
go back to reference Joint United Nations Programme on HIV/AIDS (UNAIDS): The Greater Involvement of People Living with HIV/AIDS (GIPA). 2007 Joint United Nations Programme on HIV/AIDS (UNAIDS): The Greater Involvement of People Living with HIV/AIDS (GIPA). 2007
26.
go back to reference Kerr T, Small W, Peeace W, Douglas D, Pierre A, Wood E: Harm reduction by a “user-run” organization: A case study of the Vancouver Area Network of Drug Users (VANDU). Int J Drug Policy. 2006, 17: 61-69. 10.1016/j.drugpo.2006.01.003.CrossRef Kerr T, Small W, Peeace W, Douglas D, Pierre A, Wood E: Harm reduction by a “user-run” organization: A case study of the Vancouver Area Network of Drug Users (VANDU). Int J Drug Policy. 2006, 17: 61-69. 10.1016/j.drugpo.2006.01.003.CrossRef
27.
go back to reference Osborn B, Small W: “Speaking truth to power”: The role of drug users in influencing municipal drug policy. Int J Drug Policy. 2006, 17: 70-72. 10.1016/j.drugpo.2005.09.001.CrossRef Osborn B, Small W: “Speaking truth to power”: The role of drug users in influencing municipal drug policy. Int J Drug Policy. 2006, 17: 70-72. 10.1016/j.drugpo.2005.09.001.CrossRef
31.
go back to reference The BC-Yukon Association of Drug War Survivors: The BC-Yukon Association of Drug War Survivors Provincial Priorities. The BC-Yukon Association of Drug War Survivors: The BC-Yukon Association of Drug War Survivors Provincial Priorities.
32.
go back to reference Gurstein P, Lovato C, Ross S: Youth participation in planning: Strategies for social action. Can J Urban Res. 2003, 12: 249-274. Gurstein P, Lovato C, Ross S: Youth participation in planning: Strategies for social action. Can J Urban Res. 2003, 12: 249-274.
33.
go back to reference Ministry of Health: Primary Health Care Charter: A Collaborative Approach. 2007, Vancouver: Ministry of Health Ministry of Health: Primary Health Care Charter: A Collaborative Approach. 2007, Vancouver: Ministry of Health
34.
go back to reference Ti L, Tzemis D, Kuo M, Harm BC, Buxton J, Reduction Strategies and Services Committee: Engaging People Who Use Drugs in Policy and Program Development: A Community-Based Approach. 2012 Ti L, Tzemis D, Kuo M, Harm BC, Buxton J, Reduction Strategies and Services Committee: Engaging People Who Use Drugs in Policy and Program Development: A Community-Based Approach. 2012
35.
go back to reference Buxton J, Crabtree A: Illegal drug use epidemiology; engaging the experts to reduce harms. 2011 Buxton J, Crabtree A: Illegal drug use epidemiology; engaging the experts to reduce harms. 2011
36.
go back to reference Ministry of Health Services: Ministry of Children and Family Development: Healthy Minds, Healthy People: A Ten-Year Plan to Address Mental Health and Substance Use in British Columbia. 2010, Vancouver: Ministry of Health Services Ministry of Health Services: Ministry of Children and Family Development: Healthy Minds, Healthy People: A Ten-Year Plan to Address Mental Health and Substance Use in British Columbia. 2010, Vancouver: Ministry of Health Services
38.
go back to reference National Treatment Agency: NTA Guidance for Local partnerships on user and carer involvement. 2006, London: National Treatment Agency National Treatment Agency: NTA Guidance for Local partnerships on user and carer involvement. 2006, London: National Treatment Agency
39.
go back to reference Hart R: Children’s participation: The theory and practice of involving young citizens in community development and environmental care. 1997, London: Earthscan Hart R: Children’s participation: The theory and practice of involving young citizens in community development and environmental care. 1997, London: Earthscan
40.
go back to reference Franklin A, Sloper P: Participation of disabled children and young people in decision making within social services departments: A survey of current and recent activities in England. Br J Soc Work. 2006, 36: 723-741. 10.1093/bjsw/bch306.CrossRef Franklin A, Sloper P: Participation of disabled children and young people in decision making within social services departments: A survey of current and recent activities in England. Br J Soc Work. 2006, 36: 723-741. 10.1093/bjsw/bch306.CrossRef
41.
go back to reference Hubbard G, Kidd L, Donaghy E, McDonald C, Kearney N: A review of literature about involving people affected by cancer in research, policy and planning and practice. Patient Educ Couns. 2007, 65: 21-33. 10.1016/j.pec.2006.02.009.CrossRefPubMed Hubbard G, Kidd L, Donaghy E, McDonald C, Kearney N: A review of literature about involving people affected by cancer in research, policy and planning and practice. Patient Educ Couns. 2007, 65: 21-33. 10.1016/j.pec.2006.02.009.CrossRefPubMed
42.
go back to reference Tritter JQ, McCallum A: The snakes and ladders of user involvement: Moving beyond Arnstein. Health Policy. 2006, 76: 156-168. 10.1016/j.healthpol.2005.05.008.CrossRefPubMed Tritter JQ, McCallum A: The snakes and ladders of user involvement: Moving beyond Arnstein. Health Policy. 2006, 76: 156-168. 10.1016/j.healthpol.2005.05.008.CrossRefPubMed
43.
go back to reference Cutler D: Standard! Organisational Standards and Young People’s Participation in Public Decision Making. 2003, London: Carnegie Young People Initiative Cutler D: Standard! Organisational Standards and Young People’s Participation in Public Decision Making. 2003, London: Carnegie Young People Initiative
Metadata
Title
Engaging people who use drugs in policy and program development: A review of the literature
Authors
Lianping Ti
Despina Tzemis
Jane A Buxton
Publication date
01-12-2012
Publisher
BioMed Central
Published in
Substance Abuse Treatment, Prevention, and Policy / Issue 1/2012
Electronic ISSN: 1747-597X
DOI
https://doi.org/10.1186/1747-597X-7-47

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