Skip to main content
Top
Published in: Quality of Life Research 2/2019

Open Access 01-02-2019

Illness perceptions, depression and anxiety in informal carers of persons with depression: a cross-sectional survey

Authors: Josianne Scerri, Therese Saliba, George Saliba, Christian A. Scerri, Liberato Camilleri

Published in: Quality of Life Research | Issue 2/2019

Login to get access

Abstract

Purpose

To examine the illness perceptions of informal carers of persons with depression, using the theoretical framework of Leventhal’s Common-Sense Model (CSM) and to determine whether these illness perceptions are predictors of anxiety and depression, as measures of psychological well-being.

Methods

A cross-sectional survey was conducted with 94 Maltese individuals caring for a person with depression within a community setting. The informal carers completed the modified Illness Perception Questionnaire (IPQS-Relatives version) and the Hospital Anxiety and Depression Scale (HADS). Data were analysed using descriptive statistics, Spearman’s rank order correlations and ANCOVA regression models, to identify predictors of anxiety and depression respectively in the informal carers.

Results

The informal carers perceived depression as a cyclical condition, having negative consequences on both the patient and on themselves. Participants perceived the causes of depression to be mainly psychosocial in nature and generally viewed the treatment as effective. Caring for a person with depression was perceived as having a considerable negative emotional impact on them. Years of caring was identified as a predictor of anxiety accounting for 20.4% of the variance, and timeline chronicity beliefs, consequences (relative) and illness coherence were identified as predictors of depression, accounting for 56.8% of the variance.

