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Social Psychiatry and Psychiatric Epidemiology
Published in: Social Psychiatry and Psychiatric Epidemiology 11/2006

01-11-2006 | ORIGINAL PAPER

Trust, choice and power in mental health

A literature review

Authors: Richard Laugharne, MRCPsych, Stefan Priebe, MD

Published in: Social Psychiatry and Psychiatric Epidemiology | Issue 11/2006

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Abstract

Trust, choice and empowerment of patients are emerging as important issues in mental health care. This may be due to an increasingly consumerist attitude amongst patients and as a consequence of postmodern cultural changes in society. This study aimed to find evidence for the influence of trust, patient choice and patient empowerment in mental health care. A literature review was undertaken. Six searches of PubMed were made using the key terms trust, patient choice and power combined separately with psychiatry and mental health. The literature search found substantial research evidence in the areas of trust, choice and power including validated scales measuring these concepts and evidence that they are important to patients. Trust in general health clinicians was found to be high and continuity of care increases patients’ trust in their clinician. However, only qualitative research has been found on trust in mental health settings and further quantitative studies are needed. Patient choice is important to patients and improves engagement with services, although studies on outcome show varying results. Empowerment has impacted more at an organisational level than on individual care. Innovative research methodologies are needed to expand on the present significant body of research, utilising qualitative and quantitative techniques.
Literature
1.
Fenton WS, Blyler CR, Heinssen RK (1997) Determinants of medication compliance in schizophrenia: empirical and clinical findings. Schizophr Bull 23: 637–651PubMed
2.
Lyotard J-F (1984) The postmodern condition: a report on knowledge. Manchester University Press, Manchester
3.
Foucault M (2001) Madness and civilisation. Routledge, London
4.
5.
Bracken PJ (2003) Postmodernism and psychiatry. Curr Opin Psychiatry 16: 673–677CrossRef
6.
Laugharne R, Laugharne J (2002) Psychiatry, postmodernism and post-normal science. J Roy Soc Med 95: 207–210CrossRefPubMed
7.
Department of Health (1999) Modernising mental health services. HMSO, London
8.
O’Neill O (2002) A question of trust. Cambridge University Press, Cambridge
9.
Goudge J, Gilson L (2005) How can trust be investigated? Drawing lessons from past experience. Soc Sci Med 61: 1439–1451PubMedCrossRef
10.
11.
Hall MA, Dugan E, Zheng B, et al. (2001) Trust in physicians and medical institutions: what is it, can it be measured and does it matter? Millbank Q 79: 613–639CrossRef
12.
Hall MA, Zheng B, Dugan E (2002) Measuring patients’ trust in their primary care providers. Med Care Res Rev 59: 293–318PubMedCrossRef
13.
Hall MA, Camacho F, Dugan E, et al. (2002) Trust in the medical profession: conceptual and measurement issues. Health Serv Res 37: 1419–1439PubMedCrossRef
14.
Anderson LA, Dedrick RF (1990) Development of the trust in physician scale: a measure to assess interpersonal trust in patient-physician relationship. Psychol Rep 67: 1091PubMedCrossRef
15.
Safran DG, Taira DA, Rogers WA, et al. (1998) Linking primary care performance to outcomes of care. J Fam Pract 47: 213–220PubMed
16.
Kao AC, Green DC, Davies NA, et al. (1998) Patients’ trust in their physicians. J Gen Intern Med 13: 681–686PubMedCrossRef
17.
La Veist TA, Nikerson K, Bowie JV (2000) Atttitudes about racism, medical mistrust and satisfaction with care among African American and white cardiac patients. Med Care Res Rev 57: 146–161CrossRef
18.
Thom DH, Ribisl KM, Stewart AL, Luke DA (1999) Further validation and reliability testing of the trust in physician scale. Med Care 37: 510–517PubMedCrossRef
19.
20.
Blendon RJ, Brodie M, Benson JM (1998) Understanding the managed care backlash. Health Aff 17: 80–94CrossRef
21.
Mainous AG, Baker R, Love MM, Gray DP, Gill JM (2001) Continuity of care and trust in one’s physician: evidence from primary care in the United States and the United Kingdom. Fam Med 33: 22–27PubMed
22.
Balkrishnan R, Dugan E, Camacho FT, et al. (2003) Trust and satisfaction with physicians, insurers and the medical profession. Med Care 41: 1058–1064PubMedCrossRef
