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Open Access 01-12-2014 | Research

Health related quality of life in Dutch young adults: psychometric properties of the PedsQL generic core scales young adult version

Authors: Perrine F Limperg, Lotte Haverman, Hedy A van Oers, Marion AJ van Rossum, Heleen Maurice-Stam, Martha A Grootenhuis

Published in: Health and Quality of Life Outcomes | Issue 1/2014

Abstract

Background

The purpose of this study is to provide Dutch norm data and to assess internal consistency and construct validity for the Pediatric Quality of Life Inventory Young Adult Generic Core Scales (PedsQL_YA) in Dutch young adults aged 18–30 years.

Methods

A sample of 649 young adults from the general Dutch population aged 18–30 years, stratified by age, sex, marital status and education, completed a socio-demographic questionnaire and the Dutch version of the PedsQL_YA online. Internal consistency of the PedsQL_YA scales was determined with Cronbach’s alphas. Norm scores were obtained by calculating the mean PedsQL scale scores by gender, age and health status. Differences in scale scores were analyzed for gender, age and health status (construct validity) using two-sample t-tests and effect sizes were calculated. Construct validity was determined by testing differences in PedsQL scores between healthy young adults and young adults with chronic health conditions.

Results

All scales of the PedsQL_YA showed satisfactory to excellent internal consistency, with Cronbach’s alphas between .77 and .94. Men reported higher scores (indicating better HRQOL) than women on all scales (p < .01), except for school/work functioning. No age differences were found. Young adults with chronic health conditions scored lower on all scales (p < .001) than healthy young adults, indicating good construct validity. Effect sizes varied from medium to large.

Conclusions

The Dutch version of the PedsQL_YA has adequate psychometric properties. With the availability of reliable norm data, the PedsQL_YA can be used as a tool in the evaluation of health related quality of life in healthy young adults and those with a chronic health condition.

Varni JW, Burwinkle TM, Lane MM: Health-related quality of life measurement in pediatric clinical practice: an appraisal and precept for future research and application. Health Qual Life Outcomes 2005, 3: 1–9. 10.1186/1477-7525-3-1CrossRef

Raty LKA, Larsson BMW, Soderfeldt BA: Health-related quality of life in youth: a comparison between adolescents and young adults with uncomplicated epilepsy and healthy controls. J Adolesc Health 2003, 33: 252–258. 10.1016/S1054-139X(03)00101-0CrossRefPubMed

Verhoof EJ, Maurice-Stam H, Heymans HS, Grootenhuis MA: Health-related quality of life, anxiety and depression in young adults with disability benefits due to childhood-onset somatic conditions. Child Adolesc Psychiatr Ment Health 2013, 7: 12–21. 10.1186/1753-2000-7-12CrossRef

Haverman L, Grootenhuis MA, Van den Berg JM, Van VM, Dolman KM, Swart JF, Kuijpers TW, Van Rossum MA: Predictors of health-related quality of life in children and adolescents with juvenile idiopathic arthritis: results from a web-based survey. Arthritis Care Res 2012, 64: 694–703. 10.1002/acr.21609CrossRef

Eiser C, Morse R: Quality-of-life measures in chronic diseases of childhood. Health Technol Assess 2001, 5: 1–157.CrossRefPubMed

Varni JW, Limbers CA: The PedsQL 4.0 generic core scales young adult version: feasibility, reliability and validity in a university student population. J Health Psychol 2009, 14: 611–622. 10.1177/1359105309103580CrossRefPubMed

Ewing JE, King MT, Smith NF: Validation of modified forms of the PedsQL generic core scales and cancer module scales for adolescents and young adults (AYA) with cancer or a blood disorder. Qual Life Res 2009, 18: 231–244. 10.1007/s11136-008-9424-4CrossRefPubMed

Varni JW, Limbers CA, Burwinkle TM: Parent proxy-report of their children’s health-related quality of life: an analysis of 13,878 parents' reliability and validity across age subgroups using the PedsQLTM 4.0 generic core scales. Health Qual Life Outcomes 2007, 5: 1–10. 10.1186/1477-7525-5-1PubMedCentralCrossRefPubMed

Varni JW, Seid M, Rode CA: The PedsQL: measurement model for the pediatric quality of life inventory. Med Care 1999, 37: 126–139. 10.1097/00005650-199902000-00003CrossRefPubMed

10.

Varni J, Limbers C, Burwinkle T: How young can children reliably and validly self-report their health-related quality of life? An analysis of 8,591 children across age subgroups with the PedsQLTM 4.0 generic core scales. Health Qual Life Outcomes 2007, 5: 1–13. 10.1186/1477-7525-5-1PubMedCentralCrossRefPubMed

11.

Fekkes M, Theunissen NC, Brugman E, Veen S, Verrips EG, Koopman HM, Vogels T, Wit JM, Verloove-Vanhorick SP: Development and psychometric evaluation of the TAPQOL: a health-related quality of life instrument for 1–5-year-old children. Qual Life Res 2000, 9: 961–972. 10.1023/A:1008981603178CrossRefPubMed

12.

