Skip to main content
Top
Published in: Journal of General Internal Medicine 4/2022

01-03-2022 | Research and Reporting Methods

Lessons Learned: Recruiting Research Participants from an Underrepresented Patient Population at a Safety Net Hospital

Authors: Mike Wambua, Miamoua Vang, Crystal Audi, Mark Linzer, David T. Eton

Published in: Journal of General Internal Medicine | Issue 4/2022

Login to get access

Abstract

Background

Recruiting participants to clinical research studies is challenging, especially when conducted in safety net settings. We sought to compare the efficacy of different recruitment strategies in an NIH-funded study assessing treatment burden in patients with multiple chronic conditions (MCCs).

Methods

Targeted mailing, in-person table-based recruitment (“tabling”) in the waiting room, and telephone calling were used to enroll subjects into one of two studies of treatment burden: a survey study to validate a brief measure of treatment burden for quality assessment (study 1) or a qualitative study to develop a treatment burden clinical communication tool (study 2).

Results

Over 50% of subjects in each study were African American or African immigrants. In study 1, the enrollment goal of 200 was reached within 4 months. Tabling enrolled 78.5% of patients, while the remainder (21.5%) were enrolled from phone calls to eligible patients identified through the electronic medical record (EMR). In study 2, 340 eligible patients were identified through the EMR, and 7 (2.1%) were successfully enrolled via mailed invitations and responses. Retention rates (66% in study 1 and 71% in study 2) were reasonable in all groups.

Conclusions

Study recruiting goals in our safety net population were rapidly reached using the tabling method, which had substantively higher enrollment rates than mailings or telephone calls based on EMR reports. Future trials could compare recruitment strategies across settings and clinical populations.
Literature
9.
go back to reference Grundmeier RW, Swietlik M, Bell LM. Research subject enrollment by primary care pediatricians using an electronic health record. AMIA Annu Symp Proc AMIA Symp. Published online October 11, 2007:289–293. Grundmeier RW, Swietlik M, Bell LM. Research subject enrollment by primary care pediatricians using an electronic health record. AMIA Annu Symp Proc AMIA Symp. Published online October 11, 2007:289–293.
16.
go back to reference JL Ridgeway, TJ Beebe, CG Chute, DT Eton, LA Hart et al. A brief patient-reported outcomes quality of life (PROQOL) instrument to improve patient care. PLoS Med. 2013;10(11): e1001548. JL Ridgeway, TJ Beebe, CG Chute, DT Eton, LA Hart et al. A brief patient-reported outcomes quality of life (PROQOL) instrument to improve patient care. PLoS Med. 2013;10(11): e1001548.
17.
go back to reference Eton DT, Ridgeway JL, Egginton JS, Tiedje K, Linzer M, Boehm DH, Poplau S, Ramalho de Oliveira D, Odell L, Montori VM, May CR, & Anderson RT (2015). Finalizing a measurement framework for the burden of treatment in complex patients with chronic conditions. Patient Related Outcome Measures, 6:117-126CrossRef Eton DT, Ridgeway JL, Egginton JS, Tiedje K, Linzer M, Boehm DH, Poplau S, Ramalho de Oliveira D, Odell L, Montori VM, May CR, & Anderson RT (2015). Finalizing a measurement framework for the burden of treatment in complex patients with chronic conditions. Patient Related Outcome Measures, 6:117-126CrossRef
18.
go back to reference Brod M, Tesler LE, Christensen TL. Qualitative research and content validity: Developing best practices based on science and experience. Qual Life Res. 2009;18(9):1263–1278.CrossRef Brod M, Tesler LE, Christensen TL. Qualitative research and content validity: Developing best practices based on science and experience. Qual Life Res. 2009;18(9):1263–1278.CrossRef
Metadata
Title
Lessons Learned: Recruiting Research Participants from an Underrepresented Patient Population at a Safety Net Hospital
Authors
Mike Wambua
Miamoua Vang
Crystal Audi
Mark Linzer
David T. Eton
Publication date
01-03-2022
Publisher
Springer International Publishing
Published in
Journal of General Internal Medicine / Issue 4/2022
Print ISSN: 0884-8734
Electronic ISSN: 1525-1497
DOI
https://doi.org/10.1007/s11606-021-07258-7

Other articles of this Issue 4/2022

Journal of General Internal Medicine 4/2022 Go to the issue
Live Webinar | 27-06-2024 | 18:00 (CEST)

Keynote webinar | Spotlight on medication adherence

Live: Thursday 27th June 2024, 18:00-19:30 (CEST)

WHO estimates that half of all patients worldwide are non-adherent to their prescribed medication. The consequences of poor adherence can be catastrophic, on both the individual and population level.

Join our expert panel to discover why you need to understand the drivers of non-adherence in your patients, and how you can optimize medication adherence in your clinics to drastically improve patient outcomes.

Prof. Kevin Dolgin
Prof. Florian Limbourg
Prof. Anoop Chauhan
Developed by: Springer Medicine
Obesity Clinical Trial Summary

At a glance: The STEP trials

A round-up of the STEP phase 3 clinical trials evaluating semaglutide for weight loss in people with overweight or obesity.

Developed by: Springer Medicine

Highlights from the ACC 2024 Congress

Year in Review: Pediatric cardiology

Watch Dr. Anne Marie Valente present the last year's highlights in pediatric and congenital heart disease in the official ACC.24 Year in Review session.

Year in Review: Pulmonary vascular disease

The last year's highlights in pulmonary vascular disease are presented by Dr. Jane Leopold in this official video from ACC.24.

Year in Review: Valvular heart disease

Watch Prof. William Zoghbi present the last year's highlights in valvular heart disease from the official ACC.24 Year in Review session.

Year in Review: Heart failure and cardiomyopathies

Watch this official video from ACC.24. Dr. Biykem Bozkurt discusses last year's major advances in heart failure and cardiomyopathies.