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Social Psychiatry and Psychiatric Epidemiology
Published in: Social Psychiatry and Psychiatric Epidemiology 12/2014

01-12-2014 | Original Paper

Desire for information of people with severe mental illness

Authors: Domenico Giacco, Mario Luciano, Valeria Del Vecchio, Gaia Sampogna, Mike Slade, Eleanor Clarke, Marietta Nagy, Aniko Egerhazi, Povl Munk-Jørgensen, Malene Frøkjaer Krogsgaard Bording, Wolfram Kawohl, Wulf Rössler, Nadja Zentner, Bernd Puschner, Andrea Fiorillo, The CEDAR study group

Published in: Social Psychiatry and Psychiatric Epidemiology | Issue 12/2014

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Abstract

Purpose

To assess (1) the desire of people with severe mental illness for information on their treatment and (2) whether the desire for information is associated with socio-demographic variables, diagnosis, illness duration, therapeutic relationship, needs and symptom severity.

Methods

588 outpatients with severe mental illness were recruited in six European countries (Germany, Denmark, Hungary, Italy, Switzerland, United Kingdom) during the “Clinical decision making and outcome in routine care of people with severe mental illness (CEDAR)” study (ISRCTN75841675). Desire for information was assessed by the Information subscale of the Clinical Decision Making Style Scale. Study participants with high desire for information were compared with those with moderate or low desire for information.

Results

80 % of study participants (n = 462) wanted to receive information on all aspects of their treatment (management, prognosis, alternative options for care). Participants with a high desire for information had less severe symptoms (OR = 0.988, CI = 0.977–1.000) and a better self-rated therapeutic alliance (OR = 1.304, CI = 1.130–1.508) with their clinician.

Conclusions

Most, but not all, people with severe mental illness have a high desire for information. Desire for information is associated with variables, such as therapeutic relationship and symptom severity, which are amenable to change during treatment.
Appendix
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Metadata
Title
Desire for information of people with severe mental illness
Authors
Domenico Giacco
Mario Luciano
Valeria Del Vecchio
Gaia Sampogna
Mike Slade
Eleanor Clarke
Marietta Nagy
Aniko Egerhazi
Povl Munk-Jørgensen
Malene Frøkjaer Krogsgaard Bording
Wolfram Kawohl
Wulf Rössler
Nadja Zentner
Bernd Puschner
Andrea Fiorillo
The CEDAR study group
Publication date
01-12-2014
Publisher
Springer Berlin Heidelberg
Published in
Social Psychiatry and Psychiatric Epidemiology / Issue 12/2014
Print ISSN: 0933-7954
Electronic ISSN: 1433-9285
DOI
https://doi.org/10.1007/s00127-014-0901-5

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