Skip to main content
Top
Published in: Social Psychiatry and Psychiatric Epidemiology 11/2019

01-11-2019 | Schizophrenia | Original Paper

A randomized-controlled trial of treatment for self-stigma among persons diagnosed with schizophrenia-spectrum disorders

Authors: Philip T. Yanos, Paul H. Lysaker, Steven M. Silverstein, Beth Vayshenker, Lauren Gonzales, Michelle L. West, David Roe

Published in: Social Psychiatry and Psychiatric Epidemiology | Issue 11/2019

Login to get access

Abstract

Purpose

A substantial body of research indicates that self-stigma is associated with poorer outcomes related to recovery among people with severe mental illnesses. Narrative Enhancement and Cognitive Therapy (NECT) is a structured, group-based approach which targets the effects of self-stigma. A randomized-controlled trial was conducted to examine the efficacy of NECT.

Methods

One hundred and seventy persons, recruited from both outpatient and comprehensive treatment settings, meeting criteria for schizophrenia-spectrum disorders and moderate-to-elevated self-stigma, were randomly assigned to NECT or supportive group therapy and assessed at four time points over the course of nearly a year. Participants completed measures of self-stigma, hope, self-esteem, functioning, psychiatric symptoms, coping with symptoms, and narrative insight.

Results

Analyses indicated that NECT participants in outpatient sites improved significantly more over time in self-stigma compared to supportive group therapy participants in outpatient sites, while NECT participants in comprehensive (including day treatment and psychiatric rehabilitation program) sites improved significantly more in hopelessness and narrative insight than other participants. NECT participants as a group showed decreases in the social withdrawal component of self-stigma, decreased in their use of avoidant coping strategies, and were more engaged in treatment than supportive group therapy participants. There was no evidence for effects of NECT on social functioning or psychiatric symptoms.

