Skip to main content
Top
Published in: BMC Geriatrics 1/2016

Open Access 01-12-2016 | Research article

Person-centredness in the care of older adults: a systematic review of questionnaire-based scales and their measurement properties

Authors: Mark Wilberforce, David Challis, Linda Davies, Michael P. Kelly, Chris Roberts, Nik Loynes

Published in: BMC Geriatrics | Issue 1/2016

Login to get access

Abstract

Background

Person-centredness is promoted as a central feature of the long-term care of older adults. Measures are needed to assist researchers, service planners and regulators in assessing this feature of quality. However, no systematic review exists to identify potential instruments and to provide a critical appraisal of their measurement properties.

Method

A systematic review of measures of person-centredness was undertaken. Inclusion criteria restricted references to multi-item instruments designed for older adult services, or otherwise with measurement properties tested in an older adult population. A two-stage critical appraisal was conducted. First, the methodological quality of included references was assessed using the COSMIN toolkit. Second, seven measurement properties were rated using widely-recognised thresholds of acceptability. These results were then synthesised to provide an overall appraisal of the strength of evidence for each measurement property for each instrument.

Results

Eleven measures tested in 22 references were included. Six instruments were designed principally for use in long-stay residential facilities, and four were for ambulatory hospital or clinic-based services. Only one measure was designed mainly for completion by users of home care services. No measure could be assessed across all seven measurement properties. Despite some instruments having promising measurement properties, this was consistently undermined by the poor methodological quality underpinning them. Testing of hypotheses to support construct validity was of particularly low quality, whilst measurement error was rarely assessed. Two measures were identified as having been the subject of the most rigorous testing.

