Skip to main content
Top
Published in: Journal of General Internal Medicine 6/2014

01-06-2014 | Original Research

Rapid Growth in Use of Personal Health Records in New York, 2012–2013

Authors: Jessica S. Ancker, MPH, PhD, Michael Silver, MS, Rainu Kaushal, MD, MPH

Published in: Journal of General Internal Medicine | Issue 6/2014

Login to get access

ABSTRACT

BACKGROUND

Giving patients access to their own medical data may help improve communication and engage patients in healthcare. As a result, the federal electronic health record (EHR) incentive program requires providers to offer electronic data sharing with patients via personal health records (PHRs) or other technologies.

OBJECTIVE

We sought to estimate the rate of adoption of PHRs over a 2-year period.

DESIGN

Survey of 800 respondents (margin of error: 3.5 percentage points) in consecutive years of the Empire State Poll, an annual random-digit-dial telephone survey.

PARTICIPANTS

Adult New York State residents.

MAIN MEASURES

Self-reported use of a PHR.

KEY RESULTS

The rate of reported PHR use rose from 11 % in 2012 to 17 % in 2013. The proportion of these PHRs provided by doctors or healthcare organizations also increased sharply (from 50 % in 2012 to 73 % in 2013, p < 0.01) with a corresponding decrease in the proportion provided by insurers.

