Skip to main content
Key Specialties
Cardiology Diabetology Endocrinology Gastroenterology Geriatrics and Gerontology Gynecology and Obstetrics Hematology Infectious Disease Internal Medicine Nephrology Neurology Oncology Pediatrics Respiratory Medicine Rheumatology Surgery
Congress Coverage
2024 ACC Congress 2023 ESMO Congress 2023 EASD Congress 2023 ERS Congress 2023 ESC Congress 2023 EHA Congress 2023 ASCO Annual Meeting
Clinical Collections
Advances in Alzheimer’s

At a glance: The ONWARDS insulin icodec trials

A round-up of the ONWARDS phase 3 clinical trials evaluating the novel weekly insulin icodec in people with diabetes.
ADVANCED SEARCH
Log in
Top
Quality of Life Research
Published in: Quality of Life Research 5/2016

Open Access 01-05-2016

The burden of neck pain: its meaning for persons with neck pain and healthcare providers, explored by concept mapping

Authors: Carlijn H. van Randeraad-van der Zee, Anna J. H. M. Beurskens, Raymond A. H. M. Swinkels, Jan J. M. Pool, Roy W. Batterham, Richard H. Osborne, Henrica C. W. de Vet

Published in: Quality of Life Research | Issue 5/2016

Login to get access

Abstract

Purpose

To empirically define the concept of burden of neck pain. The lack of a clear understanding of this construct from the perspective of persons with neck pain and care providers hampers adequate measurement of this burden. An additional aim was to compare the conceptual model obtained with the frequently used Neck Disability Index (NDI).

Methods

Concept mapping, combining qualitative (nominal group technique and group consensus) and quantitative research methods (cluster analysis and multidimensional scaling), was applied to groups of persons with neck pain (n = 3) and professionals treating persons with neck pain (n = 2). Group members generated statements, which were organized into concept maps. Group members achieved consensus about the number and description of domains and the researchers then generated an overall mind map covering the full breadth of the burden of neck pain.

Results

Concept mapping revealed 12 domains of burden of neck pain: impaired mobility neck, neck pain, fatigue/concentration, physical complaints, psychological aspects/consequences, activities of daily living, social participation, financial consequences, difficult to treat/difficult to diagnose, difference of opinion with care providers, incomprehension by social environment, and how person with neck pain deal with complaints. All ten items of the NDI could be linked to the mind map, but the NDI measures only part of the burden of neck pain.