23.
Kai J, Crosland A (2001) Perspectives of people with enduring mental ill health from a community-based qualitative study. Br J Gen Pract 51: 730–736PubMed
24.
Hannigan B, Bartlett H, Clilverd A (1997) Improving health and social functioning: perspectives of mental health service users. J Ment Health 6: 613–619CrossRef
25.
Mechanic D, Meyer S (2000) Concepts of trust among patients with serious illness. Soc Sci Med 51: 657–668PubMedCrossRef
26.
Thom DH, Bloch DA, Segal ES (1999) An intervention to increase patients’ trust in their physicians. Acad Med 74: 195–198PubMedCrossRef
27.
Lauber C, Nordt C, Falcato L, et al. (2002) Public attitude to compulsory admission of mentally ill people. Acta Psychiatr Scand 105: 385–389PubMedCrossRef
28.
Quill TE, Brody H (1996) Physician recommendations and patient autonomy: finding a balance between patient power and patient choice. Ann Intern Med 125: 763–769PubMed
29.
Calsyn RJ, Winter JP, Morse GA (2000) Do consumers who have a choice of treatment have better outcomes? Community Ment Health J 36: 149–160PubMedCrossRef
30.
Salem DA (1990) Community based services and resources: the significance of choice and diversity. Am J Community Psychol 18: 909–915PubMedCrossRef
31.
Coulter A (2003) The autonomous patient: ending paternalism in medical care. The Nuffield Trust, TSO, London
32.
Hamann J, Leucht S, Kissling W (2003) Shared decision making in psychiatry. Acta Psychiatr Scand 107: 403–409PubMedCrossRef
33.
Freiman MP, Zuvekas SH (2000) Determinants of ambulatory treatment mode for mental illness. Health Econ 9: 423–434PubMedCrossRef
34.
Rokke PD, Tomhave JA, Jocic Z (1999) The role of client choice and target selection in self management therapy for depression in older adults. Psychol Aging 14: 155–169PubMedCrossRef
35.
Ende J, Kazis L, Ash A, et al. (1989) Measuring patients’ desire for autonomy. J Gen Intern Med 4: 23–30PubMed
36.
Degner LF, Sloan JA (1992) Decision making during serious illness; what role do patients really want to play? J Clin Epidemiol 45: 941–950PubMedCrossRef
37.
Bradley JG, Zia MJ, Hamilton N (1996) Patient preferences for control in medical decision making: a scenario-based approach. Fam Med 28: 496–501PubMed
38.
Entwistle VA, Skea ZC, O’Donnell MT (2001) Decisions about treatment: interpretations of two measures of control by women having a hysterectomy. Soc Sci Med 53: 721–732PubMedCrossRef
39.
Hamman J, Cohen R, Leucht S, Busch R, Kissling W (2005) Do patients with schizophrenia wish to be involved in decisions about their medical treatment? Am J Psychiatry 162: 2382–2384CrossRef
40.
Hill SA, Laugharne R (2006) Decision making and information seeking preferences among psychiatric patients. J Ment Health 15: 75–84CrossRef
41.
Rycroft-Malone J, Latter S, Yerrel P, et al. (2001) Consumerism in health care: the case of medication education. J Nurs Manage 9: 221–230CrossRef
42.
Edwards K (2000) Service users and mental health nursing. J Psychiatr Ment Health Nurs 7: 555–565PubMedCrossRef
43.
Dwight-Johnson M, Unutzer J, Sherbourne C, et al. (2001) Can quality improvement programmes for depression in primary care address patient preferences for treatment. Med Care 39: 934–944PubMedCrossRef
44.
Kissen B, Platz A, Su W (1971) Selective factors in treatment choice and outcome in alcoholics. In: Mello N, Mendelson J (eds) Recent advances in studies of alcoholism. US Government Printing Office, Washington, DC, pp 781–802
45.
Devine DA, Fernald PS (1973) Outcomes effects of receiving a preferred, randomly assigned or nonpreferred therapy. J Consult Clin Psychol 41: 104–107PubMedCrossRef
46.
Sterling RC, Gottheil E, Glassman G, Weinstein SP, Serota RD (1997) Patient treatment choice and compliance: data from a substance misuse programme. Am J Addict 6: 168–176PubMedCrossRef
47.
Howard L, Thornicroft G (2006) Patient preference randomised controlled trials in mental health research. Br J Psychiatry 188: 303–304PubMedCrossRef
48.
King M, Nazareth I, Lampe F, Bower P, Chandler M, Morou M, Sibbald B, Lai R (2005) Impact of participant and physician intervention preferences on randomised trials—a systemic review. J Am Med Assoc 293:1089–1099CrossRef
49.
Bedi N, Chilvers C, Churchill R, Dewey M, Duggan C, Fielding K, et al. (2000) Assessing effectiveness of treatment of depression in primary care: partially randomised preference trial. Br J Psychiatry 177: 312–318PubMedCrossRef
50.
