Skip to main content
Key Specialties
Cardiology Diabetology Endocrinology Gastroenterology Geriatrics and Gerontology Gynecology and Obstetrics Hematology Infectious Disease Internal Medicine Nephrology Neurology Oncology Pediatrics Respiratory Medicine Rheumatology Surgery
Congress Coverage
2024 ACC Congress 2023 ESMO Congress 2023 EASD Congress 2023 ERS Congress 2023 ESC Congress 2023 EHA Congress 2023 ASCO Annual Meeting
Clinical Collections
Advances in Alzheimer’s

Keynote webinar | Spotlight on sleep in brain health

LIVE: Thursday 2nd May 2024, 18:00-19:30 (CEST)

Quality sleep is essential for health. But what happens to our brains when sleep patterns are disturbed? Join our experts to explore the interplay between sleep disruption and neurological diseases, and the questions that you need to be asking your patients to help you prevent the harmful effects of sleep deprivation.
ADVANCED SEARCH
Log in
Top
Pediatric Rheumatology
Published in: Pediatric Rheumatology 1/2012

Open Access 01-07-2012 | Poster presentation

Improving transition readiness and quality of life (QOL) with a pediatric lupus health passport

Authors: Emily Von Scheven, Lori B Tucker, Lakshmi N Moorthy, Erica F Lawson, Carolyn Neville, Deborah DaCosta, Paul R Fortin

Published in: Pediatric Rheumatology | Special Issue 1/2012

Login to get access

Excerpt

Childhood onset Lupus (cSLE) is a chronic condition that usually requires life-long care, and optimizing self-management skills for youth with cSLE may improve health outcomes. This project aims to evaluate the impact of an educational intervention with a pediatric SLE-specific health passport (pLHP) for transitioning youth with cSLE. …
Metadata
Title
Improving transition readiness and quality of life (QOL) with a pediatric lupus health passport
Authors
Emily Von Scheven
Lori B Tucker
Lakshmi N Moorthy
Erica F Lawson
Carolyn Neville
Deborah DaCosta
Paul R Fortin
Publication date
01-07-2012
Publisher
BioMed Central
Published in
Pediatric Rheumatology / Issue Special Issue 1/2012
Electronic ISSN: 1546-0096
DOI
https://doi.org/10.1186/1546-0096-10-S1-A23

Other articles of this Special Issue 1/2012

Pediatric Rheumatology 1/2012 Go to the issue

Poster presentation

IL-1 blockade as a novel approach to treatment of hyperzincemia and hypercalprotectinemia, a possible new autoinflammatory syndrome

Poster presentation

Disease characteristics and medication use in a multicenter cohort of children with juvenile idiopathic arthritis (JIA): preliminary analyses from the CARRAnet registry

Poster presentation

Informatics methodology for the rapid, validated development of clinical research forms in CARRAnet: incorporating user-centered design into the Delphi technique

Poster presentation

Juvenile dermatomyositis is a different disease in children up to three years of age at onset than in children above three years at onset

Poster presentation

The primary complement components contained in circulating immune complexes in oligoarticular and polyarticular juvenile idiopathic arthritis patient sera are C1q and C4: evidence of classical complement activation

Oral presentation

Systemic juvenile idiopathic arthritis is associated with HLA-DRB1 in Europeans and Americans of European descent