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Published in: Journal of Cancer Education 6/2018

01-12-2018

Testicular Cancer on the Web—an Appropriate Source of Patient Information in Concordance with the European Association of Urology Guidelines?

Authors: Pia Paffenholz, Johannes Salem, Hendrik Borgmann, Tim Nestler, David Pfister, Christian Ruf, Igor Tsaur, Axel Haferkamp, Axel Heidenreich

Published in: Journal of Cancer Education | Issue 6/2018

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Abstract

Despite the continuous growth of the internet, little is known about the quality of online information on testicular cancer, the most common solid malignancy in young men. In our study, we analysed the quality, readability and popularity of the most popular websites on testicular cancer. Therefore, we performed a web search for the term “testicular cancer” using www.​google.​com. Fifty-one websites were evaluated for HONcode quality certification, Alexa Popularity Rank and readability levels. Furthermore, the websites’ content on eight major topics of the current European Association of Urology Guidelines on testicular cancer was assessed. Fourteen (28%) had a HONcode quality certificate and the mean Alexa Popularity Rank of all 51 websites was 54,040 (interquartile range 6648–282,797). Websites were difficult to read requiring 9 years of US school education to properly understand the information. The websites mentioned 80% of the guideline topics on average, revealing “prognosis” (59%) and “follow-up” (57%) as underrepresented subtopics. Furthermore, 12% of all topics were displayed incorrectly, particularly due to wrong information concerning “aetiology” (42%). Sixty percent of the topics were mentioned in an incomplete fashion, with less than half of the websites displaying complete information on “staging” (47%), “diagnostic evaluation” (49%) or “disease management” (45%). In general, online health information concerning testicular cancer is mentioned correctly on most websites. However, improvement regarding readability and completeness of the given information is needed. Nevertheless, highly selected websites on testicular cancer can serve as an appropriate source of patient information.
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Metadata
Title
Testicular Cancer on the Web—an Appropriate Source of Patient Information in Concordance with the European Association of Urology Guidelines?
Authors
Pia Paffenholz
Johannes Salem
Hendrik Borgmann
Tim Nestler
David Pfister
Christian Ruf
Igor Tsaur
Axel Haferkamp
Axel Heidenreich
Publication date
01-12-2018
Publisher
Springer US
Published in
Journal of Cancer Education / Issue 6/2018
Print ISSN: 0885-8195
Electronic ISSN: 1543-0154
DOI
https://doi.org/10.1007/s13187-017-1249-9

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