Conclusion

The review is unable to unequivocally recommend any measures of person-centredness for use in older adult care. Researchers are advised to improve methodological rigour when testing instruments. Efforts may be best focused on testing a narrower range of measurement properties but to a higher standard, and ensuring that translations to new languages are resisted until strong measurement properties are demonstrated in the original tongue. Limitations of the review include inevitable semantic and conceptual challenges involved in defining ‘person-centredness’.
The review protocol was registered with PROSPERO (ref: CRD42014005935).
Appendix
Available only for authorised users
Literature
1.
go back to reference Leplege A, Gzil F, Cammelli M, Lefeve C, Pachoud B, Ville I. Person-centredness: conceptual and historical perspectives. Disabil Rehabil. 2007;29:1555–65.CrossRefPubMed Leplege A, Gzil F, Cammelli M, Lefeve C, Pachoud B, Ville I. Person-centredness: conceptual and historical perspectives. Disabil Rehabil. 2007;29:1555–65.CrossRefPubMed
2.
go back to reference Nolan MR, Davies S, Brown J, Keady J, Nolan J. Beyond 'person-centred' care: a new vision for gerontological nursing. J Clin Nurs. 2004;13:45–53.CrossRefPubMed Nolan MR, Davies S, Brown J, Keady J, Nolan J. Beyond 'person-centred' care: a new vision for gerontological nursing. J Clin Nurs. 2004;13:45–53.CrossRefPubMed
3.
go back to reference Institute of Medicine. Crossing the quality chasm: A new health system for the 21st century. Washington, DC: National Academy Press; 2001. Institute of Medicine. Crossing the quality chasm: A new health system for the 21st century. Washington, DC: National Academy Press; 2001.
4.
go back to reference World Health Organization. WHO global strategy on people-centred and integrated health services: interim report. Geneva: Switzerland; 2015. World Health Organization. WHO global strategy on people-centred and integrated health services: interim report. Geneva: Switzerland; 2015.
5.
go back to reference Nolan M. Successful ageing: keeping the 'person' in person-centred care. Br J Nurs. 2001;10:450–4.CrossRefPubMed Nolan M. Successful ageing: keeping the 'person' in person-centred care. Br J Nurs. 2001;10:450–4.CrossRefPubMed
6.
go back to reference Stewart M, Brown J, Weston W, McWhinney I, McWilliam C, Freeman T. Patient-centered medicine: transforming the clinical method. California: Sage Publications; 1995. Stewart M, Brown J, Weston W, McWhinney I, McWilliam C, Freeman T. Patient-centered medicine: transforming the clinical method. California: Sage Publications; 1995.
8.
go back to reference Department of Health. The NHS constitution: the NHS belongs to us all. London: Department of Health; 2013. Department of Health. The NHS constitution: the NHS belongs to us all. London: Department of Health; 2013.
9.
go back to reference National Institute of Health and Care Excellence. Patient experience in adult NHS services: improving the experience of care for people using adult NHS services. NICE Clinical Guideline 138. London: NICE; 2012. National Institute of Health and Care Excellence. Patient experience in adult NHS services: improving the experience of care for people using adult NHS services. NICE Clinical Guideline 138. London: NICE; 2012.
10.
go back to reference Care Quality Commission. Guidance about compliance: summary of regulations, outcomes and judgement framework. London: Care Quality Commission; 2009. Care Quality Commission. Guidance about compliance: summary of regulations, outcomes and judgement framework. London: Care Quality Commission; 2009.
11.
go back to reference Epstein RM, Fiscella K, Lesser CS, Stange KC. Why the nation needs a policy push on patient-centered health care. Health Aff. 2010;29:1489–95.CrossRef Epstein RM, Fiscella K, Lesser CS, Stange KC. Why the nation needs a policy push on patient-centered health care. Health Aff. 2010;29:1489–95.CrossRef
12.
go back to reference Mead N, Bower P. Patient-centred consultations and outcomes in primary care: a review of the literature. Patient Educ Couns. 2002;48:51–61.CrossRefPubMed Mead N, Bower P. Patient-centred consultations and outcomes in primary care: a review of the literature. Patient Educ Couns. 2002;48:51–61.CrossRefPubMed
13.
go back to reference Stewart M, Brown JB, Donner A, McWhinney IR, Oates J, Weston WW, et al. The impact of patient-centered care on outcomes. J Fam Pract. 2000;49:796–804.PubMed Stewart M, Brown JB, Donner A, McWhinney IR, Oates J, Weston WW, et al. The impact of patient-centered care on outcomes. J Fam Pract. 2000;49:796–804.PubMed
14.
go back to reference Hughes JC, Bamford C, May C. Types of centredness in health care: themes and concepts. New Engl J Med. 2008;11:455–63. Hughes JC, Bamford C, May C. Types of centredness in health care: themes and concepts. New Engl J Med. 2008;11:455–63.
