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Published in: Pediatric Cardiology 2/2021

01-02-2021 | Care | Original Article

Integrated Multimodality Telemedicine to Enhance In-Home Care of Infants During the Interstage Period

Authors: Carolyn C. Foster, Michelle Steltzer, Amanda Snyder, Carrie Alden, Khrystyna Helner, Dana A. Schinasi, Katie Bohling, Kiona Allen

Published in: Pediatric Cardiology | Issue 2/2021

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Abstract

Performing interstage home monitoring using digital platforms (teleIHM) is becoming commonplace but, when used alone, may still require frequent travel for in-person care. We evaluated the acceptability, feasibility, and added value of integrating teleIHM with synchronous telemedicine video visits (VVs) and asynchronous video/photo sharing (V/P) during the interstage period. We conducted a descriptive program evaluation of patient-families receiving integrated multimodality telemedicine (teleIHM + VV + V/P) interstage care from 7/15/2018 to 05/15/2020. First, provider focus groups were conducted to develop a program logic model. Second, patient characteristics and clinical course were reviewed and analyzed with univariate statistics. Third, semi-structured qualitative interviews of family caregivers’ experiences were assessed using applied thematic analysis. Within the study period, 41 patients received teleIHM + VV + V/P care, of which 6 were still interstage and 4 died. About half (51%) of patients were female and 54% were a racial/ethnic minority. Median age was 42 days old (IQR 25, 58) at interstage start, with a median of 113 total days (IQR 72, 151). A total of 551 VVs were conducted with a median 12 VVs (IQR 7, 18) per patient. Parents sent a median 2 pictures (IQR 0–3, range 0–82). Qualitatively, families reported an adjustment period to teleIHM, but engaged favorably with telemedicine overall. Families felt reassured by the oversight routine telemedicine provided and identified logistical and clinical value to VVs above teleIHM alone, while acknowledging trade-offs with in-person care. Integration of multimodality telemedicine is a feasible and acceptable approach to enhance in-home care during the interstage period.
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Metadata
Title
Integrated Multimodality Telemedicine to Enhance In-Home Care of Infants During the Interstage Period
Authors
Carolyn C. Foster
Michelle Steltzer
Amanda Snyder
Carrie Alden
Khrystyna Helner
Dana A. Schinasi
Katie Bohling
Kiona Allen
Publication date
01-02-2021
Publisher
Springer US
Keywords
Care
Telemedicine
Published in
Pediatric Cardiology / Issue 2/2021
Print ISSN: 0172-0643
Electronic ISSN: 1432-1971
DOI
https://doi.org/10.1007/s00246-020-02489-7

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