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Journal of Cancer Survivorship
Published in: Journal of Cancer Survivorship 5/2019

01-10-2019 | Care | Review

Evidence-based recommendations for the organization of long-term follow-up care for childhood and adolescent cancer survivors: a report from the PanCareSurFup Guidelines Working Group

Authors: Gisela Michel, Renée L. Mulder, Helena J. H. van der Pal, Roderick Skinner, Edit Bárdi, Morven C. Brown, Janine Vetsch, Eva Frey, Rachael Windsor, Leontien C. M. Kremer, Gill Levitt

Published in: Journal of Cancer Survivorship | Issue 5/2019

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Abstract

Purpose

To facilitate the implementation of long-term follow-up (LTFU) care and improve equality of care for childhood, adolescent, and young adult (CAYA) cancer survivors, the PanCareSurFup Guidelines Working Group developed evidence-based recommendations for the organization of LTFU.

Methods

We established an international multidisciplinary guideline panel. A systematic review of the literature published from 1999 to 2017 was completed to answer six clinical questions. The guideline panel reviewed the identified studies, developed evidence summaries, appraised the quality of the body of evidence, and formulated recommendations based on the evidence, expert opinions, and the need to maintain flexibility of application across different healthcare systems.

Results

We provide strong recommendations based on low level evidence and expert opinions, regarding organization of LTFU care, personnel involved in LTFU care, components of LTFU care and start of LTFU care. We recommend that risk-adapted LTFU care provided under the guidance of a cancer survivorship expert service or cancer centre should be available and accessible for all CAYA cancer survivors throughout their lifespan.

Conclusion

Despite the weak levels of evidence, successful and effective implementation of these recommendations should improve LTFU, thereby leading to better access to appropriate healthcare services and an improvement in health outcomes for CAYA cancer survivors.

Implications for Cancer Survivors

To improve health outcomes and quality of survivorship of current and future survivors, continued age-adapted education of survivors about the cancer, its treatment, risk of late effects, importance of health behaviours, and necessity of LTFU is important along the cancer and survivorship trajectory.
Appendix
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Metadata
Title
Evidence-based recommendations for the organization of long-term follow-up care for childhood and adolescent cancer survivors: a report from the PanCareSurFup Guidelines Working Group
Authors
Gisela Michel
Renée L. Mulder
Helena J. H. van der Pal
Roderick Skinner
Edit Bárdi
Morven C. Brown
Janine Vetsch
Eva Frey
Rachael Windsor
Leontien C. M. Kremer
Gill Levitt
Publication date
01-10-2019
Publisher
Springer US
Keyword
Care
Published in
Journal of Cancer Survivorship / Issue 5/2019
Print ISSN: 1932-2259
Electronic ISSN: 1932-2267
DOI
https://doi.org/10.1007/s11764-019-00795-5

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