Conclusion

Illness cognitions are significant predictors of depression, thereby suggesting that cognition-based interventions may be effective in targeting depression in these informal carers. Thus, health professionals should explore the carers’ personal understanding of the disease, their timeline beliefs and the perceived consequences of providing care, as they relate to their psychological well-being.
Literature
2.
go back to reference The World Health Report. (2001). Mental health: New understanding, new hope. Geneva: World Health Organisation. The World Health Report. (2001). Mental health: New understanding, new hope. Geneva: World Health Organisation.
4.
go back to reference Fenech, M., & Scerri, J. (2013). Coping experiences when caring for a person with severe mental illneses: A qualitative study. International Journal of Arts & Sciences, 6, 73–80. Fenech, M., & Scerri, J. (2013). Coping experiences when caring for a person with severe mental illneses: A qualitative study. International Journal of Arts & Sciences, 6, 73–80.
5.
go back to reference Shah, A. J., Wadoo, O., & Latoo, J. (2010). Psychological distress in carers of people with mental disorders. British Journal of Medical Practice, 3(3), 18–25. Shah, A. J., Wadoo, O., & Latoo, J. (2010). Psychological distress in carers of people with mental disorders. British Journal of Medical Practice, 3(3), 18–25.
6.
go back to reference Highet, N. J., McNair, B. G., Davenport, T. A., & Hickie, I. B. (2004). How much more can we lose?”: Carer and family perspectives on living with a person with depression. The Medical Journal of Australia, 181(7), 6–9. Highet, N. J., McNair, B. G., Davenport, T. A., & Hickie, I. B. (2004). How much more can we lose?”: Carer and family perspectives on living with a person with depression. The Medical Journal of Australia, 181(7), 6–9.
7.
go back to reference Caqueo-Urizar, A., Gutierrez-Maldonado, J., & Miranda-Castillo, C. (2009). Quality of life in caregivers of patients with schizophrenia: A literature review. Health and Quality of Life Outcomes, 7, 84–88.CrossRefPubMedPubMedCentral Caqueo-Urizar, A., Gutierrez-Maldonado, J., & Miranda-Castillo, C. (2009). Quality of life in caregivers of patients with schizophrenia: A literature review. Health and Quality of Life Outcomes, 7, 84–88.CrossRefPubMedPubMedCentral
8.
go back to reference Kuipers, E., Onwumere, J., & Bebbington, P. (2010). Cognitive model of caregiving in psychosis. British Journal of Psychiatry, 196, 259–265.CrossRef Kuipers, E., Onwumere, J., & Bebbington, P. (2010). Cognitive model of caregiving in psychosis. British Journal of Psychiatry, 196, 259–265.CrossRef
9.
go back to reference Leventhal, H., Meyer, D., & Nerenz, D. (1980). The common-sense model of illness danger. In S. Rachman (Ed.), Medical Psychology (pp. 7–30). New York: Pergamon. Leventhal, H., Meyer, D., & Nerenz, D. (1980). The common-sense model of illness danger. In S. Rachman (Ed.), Medical Psychology (pp. 7–30). New York: Pergamon.
10.
go back to reference Barrowclough, C., Lobban, F., Hatton, C., & Quinn, J. (2001). An investigation of illness in carers of schizophrenia patients using the Illness Perception Questionnaire. British Journal of Clinical Psychology, 40, 371–385.CrossRef Barrowclough, C., Lobban, F., Hatton, C., & Quinn, J. (2001). An investigation of illness in carers of schizophrenia patients using the Illness Perception Questionnaire. British Journal of Clinical Psychology, 40, 371–385.CrossRef
11.
go back to reference Fortune, D. G., Smith, J. V., & Garvey, K. (2005). Perceptions of psychosis, coping appraisals, and psychological distress in the relatives of patients with schizophrenia: An exploration using self-regulation theory. British Journal of Clinical Psychology, 44, 319–331.CrossRef Fortune, D. G., Smith, J. V., & Garvey, K. (2005). Perceptions of psychosis, coping appraisals, and psychological distress in the relatives of patients with schizophrenia: An exploration using self-regulation theory. British Journal of Clinical Psychology, 44, 319–331.CrossRef
12.
go back to reference Lobban, F., Barrowclough, C., & Jones, S. (2005). Assessing cognitive representations of mental health problems. The Illness Perception Questionnaire for schizophrenia: Relatives version. British Journal of Clinical Psychology, 44, 163–179.CrossRef Lobban, F., Barrowclough, C., & Jones, S. (2005). Assessing cognitive representations of mental health problems. The Illness Perception Questionnaire for schizophrenia: Relatives version. British Journal of Clinical Psychology, 44, 163–179.CrossRef