CONCLUSIONS

The proportion of New York State residents using PHRs increased by more than 50 % (from 11 to 17 %) in advance of a federal incentive program requirement that healthcare organizations with EHRs must share electronic data with patients in order to receive their incentives.
Literature
1.
go back to reference Greene J, Hibbard JH. Why does patient activation matter? An examination of the relationship between patient activation and health-related outcomes. J Gen Intern Med. 2011;27(5):520–526.CrossRefPubMedCentral Greene J, Hibbard JH. Why does patient activation matter? An examination of the relationship between patient activation and health-related outcomes. J Gen Intern Med. 2011;27(5):520–526.CrossRefPubMedCentral
2.
go back to reference Bodenheimer T, Lorig K, Holman H, Grumbach K. Patient self-management of chronic disease in primary care. JAMA. 2002;288(19):2469–2475.PubMedCrossRef Bodenheimer T, Lorig K, Holman H, Grumbach K. Patient self-management of chronic disease in primary care. JAMA. 2002;288(19):2469–2475.PubMedCrossRef
3.
go back to reference Hibbard JH, Mahoney ER, Stock R, Tusler M. Do increases in patient activation result in improved self-management behaviors? Health Serv Res. 2007;42(4):1443–1463.PubMedCrossRefPubMedCentral Hibbard JH, Mahoney ER, Stock R, Tusler M. Do increases in patient activation result in improved self-management behaviors? Health Serv Res. 2007;42(4):1443–1463.PubMedCrossRefPubMedCentral
4.
go back to reference Ricciardi L, Mostashari F, Murphy J, Daniel JG, Siminerio EP. A national action plan to support consumer engagement via e-health. Health Aff. 2013;32(2):376–384.CrossRef Ricciardi L, Mostashari F, Murphy J, Daniel JG, Siminerio EP. A national action plan to support consumer engagement via e-health. Health Aff. 2013;32(2):376–384.CrossRef
6.
go back to reference Kaelber DC, Jha AK, Johnston D, Middleton B, Bates DW. A research agenda for personal health records (PHRs). JAMIA. 2008;15(6):729–736.PubMedPubMedCentral Kaelber DC, Jha AK, Johnston D, Middleton B, Bates DW. A research agenda for personal health records (PHRs). JAMIA. 2008;15(6):729–736.PubMedPubMedCentral
8.
go back to reference Kahn JS, Aulakh V, Bosworth A. What it takes: characteristics of the ideal personal health record. Health Aff. 2009;28(2):369–376.CrossRef Kahn JS, Aulakh V, Bosworth A. What it takes: characteristics of the ideal personal health record. Health Aff. 2009;28(2):369–376.CrossRef
9.
go back to reference Tang PC, Ash JS, Bates DW, Overhage JM, Sands DZ. Personal health records: definitions, benefits, and strategies for overcoming barriers to adoption. JAMIA. 2006;13(2):121–126.PubMedPubMedCentral Tang PC, Ash JS, Bates DW, Overhage JM, Sands DZ. Personal health records: definitions, benefits, and strategies for overcoming barriers to adoption. JAMIA. 2006;13(2):121–126.PubMedPubMedCentral
11.
go back to reference Ammenwerth E, Schnell-Inderst P, Hoerbst A. The impact of electronic patient portals on patient care: a systematic review of controlled trials. J Med Internet Res. 2013;14(6):e162.CrossRef Ammenwerth E, Schnell-Inderst P, Hoerbst A. The impact of electronic patient portals on patient care: a systematic review of controlled trials. J Med Internet Res. 2013;14(6):e162.CrossRef
12.
go back to reference Davis GT, Menon S, Parrish DE, Sittig DF, Singh H. Patient access to medical records and healthcare outcomes: a systematic review. J Am Med Inform Assoc. 2013. doi:10.1136/amiajnl-2013-002239. Davis GT, Menon S, Parrish DE, Sittig DF, Singh H. Patient access to medical records and healthcare outcomes: a systematic review. J Am Med Inform Assoc. 2013. doi:10.​1136/​amiajnl-2013-002239.
13.
go back to reference Zhou YY, Kanter MH, Wang JJ, Garrido T. Improved quality at Kaiser Permanente through email between physicians and patients. Health Aff. 2010;29(7):1370–1375.CrossRef Zhou YY, Kanter MH, Wang JJ, Garrido T. Improved quality at Kaiser Permanente through email between physicians and patients. Health Aff. 2010;29(7):1370–1375.CrossRef
14.
go back to reference Heyworth L, Paquin AM, Clark J, Kamenker V, Stewart M, Martin T, et al. Engaging patients in medication reconciliation via a patient portal following hospital discharge. J Am Med Inform Assoc. 2013;21:e157–e162.PubMedCrossRef Heyworth L, Paquin AM, Clark J, Kamenker V, Stewart M, Martin T, et al. Engaging patients in medication reconciliation via a patient portal following hospital discharge. J Am Med Inform Assoc. 2013;21:e157–e162.PubMedCrossRef
15.
go back to reference Zickuhr K. Who’s Not Online and Why. Washington, DC: Pew Research Center; 2013. Zickuhr K. Who’s Not Online and Why. Washington, DC: Pew Research Center; 2013.
16.
