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International Journal of Mental Health and Addiction

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Open Access 01-06-2018 | Original Article

Protection of Privacy of Information Rights among Young Adults with Developmental Disabilities

Authors: Nazilla Khanlou, Anne Mantini, Attia Khan, Katie Degendorfer, Masood Zangeneh

Published in: International Journal of Mental Health and Addiction | Issue 3/2018

Abstract

Protection of privacy of information for young adults with developmental disabilities and their families is essential to promote quality of life, well-being, empowerment, and inclusion. Despite this, the young adults’ information privacy rights are increasingly at risk. This paper provides a scoping review, applying Arksey and O’Malley’s (2005) approach, of all published peer-reviewed journal articles and gray literature to examine the barriers and facilitators in utilization of legislation that protects the collection, use, disclosure, and access of personal information in Canada. The scoping review process was further expanded with a rigorous reliability method and applied a socio-ecological framework to the final 47 studies. National and international policy and legislation (macro level), organization-based factors (meso), young adults and community interactions (exo), and individual disability related factors (micro) are examined. The review identifies the barriers and highlights the importance of facilitators for acting on personal privacy rights.

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Title: Protection of Privacy of Information Rights among Young Adults with Developmental Disabilities
Authors: Nazilla Khanlou
Anne Mantini
Attia Khan
Katie Degendorfer
Masood Zangeneh
Publication date: 01-06-2018
Publisher: Springer US
Published in: International Journal of Mental Health and Addiction / Issue 3/2018
Print ISSN: 1557-1874
Electronic ISSN: 1557-1882
DOI: https://doi.org/10.1007/s11469-018-9904-x

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