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Published in:

01-11-2014

Elevated Burden for Caregivers of Children with Persistent Asthma and a Developmental Disability

Authors: Alana D. Koehler, Maria Fagnano, Guillermo Montes, Jill S. Halterman

Published in: Maternal and Child Health Journal | Issue 9/2014

Abstract

To evaluate how having a child with both persistent asthma and a developmental disability (DD) affects caregiver burden and quality of life (QOL). 3–10 year old children with persistent asthma in urban Rochester, NY. Cross-sectional baseline survey (2006–2009). Parent report of autism spectrum disorder or other behavioral disorder requiring medication. Caregiver burden and QOL as measured by scores on previously validated depression, parenting confidence, and asthma-related QOL scales as well as an assessment of competing demands on the caregiver. Bivariate and multivariate regression analyses controlling for caregiver age, education, marital status, race, ethnicity, and child asthma symptom severity. We enrolled 530 children as part of a larger study (response rate: 74; 63 % Black, 73 % Medicaid). Of this sample, 70 children (13 %) were defined as having a DD. There were no differences in asthma symptom severity between children with and without a DD diagnosis. However, even after adjusting for potential confounders, caregivers of children with a DD reported worse scores on the depression (p = .003), parenting confidence (p < .001), and competing demands (p = .013) scales and worse asthma-related QOL (p = .035) compared to caregivers of typically developing children with asthma. Despite having similar asthma symptom severity, caregivers of children with both persistent asthma and a DD diagnosis report more burden and lower QOL compared to that of caregivers of typically developing children and persistent asthma. Further attention to this subgroup is needed to promote optimal support for caregivers.

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Title: Elevated Burden for Caregivers of Children with Persistent Asthma and a Developmental Disability
Authors: Alana D. Koehler
Maria Fagnano
Guillermo Montes
Jill S. Halterman
Publication date: 01-11-2014
Publisher: Springer US
Published in: Maternal and Child Health Journal / Issue 9/2014
Print ISSN: 1092-7875
Electronic ISSN: 1573-6628
DOI: https://doi.org/10.1007/s10995-014-1455-6

Keynote webinar | Spotlight on sleep in brain health

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Elevated Burden for Caregivers of Children with Persistent Asthma and a Developmental Disability

Abstract

Keynote webinar | Spotlight on sleep in brain health

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Abstract

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