Conclusion

This study revealed the relevant domains for the burden of neck pain from the viewpoints of persons with neck pain and their care providers. These results can guide the identification of existing measurements instruments for each domain or the development of new ones to measure the burden of neck pain.
Literature
1.
2.
Buchbinder, R., Batterham, R., Elsworth, G., Dionne, C. E., Irvin, E., & Osborne, R. H. (2011). A validity-driven approach to the understanding of the personal and societal burden of low back pain: Development of a conceptual and measurement model. Arthritis Research and Therapy, 13, R152. doi:10.​1186/​ar3468.CrossRefPubMedPubMedCentral
3.
Vernon, H., & Mior, S. (1991). The Neck Disability Index: A study of reliability and validity. Journal of Manipulative and Physiological Therapeutics, 14, 409–415.PubMed
4.
Schellingerhout, J. M., Verhagen, A. P., Heymans, M. W., Koes, B. W., de Vet, H. C., & Terwee, C. B. (2012). Measurement properties of disease-specific questionnaires in patients with neck pain: A systematic review. Quality of Life Research, 21, 659–670.CrossRefPubMedPubMedCentral
5.
6.
Van der Velde, G., Beaton, D., Hogg-Johnston, S., Hurwitz, E., & Tennant, A. (2009). Rasch analysis provides new insights into the measurement properties of the neck disability index. Arthritis and Rheumatism, 61, 544–551.CrossRefPubMed
7.
Young, S. B., Aprill, C., Braswell, J., Ogard, W. K., Richards, J. S., & McCarthy, J. P. (2009). Psychological factors and domains of neck pain disability. Pain Medicine, 10, 310–318.CrossRefPubMed
8.
Gabel, C. P., Cuesta-Vargas, A. I., Osborne, J. W., Burkett, B., & Melloh, M. (2014). Confirmatory factory analysis of the Neck Disability Index in a general problematic neck population indicates a one-factor model. Spine Journal, 14, 1410–1416.CrossRefPubMed
9.
Johansen, J. B., Andelic, N., Bakke, E., Holter, E. B., Mengshoel, A. M., & Roe, C. (2013). Measurement properties of the Norwegian version of the neck disability index in chronic neck pain. Spine, 38, 851–856.CrossRefPubMed
10.
11.
Ailliet, L., Knol, D. L., Rubinstein, S. M., de Vet, H. C., van Tulder, M. W., & Terwee, C. B. (2013). Definition of the construct to be measured is a prerequisite for the assessment of validity. The Neck Disability Index as an example. Journal of Clinical Epidemiology, 66, 775–782.CrossRefPubMed
12.
Trochim, W. M. (1989). An introduction to concept mapping for planning and evaluation. Evaluation and Program Planning, 12, 1–16.CrossRef
13.
Trochim, W., & Kane, M. (2005). Concept mapping: An introduction to structured conceptualization in health care. International Journal for Quality in Health Care, 17, 187–191.CrossRefPubMed
14.
Kane, M., & Trochim, W. M. (2007). Concept mapping for planning and evaluation. Series: Applied Social Research Methods (Vol. 50). California: Sage Publications Inc.
15.
Mokkink, L. B., Terwee, C. B., Patrick, D. L., Alonso, J., Stratford, P. W., Knol, D. L., et al. (2010). The COSMIN study reached international consensus on taxonomy, terminology, and definitions of measurement properties for health-related patient-reported outcomes. Journal of Clinical Epidemiology, 63, 737–745.CrossRefPubMed
16.
Carney, O., McIntosh, J., & Worth, A. (1996). The use of the Nominal Group Technique in research with community nurses. Journal of Advanced Nursing, 23, 1024–1029.CrossRefPubMed
17.
Davinson, M. L. (1978). Multidimensional scaling. New York: Wiley.
18.
Kruskal, J. B., & Wish, M. (1978). Multidimensional scaling. Beverly Hills, CA: Sage.
19.
Ward, J. H, Jr. (1963). Hierarchical grouping to optimize an objective function. Journal of the American Statistical Association, 58, 236–244.CrossRef
Metadata
Title
The burden of neck pain: its meaning for persons with neck pain and healthcare providers, explored by concept mapping
Authors
Carlijn H. van Randeraad-van der Zee
Anna J. H. M. Beurskens
Raymond A. H. M. Swinkels
Jan J. M. Pool
Roy W. Batterham
Richard H. Osborne
Henrica C. W. de Vet
Publication date
01-05-2016
Publisher
Springer International Publishing
Published in
Quality of Life Research / Issue 5/2016
Print ISSN: 0962-9343
Electronic ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-015-1149-6

Other articles of this Issue 5/2016

Quality of Life Research 5/2016 Go to the issue

OriginalPaper

The effects of the Make a Wish intervention on psychiatric symptoms and health-related quality of life of children with cancer: a randomised controlled trial

Review

Measuring the impact of informal elderly caregiving: a systematic review of tools

OriginalPaper

Does reporting behaviour bias the measurement of social inequalities in self-rated health in Indonesia? An anchoring vignette analysis

OriginalPaper

Cumulative and bidirectional association of physical activity and sedentary behaviour with health-related quality of life in adolescents

Brief Communication

Language bias and self-rated health status among the Latino population: evidence of the influence of translation in a wording experiment

OriginalPaper

Evaluation of mode equivalence of the MSKCC Bowel Function Instrument, LASA Quality of Life, and Subjective Significance Questionnaire items administered by Web, interactive voice response system (IVRS), and paper