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Published in: Medicine, Health Care and Philosophy 1/2018

Open Access 01-03-2018 | Scientifc Contribution

The particularity of dignity: relational engagement in care at the end of life

Authors: Jeannette Pols, Bernike Pasveer, Dick Willems

Published in: Medicine, Health Care and Philosophy | Issue 1/2018

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Abstract

This paper articulates dignity as relational engagement in concrete care situations. Dignity is often understood as an abstract principle that represents inherent worth of all human beings. In actual care practices, this principle has to be substantiated in order to gain meaning and inform care activities. We describe three exemplary substantiations of the principle of dignity in care: as a state or characteristic of a situation; as a way to differentiate between socio-cultural positions; or as personal meaning. We continue our analysis by presenting cases on dignity in care related to us in focus groups with medical professionals. Our empirical ethical lens is in this paper is to analyse, not the meaning of dignity, but the way in which it emerges in practices where it is pursued, within relationships between people, technologies, places, regulations, and the values cherished by or embedded in them. We show that professional caregivers recognize in the dignity of the person they care for their own dignity; giving up on the one implies no less than giving up on the other. This ‘mirrored experience’ of dignity expresses itself in professional’s engagement with the situation. The value of this engagement, we argue, lies not primarily in realizing the particular content of the values at stake. We point to the importance of engagement itself, even if the values engaged with cannot be realized to the full, and even if competing versions of dignity are at stake simultaneously. In this way the caregivers provide us with interesting examples of moral actorship in situations of conflicting values.
Footnotes
1
There are interesting discussion on including animals as having dignity (Singer 1995), and then why it would have to stop with animals (Abrahamsson et al. 2015). Since the global problems we are facing appeal to interconnectedness of people and other life forms, then to individual agency, this discussion is timely. In his discussion on the relationship between dignity and rank Waldron (2008) argues that dignity does not simply generates an egalitarian approach, but ‘levels up’ the rank of all human beings into a ‘society with just one cast’ or class (p 71), creating a stratification to separate humans from other beings. We have to leave this debate aside in this paper.
 
2
see Appiah (2010), Rosen (2012) and Waldron (2008, 2012, 2013) on this argument, and Pols 2013a, b.
 
3
See Rosen for an excellent interpretation of Kant’s complex position.
 
4
This is not Rosen’s own position. He uncovers different historical strands of meaning of the term. His main concern is, however, comparable to ours: even if we have grasp of the principle, it is unclear what ways of acting could or should be inferred from it.
 
5
In Byers (2016) paper it is ambiguous if the capacity to set goals and being autonomous is not a condition for being included in the species that have dignity. We have dignity because we set (rational) goals, but our goals gain worth because we are dignified.
 
6
It is important to see that in Foucault’s work with ancient philosophy the ethical, aesthetic and the true are not separated, but are all present in the same situation. There are not separate domains for either. Foucaults major interest is in the relation between the speaking of the truth in relation to the good life, leaving open many questions about the relationship between ethics and aesthetics here (author, in preparation).
 
7
Or the big sociological categories of class, gender, and so on. See e.g. Bourdieu 1984.
 
8
But see also how the general principles of respect and dignity are immediately individualized in the NHS formulation: “Every individual who comes into contact with the NHS and organisations providing health services should always be treated with respect and dignity, regardless of whether they are a patient, carer or member of staff”.
 
9
See Pasveer and Akrich (2001) for a similar argument concerning ‘natural’ childbirth.
 
10
Kaufman (2005) writes about the asymmetry of considering the removal of life-supporting technologies as an act of actively choosing the patient’s death or taking God-like decisions versus prolonging treamtment that needs no such interventions. Stopping treatment is an active way of ending life, whereas prolongation of treatment seems to be ethically right, demanding no further justification.
 
11
See Candib (2002) for an analysis of how the values of ‘autonomy’ and ‘truth telling’, central values in western medical ethics, may clash with values in other cultures and ways of treating people; Blank (2011) for an analysis of the relative lack of knowledge of these different cultural frameworks. Our example shows that cultural differences are not clearcut.
 
12
The Dutch technique of ‘polderen’, discussing about conflicting standpoints until a compromise is reached here appears in a less benign light.
 
13
It is not universality, as this is not a theoretical generalization, but one that stems from empirically analyzing particular situations. It is present in the situations analysed. It is not a prescriptive generality, but an empirical one; it can be falsified by finding the popperian black swan or an ethnographically ‘different practice’, a situation where caregivers do not engage with matters of dignity, do not value or appreciate, or in situations where less crucial values are at stake than in situations where people die.
 
14
This bears resemblance to Adam Smith’s importing of the ‘impartial spectator’ to understand the moral meaning of a situation through sympathy (empathy).
 
15
This is not to say that it is impossible to call a situation undignified; yet in our interpretation it would be an act of engagement with the situation to do so.
 
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Metadata
Title
The particularity of dignity: relational engagement in care at the end of life
Authors
Jeannette Pols
Bernike Pasveer
Dick Willems
Publication date
01-03-2018
Publisher
Springer Netherlands
Published in
Medicine, Health Care and Philosophy / Issue 1/2018
Print ISSN: 1386-7423
Electronic ISSN: 1572-8633
DOI
https://doi.org/10.1007/s11019-017-9787-9

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