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Pediatric Surgery International

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Open Access 01-04-2018 | Original Article

Health-related quality of life in children born with congenital diaphragmatic hernia

Authors: Elin Öst, Björn Frenckner, Margret Nisell, Carmen Mesas Burgos, Maria Öjmyr-Joelsson

Published in: Pediatric Surgery International | Issue 4/2018

Abstract

Purpose

The aim of this study was to examine health-related quality of life (HRQoL) in children born with congenital diaphragmatic hernia (CDH).

Methods

Between 1993 and 2003, a total of 102 children born with CDH were treated at Astrid Lindgren Children’s hospital in Stockholm. In 2012, long-term survivors (n = 77) were asked to participate in the present study, which resulted in a 46% (n = 35) response rate. The KIDSCREEN-52 questionnaire was used for measuring HRQoL and a detailed review of medical records was performed.

Results

The study participants did not differ from the non-participants in terms of prenatal diagnosis, gender, side of lesion, method of surgical repair, time to intubation, need for ECMO support, or way of discharge from the hospital. Children born with CDH considered themselves to have a good HRQoL, as good as healthy Swedish children. There were only a few significant HRQoL differences within the group of children with CDH, although several median scores in ECMO-treated patients were somewhat lower. Correlations between child and parent scores on HRQoL were low.

Conclusions

Health-related quality of life in children born with CDH is good overall, however, a correlation between the severity of the malformation and HRQoL cannot be excluded.

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Title: Health-related quality of life in children born with congenital diaphragmatic hernia
Authors: Elin Öst
Björn Frenckner
Margret Nisell
Carmen Mesas Burgos
Maria Öjmyr-Joelsson
Publication date: 01-04-2018
Publisher: Springer Berlin Heidelberg
Published in: Pediatric Surgery International / Issue 4/2018
Print ISSN: 0179-0358
Electronic ISSN: 1437-9813
DOI: https://doi.org/10.1007/s00383-018-4237-1

Keynote webinar | Spotlight on sleep in brain health

Springer Medicine

Health-related quality of life in children born with congenital diaphragmatic hernia

Abstract

Purpose

Methods

Results

Conclusions

Keynote webinar | Spotlight on sleep in brain health

Springer Medicine

Abstract

Purpose

Methods

Results

Conclusions

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