15.
go back to reference Barry MJ, Edgman-Levitan S. Shared decision making—the pinnacle of patient-centered care. New Engl J Med. 2012;366:780–1.CrossRefPubMed Barry MJ, Edgman-Levitan S. Shared decision making—the pinnacle of patient-centered care. New Engl J Med. 2012;366:780–1.CrossRefPubMed
16.
go back to reference Health Foundation. Helping measure person-centred care: a review of evidence about commonly used approaches and tools used to help measure person-centred care. London: The Health Foundation; 2014. Health Foundation. Helping measure person-centred care: a review of evidence about commonly used approaches and tools used to help measure person-centred care. London: The Health Foundation; 2014.
17.
go back to reference Bastiaens H, Van Royen P, Pavlic DR, Raposo V, Baker R. Older people's preferences for involvement in their own care: a qualitative study in primary health care in 11 European countries. Patient Educ Couns. 2007;68:33–42.CrossRefPubMed Bastiaens H, Van Royen P, Pavlic DR, Raposo V, Baker R. Older people's preferences for involvement in their own care: a qualitative study in primary health care in 11 European countries. Patient Educ Couns. 2007;68:33–42.CrossRefPubMed
18.
go back to reference Byrne K, Frazee K, Sims-Gould J, Martin-Matthews A. Valuing the older person in the context of delivery and receipt of home support: client perspectives. J Appl Gerontol. 2012;31:377–401.CrossRef Byrne K, Frazee K, Sims-Gould J, Martin-Matthews A. Valuing the older person in the context of delivery and receipt of home support: client perspectives. J Appl Gerontol. 2012;31:377–401.CrossRef
19.
go back to reference Kitwood TM. Dementia reconsidered: the person comes first. Buckingham: Open University Press; 1997. Kitwood TM. Dementia reconsidered: the person comes first. Buckingham: Open University Press; 1997.
21.
go back to reference Lewin SA, Skea ZC, Entwistle V, Zwarenstein M, Dick J. Interventions for providers to promote a patient-centred approach in clinical consultations. Cochrane Database Syst Rev. 2012;4:10. Lewin SA, Skea ZC, Entwistle V, Zwarenstein M, Dick J. Interventions for providers to promote a patient-centred approach in clinical consultations. Cochrane Database Syst Rev. 2012;4:10.
22.
24.
go back to reference Bauld L, Chesterman J, Judge K. Measuring satisfaction with social care amongst older service users: issues from the literature. Health Soc Care Community. 2000;8:316–24.CrossRefPubMed Bauld L, Chesterman J, Judge K. Measuring satisfaction with social care amongst older service users: issues from the literature. Health Soc Care Community. 2000;8:316–24.CrossRefPubMed
25.
go back to reference Edvardsson D, Innes A. Measuring person-centered care: A critical comparative review of published tools. Gerontologist. 2010;50:834–46.CrossRefPubMed Edvardsson D, Innes A. Measuring person-centered care: A critical comparative review of published tools. Gerontologist. 2010;50:834–46.CrossRefPubMed
26.
go back to reference de Vet HCW, Terwee CB, Mokkink L, Knol DL. Measurement in medicine. Cambridge: Cambridge University Press; 2011.CrossRef de Vet HCW, Terwee CB, Mokkink L, Knol DL. Measurement in medicine. Cambridge: Cambridge University Press; 2011.CrossRef
27.
go back to reference Terwee CB, Mokkink LB, Knol DL, Ostelo RWJG, Bouter LM, de Vet HCW. Rating the methodological quality in systematic reviews of studies on measurement properties: a scoring system for the COSMIN checklist. Qual Lif Res. 2012;21:651–7.CrossRef Terwee CB, Mokkink LB, Knol DL, Ostelo RWJG, Bouter LM, de Vet HCW. Rating the methodological quality in systematic reviews of studies on measurement properties: a scoring system for the COSMIN checklist. Qual Lif Res. 2012;21:651–7.CrossRef
28.
go back to reference Schellingerhout JM, Heymans MW, Verhagen AP, de Vet HCW, Koes BW, Terwee CB. Measurement properties of translated versions of neck-specific questionnaires: a systematic review. BMC Med Res Methodol. 2011;11:87.CrossRefPubMedPubMedCentral Schellingerhout JM, Heymans MW, Verhagen AP, de Vet HCW, Koes BW, Terwee CB. Measurement properties of translated versions of neck-specific questionnaires: a systematic review. BMC Med Res Methodol. 2011;11:87.CrossRefPubMedPubMedCentral
29.
go back to reference Chappell NL, Reid RC, Gish JA. Staff-based measures of individualized care for persons with dementia in long-term care facilities. Dementia. 2007;6:527–47.CrossRef Chappell NL, Reid RC, Gish JA. Staff-based measures of individualized care for persons with dementia in long-term care facilities. Dementia. 2007;6:527–47.CrossRef
30.