go back to reference Sarkar UK, Andrew J, Liu JY, Adler NE, Nguyen R, Lopez A, Schillinger D. The literacy divide: health literacy and the use of an internet-based patient portal in an integrated health system – results from the Diabetes Study of Northern California (DISTANCE). J Health Commun. 2010;15(S2):183–196.PubMedCrossRefPubMedCentral Sarkar UK, Andrew J, Liu JY, Adler NE, Nguyen R, Lopez A, Schillinger D. The literacy divide: health literacy and the use of an internet-based patient portal in an integrated health system – results from the Diabetes Study of Northern California (DISTANCE). J Health Commun. 2010;15(S2):183–196.PubMedCrossRefPubMedCentral
17.
go back to reference Ancker JS, Barron Y, Rockoff M, Hauser D, Pichardo M, Szcerenczy A, et al. Use of an electronic patient portal among disadvantaged populations. J Gen Intern Med. 2011;26(10):1117–1123.PubMedCrossRefPubMedCentral Ancker JS, Barron Y, Rockoff M, Hauser D, Pichardo M, Szcerenczy A, et al. Use of an electronic patient portal among disadvantaged populations. J Gen Intern Med. 2011;26(10):1117–1123.PubMedCrossRefPubMedCentral
18.
19.
go back to reference Kutner M, Greenberg E, Jin Y, Paulsen C, White S. The Health Literacy of America’s Adults: Results From the 2003 National Assessment of Adult Literacy. Washington, DC: National Center for Health Statistics; 2006. Contract No.: NCES 2006–483. Kutner M, Greenberg E, Jin Y, Paulsen C, White S. The Health Literacy of America’s Adults: Results From the 2003 National Assessment of Adult Literacy. Washington, DC: National Center for Health Statistics; 2006. Contract No.: NCES 2006–483.
20.
go back to reference Britto MT, Jimison HB, Munafo JK, Wissman J, Rogers ML, Hersh WR. Usability testing finds problems for novice users of pediatric portals. JAMIA. 2009;16(5):660–669.PubMedPubMedCentral Britto MT, Jimison HB, Munafo JK, Wissman J, Rogers ML, Hersh WR. Usability testing finds problems for novice users of pediatric portals. JAMIA. 2009;16(5):660–669.PubMedPubMedCentral
21.
go back to reference Hibbard JH, Greene J, Becker ER, Roblin DW, Painter MW, Perez DJ, et al. Racial/ethnic disparities and consumer activation in health: can increasing health care consumers’ self-management skills reduce racial and ethnic disparities in health care? Health Aff. 2008;27(5):1442–1453.CrossRef Hibbard JH, Greene J, Becker ER, Roblin DW, Painter MW, Perez DJ, et al. Racial/ethnic disparities and consumer activation in health: can increasing health care consumers’ self-management skills reduce racial and ethnic disparities in health care? Health Aff. 2008;27(5):1442–1453.CrossRef
22.
go back to reference Lyles CR, Sarkar U, Ralston JD, Adler N, Schillinger D, Moffet HH, et al. Patient–provider communication and trust in relation to use of an online patient portal among diabetes patients: the diabetes and aging study. J Am Med Inform Assoc. 2013;20(6):1128–1131.PubMedCrossRef Lyles CR, Sarkar U, Ralston JD, Adler N, Schillinger D, Moffet HH, et al. Patient–provider communication and trust in relation to use of an online patient portal among diabetes patients: the diabetes and aging study. J Am Med Inform Assoc. 2013;20(6):1128–1131.PubMedCrossRef
23.
go back to reference Wen K-Y, Kreps G, Zhu F, Miller S. Consumers’ perceptions about and use of the Internet for personal health records and health information exchange: analysis of the 2007 Health Information National Trends Survey. J Med Internet Res. 2010;12(4):e73.PubMedCrossRefPubMedCentral Wen K-Y, Kreps G, Zhu F, Miller S. Consumers’ perceptions about and use of the Internet for personal health records and health information exchange: analysis of the 2007 Health Information National Trends Survey. J Med Internet Res. 2010;12(4):e73.PubMedCrossRefPubMedCentral
24.
go back to reference Undem T. Consumers and Health Information Technology: A National Survey. Oakland, CA: California HealthCare Foundation; 2010. Undem T. Consumers and Health Information Technology: A National Survey. Oakland, CA: California HealthCare Foundation; 2010.
25.
go back to reference Blumenthal D, Tavenner M. The “meaningful use” regulation for electronic health records. N Engl J Med. 2010;363:501–504.PubMedCrossRef Blumenthal D, Tavenner M. The “meaningful use” regulation for electronic health records. N Engl J Med. 2010;363:501–504.PubMedCrossRef
26.
go back to reference Marcotte L, Seidman J, Trudel K, Berwick DM, Blumenthal D, Mostashari F, et al. Achieving meaningful use of health information technology: a guide for physicians to the EHR incentive programs. Arch Intern Med. 2012;172(9):731–736.PubMedCrossRef Marcotte L, Seidman J, Trudel K, Berwick DM, Blumenthal D, Mostashari F, et al. Achieving meaningful use of health information technology: a guide for physicians to the EHR incentive programs. Arch Intern Med. 2012;172(9):731–736.PubMedCrossRef
27.
go back to reference DesRoches CM, Charles D, Furukawa MF, Joshi MS, Kralovec P, Mostashari F, et al. Adoption of electronic health records grows rapidly, but fewer than half of US hospitals had at least a basic system in 2012. Health Aff. 2013;32(8):1478–1485.CrossRef DesRoches CM, Charles D, Furukawa MF, Joshi MS, Kralovec P, Mostashari F, et al. Adoption of electronic health records grows rapidly, but fewer than half of US hospitals had at least a basic system in 2012. Health Aff. 2013;32(8):1478–1485.CrossRef