Conclusions

Findings suggest that NECT primarily impacts self-stigma and related outcomes, and that the degree of its effects is partially dependent on the treatment context in which it is offered.
Appendix
Available only for authorised users
Literature
1.
go back to reference Angermeyer MC, Dietrich S (2006) Public beliefs and attitudes toward people with mental illness: a review of population studies. Acta Psychiatr Scand 113:163–179CrossRef Angermeyer MC, Dietrich S (2006) Public beliefs and attitudes toward people with mental illness: a review of population studies. Acta Psychiatr Scand 113:163–179CrossRef
2.
go back to reference Pescosolido BA, Medina TR, Martin JK, Long JS (2013) The “backbone” of stigma: identifying the global core of public prejudice associated with mental illness. Am J Publ Health 103:853–860CrossRef Pescosolido BA, Medina TR, Martin JK, Long JS (2013) The “backbone” of stigma: identifying the global core of public prejudice associated with mental illness. Am J Publ Health 103:853–860CrossRef
3.
go back to reference Thornicroft G, Brohan E, Rose D, Sartorius N, Leese M (2009) Global pattern of experienced and anticipated discrimination against people with schizophrenia: a cross-sectional survey. Lancet 373:408–415CrossRef Thornicroft G, Brohan E, Rose D, Sartorius N, Leese M (2009) Global pattern of experienced and anticipated discrimination against people with schizophrenia: a cross-sectional survey. Lancet 373:408–415CrossRef
4.
go back to reference Brohan E, Elgie R, Sartorius N, Thornicroft G, GAMIAN-Europe Study Group (2010) Self-stigma, empowerment and perceived discrimination among people with schizophrenia in 14 European countries: the GAMIAN-Europe study. Schizophr Res 122:232–238CrossRef Brohan E, Elgie R, Sartorius N, Thornicroft G, GAMIAN-Europe Study Group (2010) Self-stigma, empowerment and perceived discrimination among people with schizophrenia in 14 European countries: the GAMIAN-Europe study. Schizophr Res 122:232–238CrossRef
5.
go back to reference Krajewski C, Burazeri G, Brand H (2013) Self-stigma, perceived discrimination and empowerment among people with a mental illness in six countries: pan European stigma study. Psychiatry Res 210:1136–1146CrossRef Krajewski C, Burazeri G, Brand H (2013) Self-stigma, perceived discrimination and empowerment among people with a mental illness in six countries: pan European stigma study. Psychiatry Res 210:1136–1146CrossRef
6.
go back to reference Corrigan PW, Watson AC (2002) The paradox of self-stigma and mental illness. Clin Psychol 9:35–53 Corrigan PW, Watson AC (2002) The paradox of self-stigma and mental illness. Clin Psychol 9:35–53
7.
go back to reference West ML, Yanos PT, Smith SM, Roe D, Lysaker PH (2011) Prevalence of internalized stigma among persons with severe mental illness. Stigma Res Action 1:54–59CrossRef West ML, Yanos PT, Smith SM, Roe D, Lysaker PH (2011) Prevalence of internalized stigma among persons with severe mental illness. Stigma Res Action 1:54–59CrossRef
8.
go back to reference Livingston JD, Boyd JE (2010) Correlates and consequences of internalized stigma for people living with mental illness: a systematic review and meta-analysis. Soc Sci Med 71:2150–2161CrossRef Livingston JD, Boyd JE (2010) Correlates and consequences of internalized stigma for people living with mental illness: a systematic review and meta-analysis. Soc Sci Med 71:2150–2161CrossRef
9.
go back to reference Yanos PT, Roe D, Lysaker PH (2010) The impact of illness identity on recovery from severe mental illness. Am J Psychiatr Rehab 13:73–93CrossRef Yanos PT, Roe D, Lysaker PH (2010) The impact of illness identity on recovery from severe mental illness. Am J Psychiatr Rehab 13:73–93CrossRef
10.
go back to reference Yanos PT (2018) Written off: mental health stigma and the loss of human potential. Cambridge University Press, CambridgeCrossRef Yanos PT (2018) Written off: mental health stigma and the loss of human potential. Cambridge University Press, CambridgeCrossRef
11.
go back to reference Beck AT, Weisman A, Lester D, Trexler L (1974) The measurement of pessimism: the hopelessness scale. J Consult Clin Psychol 42:861–865CrossRef Beck AT, Weisman A, Lester D, Trexler L (1974) The measurement of pessimism: the hopelessness scale. J Consult Clin Psychol 42:861–865CrossRef
12.
go back to reference Rosenberg M (1964) Society and the adolescent self-image. Princeton University Press, Princeton Rosenberg M (1964) Society and the adolescent self-image. Princeton University Press, Princeton
13.
go back to reference Burns T, Patrick D (2007) Social functioning as an outcome measure in schizophrenia studies. Acta Psychiatr Scand 116:403–418CrossRef Burns T, Patrick D (2007) Social functioning as an outcome measure in schizophrenia studies. Acta Psychiatr Scand 116:403–418CrossRef
14.
