Skip to main content
Key Specialties
Cardiology Diabetology Endocrinology Gastroenterology Geriatrics and Gerontology Gynecology and Obstetrics Hematology Infectious Disease Internal Medicine Nephrology Neurology Oncology Pediatrics Respiratory Medicine Rheumatology Surgery
Congress Coverage
2024 ACC Congress 2023 ESMO Congress 2023 EASD Congress 2023 ERS Congress 2023 ESC Congress 2023 EHA Congress 2023 ASCO Annual Meeting
Clinical Collections
Advances in Alzheimer’s

Keynote webinar | Spotlight on sleep in brain health

LIVE: Thursday 2nd May 2024, 18:00-19:30 (CEST)

Quality sleep is essential for health. But what happens to our brains when sleep patterns are disturbed? Join our experts to explore the interplay between sleep disruption and neurological diseases, and the questions that you need to be asking your patients to help you prevent the harmful effects of sleep deprivation.
ADVANCED SEARCH
Log in
Top
International Journal of Pediatric Endocrinology
Published in: International Journal of Pediatric Endocrinology 1/2010

Open Access 01-12-2010 | Review Article

The Medical Home Concept and Congenital Adrenal Hyperplasia: a Comfortable Habitat!

Author: Selma Feldman Witchel

Published in: International Journal of Pediatric Endocrinology | Issue 1/2010

Login to get access

Abstract

Patient-centered interdisciplinary health care for children with chronic medical disorders represents an evolution from the traditional "stop and go" treatment for acute illnesses. This model for health care delivery has been called the "medical home," a concept that was originally developed in pediatrics for the care of children with special needs. Patient and family-centered, comprehensive, interdisciplinary, culturally effective, and readily accessible health care delivery is desirable for the care of children with congenital adrenal hyperplasia. As children with congenital adrenal hyperplasia (CAH) become adolescents and young adults, transfer of this health care delivery model to adult endocrinologists is appropriate.
Literature
1.
Wagner EH, Austin BT, Davis C, Hindmarsh M, Schaefer J, Bonomi A: Improving chronic illness care: translating evidence into action. Health Affairs. 2001, 20 (6): 64-78. 10.1377/hlthaff.20.6.64.CrossRefPubMed
2.
American Academy of Pediatrics, Council on Pediatric Practice : Pediatric records and a "medical home". Standards of Child Care. 1967, American Academy of Pediatrics, Evanston, Ill, USA, 77-79.
3.
American Academy of Pediatric, Committee on Pediatric Emergency Medicine : Advocating for ems-c on a broader scale. Emergency Medical Services for Children: The Role of the Primary Care Provider. 1992, American Academy of Pediatrics, Elk Grove Village, Ill, USA, 117-123.
4.
Sia C, Tonniges TF, Osterhus E, Taba S: History of the medical home concept. Pediatrics. 2004, 113 (5): 1473-1478.PubMed
5.
US Department of Health and Human Services : Healthy People 2010: Understanding and Improving Health. 2000, Washington, DC, USA, Government Printing Office, 2
6.
Strickland B, McPherson M, Weissman G, van Dyck P, Huang ZJ, Newacheck P: Access to the medical home: results of the national survey of children with special health care needs. Pediatrics. 2004, 113 (5, supplement): 1485-1492.PubMed
7.
Denboba D, McPherson MG, Kenney MK, Strickland B, Newacheck PW: Achieving family and provider partnerships for children with special health care needs. Pediatrics. 2006, 118 (4): 1607-1615. 10.1542/peds.2006-0383.CrossRefPubMed
8.
Wagner EH, Grothaus LC, Sandhu N: Chronic care clinics for diabetes in primary care: a system-wide randomized trial. Diabetes Care. 2001, 24 (4): 695-700. 10.2337/diacare.24.4.695.CrossRefPubMed
9.
Cooley WC: Redefining primary pediatric care for children with special health care needs: the primary care medical home. Current Opinion in Pediatrics. 2004, 16 (6): 689-692. 10.1097/01.mop.0000146440.79293.5b.CrossRefPubMed
10.
Wagner EH, Davis C, Schaefer J, von Korff M, Austin B: A survey of leading chronic disease management programs: are they consistent with the literature?. Managed Care Quarterly. 1999, 7 (3): 56-66.PubMed
11.
Speiser PW: Congenital adrenal hyperplasia due to steroid 21-hydroxylase deficiency: an Endocrine Society Clinical Practice Guideline. Journal of Clinical Endocrinology and Metabolism. In press
12.
Hughes IA: Congenital adrenal hyperplasia: transitional care. Growth Hormone and IGF Research. 2004, 14 (supplement A): S60-S66. 10.1016/j.ghir.2004.03.015.CrossRefPubMed
13.
Kruse B, Riepe FG, Krone N: Congenital adrenal hyperplasia—how to improve the transition from adolescence to adult life. Experimental and Clinical Endocrinology and Diabetes. 2004, 112 (7): 343-355. 10.1055/s-2004-821013.CrossRefPubMed
14.
Conway GS: Congenital adrenal hyperplasia: adolescence and transition. Hormone Research. 2007, 68 (supplement 5): 155-157. 10.1159/000110614.CrossRefPubMed
15.
Grosse SD, Schechter MS, Kulkarni R, Lloyd-Puryear MA, Strickland B, Trevathan E: Models of comprehensive multidisciplinary care for individuals in the United States with genetic disorders. Pediatrics. 2009, 123 (1): 407-412. 10.1542/peds.2007-2875.CrossRefPubMed