28.
go back to reference Hsiao C-J, Jha AK, King J, Patel V, Furukawa MF, Mostashari F. Office-based physicians are responding to incentives and assistance by adopting and using electronic health records. Health Aff. 2013;32(8):1470–1477.CrossRef Hsiao C-J, Jha AK, King J, Patel V, Furukawa MF, Mostashari F. Office-based physicians are responding to incentives and assistance by adopting and using electronic health records. Health Aff. 2013;32(8):1470–1477.CrossRef
29.
go back to reference Medicare and Medicaid Programs. Electronic Health Record Incentive Program – Stage 2. Vol. 77 Federal Register 171 (4 September 2012), 2012. pp. 54163-54292. Medicare and Medicaid Programs. Electronic Health Record Incentive Program – Stage 2. Vol. 77 Federal Register 171 (4 September 2012), 2012. pp. 54163-54292.
30.
go back to reference Ancker JS, Silver M, Miller MC, Kaushal R. Consumer experience with and attitudes toward health information technology: a nationwide survey. J Am Med Inform Assoc. 2013;20(1):152–156.PubMedCrossRefPubMedCentral Ancker JS, Silver M, Miller MC, Kaushal R. Consumer experience with and attitudes toward health information technology: a nationwide survey. J Am Med Inform Assoc. 2013;20(1):152–156.PubMedCrossRefPubMedCentral
31.
go back to reference Ancker JS, Edwards AM, Miller MC, Kaushal R. Consumer perceptions of electronic health information exchange. Am J Prev Med. 2012;43(1):76–80.PubMedCrossRef Ancker JS, Edwards AM, Miller MC, Kaushal R. Consumer perceptions of electronic health information exchange. Am J Prev Med. 2012;43(1):76–80.PubMedCrossRef
32.
go back to reference O’Rourke D, Blair J. Improving random respondent selection in telephone surveys. J Mark Res. 1983;20:428–432.CrossRef O’Rourke D, Blair J. Improving random respondent selection in telephone surveys. J Mark Res. 1983;20:428–432.CrossRef
33.
go back to reference Sunmin L, Cho E, Grodstein F, Kawachi I, Hu FB, Colditz GA. Effects of marital transitions on changes in dietary and other health behaviours in U.S. women. Int J Epidemiol. 2005;34:69–78. Sunmin L, Cho E, Grodstein F, Kawachi I, Hu FB, Colditz GA. Effects of marital transitions on changes in dietary and other health behaviours in U.S. women. Int J Epidemiol. 2005;34:69–78.
34.
go back to reference Mark TL, Paramore LC. Pneumococcal pneumonia and influenza vaccination: access to and use by Hispanic medicare beneficiaries. Am J Public Health. 1996;86:1545–1550.PubMedCrossRefPubMedCentral Mark TL, Paramore LC. Pneumococcal pneumonia and influenza vaccination: access to and use by Hispanic medicare beneficiaries. Am J Public Health. 1996;86:1545–1550.PubMedCrossRefPubMedCentral
35.
go back to reference Patel VN, Dhopeshwarkar RV, Edward A, Barrón Y, Sparenborg J, Kaushal R. Consumer support for health information exchange and personal health records: a regional health information organization survey. J Med Syst. 2010;36:1043–1052.PubMedCrossRef Patel VN, Dhopeshwarkar RV, Edward A, Barrón Y, Sparenborg J, Kaushal R. Consumer support for health information exchange and personal health records: a regional health information organization survey. J Med Syst. 2010;36:1043–1052.PubMedCrossRef
36.
go back to reference Patel VN, Abramson E, Edwards AM, Cheung MA, Dhopeshwarkar RV, Kaushal R. Consumer attitudes toward personal health records in a Beacon community. Am J Manage Care. 2011;17(4):e104–e120. Patel VN, Abramson E, Edwards AM, Cheung MA, Dhopeshwarkar RV, Kaushal R. Consumer attitudes toward personal health records in a Beacon community. Am J Manage Care. 2011;17(4):e104–e120.
37.
go back to reference Ancker JS, Silver M, Miller MC, Kaushal R. Consumer experience with and attitudes toward health information technology: a national survey. JAMIA. 2012;20:152–156.PubMed Ancker JS, Silver M, Miller MC, Kaushal R. Consumer experience with and attitudes toward health information technology: a national survey. JAMIA. 2012;20:152–156.PubMed
38.
go back to reference Roblin DW, Houston TK, Allison JJ, Joski PJ, Becker ER. Disparities in use of a personal health record in a managed care organization. JAMIA. 2009;16(5):683–689.PubMedPubMedCentral Roblin DW, Houston TK, Allison JJ, Joski PJ, Becker ER. Disparities in use of a personal health record in a managed care organization. JAMIA. 2009;16(5):683–689.PubMedPubMedCentral
39.
go back to reference Duggan M, Smith A. Cell Internet Use. Washington, DC: Pew Research Center; 2013:2013. Duggan M, Smith A. Cell Internet Use. Washington, DC: Pew Research Center; 2013:2013.
Metadata
Title
Rapid Growth in Use of Personal Health Records in New York, 2012–2013
Authors
Jessica S. Ancker, MPH, PhD
Michael Silver, MS
Rainu Kaushal, MD, MPH
Publication date
01-06-2014
Publisher
Springer US
Published in
Journal of General Internal Medicine / Issue 6/2014
Print ISSN: 0884-8734
Electronic ISSN: 1525-1497
DOI
https://doi.org/10.1007/s11606-014-2792-2