go back to reference Charalambous A, Chappell NL, Katajisto J, Suhonen R. The conceptualization and measurement of individualized care. Geriatr Nurs. 2012;33:17–27.CrossRefPubMed Charalambous A, Chappell NL, Katajisto J, Suhonen R. The conceptualization and measurement of individualized care. Geriatr Nurs. 2012;33:17–27.CrossRefPubMed
31.
go back to reference O'Rourke N, Chappell NL. Measurement and analysis of Individualized Care Inventory responses comparing long-term care nurses and care aides. Gerontologist. 2009;49:839–46.CrossRefPubMed O'Rourke N, Chappell NL. Measurement and analysis of Individualized Care Inventory responses comparing long-term care nurses and care aides. Gerontologist. 2009;49:839–46.CrossRefPubMed
32.
go back to reference Edvardsson D, Fetherstonhaugh D, Nay R, Gibson S. Development and initial testing of the Person-centered Care Assessment Tool (P-CAT). Int Psychogeriatr. 2010;22:101–8.CrossRefPubMed Edvardsson D, Fetherstonhaugh D, Nay R, Gibson S. Development and initial testing of the Person-centered Care Assessment Tool (P-CAT). Int Psychogeriatr. 2010;22:101–8.CrossRefPubMed
33.
go back to reference Zhong XB, Lou VWQ. Person-centered care in Chinese residential care facilities: a preliminary measure. Aging Ment Health. 2013;17:952–8.CrossRefPubMed Zhong XB, Lou VWQ. Person-centered care in Chinese residential care facilities: a preliminary measure. Aging Ment Health. 2013;17:952–8.CrossRefPubMed
34.
go back to reference Sjogren K, Lindkvist M, Sandman PO, Zingmark K, Edvardsson D. Psychometric evaluation of the Swedish version of the Person-Centered Care Assessment Tool (P-CAT). Int Psychogeriatr. 2012;24:406–15.CrossRefPubMed Sjogren K, Lindkvist M, Sandman PO, Zingmark K, Edvardsson D. Psychometric evaluation of the Swedish version of the Person-Centered Care Assessment Tool (P-CAT). Int Psychogeriatr. 2012;24:406–15.CrossRefPubMed
35.
go back to reference Rokstad AMM, Engedal K, Edvardsson D, Selbaek G. Psychometric evaluation of the Norwegian version of the Person-centred Care Assessment Tool. Int J Nurs Pract. 2012;18:99–105.CrossRefPubMed Rokstad AMM, Engedal K, Edvardsson D, Selbaek G. Psychometric evaluation of the Norwegian version of the Person-centred Care Assessment Tool. Int J Nurs Pract. 2012;18:99–105.CrossRefPubMed
36.
go back to reference Edvardsson D, Sjögren K, Lindkvist M, Taylor M, Edvardsson K, Sandman PO. Person‐centred climate questionnaire (PCQ‐S): establishing reliability and cut‐off scores in residential aged care. J Nurs Manag. 2015;23:315–23.CrossRefPubMed Edvardsson D, Sjögren K, Lindkvist M, Taylor M, Edvardsson K, Sandman PO. Person‐centred climate questionnaire (PCQ‐S): establishing reliability and cut‐off scores in residential aged care. J Nurs Manag. 2015;23:315–23.CrossRefPubMed
37.
go back to reference Bergland A, Kirkevold M, Edvardsson D. Psychometric properties of the Norwegian Person-centred Climate Questionnaire from a nursing home context. Scand J Caring Sci. 2012;26:820–8.CrossRefPubMed Bergland A, Kirkevold M, Edvardsson D. Psychometric properties of the Norwegian Person-centred Climate Questionnaire from a nursing home context. Scand J Caring Sci. 2012;26:820–8.CrossRefPubMed
38.
go back to reference Bergland Å, Hofoss D, Kirkevold M, Vassbø T, Edvardsson D. Person‐centred ward climate as experienced by mentally lucid residents in long‐term care facilities. J Clin Nurs. 2015;24(3–4):406–14.CrossRefPubMed Bergland Å, Hofoss D, Kirkevold M, Vassbø T, Edvardsson D. Person‐centred ward climate as experienced by mentally lucid residents in long‐term care facilities. J Clin Nurs. 2015;24(3–4):406–14.CrossRefPubMed
39.
go back to reference de Witte L, Schoot T, Proot I. Development of the Client-Centred Care Questionnaire. J Adv Nurs. 2006;56:62–8.CrossRefPubMed de Witte L, Schoot T, Proot I. Development of the Client-Centred Care Questionnaire. J Adv Nurs. 2006;56:62–8.CrossRefPubMed
40.
go back to reference Bruus I, Varik M, Aro I, Kalam-Salminen L, Routasalo P. Patient-centeredness in long-term care of older patients - a structured interview. Int J Older People Nurs. 2012;7:264–71.CrossRefPubMed Bruus I, Varik M, Aro I, Kalam-Salminen L, Routasalo P. Patient-centeredness in long-term care of older patients - a structured interview. Int J Older People Nurs. 2012;7:264–71.CrossRefPubMed
41.
go back to reference Bosman R, Bours GJJ, Engels J, de Witte LP. Client-centred care perceived by clients of two Dutch homecare agencies: a questionnaire survey. Int J Nurs Stud. 2008;45:518–25.CrossRefPubMed Bosman R, Bours GJJ, Engels J, de Witte LP. Client-centred care perceived by clients of two Dutch homecare agencies: a questionnaire survey. Int J Nurs Stud. 2008;45:518–25.CrossRefPubMed
42.
