Skip to main content
Top
Published in: BMC Palliative Care 1/2014

Open Access 01-12-2014 | Research article

Intervention thresholds: a conceptual frame for advance care planning choices

Authors: Karen G Scandrett, Brian Joyce, Linda Emanuel

Published in: BMC Palliative Care | Issue 1/2014

Login to get access

Abstract

Background

Advance care planning (ACP) provides for decisions in the event of decisional incapacity. Determining ahead of time what a person may want is challenging and limits the utility of ACP. We present empirical evidence for a new approach to ACP: the individual’s “intervention threshold.” The intervention threshold is intuitively understood by clinicians and lay people, but has not been thoroughly described, measured, or analyzed.

Methods

Using a mixed-methods approach to address the concept of the intervention thresholds, we recruited 52 subjects from a population of chronically ill outpatients for structured telephone interviews assessing knowledge, attitudes, and prior ACP activities. Respondents were presented with 11 interventions for each of four medical scenarios. For each scenario, they were asked whether they would accept each intervention. Data was evaluated by descriptive statistics and chi-squared statistics.

Results

Complete data were obtained from 52 patients, mean age of 64.5, 34.6% of whom were male. Only 17.3% reported prior ACP discussion with a physician. Rates of accepting and refusing interventions varied by scenario (p < 0.0001) and intervention intensity (p < 0.0001).