16.
Ogilvie CM, Crouch NS, Rumsby G, Creighton SM, Liao LM, Conway GS: Congenital adrenal hyperplasia in adults: a review of medical, surgical and psychological issues. Clinical Endocrinology. 2006, 64 (1): 2-11. 10.1111/j.1365-2265.2005.02410.x.CrossRefPubMed
17.
Rosen D: Between two worlds: bridging the cultures of child health and adult medicine. Journal of Adolescent Health. 1995, 17 (1): 10-16. 10.1016/1054-139X(95)00077-6.CrossRefPubMed
18.
Kieckhefer GM, Trahms CM: Supporting development of children with chronic conditions: from compliance toward shared management. Pediatric Nursing. 2000, 26 (4): 354-363.PubMed
19.
McDonagh JE, Kaufman M: The challenging adolescent. Rheumatology. 2009, 48 (8): 872-875. 10.1093/rheumatology/kep133.CrossRefPubMed
20.
Giedd JN: The teen brain: insights from neuroimaging. Journal of Adolescent Health. 2008, 42 (4): 335-343. 10.1016/j.jadohealth.2008.01.007.CrossRefPubMed
21.
Kelly AM, Kratz B, Bielski M, Rinehart PM: Implementing transitions for youth with complex chronic conditions using the medical home model. Pediatrics. 2002, 110 (6, part 2): 1322-1327.PubMed
22.
Allen D, Gregory J: The transition from children's to adult diabetes services: understanding the "problem". Diabetic Medicine. 2009, 26 (2): 162-166. 10.1111/j.1464-5491.2008.02647.x.CrossRefPubMed
23.
Schechter MS, Margolis P: Improving subspecialty healthcare: lessons from cystic fibrosis. Journal of Pediatrics. 2005, 147 (3): 295-301. 10.1016/j.jpeds.2005.03.044.CrossRefPubMed
24.
McPherson M, Thaniel L, Minniti CP: Transition of patients with sickle cell disease from pediatric to adult care: assessing patient readiness. Pediatric Blood and Cancer. 2009, 52 (7): 838-841. 10.1002/pbc.21974.CrossRefPubMed
25.
Tuchman LK, Slap GB, Britto MT: Transition to adult care: experiences and expectations of adolescents with a chronic illness. Child: Care, Health and Development. 2008, 34 (5): 557-563. 10.1111/j.1365-2214.2008.00844.x.
26.
Anthony SJ, Kaufman M, Drabble A, Seifert-Hansen M, Dipchand AI, Martin K: Perceptions of transitional care needs and experiences in pediatric heart transplant recipients. American Journal of Transplantation. 2009, 9 (3): 614-619. 10.1111/j.1600-6143.2008.02515.x.CrossRefPubMed
27.
Bell LE, Bartosh SM, Davis CL: Adolescent transition to adult care in solid organ transplantation: a consensus conference report. American Journal of Transplantation. 2008, 8 (11): 2230-2242. 10.1111/j.1600-6143.2008.02415.x.CrossRefPubMed
28.
Holman H: Chronic disease—the need for a new clinical education. Journal of the American Medical Association. 2004, 292 (9): 1057-1059. 10.1001/jama.292.9.1057.CrossRefPubMed
29.
Holman HR: The inadequacy of medical education. Chronic lllness. 2009, 5 (1): 18-20. 10.1177/1742395309102241.CrossRef
30.
Jain AK, Thompson JM, Chaudry J, McKenzie S, Schwartz RW: High-performance teams for current and future physician leaders: an introduction. Journal of Surgical Education. 2008, 65 (2): 145-150. 10.1016/j.jsurg.2007.10.003.CrossRefPubMed
31.
Sawyer SM, Drew S, Yeo MS, Britto MT: Adolescents with a chronic condition: challenges living, challenges treating. The Lancet. 2007, 369 (9571): 1481-1489. 10.1016/S0140-6736(07)60370-5.CrossRef
32.
Kemper AR, Trotter TL, Lloyd-Puryear MA, Kyler P, Feero WG, Howell RR: A blueprint for maternal and child health primary care physician education in medical genetics and genomic medicine: recommendations of the United States secretary for health and human services advisory committee on heritable disorders in newborns and children. Genetics in Medicine. 2010, 12: 77-80. 10.1097/GIM.0b013e3181cb78fa.CrossRefPubMed
Metadata
Title
The Medical Home Concept and Congenital Adrenal Hyperplasia: a Comfortable Habitat!
Author
Selma Feldman Witchel
Publication date
01-12-2010
Publisher
BioMed Central
Published in
International Journal of Pediatric Endocrinology / Issue 1/2010
Electronic ISSN: 1687-9856
DOI
https://doi.org/10.1155/2010/561526

Other articles of this Issue 1/2010

International Journal of Pediatric Endocrinology 1/2010 Go to the issue

Research Article

Long-Term Gynecological Outcomes in Women with Congenital Adrenal Hyperplasia due to 21-Hydroxylase Deficiency

Clinical Study

Efficacy and Safety of Percutaneous Epiphysiodesis Operation around the Knee to Reduce Adult Height in Extremely Tall Adolescent Girls and Boys

Review Article

Bone Health Should Be an Important Concern in the Care of Patients Affected by 21 Hydroxylase Deficiency

Review Article

Alternative Strategies for the Treatment of Classical Congenital Adrenal Hyperplasia: Pitfalls and Promises

Review Article

Consensus in Guidelines for Evaluation of DSD by the Texas Children's Hospital Multidisciplinary Gender Medicine Team

Review Article

An Evidence-Based Model of Multidisciplinary Care for Patients and Families Affected by Classical Congenital Adrenal Hyperplasia due to 21-Hydroxylase Deficiency