go back to reference Muntinga ME, Mokkink LB, Knol DL, Nijpels G, Jansen APD. Measurement properties of the Client-centered Care Questionnaire (CCCQ): factor structure, reliability and validity of a questionnaire to assess self-reported client-centeredness of home care services in a population of frail, older people. Qual Lif Res. 2014;23:2063–72.CrossRef Muntinga ME, Mokkink LB, Knol DL, Nijpels G, Jansen APD. Measurement properties of the Client-centered Care Questionnaire (CCCQ): factor structure, reliability and validity of a questionnaire to assess self-reported client-centeredness of home care services in a population of frail, older people. Qual Lif Res. 2014;23:2063–72.CrossRef
43.
go back to reference Suhonen R, Alikleemola P, Katajisto J, Leino‐Kilpi H. Nurses’ assessments of individualised care in long‐term care institutions. J Clin Nurs. 2012;21:1178–88.CrossRefPubMed Suhonen R, Alikleemola P, Katajisto J, Leino‐Kilpi H. Nurses’ assessments of individualised care in long‐term care institutions. J Clin Nurs. 2012;21:1178–88.CrossRefPubMed
44.
go back to reference Bamm EL, Rosenbaum P, Stratford P. Validation of the Measure of Processes of Care for Adults: a measure of client-centred care. J Adv Nurs. 2010;22:302–9. Bamm EL, Rosenbaum P, Stratford P. Validation of the Measure of Processes of Care for Adults: a measure of client-centred care. J Adv Nurs. 2010;22:302–9.
45.
go back to reference Terada S, Oshima E, Yokota O, Ikeda C, Nagao S, Takeda N, et al. Person-centered care and quality of life of patients with dementia in long-term care facilities. Psychiatry Res. 2013;205:103–8.CrossRefPubMed Terada S, Oshima E, Yokota O, Ikeda C, Nagao S, Takeda N, et al. Person-centered care and quality of life of patients with dementia in long-term care facilities. Psychiatry Res. 2013;205:103–8.CrossRefPubMed
46.
go back to reference Rose JH, Bowman KF, O'Toole EE, Abbott K, Love TE, Thomas C, Dawson NV. Caregiver objective burden and assessments of patient-centered, family-focused care for frail elderly veterans. Gerontologist. 2007;47:21–33.CrossRef Rose JH, Bowman KF, O'Toole EE, Abbott K, Love TE, Thomas C, Dawson NV. Caregiver objective burden and assessments of patient-centered, family-focused care for frail elderly veterans. Gerontologist. 2007;47:21–33.CrossRef
47.
go back to reference White DL, Newton-Curtis L, Lyons KS. Development and initial testing of a measure of person-directed care. Gerontologist. 2008;48:114–23.CrossRefPubMed White DL, Newton-Curtis L, Lyons KS. Development and initial testing of a measure of person-directed care. Gerontologist. 2008;48:114–23.CrossRefPubMed
48.
go back to reference Dow B, Fearn M, Haralambous B, Tinney J, Hill K, Gibson S. Development and initial testing of the person-centred health care for older adults survey. Int Psychogeriatr. 2013;25:1065–76.CrossRefPubMed Dow B, Fearn M, Haralambous B, Tinney J, Hill K, Gibson S. Development and initial testing of the person-centred health care for older adults survey. Int Psychogeriatr. 2013;25:1065–76.CrossRefPubMed
49.
go back to reference Cott CA, Teare G, McGilton KS, Lineker S. Reliability and construct validity of the Client-Centred Rehabilitation Questionnaire. Disabil Rehabil. 2006;28:1387–97.CrossRefPubMed Cott CA, Teare G, McGilton KS, Lineker S. Reliability and construct validity of the Client-Centred Rehabilitation Questionnaire. Disabil Rehabil. 2006;28:1387–97.CrossRefPubMed
50.
go back to reference Schoot T, Proot I, Ter Meulen R, De Witte L. Recognition of client values as a basis for tailored care: the view of Dutch expert patients and family caregivers. Scand J Caring Sci. 2005;19:169–76.CrossRefPubMed Schoot T, Proot I, Ter Meulen R, De Witte L. Recognition of client values as a basis for tailored care: the view of Dutch expert patients and family caregivers. Scand J Caring Sci. 2005;19:169–76.CrossRefPubMed
51.
go back to reference Brooker D. Dementia care mapping: a review of the research literature. Gerontologist. 2005;45 Suppl 1:11–8.CrossRefPubMed Brooker D. Dementia care mapping: a review of the research literature. Gerontologist. 2005;45 Suppl 1:11–8.CrossRefPubMed
52.
go back to reference Sullivan JL, Meterko M, Baker E, Stolzmann K, Adjognon O, Ballah K, et al. Reliability and validity of a person-centered care staff survey in Veterans Health Administration community living centers. Gerontologist. 2013;53:596–607.CrossRefPubMed Sullivan JL, Meterko M, Baker E, Stolzmann K, Adjognon O, Ballah K, et al. Reliability and validity of a person-centered care staff survey in Veterans Health Administration community living centers. Gerontologist. 2013;53:596–607.CrossRefPubMed
Metadata
Title
Person-centredness in the care of older adults: a systematic review of questionnaire-based scales and their measurement properties
Authors
Mark Wilberforce
David Challis
Linda Davies
Michael P. Kelly
Chris Roberts
Nik Loynes
Publication date
01-12-2016
Publisher
BioMed Central
Published in
BMC Geriatrics / Issue 1/2016
Electronic ISSN: 1471-2318
DOI
https://doi.org/10.1186/s12877-016-0229-y