Conclusions

These data provide evidence that people display transitions between wanting or not wanting interventions based on scenarios. Further research is needed to determine effective ways to identify, measure, and represent the components of an individual’s intervention threshold in order to facilitate informed decision making during future incapacity.
Appendix
Available only for authorised users
Literature
1.
go back to reference Silveira MJ, Kim SY, Langa KM: Advance directives and outcomes of surrogate decision making before death. N Engl J Med. 2010, 362 (13): 1211-1218. 10.1056/NEJMsa0907901.CrossRefPubMedPubMedCentral Silveira MJ, Kim SY, Langa KM: Advance directives and outcomes of surrogate decision making before death. N Engl J Med. 2010, 362 (13): 1211-1218. 10.1056/NEJMsa0907901.CrossRefPubMedPubMedCentral
2.
go back to reference Hammes BJ, Rooney BL, Gundrum JD: A comparative, retrospective, observational study of the prevalence, availability, and specificity of advance care plans in a county that implemented an advance care planning microsystem. J Am Geriatr Soc. 2010, 58 (7): 1249-1255. 10.1111/j.1532-5415.2010.02956.x.CrossRefPubMed Hammes BJ, Rooney BL, Gundrum JD: A comparative, retrospective, observational study of the prevalence, availability, and specificity of advance care plans in a county that implemented an advance care planning microsystem. J Am Geriatr Soc. 2010, 58 (7): 1249-1255. 10.1111/j.1532-5415.2010.02956.x.CrossRefPubMed
3.
go back to reference Tolle SW, Tilden VP, Nelson CA, Dunn PM: A prospective study of the efficacy of the physician order form for life-sustaining treatment. J Am Geriatr Soc. 1998, 46 (9): 1097.CrossRefPubMed Tolle SW, Tilden VP, Nelson CA, Dunn PM: A prospective study of the efficacy of the physician order form for life-sustaining treatment. J Am Geriatr Soc. 1998, 46 (9): 1097.CrossRefPubMed
4.
go back to reference Nicholas LH, Langa KM, Iwashyna TJ, Weir DR: Regional variation in the association between advance directives and end-of-life Medicare expenditures. JAMA. 2011, 306 (13): 1447-1453. 10.1001/jama.2011.1410.CrossRefPubMedPubMedCentral Nicholas LH, Langa KM, Iwashyna TJ, Weir DR: Regional variation in the association between advance directives and end-of-life Medicare expenditures. JAMA. 2011, 306 (13): 1447-1453. 10.1001/jama.2011.1410.CrossRefPubMedPubMedCentral
5.
go back to reference Lynn J, Goldstein NE: Advance care planning for fatal chronic illness: avoiding commonplace errors and unwarranted suffering. Ann Intern Med. 2003, 138 (10): 812-818. 10.7326/0003-4819-138-10-200305200-00009.CrossRefPubMed Lynn J, Goldstein NE: Advance care planning for fatal chronic illness: avoiding commonplace errors and unwarranted suffering. Ann Intern Med. 2003, 138 (10): 812-818. 10.7326/0003-4819-138-10-200305200-00009.CrossRefPubMed
6.
go back to reference Perkins HS: Controlling death: the false promise of advance directives. Ann Intern Med. 2007, 147 (1): 51-57. 10.7326/0003-4819-147-1-200707030-00008.CrossRefPubMed Perkins HS: Controlling death: the false promise of advance directives. Ann Intern Med. 2007, 147 (1): 51-57. 10.7326/0003-4819-147-1-200707030-00008.CrossRefPubMed
7.
go back to reference Uchino BN, Kiecolt-Glaser JK, Cacioppo JT: Age-related changes in cardiovascular response as a function of a chronic stressor and social support. J Pers Soc Psychol. 1992, 63 (5): 839-846.CrossRefPubMed Uchino BN, Kiecolt-Glaser JK, Cacioppo JT: Age-related changes in cardiovascular response as a function of a chronic stressor and social support. J Pers Soc Psychol. 1992, 63 (5): 839-846.CrossRefPubMed
8.
go back to reference Fried TR, Redding CA, Robbins ML, O’Leary JR, Iannone L: Agreement between older persons and their surrogate decision‒makers regarding participation in advance care planning. J Am Geriatr Soc. 2011, 59 (6): 1105-1109. 10.1111/j.1532-5415.2011.03412.x.CrossRefPubMedPubMedCentral Fried TR, Redding CA, Robbins ML, O’Leary JR, Iannone L: Agreement between older persons and their surrogate decision‒makers regarding participation in advance care planning. J Am Geriatr Soc. 2011, 59 (6): 1105-1109. 10.1111/j.1532-5415.2011.03412.x.CrossRefPubMedPubMedCentral
9.
go back to reference Wendler D, Rid A: Systematic review: the effect on surrogates of making treatment decisions for others. Ann Intern Med. 2011, 154 (5): 336-346. 10.7326/0003-4819-154-5-201103010-00008.CrossRefPubMed Wendler D, Rid A: Systematic review: the effect on surrogates of making treatment decisions for others. Ann Intern Med. 2011, 154 (5): 336-346. 10.7326/0003-4819-154-5-201103010-00008.CrossRefPubMed
10.
go back to reference White DB, Arnold RM: The evolution of advance directives. JAMA. 2011, 306 (13): 1485-1486. 10.1001/jama.2011.1430.CrossRefPubMed White DB, Arnold RM: The evolution of advance directives. JAMA. 2011, 306 (13): 1485-1486. 10.1001/jama.2011.1430.CrossRefPubMed
11.
go back to reference Fried TR, O’Leary JR: Using the experiences of bereaved caregivers to inform patient-and caregiver-centered advance care planning. J Gen Intern Med. 2008, 23 (10): 1602-1607. 10.1007/s11606-008-0748-0.CrossRefPubMedPubMedCentral Fried TR, O’Leary JR: Using the experiences of bereaved caregivers to inform patient-and caregiver-centered advance care planning. J Gen Intern Med. 2008, 23 (10): 1602-1607. 10.1007/s11606-008-0748-0.CrossRefPubMedPubMedCentral
12.
go back to reference Sudore RL, Fried TR: Redefining the “planning” in advance care planning: preparing for end-of-life decision making. Ann Intern Med. 2010, 153 (4): 256-261. 10.7326/0003-4819-153-4-201008170-00008.CrossRefPubMedPubMedCentral Sudore RL, Fried TR: Redefining the “planning” in advance care planning: preparing for end-of-life decision making. Ann Intern Med. 2010, 153 (4): 256-261. 10.7326/0003-4819-153-4-201008170-00008.CrossRefPubMedPubMedCentral
13.
