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Journal of Cancer Survivorship

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04-11-2021 | Review

Large-scale North American cancer survivorship surveys: 2011–2019 update

Authors: Ahrang Jung, Shelley S. Kay, Jennifer L. Robinson, Bonny Bloodgood Sheppard, Deborah K. Mayer

Published in: Journal of Cancer Survivorship | Issue 6/2022

Abstract

Purpose

There are gaps in our knowledge to provide quality cancer care to the growing numbers of survivors. Leveraging existing data to answer survivorship research questions is one approach to address these gaps. Therefore, the purpose of this paper is to replicate and expand a previous report of existing cancer survivorship survey data.

Methods

We conducted a trifold search strategy for relevant surveys and data sets to (1) determine the extent to which cancer survivors are being surveyed, (2) determine the topics being covered in these surveys, and (3) create a compendium of information about these surveys and data sets, so researchers can conduct additional analyses.

Results

Thirty-five surveys were identified and included in this report; most were longitudinal studies (71%) in adult cancer survivors (91%). The domains addressed in these surveys were general medical characteristics, medical conditions, costs, employment, symptoms and/or side effects, psychosocial factors and coping, perceived quality of care, and health behaviors.

Conclusions

Existing data are available for researchers to explore new knowledge to enhance cancer survivorship quality care. This is an opportunity to fully utilize existing data to answer survivorship questions in a cost effective manner.

Implications for Cancer Survivors

Survivors should be encouraged to participate in research studies as these data can close the gap in our knowledge and care of this growing population.

Available only for authorised users

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Title: Large-scale North American cancer survivorship surveys: 2011–2019 update
Authors: Ahrang Jung
Shelley S. Kay
Jennifer L. Robinson
Bonny Bloodgood Sheppard
Deborah K. Mayer
Publication date: 04-11-2021
Publisher: Springer US
Published in: Journal of Cancer Survivorship / Issue 6/2022
Print ISSN: 1932-2259
Electronic ISSN: 1932-2267
DOI: https://doi.org/10.1007/s11764-021-01111-w

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Abstract

Purpose

Methods

Results

Conclusions

Implications for Cancer Survivors

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