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01-06-2016 | Original Research

Patient Perceptions of Telephone vs. In-Person BRCA1/BRCA2 Genetic Counseling

Authors: Beth N. Peshkin, Scott Kelly, Rachel H. Nusbaum, Morgan Similuk, Tiffani A. DeMarco, Gillian W. Hooker, Heiddis B. Valdimarsdottir, Andrea D. Forman, Jessica Rispoli Joines, Claire Davis, Shelley R. McCormick, Wendy McKinnon, Kristi D. Graves, Claudine Isaacs, Judy Garber, Marie Wood, Lina Jandorf, Marc D. Schwartz

Published in: Journal of Genetic Counseling | Issue 3/2016

Abstract

Telephone genetic counseling (TC) for hereditary breast/ovarian cancer risk has been associated with positive outcomes in high risk women. However, little is known about how patients perceive TC. As part of a randomized trial of TC versus usual care (UC; in-person genetic counseling), we compared high risk women’s perceptions of: (1) overall satisfaction with genetic counseling; (2) convenience; (3) attentiveness during the session; (4) counselor effectiveness in providing support; and (5) counselor ability to recognize emotional responses during the session. Among the 554 participants (TC, N = 272; UC, N = 282), delivery mode was not associated with self-reported satisfaction. However, TC participants found counseling significantly more convenient than UC participants (OR = 4.78, 95 % CI = 3.32, 6.89) while also perceiving lower levels of support (OR = 0.56, 95 % CI = 0.40–0.80) and emotional recognition (OR = 0.53, 95 % CI = 0.37–0.76). In exploratory analyses, we found that non-Hispanic white participants reported higher counselor support in UC than in TC (69.4 % vs. 52.8 %; OR = 3.06, 95 % CI = 1.39–6.74), while minority women perceived less support in UC vs. TC (58.3 % vs. 38.7 %; OR = 0.80, 95 % CI = 0.39–1.65). We discuss potential research and practice implications of these findings which may further improve the effectiveness and utilization of TC.

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Title: Patient Perceptions of Telephone vs. In-Person BRCA1/BRCA2 Genetic Counseling
Authors: Beth N. Peshkin
Scott Kelly
Rachel H. Nusbaum
Morgan Similuk
Tiffani A. DeMarco
Gillian W. Hooker
Heiddis B. Valdimarsdottir
Andrea D. Forman
Jessica Rispoli Joines
Claire Davis
Shelley R. McCormick
Wendy McKinnon
Kristi D. Graves
Claudine Isaacs
Judy Garber
Marie Wood
Lina Jandorf
Marc D. Schwartz
Publication date: 01-06-2016
Publisher: Springer US
Published in: Journal of Genetic Counseling / Issue 3/2016
Print ISSN: 1059-7700
Electronic ISSN: 1573-3599
DOI: https://doi.org/10.1007/s10897-015-9897-6

ACC 2024 Congress

Springer Medicine

Patient Perceptions of Telephone vs. In-Person BRCA1/BRCA2 Genetic Counseling

Abstract

ACC 2024 Congress

Springer Medicine

Abstract

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