go back to reference Yanos PT, Roe D, Markus K, Lysaker PH (2008) Pathways between internalized stigma and outcomes related to recovery in schizophrenia-spectrum disorders. Psychiatr Serv 59:1437–1442CrossRef Yanos PT, Roe D, Markus K, Lysaker PH (2008) Pathways between internalized stigma and outcomes related to recovery in schizophrenia-spectrum disorders. Psychiatr Serv 59:1437–1442CrossRef
15.
go back to reference Cavelti M, Rusch N, Vauth R (2014) Is living with psychosis demoralizing? Insight, self-stigma, and clinical outcome among people with schizophrenia across 1 year. J Nerv Mental Dis 202:521–529CrossRef Cavelti M, Rusch N, Vauth R (2014) Is living with psychosis demoralizing? Insight, self-stigma, and clinical outcome among people with schizophrenia across 1 year. J Nerv Mental Dis 202:521–529CrossRef
16.
go back to reference Yanos PT, Lucksted A, Drapalski A, Roe D, Lysaker PH (2015) Interventions targeting mental health self-stigma: a review and comparison. Psychiatr Rehab J 38:171–178CrossRef Yanos PT, Lucksted A, Drapalski A, Roe D, Lysaker PH (2015) Interventions targeting mental health self-stigma: a review and comparison. Psychiatr Rehab J 38:171–178CrossRef
17.
go back to reference Yanos PT, Roe D, Lysaker PH (2011) Narrative enhancement and cognitive therapy: a new group-based treatment for internalized stigma among persons with severe mental illness. Int J Group Psychother 61:577–595CrossRef Yanos PT, Roe D, Lysaker PH (2011) Narrative enhancement and cognitive therapy: a new group-based treatment for internalized stigma among persons with severe mental illness. Int J Group Psychother 61:577–595CrossRef
18.
go back to reference Yanos PT, Roe D, West ML, Smith SM, Lysaker PH (2012) Group-based treatment for internalized stigma among persons with severe mental illness: findings from a randomized controlled trial. Psychol Serv 9:248–258CrossRef Yanos PT, Roe D, West ML, Smith SM, Lysaker PH (2012) Group-based treatment for internalized stigma among persons with severe mental illness: findings from a randomized controlled trial. Psychol Serv 9:248–258CrossRef
19.
go back to reference Roe D, Hasson-Ohayon I, Mashiach-Eizenberg M, Derhy O, Lysaker PH, Yanos PT (2014) Narrative enhancement and cognitive therapy (NECT) effectiveness: a quasi-experimental study. J Clin Psychol 70:303–312CrossRef Roe D, Hasson-Ohayon I, Mashiach-Eizenberg M, Derhy O, Lysaker PH, Yanos PT (2014) Narrative enhancement and cognitive therapy (NECT) effectiveness: a quasi-experimental study. J Clin Psychol 70:303–312CrossRef
20.
go back to reference Hansson L, Lexen A, Holmen J (2017) The effectiveness of narrative enhancement and cognitive therapy: a randomized controlled study of a self-stigma intervention. Soc Psychiatry Psychiatr Epidemiol 52:1415–1423CrossRef Hansson L, Lexen A, Holmen J (2017) The effectiveness of narrative enhancement and cognitive therapy: a randomized controlled study of a self-stigma intervention. Soc Psychiatry Psychiatr Epidemiol 52:1415–1423CrossRef
21.
go back to reference Brohan E, Gauci D, Thornicroft G, for the GAMIAN–Europe Study Group (2011) Self-stigma, empowerment and perceived discrimination among people with bipolar disorder or depression in 13 European countries: the GAMIAN–Europe study. J Affective Dis 129:56–63CrossRef Brohan E, Gauci D, Thornicroft G, for the GAMIAN–Europe Study Group (2011) Self-stigma, empowerment and perceived discrimination among people with bipolar disorder or depression in 13 European countries: the GAMIAN–Europe study. J Affective Dis 129:56–63CrossRef
22.
go back to reference Spitzer RL, Williams JB, Gibbon M, First M (1994) Structured clinical interview for DSM-IV. Biometrics Research, New York Spitzer RL, Williams JB, Gibbon M, First M (1994) Structured clinical interview for DSM-IV. Biometrics Research, New York
23.
go back to reference Ritsher JB, Phelan JC (2004) Internalized stigma predicts erosion of morale among psychiatric outpatients. Psychiatry Res 129:257–265CrossRef Ritsher JB, Phelan JC (2004) Internalized stigma predicts erosion of morale among psychiatric outpatients. Psychiatry Res 129:257–265CrossRef
24.
go back to reference Heinrichs DW, Hanlon TE, Carpenter WT (1984) The quality of life scale: an instrument for assessing the schizophrenic deficit syndrome. Schizophr Bull 10:388–396CrossRef Heinrichs DW, Hanlon TE, Carpenter WT (1984) The quality of life scale: an instrument for assessing the schizophrenic deficit syndrome. Schizophr Bull 10:388–396CrossRef
25.
go back to reference Jaeger J, Berns SM, Czobor P (2003) The Multidimensional scale of independent functioning: a new instrument for measuring functional disability in psychiatric populations. Schizophr Bull 29:153–168CrossRef Jaeger J, Berns SM, Czobor P (2003) The Multidimensional scale of independent functioning: a new instrument for measuring functional disability in psychiatric populations. Schizophr Bull 29:153–168CrossRef