Other articles of this Issue 6/2014

Journal of General Internal Medicine 6/2014 Go to the issue
Live Webinar | 27-06-2024 | 18:00 (CEST)

Keynote webinar | Spotlight on medication adherence

Live: Thursday 27th June 2024, 18:00-19:30 (CEST)

WHO estimates that half of all patients worldwide are non-adherent to their prescribed medication. The consequences of poor adherence can be catastrophic, on both the individual and population level.

Join our expert panel to discover why you need to understand the drivers of non-adherence in your patients, and how you can optimize medication adherence in your clinics to drastically improve patient outcomes.

Prof. Kevin Dolgin
Prof. Florian Limbourg
Prof. Anoop Chauhan
Developed by: Springer Medicine
Obesity Clinical Trial Summary

At a glance: The STEP trials

A round-up of the STEP phase 3 clinical trials evaluating semaglutide for weight loss in people with overweight or obesity.

Developed by: Springer Medicine

Highlights from the ACC 2024 Congress

Year in Review: Pediatric cardiology

Watch Dr. Anne Marie Valente present the last year's highlights in pediatric and congenital heart disease in the official ACC.24 Year in Review session.

Year in Review: Pulmonary vascular disease

The last year's highlights in pulmonary vascular disease are presented by Dr. Jane Leopold in this official video from ACC.24.

Year in Review: Valvular heart disease

Watch Prof. William Zoghbi present the last year's highlights in valvular heart disease from the official ACC.24 Year in Review session.

Year in Review: Heart failure and cardiomyopathies

Watch this official video from ACC.24. Dr. Biykem Bozkurt discusses last year's major advances in heart failure and cardiomyopathies.