13.
go back to reference Holliday, J., Wall, E., Treasure, J., & Weinman, J. (2005). Perceptions of illness in individuals with anorexia nervosa: A comparison with lay men and women. International Journal of Eating Disorders, 37(1), 50–56.CrossRef Holliday, J., Wall, E., Treasure, J., & Weinman, J. (2005). Perceptions of illness in individuals with anorexia nervosa: A comparison with lay men and women. International Journal of Eating Disorders, 37(1), 50–56.CrossRef
14.
go back to reference Watson, P. W., Garety, P. A., Weinman, J., Dunn, G., Bebbington, P. E., Fowler, D., & Kuipers, E. (2006). Emotional dysfunction in schizophrenia spectrum psychosis: The role of illness perceptions. Psychological Medicine, 36(6), 761–770.CrossRefPubMed Watson, P. W., Garety, P. A., Weinman, J., Dunn, G., Bebbington, P. E., Fowler, D., & Kuipers, E. (2006). Emotional dysfunction in schizophrenia spectrum psychosis: The role of illness perceptions. Psychological Medicine, 36(6), 761–770.CrossRefPubMed
15.
go back to reference Kuipers, E., Watson, P., Onwumere, J., Bebbington, P., Dunn, G., Weinman, J., et al. (2007). Discrepant illness perceptions, affect and expressed emotion in people with psychosis and their carers. Social Psychiatry and Psychiatric Epidemiology, 42, 277–283.CrossRefPubMed Kuipers, E., Watson, P., Onwumere, J., Bebbington, P., Dunn, G., Weinman, J., et al. (2007). Discrepant illness perceptions, affect and expressed emotion in people with psychosis and their carers. Social Psychiatry and Psychiatric Epidemiology, 42, 277–283.CrossRefPubMed
16.
go back to reference Hagger, M. S., & Orbell, S. (2003). A meta-analytic review of the common-sense model of illness representations. Psychology and Health, 18(2), 141–184.CrossRef Hagger, M. S., & Orbell, S. (2003). A meta-analytic review of the common-sense model of illness representations. Psychology and Health, 18(2), 141–184.CrossRef
17.
go back to reference Leventhal, H., Brissette, I., & Leventhal, E. A. (2003). The common-sense model of health and illness. In L. D. Cameron & H. Leventhal. (Eds.), The common-sense of health and illness behaviour (pp. 42–65). London: Routledge. Leventhal, H., Brissette, I., & Leventhal, E. A. (2003). The common-sense model of health and illness. In L. D. Cameron & H. Leventhal. (Eds.), The common-sense of health and illness behaviour (pp. 42–65). London: Routledge.
18.
go back to reference Dempster, M., McCorry, N. K., Brennan, E., Donnelly, M., Murray, L. J., & Johnston, B. T. (2011). Illness perceptions among carer-survivor dyads are related to psychological distress among oesophageal cancer survivors. Journal of Psychosomatic Research., 70, 432–439.CrossRefPubMed Dempster, M., McCorry, N. K., Brennan, E., Donnelly, M., Murray, L. J., & Johnston, B. T. (2011). Illness perceptions among carer-survivor dyads are related to psychological distress among oesophageal cancer survivors. Journal of Psychosomatic Research., 70, 432–439.CrossRefPubMed
19.
go back to reference Moss-Morris, R., Weinman, J., Petrie, K., Horne, R., Cameron, L., & Buick, D. (2002). The Revised Illness Perception Questionnaire (IPQ-R). Psychology and Health, 17, 1–16.CrossRef Moss-Morris, R., Weinman, J., Petrie, K., Horne, R., Cameron, L., & Buick, D. (2002). The Revised Illness Perception Questionnaire (IPQ-R). Psychology and Health, 17, 1–16.CrossRef
20.
go back to reference Whitney, J., Haigh, R., Weinman, J., & Treasure, J. (2007). Caring for people with eating disorders: Factors associated with psychological distress and negative caregiving appraisals in carers of people with eating disorders. British Journal of Clinical Psychology, 46, 413–428.CrossRef Whitney, J., Haigh, R., Weinman, J., & Treasure, J. (2007). Caring for people with eating disorders: Factors associated with psychological distress and negative caregiving appraisals in carers of people with eating disorders. British Journal of Clinical Psychology, 46, 413–428.CrossRef
21.
go back to reference Zigmond, A. S., & Snaith, R. P. (1983). The Hospital Anxiety and Depression Scale. Acta Psychiatrica Scandinavica, 67, 361–370.CrossRefPubMed Zigmond, A. S., & Snaith, R. P. (1983). The Hospital Anxiety and Depression Scale. Acta Psychiatrica Scandinavica, 67, 361–370.CrossRefPubMed
22.
go back to reference Olsson, I., Mykletun, A., & Dahl, A. A. (2005). The Hospital Anxiety and Depression Rating Scale: A cross-sectional study of psychometrics and case finding abilities in general practice. BMC Psychiatry, 5, 46.CrossRefPubMedPubMedCentral Olsson, I., Mykletun, A., & Dahl, A. A. (2005). The Hospital Anxiety and Depression Rating Scale: A cross-sectional study of psychometrics and case finding abilities in general practice. BMC Psychiatry, 5, 46.CrossRefPubMedPubMedCentral
