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Published in: International Urogynecology Journal 11/2020

01-11-2020 | Sectio Ceasarea | Original Article

The changing perception and knowledge of obstetric fistula: a qualitative study

Authors: Chi Chiung Grace Chen, Jie Jiao, Gerard Mbabazi, Annelise Long, Rachel Galvao, Denis Rwabizi, Blaise Dushimiyimana, Eugene Ngoga

Published in: International Urogynecology Journal | Issue 11/2020

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Abstract

Introduction and hypothesis

To describe the knowledge and perceptions of obstetric fistula (OF) among affected and unaffected women.

Methods

Twenty-five semi-structured interviews were conducted with women who had received OF repair. Three focus groups were conducted: one group of women with urinary incontinence but no OF, one group of women with OF, and one group of women without genitourinary complaints. Interviews and focus groups were conducted using the grounded theory approach. This study took place in two urban hospitals in Rwanda from April to November 2015. Transcripts were coded using MAXDA11 and analyzed using the axial technique and the constant comparative method.

Results

Nearly all participants correctly described OF and its symptoms, and 93% of interviewed women attributed OF to complications in vaginal delivery or cesarean section. Several participants described renouncing stigmatizing beliefs after learning about OF from the radio, health workers, or word of mouth. Still, it was found that women with OF were more knowledgeable about OF etiology than women without genitourinary conditions.

Conclusions

Compared to prior studies, women’s knowledge about OF appears to be more medically based, with media and health workers playing a role in reducing stigmatizing beliefs. These findings support continued investment in OF awareness campaigns, which seem to be increasing knowledge about OF and reducing stigma.
Literature
2.
go back to reference Lewis G, De Bernis L (2006) Obstetric fistula: guiding principles for clinical management and programme development. World Health Organization. Lewis G, De Bernis L (2006) Obstetric fistula: guiding principles for clinical management and programme development. World Health Organization.
3.
go back to reference Mselle LT, Moland KM, Evjen-Olsen B, Mvungi A, Kohi TW. "I am nothing": experiences of loss among women suffering from severe birth injuries in Tanzania. BMC Womens Health. 2011;11(1):49.CrossRefPubMedPubMedCentral Mselle LT, Moland KM, Evjen-Olsen B, Mvungi A, Kohi TW. "I am nothing": experiences of loss among women suffering from severe birth injuries in Tanzania. BMC Womens Health. 2011;11(1):49.CrossRefPubMedPubMedCentral
4.
go back to reference Wall LL, Karshima JA, Kirschner C, Arrowsmith SD. The obstetric vesicovaginal fistula: characteristics of 899 patients from Jos, Nigeria. Am J Obstet Gynecol. 2004;190(4):1011–6.CrossRefPubMed Wall LL, Karshima JA, Kirschner C, Arrowsmith SD. The obstetric vesicovaginal fistula: characteristics of 899 patients from Jos, Nigeria. Am J Obstet Gynecol. 2004;190(4):1011–6.CrossRefPubMed
5.
go back to reference Banke-Thomas AO, Kouraogo SF, Siribie A, Taddese HB, Mueller JE (2013) Knowledge of obstetric fistula prevention amongst young women in urban and rural Burkina Faso: a cross-sectional study. PloS One 8(12). Banke-Thomas AO, Kouraogo SF, Siribie A, Taddese HB, Mueller JE (2013) Knowledge of obstetric fistula prevention amongst young women in urban and rural Burkina Faso: a cross-sectional study. PloS One 8(12).
6.
go back to reference Kazaura MR, Kamazima RS, Mangi EJ (2011) Perceived causes of obstetric fistulae from rural southern Tanzania. Afr Health Sci 11(3). Kazaura MR, Kamazima RS, Mangi EJ (2011) Perceived causes of obstetric fistulae from rural southern Tanzania. Afr Health Sci 11(3).
7.
go back to reference Glaser B. Basics of grounded theory analysis: emergence vs forcing. Mill Valley: Sociology Press; 1992. Glaser B. Basics of grounded theory analysis: emergence vs forcing. Mill Valley: Sociology Press; 1992.
8.
go back to reference Corbin J, Strauss A (2014) Basics of qualitative research: Techniques and procedures for developing grounded theory. Sage publications. Corbin J, Strauss A (2014) Basics of qualitative research: Techniques and procedures for developing grounded theory. Sage publications.
9.
go back to reference Vollstedt M, Rezat S (2019) An Introduction to Grounded Theory with a Special Focus on Axial Coding and the Coding Paradigm. In: Kaiser G, Presmeg N (eds) Compendium for Early Career Researchers in Mathematics Education. ICME-13 Monographs. Springer, Cham. Vollstedt M, Rezat S (2019) An Introduction to Grounded Theory with a Special Focus on Axial Coding and the Coding Paradigm. In: Kaiser G, Presmeg N (eds) Compendium for Early Career Researchers in Mathematics Education. ICME-13 Monographs. Springer, Cham.
10.
go back to reference Nathan LM, Rochat CH, Grigorescu B, Banks E. Obstetric fistulae in West Africa: patient perspectives. Am J Obstet Gynecol. 2009;200(5):e40–2.CrossRefPubMed Nathan LM, Rochat CH, Grigorescu B, Banks E. Obstetric fistulae in West Africa: patient perspectives. Am J Obstet Gynecol. 2009;200(5):e40–2.CrossRefPubMed
11.
go back to reference Kavai MM, Chepchirchir A, Kayugira R (2010) Women's knowledge of vesico vaginal fistula in Kenya. Afr J Midwifery Womens Health 4(4). Kavai MM, Chepchirchir A, Kayugira R (2010) Women's knowledge of vesico vaginal fistula in Kenya. Afr J Midwifery Womens Health 4(4).
13.
go back to reference Baptiste D, Kapungu C, Khare MH, Lewis Y, Barlow-Mosha L. Integrating women's human rights into global health research: an action framework. J Women's Health. 2010;19(11):2091–9.CrossRef Baptiste D, Kapungu C, Khare MH, Lewis Y, Barlow-Mosha L. Integrating women's human rights into global health research: an action framework. J Women's Health. 2010;19(11):2091–9.CrossRef
14.
go back to reference Ramsey K, Iliyasu Z, Idoko L. Fistula fortnight: innovative partnership brings mass treatment and public awareness towards ending obstetric fistula. Int J Gynecol Obstet. 2007;99:S130–6.CrossRef Ramsey K, Iliyasu Z, Idoko L. Fistula fortnight: innovative partnership brings mass treatment and public awareness towards ending obstetric fistula. Int J Gynecol Obstet. 2007;99:S130–6.CrossRef
Metadata
Title
The changing perception and knowledge of obstetric fistula: a qualitative study
Authors
Chi Chiung Grace Chen
Jie Jiao
Gerard Mbabazi
Annelise Long
Rachel Galvao
Denis Rwabizi
Blaise Dushimiyimana
Eugene Ngoga
Publication date
01-11-2020
Publisher
Springer International Publishing
Published in
International Urogynecology Journal / Issue 11/2020
Print ISSN: 0937-3462
Electronic ISSN: 1433-3023
DOI
https://doi.org/10.1007/s00192-020-04448-5

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