go back to reference George J, Phun YT, Bailey MJ, Kong DC, Stewart K: Development and validation of the medication regimen complexity index. Ann Pharmacother. 2004, 38 (9): 1369-1376. 10.1345/aph.1D479.CrossRefPubMed George J, Phun YT, Bailey MJ, Kong DC, Stewart K: Development and validation of the medication regimen complexity index. Ann Pharmacother. 2004, 38 (9): 1369-1376. 10.1345/aph.1D479.CrossRefPubMed
14.
go back to reference Detering KM, Hancock AD, Reade MC, Silvester W: The impact of advance care planning on end of life care in elderly patients: randomised controlled trial. BMJ. 2010, 340: 1345-1354. 10.1136/bmj.c1345.CrossRef Detering KM, Hancock AD, Reade MC, Silvester W: The impact of advance care planning on end of life care in elderly patients: randomised controlled trial. BMJ. 2010, 340: 1345-1354. 10.1136/bmj.c1345.CrossRef
15.
go back to reference Kirchhoff KT, Hammes BJ, Kehl KA, Briggs LA, Brown RL: Effect of a disease‒specific planning intervention on surrogate understanding of patient goals for future medical treatment. J Am Geriatr Soc. 2010, 58 (7): 1233-1240. 10.1111/j.1532-5415.2010.02760.x.CrossRefPubMedPubMedCentral Kirchhoff KT, Hammes BJ, Kehl KA, Briggs LA, Brown RL: Effect of a disease‒specific planning intervention on surrogate understanding of patient goals for future medical treatment. J Am Geriatr Soc. 2010, 58 (7): 1233-1240. 10.1111/j.1532-5415.2010.02760.x.CrossRefPubMedPubMedCentral
16.
go back to reference Knight SJ, Emanuel L: Processes of adjustment to end-of-life losses: a reintegration model. J Palliat Med. 2007, 10 (5): 1190-1198. 10.1089/jpm.2006.0068.CrossRefPubMed Knight SJ, Emanuel L: Processes of adjustment to end-of-life losses: a reintegration model. J Palliat Med. 2007, 10 (5): 1190-1198. 10.1089/jpm.2006.0068.CrossRefPubMed
17.
go back to reference Emanuel LL: Advance directives. Annu Rev Med. 2008, 59: 187-198. 10.1146/annurev.med.58.072905.062804.CrossRefPubMed Emanuel LL: Advance directives. Annu Rev Med. 2008, 59: 187-198. 10.1146/annurev.med.58.072905.062804.CrossRefPubMed
18.
go back to reference Emanuel L: The health care directive: learning how to draft advance care documents. J Am Geriatr Soc. 1991, 39 (12): 1221.CrossRefPubMed Emanuel L: The health care directive: learning how to draft advance care documents. J Am Geriatr Soc. 1991, 39 (12): 1221.CrossRefPubMed
19.
go back to reference Emanuel E, Emanuel L: The medical directive: a new comprehensive advance care document. JAMA. 1989, 261: 3288-3293. 10.1001/jama.1989.03420220102036.CrossRefPubMed Emanuel E, Emanuel L: The medical directive: a new comprehensive advance care document. JAMA. 1989, 261: 3288-3293. 10.1001/jama.1989.03420220102036.CrossRefPubMed
20.
go back to reference Alpert HR, Hoijtink H, Fischer GS, Emanuel L: Psychometric analysis of an advance directive. Med Care. 1996, 34 (10): 1057-1065. 10.1097/00005650-199610000-00006.CrossRefPubMed Alpert HR, Hoijtink H, Fischer GS, Emanuel L: Psychometric analysis of an advance directive. Med Care. 1996, 34 (10): 1057-1065. 10.1097/00005650-199610000-00006.CrossRefPubMed
21.
go back to reference Fischer GS, Alpert HR, Stoeckle JD, Emanuel LL: Can goals of care be used to predict intervention preferences in an advance directive?. Arch Intern Med. 1997, 157 (7): 801-10.1001/archinte.1997.00440280141014.CrossRefPubMed Fischer GS, Alpert HR, Stoeckle JD, Emanuel LL: Can goals of care be used to predict intervention preferences in an advance directive?. Arch Intern Med. 1997, 157 (7): 801-10.1001/archinte.1997.00440280141014.CrossRefPubMed
22.
go back to reference Emanuel L: Know your patient: psychological drivers of decision making. Age. 2010, 8: 57. Emanuel L: Know your patient: psychological drivers of decision making. Age. 2010, 8: 57.
23.
go back to reference Emanuel LL, Alpert HR, Emanuel EE: Concise screening questions for clinical assessments of terminal care: the needs near the end-of-life care screening tool. J Palliat Med. 2001, 4 (4): 465-474. 10.1089/109662101753381601.CrossRefPubMed Emanuel LL, Alpert HR, Emanuel EE: Concise screening questions for clinical assessments of terminal care: the needs near the end-of-life care screening tool. J Palliat Med. 2001, 4 (4): 465-474. 10.1089/109662101753381601.CrossRefPubMed
24.
go back to reference Steinhauser KE, Christakis NA, Clipp EC, McNeilly M, McIntyre L, Tulsky JA: Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA. 2000, 284 (19): 2476-2482. 10.1001/jama.284.19.2476.CrossRefPubMed Steinhauser KE, Christakis NA, Clipp EC, McNeilly M, McIntyre L, Tulsky JA: Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA. 2000, 284 (19): 2476-2482. 10.1001/jama.284.19.2476.CrossRefPubMed
25.
go back to reference Fried TR, Bradley EH, Towle VR: Assessment of patient preferences integrating treatments and outcomes. J Gerontol B Psychol Sci Soc Sci. 2002, 57 (6): S348-S354. 10.1093/geronb/57.6.S348.CrossRefPubMed Fried TR, Bradley EH, Towle VR: Assessment of patient preferences integrating treatments and outcomes. J Gerontol B Psychol Sci Soc Sci. 2002, 57 (6): S348-S354. 10.1093/geronb/57.6.S348.CrossRefPubMed
26.
go back to reference Winter L: Patient values and preferenced for end of life treatements: are values better predictors than a living will?. J Palliat Med. 2013, 16 (4): 362-368. 10.1089/jpm.2012.0303.CrossRefPubMed Winter L: Patient values and preferenced for end of life treatements: are values better predictors than a living will?. J Palliat Med. 2013, 16 (4): 362-368. 10.1089/jpm.2012.0303.CrossRefPubMed
Metadata
Title
Intervention thresholds: a conceptual frame for advance care planning choices
Authors
Karen G Scandrett
Brian Joyce
Linda Emanuel
Publication date
01-12-2014
Publisher
BioMed Central
Published in
BMC Palliative Care / Issue 1/2014
Electronic ISSN: 1472-684X
DOI
https://doi.org/10.1186/1472-684X-13-21

Other articles of this Issue 1/2014

BMC Palliative Care 1/2014 Go to the issue