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Journal of Cancer Survivorship
Published in: Journal of Cancer Survivorship 2/2016

01-04-2016

Engagement and experience with cancer-related follow-up care among young adult survivors of childhood cancer after transfer to adult care

Authors: Dava Szalda, Lisa Pierce, Wendy Hobbie, Jill P. Ginsberg, Lauren Brumley, Monika Wasik, Yimei Li, Lisa A. Schwartz

Published in: Journal of Cancer Survivorship | Issue 2/2016

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Abstract

Purpose

Young adult survivors (YAS) of childhood cancer require annual adult-focused, cancer-related follow-up given their risk for late effects of treatment. This study describes perception of and engagement with adult-focused, cancer-related follow-up care and general health care among YAS formally transferred to adult care from pediatric survivorship care.

Methods

YAS transferred from pediatric survivorship care in the prior 1–5 years completed measures indicating engagement with cancer-related follow-up care, other health care utilization, content of communication by providers, quality of cancer-related care, and satisfaction with health care in the prior year.

Results

Eighty YAS (M age = 27.7 years, M time since diagnosis = 10.4 years) participated. Just over half of YAS surveyed (n = 44, 55 %) endorsed continuing cancer-related follow-up care since transfer. Those with cancer-related follow-up endorsed seeing subspecialty survivorship providers (n = 16, 44 %) and primary care providers (n = 22, 50 %) or utilizing a shared care model (n = 6, 14 %). About a third of YAS endorsed seeing subspecialists (n = 29, 36 %) or using other support services (n = 22, 27 %). YAS-perceived content of communication varied significantly depending on care model with less cancer-related content being discussed by primary care providers, though perceived quality of cancer-related care and satisfaction with health care was generally favorable.

Conclusions

YAS report less than optimal engagement in cancer-related follow-up care and communication in their health care encounters.

Implications for Cancer Survivors

Young adult survivors should receive anticipatory guidance about expectations for delivery and content of adult-focused cancer-related follow-up care.
Footnotes
1
Beck Hopelessness Scale, The Post-Traumatic Stress Disorder Checklist-Civilian Version short form, the Family Assessment Device General Functioning Scale, NIH Patient-Reported Outcomes Measurement Information System (PROMIS) Global Health short form, and transition readiness assessments (Transition Readiness Assessment Questionnaire and Transition Readiness Inventory)
 
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Metadata
Title
Engagement and experience with cancer-related follow-up care among young adult survivors of childhood cancer after transfer to adult care
Authors
Dava Szalda
Lisa Pierce
Wendy Hobbie
Jill P. Ginsberg
Lauren Brumley
Monika Wasik
Yimei Li
Lisa A. Schwartz
Publication date
01-04-2016
Publisher
Springer US
Published in
Journal of Cancer Survivorship / Issue 2/2016
Print ISSN: 1932-2259
Electronic ISSN: 1932-2267
DOI
https://doi.org/10.1007/s11764-015-0480-9

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