Verrips EG, Vogels T, Koopman HM, Theunissen NC, Kamphuis RP, Fekkes M, Wit JM, Verloove-Vanhorick SP: Measuring health-related quality of life in a child population. Eur J Public Health 1999, 9: 188–193. 10.1093/eurpub/9.3.188CrossRef

13.

Ravens-Sieberer U, Auquier P, Erhart M, Gosch A, Rajmil L, Bruil J, Power M, Duer W, Cloetta B, Czemy L, Mazur J, Czimbalmos A, Tountas Y, Hagquist C, Kilroe J: The KIDSCREEN-27 quality of life measure for children and adolescents: psychometric results from a cross-cultural survey in 13 European countries. Qual Life Res 2007, 16: 1347–1356. 10.1007/s11136-007-9240-2CrossRefPubMed

14.

Landgraf J: Child Health Questionnaires (CHQ). A user’s manual. Boston, MA: HealthActCHQ; 1999.

15.

Varni JW, Burwinkle TM, Seid M, Skarr D: The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambul Pediatr 2003, 3: 329–341. 10.1367/1539-4409(2003)003<0329:TPAAPP>2.0.CO;2CrossRefPubMed

16.

Reinfjell T, Diseth T, Veenstra M, Vikan A: Measuring health-related quality of life in young adolescents: reliability and validity in the norwegian version of the pediatric quality of life inventoryTM 4.0 (PedsQL) generic core scales. Health Qual Life Outcomes 2006, 4: 61–70. 10.1186/1477-7525-4-61PubMedCentralCrossRefPubMed

17.

Grootenhuis MA, Koopman HM, Verrips EG, Vogels AG, Last BF: Health-related quality of life problems of children aged 8–11 years with a chronic disease. Dev Neurorehabil 2007, 10: 27–33. 10.1080/13682820600691017CrossRefPubMed

18.

Stam H, Hartman EE, Deurloo JA, Groothoff J, Grootenhuis MA: Young adult patients with a history of pediatric disease: impact on course of life and transition into adulthood. J Adolesc Health 2006, 39: 4–13. 10.1016/j.jadohealth.2005.03.011CrossRefPubMed

19.

Sprangers MAG, de Regt EB, Andries F, van Agt HME, Bijl RV, de Boer JB, Foets M, Hoeymans N, Jacobs AE, Kempen GIJM, Miedema HS, Tijhuis MAR, de Haes HCJM: Which chronic conditions are associated with better or poorer quality of life? J Clin Epidemiol 2000, 53: 895–907. 10.1016/S0895-4356(00)00204-3CrossRefPubMed

20.

de Wit M, Delemarre-van de Waal HA, Pouwer F, Gemke RJBJ, Snoek FJ: Monitoring health related quality of life in adolescents with diabetes: a review of measures. Arch Dis Child 2007, 92: 434–439. 10.1136/adc.2006.102236PubMedCentralCrossRefPubMed

21.

Kokkonen ER, Kokkonen J, Moilanen I: Predictors of delayed social maturation and mental health disorders in young adults chronically ill since childhood. Nord J Psychiat 2001, 55: 237–242. 10.1080/080394801681019084CrossRef

22.

Wiznitzer M, Verhulst FC, van den Brink W, Koeter M, van der Ende J, Giel R, Koot HM: Detecting psychopathology in young adults: the young adult self report, the general health questionnaire and the symptom checklist as screening instruments. Acta Psychiatr Scand 1992, 86: 32–37. 10.1111/j.1600-0447.1992.tb03221.xCrossRefPubMed

23.

Jorngarden A, Wettergen L, Von EL: Measuring health-related quality of life in adolescents and young adults: Swedish normative data for the SF-36 and the HADS, and the influence of age, gender, and method of administration. Health Qual Life Outcomes 2006, 4: 91–101. 10.1186/1477-7525-4-91PubMedCentralCrossRefPubMed

24.

Engelen V, Haentjens MM, Detmar SB, Koopman HM, Grootenhuis MA: Health related quality of life of Dutch children: psychometric properties of the PedsQL in the Netherlands. BMC Pediatr 2009, 9: 68–76. 10.1186/1471-2431-9-68PubMedCentralCrossRefPubMed

25.

Arnett JJ: Emerging adulthood: a theory of development from the late teens through the twenties. Am Psychol 2000, 55: 469–480.CrossRefPubMed

26.

Grootenhuis MA, Stam H, Destree-Vonk A, Heymans HS, Last BF: Levensloop vragenlijst voor jong-volwassenen. [Course of life questionnaire for young adults]. Gedrag Gezond 2003, 31: 336–350.

27.

Mokkink LB, van der Lee JH, Grootenhuis MA, Offringa M, Heymans HS: Defining chronic diseases and health conditions in childhood (0–18 years of age): national consensus in the Netherlands. Eur J Pediatr 2008, 167: 1441–1447. 10.1007/s00431-008-0697-yCrossRefPubMed

28.

IBM Corp: IBM SPSS Statistics for Windows. [Version 20.0.]. Armonk, NY: IBM Corp; 2011. Ref Type: Computer Program

29.