23.
go back to reference Snaith, R. P., & Zigmond, A. S. (1994). The Hospital Anxiety and Depression Scale manual. Windsor: Nfer-Nelson Publishing. Snaith, R. P., & Zigmond, A. S. (1994). The Hospital Anxiety and Depression Scale manual. Windsor: Nfer-Nelson Publishing.
24.
go back to reference Weinman, M., Heijmans, M. J., & Figueiras, M. J. (2003). Carer perceptions of chronic illness. In L. D. Cameron & H. Leventhal (Eds.), The self-regulation of health and illness behaviour (pp. 207–219). New York: Routledge. Weinman, M., Heijmans, M. J., & Figueiras, M. J. (2003). Carer perceptions of chronic illness. In L. D. Cameron & H. Leventhal (Eds.), The self-regulation of health and illness behaviour (pp. 207–219). New York: Routledge.
26.
go back to reference French, D. P., Senior, V., Weinman, J., & Marteau, T. M. (2001). Causal Attributions for Heart disease: A systematic review. Psychology and Health, 16, 77–98.CrossRef French, D. P., Senior, V., Weinman, J., & Marteau, T. M. (2001). Causal Attributions for Heart disease: A systematic review. Psychology and Health, 16, 77–98.CrossRef
27.
go back to reference French, D. P., Maissi, E., & Marteau, T. M. (2005). The purpose of attributing cause: beliefs about the causes of myocardial infarction. Social Science and Medicine, 60(7), 1411–1421.CrossRefPubMed French, D. P., Maissi, E., & Marteau, T. M. (2005). The purpose of attributing cause: beliefs about the causes of myocardial infarction. Social Science and Medicine, 60(7), 1411–1421.CrossRefPubMed
28.
go back to reference Cameron, L. D., Petrie, K. J., Ellis, C., Buick, D., & Weinman, J. A. (2005). Symptom experiences symptom attributions and causal attributions in patients following first time myocardial infarction. International Journal of Behavioural Medicine, 12, 30–38.CrossRef Cameron, L. D., Petrie, K. J., Ellis, C., Buick, D., & Weinman, J. A. (2005). Symptom experiences symptom attributions and causal attributions in patients following first time myocardial infarction. International Journal of Behavioural Medicine, 12, 30–38.CrossRef
29.
go back to reference Senior, V., Smith, J. A., Michie, S. M., & Marteau, T. M. (2002). Making sense of risk: An interpretative phenomenological analysis of vulnerability to heart disease. Journal of Health Psychology, 7, 157–168.CrossRefPubMed Senior, V., Smith, J. A., Michie, S. M., & Marteau, T. M. (2002). Making sense of risk: An interpretative phenomenological analysis of vulnerability to heart disease. Journal of Health Psychology, 7, 157–168.CrossRefPubMed
32.
go back to reference Rose, L., Mallinson, R. K., & Walton-Moss, B. A. (2002). Grounded theory of families responding to mental illness. Western Journal of Nursing Research, 24(5), 516–536.CrossRefPubMed Rose, L., Mallinson, R. K., & Walton-Moss, B. A. (2002). Grounded theory of families responding to mental illness. Western Journal of Nursing Research, 24(5), 516–536.CrossRefPubMed
33.
go back to reference Dixon, L., Lucksted, A., Stewart, B., Burland, J., Brown, C. H., Postrado, L., et al. (2004). Outcomes of the peer-taught 12-week family-to-family education program for severe mental illness. Acta Psychiatrica Scandinavica, 109, 207–215.CrossRefPubMed Dixon, L., Lucksted, A., Stewart, B., Burland, J., Brown, C. H., Postrado, L., et al. (2004). Outcomes of the peer-taught 12-week family-to-family education program for severe mental illness. Acta Psychiatrica Scandinavica, 109, 207–215.CrossRefPubMed
34.
go back to reference Pickett-Schenk, S. A., Cook, J. A., & Laris, A. (2000). Journey of hope problem outcomes. Community Mental Health Journal, 36, 413–424.CrossRefPubMed Pickett-Schenk, S. A., Cook, J. A., & Laris, A. (2000). Journey of hope problem outcomes. Community Mental Health Journal, 36, 413–424.CrossRefPubMed
Metadata
Title
Illness perceptions, depression and anxiety in informal carers of persons with depression: a cross-sectional survey
Authors
Josianne Scerri
Therese Saliba
George Saliba
Christian A. Scerri
Liberato Camilleri
Publication date
01-02-2019
Publisher
Springer International Publishing
Published in
Quality of Life Research / Issue 2/2019
Print ISSN: 0962-9343
Electronic ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-018-2009-y

Other articles of this Issue 2/2019

Quality of Life Research 2/2019 Go to the issue