26.
go back to reference Kay S, Fiszbein A, Opler L (1987) The positive and negative syndrome scale for schizophrenia. Schizophr Bull 13:261–276CrossRef Kay S, Fiszbein A, Opler L (1987) The positive and negative syndrome scale for schizophrenia. Schizophr Bull 13:261–276CrossRef
27.
go back to reference Yanos PT, Knight EL, Bremer L (2003) A new measure of coping with symptoms for use with persons diagnosed with severe mental illness. Psychiatr Rehab J 27:168–176CrossRef Yanos PT, Knight EL, Bremer L (2003) A new measure of coping with symptoms for use with persons diagnosed with severe mental illness. Psychiatr Rehab J 27:168–176CrossRef
28.
go back to reference Lysaker PH, Taylor A, Miller A, Beattie N, Strasburger A, Davis LW (2006) The scale to assess narrative development: associations with other measures of self and readiness for recovery in schizophrenia spectrum disorders. J Nerv Ment Dis 27:233–247 Lysaker PH, Taylor A, Miller A, Beattie N, Strasburger A, Davis LW (2006) The scale to assess narrative development: associations with other measures of self and readiness for recovery in schizophrenia spectrum disorders. J Nerv Ment Dis 27:233–247
29.
go back to reference Lysaker PH, Clements CA, Placak-Hallberg C, Knipschure SJ, Wright DE (2002) Insight and personal narratives of illness in schizophrenia. Psychiatry 65:197–206CrossRef Lysaker PH, Clements CA, Placak-Hallberg C, Knipschure SJ, Wright DE (2002) Insight and personal narratives of illness in schizophrenia. Psychiatry 65:197–206CrossRef
30.
go back to reference Spaulding WD, Reed D, Sullivan M, Richardson C, Weiler M (1999) Effects of cognitive treatment in psychiatric rehabilitation. Schizophr Bull 25:657–676CrossRef Spaulding WD, Reed D, Sullivan M, Richardson C, Weiler M (1999) Effects of cognitive treatment in psychiatric rehabilitation. Schizophr Bull 25:657–676CrossRef
31.
go back to reference Hayes SA, Hope DA, Terryberry-Spohr LS et al (2006) Discriminating between cognitive and supportive group therapies for chronic mental illness. J Nerv Ment Dis 194:603–609CrossRef Hayes SA, Hope DA, Terryberry-Spohr LS et al (2006) Discriminating between cognitive and supportive group therapies for chronic mental illness. J Nerv Ment Dis 194:603–609CrossRef
32.
go back to reference Faul F, Erdfelder E, Lang AG, Buchner A (2007) G*Power 3: a flexible statistical power analysis for the social, behavioral, and biomedical sciences. Beh Res Methods 39:175–191CrossRef Faul F, Erdfelder E, Lang AG, Buchner A (2007) G*Power 3: a flexible statistical power analysis for the social, behavioral, and biomedical sciences. Beh Res Methods 39:175–191CrossRef
33.
go back to reference Beck AT, Himelstein R, Bredemeier K, Silverstein SM, Grant P (2018) What accounts for poor functioning in people with schizophrenia: a re-evaluation of the contributions of neurocognitive v. attitudinal and motivational factors. Psychol Med 48:2776–2785CrossRef Beck AT, Himelstein R, Bredemeier K, Silverstein SM, Grant P (2018) What accounts for poor functioning in people with schizophrenia: a re-evaluation of the contributions of neurocognitive v. attitudinal and motivational factors. Psychol Med 48:2776–2785CrossRef
34.
go back to reference Silverstein SM, Bellack A (2008) A scientific agenda for the concept of recovery as it applies to schizophrenia. Clin Psychol Rev 28:1108–1124CrossRef Silverstein SM, Bellack A (2008) A scientific agenda for the concept of recovery as it applies to schizophrenia. Clin Psychol Rev 28:1108–1124CrossRef
35.
go back to reference McGurk SR, Twamley EW, Sitzer DI, McHugo GJ, Mueser KT (2007) A meta-analysis of cognitive remediation in schizophrenia. Am J Psychiatry 164:1791–1802CrossRef McGurk SR, Twamley EW, Sitzer DI, McHugo GJ, Mueser KT (2007) A meta-analysis of cognitive remediation in schizophrenia. Am J Psychiatry 164:1791–1802CrossRef
36.
go back to reference Silverstein SM (2010) Bridging the gap between extrinsic and instrinsic motivation in the cognitive remediation of schizophrenia. Schizophr Bull 36:949–956CrossRef Silverstein SM (2010) Bridging the gap between extrinsic and instrinsic motivation in the cognitive remediation of schizophrenia. Schizophr Bull 36:949–956CrossRef
Metadata
Title
A randomized-controlled trial of treatment for self-stigma among persons diagnosed with schizophrenia-spectrum disorders
Authors
Philip T. Yanos
Paul H. Lysaker
Steven M. Silverstein
Beth Vayshenker
Lauren Gonzales
Michelle L. West
David Roe
Publication date
01-11-2019
Publisher
Springer Berlin Heidelberg
Keyword
Schizophrenia
Published in
Social Psychiatry and Psychiatric Epidemiology / Issue 11/2019
Print ISSN: 0933-7954
Electronic ISSN: 1433-9285
DOI
https://doi.org/10.1007/s00127-019-01702-0

Other articles of this Issue 11/2019

Social Psychiatry and Psychiatric Epidemiology 11/2019 Go to the issue