Other articles of this Issue 1/2016

BMC Geriatrics 1/2016 Go to the issue
Live Webinar | 27-06-2024 | 18:00 (CEST)

Keynote webinar | Spotlight on medication adherence

Live: Thursday 27th June 2024, 18:00-19:30 (CEST)

WHO estimates that half of all patients worldwide are non-adherent to their prescribed medication. The consequences of poor adherence can be catastrophic, on both the individual and population level.

Join our expert panel to discover why you need to understand the drivers of non-adherence in your patients, and how you can optimize medication adherence in your clinics to drastically improve patient outcomes.

Prof. Kevin Dolgin
Prof. Florian Limbourg
Prof. Anoop Chauhan
Developed by: Springer Medicine
Obesity Clinical Trial Summary

At a glance: The STEP trials

A round-up of the STEP phase 3 clinical trials evaluating semaglutide for weight loss in people with overweight or obesity.

Developed by: Springer Medicine

Highlights from the ACC 2024 Congress

Year in Review: Pediatric cardiology

Watch Dr. Anne Marie Valente present the last year's highlights in pediatric and congenital heart disease in the official ACC.24 Year in Review session.

Year in Review: Pulmonary vascular disease

The last year's highlights in pulmonary vascular disease are presented by Dr. Jane Leopold in this official video from ACC.24.

Year in Review: Valvular heart disease

Watch Prof. William Zoghbi present the last year's highlights in valvular heart disease from the official ACC.24 Year in Review session.

Year in Review: Heart failure and cardiomyopathies

Watch this official video from ACC.24. Dr. Biykem Bozkurt discusses last year's major advances in heart failure and cardiomyopathies.