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Published in: Supportive Care in Cancer 10/2018

01-10-2018 | Original Article

Out-of-pocket expenses experienced by rural Western Australians diagnosed with cancer

Authors: Jade C. Newton, Claire E. Johnson, Harry Hohnen, Max Bulsara, Angela Ives, Sandy McKiernan, Violet Platt, Ruth McConigley, Neli S. Slavova-Azmanova, Christobel Saunders

Published in: Supportive Care in Cancer | Issue 10/2018

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Abstract

Purpose

Out-of-pocket expenses (OOPE) can have a significant impact on patients’ experiences of cancer treatment. This cross-sectional study sought to quantify the OOPEs experienced by rural cancer patients in Western Australia (WA), and determine factors that contributed to higher OOPE.

Methods

Four hundred people diagnosed with breast, lung, colorectal or prostate cancer who resided in selected rural regions of WA were recruited through the WA Cancer Registry and contacted at least 3 months after diagnosis to report the medical OOPE (such as surgery or chemotherapy, supportive care, medication and tests) and non-medical OOPE (such as travel costs, new clothing and utilities) they had experienced as a result of accessing and receiving treatment. Bootstrapped t tests identified demographic, financial and treatment-related factors to include in multivariate analysis, performed using log-linked generalised linear models with gamma distribution.

Results

After a median 21 weeks post-diagnosis, participants experienced an average OOPE of AU$2179 (bootstrapped 95% confidence interval $1873–$2518), and 45 (11%) spent more than 10% of their household income on these expenses. Participants likely to experience higher total OOPE were younger than 65 years (p = 0.008), resided outside the South West region (p = 0.007) and had private health insurance (PHI) (p < 0.001).

Conclusions

Rural WA cancer patients experience significant OOPE following their diagnosis. The impact these expenses have on patient wellbeing and their treatment decisions need to be further explored.
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Metadata
Title
Out-of-pocket expenses experienced by rural Western Australians diagnosed with cancer
Authors
Jade C. Newton
Claire E. Johnson
Harry Hohnen
Max Bulsara
Angela Ives
Sandy McKiernan
Violet Platt
Ruth McConigley
Neli S. Slavova-Azmanova
Christobel Saunders
Publication date
01-10-2018
Publisher
Springer Berlin Heidelberg
Published in
Supportive Care in Cancer / Issue 10/2018
Print ISSN: 0941-4355
Electronic ISSN: 1433-7339
DOI
https://doi.org/10.1007/s00520-018-4205-2

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