Cronbach LJ: Coefficient alpha and the internal structure of tests. Psychometrika 1951, 16: 297–334. 10.1007/BF02310555CrossRef

30.

Nunnally JC, Bernstein IR: Psychometric Theory. 3rd edition. New York: McGraw-Hill; 1994.

31.

Cohen J: Statistical Power Analysis for the Behavioral Sciences. Hilldale: Lawrence Erlbaum Associates; 1988.

32.

Streiner DL, Norman GR: Health measurement scales. A practical guide to their development and use. New York: Oxford University Press; 2003.

33.

Wallander JL, Varni JW: Effects of pediatric chronic physical disorders on child and family adjustment. J Child Psychol Psychiatry 1998, 39: 29–46. 10.1017/S0021963097001741CrossRefPubMed

34.

Thompson RJ, Gustafson KE: Adaptation to chronic childhood illness. Washington, DC: American Psychological Association; 1996.CrossRef

35.

Verhoof E, Maurice-Stam H, Heymans H, Grootenhuis M: Growing into disability benefits? Psychosocial course of life of young adults with a chronic somatic disease or disability. Acta Paediatr 2012, 101: 19–26. 10.1111/j.1651-2227.2011.02438.xCrossRef

36.

Varekamp I, de Vries G, Heutink A, van Dijk F: Empowering employees with chronic diseases; development of an intervention aimed at job retention and design of a randomised controlled trial. BMC Health Serv Res 2008, 8: 224–232. 10.1186/1472-6963-8-224PubMedCentralCrossRefPubMed

37.

Langeveld NE, Grootenhuis MA, Voute PA, de Haan RJ, van den Bos C: Quality of life, self-esteem and worries in young adult survivors of childhood cancer. Psychooncology 2004, 13: 867–881. 10.1002/pon.800CrossRefPubMed

38.

Barrera M, Teall T, Barr R, Silva M, Greenberg M: Health related quality of life in adolescent and young adult survivors of lower extremity bone tumors. Pediatr Blood Cancer 2012, 58: 265–273. 10.1002/pbc.23017CrossRefPubMed

39.

Bronner AE, Kuijlen T: The live or digital interviewer: a comparison between CASI, CAPI and CATI with respect to differences in response behavior. Int J Market Res 2007, 49: 167–190.

40.

Varni JW, Seid M, Smith Knight T, Burwinkle T, Brown J, Szer IS: The PedsQL in pediatric rheumatology: reliability, validity, and responsiveness of the pediatric quality of life inventory generic core scales and rheumatology module. Arthritis Rheum 2002, 46: 714–725. 10.1002/art.10095CrossRefPubMed

41.

Statistics Netherlands http://www.cbs.nl

42.

Blum RW, Garell D, Hodgman CH, Jorissen TW, Okinow NA, Orr DP, Slap GB: Transition from child-centered to adult health-care systems for adolescents with chronic conditions: a position paper of the society for adolescent medicine. J Adolesc Health 1993, 14: 570–576. 10.1016/1054-139X(93)90143-DCrossRefPubMed

43.

Kirk S: Transitions in the lives of young people with complex healthcare needs. Child Care Health Dev 2008, 34: 567–575. 10.1111/j.1365-2214.2008.00862.xCrossRefPubMed

44.

Van Staa AL, Jedeloo S, Van MJ, Latour JM: Crossing the transition chasm: experiences and recommendations for improving transitional care of young adults, parents and providers. Child Care Health Dev 2011, 37: 821–832. 10.1111/j.1365-2214.2011.01261.xCrossRefPubMed

45.

Haverman L, Verhoof EJ, Maurice-Stam H, Heymans HS, Gerlag DM, Van Rossum MA, Grootenhuis MA: Health-related quality of life and psychosocial developmental trajectory in young female beneficiaries with JIA. Rheumatology (Oxford) 2012, 51: 368–374. 10.1093/rheumatology/ker378CrossRef

46.

Haverman L, van Rossum MAJ, van Veenendaal M, van den Berg JM, Dolman KM, Swart J, Kuijpers TW, Grootenhuis MA: Effectiveness of a web-based application to monitor health-related quality of life. Pediatrics 2013, 131: 533–543. 10.1542/peds.2012-0958CrossRef

Title: Health related quality of life in Dutch young adults: psychometric properties of the PedsQL generic core scales young adult version
Authors: Perrine F Limperg
Lotte Haverman
Hedy A van Oers
Marion AJ van Rossum
Heleen Maurice-Stam
Martha A Grootenhuis
Publication date: 01-12-2014
Publisher: BioMed Central
Published in: Health and Quality of Life Outcomes / Issue 1/2014
Electronic ISSN: 1477-7525
DOI: https://doi.org/10.1186/1477-7525-12-9

At a glance: The ONWARDS insulin icodec trials

Springer Medicine

Health related quality of life in Dutch young adults: psychometric properties of the PedsQL generic core scales young adult version

Abstract

Background

Methods

Results

Conclusions

At a glance: The ONWARDS insulin icodec trials

Springer Medicine

Abstract

Background

Methods

Results

Conclusions

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