Published in:
Open Access
01-07-2012 | Poster presentation
Retrospective audit of access to care for children and young people diagnosed with localised scleroderma or juvenile systemic sclerosis in the United Kingdom
Authors:
Daniel P Hawley, Eileen M Baildam, Tania S Amin, Mary K Cruikshank, Joyce E Davidson, Jennifer Dixon, Neil S Martin, Victoria Ohlsson, Clarissa A Pilkington, Satyapal Rangaraj, Philip Riley, Chitra Sundaramoorthy, Jo Walsh, Helen E Foster
Published in:
Pediatric Rheumatology
|
Special Issue 1/2012
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Excerpt
Localised scleroderma (LS) and juvenile systemic sclerosis (jSSc) are very rare paediatric diseases managed by paediatric rheumatologists and dermatologists[
1]. Optimal treatment is controversial in the absence of clinical trials, but most paediatric rheumatologists advocate systemic immunosuppression to avoid progressive deformity, functional disability and disfigurement[
2]. We aimed to describe pathways through which children and young people receive a diagnosis of LS or jSSc, and to document these pathways from the time the first symptom was noticed by the patient or their family, through to the time when a diagnosis of LS or jSSc was first considered. We also aimed to document the health care professionals involved in these pathways to diagnosis. …