Ward E, King M, Lloyd M, Bower P, Sibbald B, Farrelly S, Gabbay M, Tarrier N, Addington-Hall J (2000) Randomised controlled trial of non-directive counselling, cognitive behavioural therapy and usual general practitioner care for patients with depression. I. Clinical effectiveness. Br Med J 321: 1383–1391CrossRef
51.
Manthei RJ, Vitalo RL, Ivey AE (1982) The effect of client choice of therapist on therapy outcome. Community Ment Health J 18: 220–227PubMedCrossRef
52.
53.
Holloway F, Szmukler G (2003) Involuntary psychiatric treatment: capacity should be central to decision making. J Ment Health 12: 443–447CrossRef
54.
Thomas P, Cahill AB (2004) Compulsion and psychiatry—the role of advance statements. Br Med J 329: 122–123CrossRef
55.
McCubbin M, Cohen D (1996) Extremely unbalanced: interest divergence and power disparities between clients and psychiatry. Int J Law Psychiatry 19: 1–25PubMedCrossRef
56.
Fitzsimons S, Fuller R (2002) Empowerment and its implications for clinical practice in mental health: a review. J Ment Health 11: 481–499
57.
Rogers ES, Chamberlin J, Ellison ML, Crean T (1997) A consumer-constructed scale to measure empowerment among users of mental health services. Psychiatr Serv 48: 1042–1047PubMed
58.
Wowra SA, McCarter R (1999) Validation of the empowerment scale with an outpatient mental health population. Psychiatr Serv 50: 959–961PubMed
59.
Corrigan PW, Garman AN (1997) Some considerations for research on consumer empowerment and psychosocial interventions. Psychiatr Serv 48: 347–352PubMed
60.
Corrigan PW, Faber D, Rashid F, Leary M (1999) The construct validity of empowerment among consumers of mental health services. Schizophr Res 38: 77–84PubMedCrossRef
61.
Segal SP, Silverman C, Temkin T (1995) Measuring empowerment in client-run self help agencies. Community Ment Health J 31: 215–227PubMedCrossRef
62.
Foulkes EF (2000) Advocating for persons who are mentally ill: a history of mutual empowerment of patients and profession. Adm Policy Ment Health 27: 353–367CrossRef
63.
Peck E, Gulliver P, Towel D (2002) Information, consultation or control: user involvement in mental health services in England at the turn of the century. J Ment Health 11: 441–451CrossRef
64.
Geller JL, Brown JM, Fisher WH, Grudzinskas A, Manning T (1998) A national survey of “consumer empowerment” at the state level. Psychiatr Serv 49: 498–503PubMed
65.
Diamond B, Parkin G, Morris K, Bettinis J, Bettesworth C (2003) User involvement: substance or spin? J Ment Health 12: 613–626CrossRef
66.
Barker DA, Shergill SS, Higginson I, Orrell M (1996) Patients’ views towards care received from psychiatrists. Br J Psychiatry 168: 641–646PubMedCrossRef
67.
Craig T, Doherty I, Jamieson-Craig R, Boocock A, Attafua G (2004) The consumer-employee as a member of a mental health assertive outreach team. I. Clinical and social outcomes. J Ment Health 13: 59–69CrossRef
68.
Doherty I, Craig T, Attafua G, Boocock A, Jamieson-Craig R (2004) The consumer-employee as a member of a mental health assertive outreach team. II. Impressions of consumer-employees and other team members. J Ment Health 13: 71–81CrossRef
69.
Kumar S (2000) Client empowerment in psychiatry and the professional abuse of clients: where do we stand? Int J Psychiatry Med 30: 61–70PubMedCrossRef
70.
Watts J, Priebe S (2002) A phenomenological account of users’ experiences of assertive community treatment. Bioethics 16: 439–454PubMedCrossRef
71.
McLean A (1995) Empowerment and the psychiatric consumer/ ex-patient movement in the United States: contraindications, crisis and challenges. Soc Sci Med 40: 1053–1071PubMedCrossRef
72.
Williams B, Cattell D, Greenwood M, Lefevre S, Murray I, Thomas P (1999) Exploring person-centredness: user perspectives of a model of social psychiatry. Health Soc Care Community 7: 475–482PubMedCrossRef
73.
Colombo A, Bendelow G, Fulford B, Williams S (2003) Evaluating the influence of implicit models of mental disorder processes of shared decision making within community based multi-disciplinary teams. Soc Sci Med 56: 1557–1570PubMedCrossRef
Metadata
Title
Trust, choice and power in mental health
A literature review
Authors
Richard Laugharne, MRCPsych
Stefan Priebe, MD
Publication date
01-11-2006
Publisher
Steinkopff-Verlag
Published in
Social Psychiatry and Psychiatric Epidemiology / Issue 11/2006
Print ISSN: 0933-7954
Electronic ISSN: 1433-9285
DOI
https://doi.org/10.1007/s00127-006-0123-6

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