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Journal of Cancer Education
Published in: Journal of Cancer Education 6/2018

01-12-2018

“Making My Own Decisions Sometimes”: A Pilot Study of Young Adult Cancer Survivors’ Perspectives on Medical Decision-Making

Authors: L. Aubree Shay, Susanne Schmidt, Stephanie D. Cornell, Helen M. Parsons

Published in: Journal of Cancer Education | Issue 6/2018

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Abstract

This study aimed to provide a better understanding of the medical decision-making preferences and experiences of young adult survivors of pediatric, adolescent, and young adult cancers. We conducted key informant interviews and a cross-sectional mailed survey with young adult survivors (currently aged 18–39 years) of pediatric, adolescent, and young adult cancers in South Texas. Of the responding survivors, almost all wanted to be actively involved in medical decision-making, but preferences regarding family and doctor involvement varied. In open-ended responses, the most commonly reported concerns related to medical decision-making were feelings of uncertainty and fear of receiving bad news. Survivors reported that they desired more information in order to feel better about medical decision-making. Due to the variety of preferences regarding decision-making and who to include in the process, physicians should be prepared to ask and accommodate patients regarding their decision-making preferences.
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Metadata
Title
“Making My Own Decisions Sometimes”: A Pilot Study of Young Adult Cancer Survivors’ Perspectives on Medical Decision-Making
Authors
L. Aubree Shay
Susanne Schmidt
Stephanie D. Cornell
Helen M. Parsons
Publication date
01-12-2018
Publisher
Springer US
Published in
Journal of Cancer Education / Issue 6/2018
Print ISSN: 0885-8195
Electronic ISSN: 1543-0154
DOI
https://doi.org/10.1007/s13187-017-1256-x

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