Published in:
Open Access
01-07-2012 | Poster presentation
Improving transition readiness and quality of life (QOL) with a pediatric lupus health passport
Authors:
Emily Von Scheven, Lori B Tucker, Lakshmi N Moorthy, Erica F Lawson, Carolyn Neville, Deborah DaCosta, Paul R Fortin
Published in:
Pediatric Rheumatology
|
Special Issue 1/2012
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Excerpt
Childhood onset Lupus (cSLE) is a chronic condition that usually requires life-long care, and optimizing self-management skills for youth with cSLE may improve health outcomes. This project aims to evaluate the impact of an educational intervention with a pediatric SLE-specific health passport (pLHP) for transitioning youth with cSLE. …