Published in:
01-12-2019 | Care | Concise Research Reports
Improving Care for Patients with Sickle Cell Disease: a Qualitative Study of Hospitalized Sickle Cell Patients
Authors:
Amira del Pino-Jones, MD, Kasey Bowden, NP, Gregory Misky, MD, Christine D. Jones, MD, MS
Published in:
Journal of General Internal Medicine
|
Issue 12/2019
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Excerpt
Sickle cell disease (SCD) is a hereditary blood disorder that affects approximately 100,000 Americans.
1 Acute pain episodes, or vaso-occlusive crises, account for approximately 70% of acute care visits for patients with SCD.
1 Patients with SCD face unique obstacles to care, including difficulty communicating the severity of their pain and fear of being labeled as a “drug addict.”
2 The combined annual cost of Emergency Department visits, Urgent Care visits, and hospitalizations for SCD has reached over $2.4 billion annually.
3 In an effort to improve care for SCD patients who have required frequent readmission, we interviewed hospitalized SCD patients and asked for input on how our health system can better meet the needs of our SCD population. …
