Skip to main content
Top
Published in: BMC Health Services Research 1/2024

Open Access 01-12-2024 | Human Immunodeficiency Virus | Research

A mixed methods evaluation assessing the feasibility of implementing a PrEP data dashboard in the Southeastern United States

Authors: Kaylee Burgan, C. Greer McCollum, Alfredo Guzman, Brooke Penney, Samantha V. Hill, Kachina Kudroff, Shey Thorn, Toya Burton, Kelly Turner, Michael J. Mugavero, Aadia Rana, Latesha Elopre

Published in: BMC Health Services Research | Issue 1/2024

Login to get access

Abstract

Background

Alabama is one of seven priority states for the National Ending the HIV Epidemic Initiative due to a disproportionate burden of rural infections. To reverse growing infection rates, the state must increase its focus on prevention efforts, including novel strategies. One such approach is to utilize dashboards that visualize real-time data on the pre-exposure prophylaxis (PrEP) care continuum to assist in prioritizing evidence-based preventative care for those most vulnerable for HIV infection.

Methods

We conducted a mixed methods evaluation to ascertain stakeholders’ perceptions on the acceptability, feasibility, appropriateness, and usability of a PrEP care continuum dashboard, as well as gain insight on ways to improve the activities necessary to sustain it. Clinicians, administrators, and data personnel from participating sites in Alabama completed surveys (n = 9) and participated in key informant interviews (n = 10) to better understand their experiences with the prototype data dashboard and to share feedback on how it can be modified to best fit their needs.

Results

Surveys and interviews revealed that all participants find the pilot data dashboard to be an acceptable, feasible, and appropriate intervention for clinic use. Overall, stakeholders find the pilot dashboard to be usable and helpful in administrative efforts, such as report and grant writing; however, additional refining is needed in order to reduce burden and optimize usefulness. Participants voiced concerns about their site’s abilities to sustain the dashboard, including the lack of systematized PrEP protocols and limited funds and staff time dedicated to PrEP data collection, cleaning, and upload.

Conclusion

Study participants from clinics providing HIV prevention services, including PrEP, in Alabama voiced interest in sustaining and refining a data dashboard that tracks clients across the PrEP care continuum. Despite viewing the platform itself as an acceptable, feasible, and appropriate intervention, participants agreed that efforts need to be focused on standardizing PrEP data collection protocols in order to ensure consistent, accurate data capture and that limited funds and staff time are barriers to the sustained implementation of the dashboard in practice.
Appendix
Available only for authorised users
Literature
1.
go back to reference Mishra S, Silhol R, Knight J, Phaswana-Mafuya R, Diouf D, Wang L, et al. Estimating the epidemic consequences of HIV prevention gaps among key populations. J Int AIDS Soc. 2021;24(Suppl 3):e25739.CrossRefPubMedPubMedCentral Mishra S, Silhol R, Knight J, Phaswana-Mafuya R, Diouf D, Wang L, et al. Estimating the epidemic consequences of HIV prevention gaps among key populations. J Int AIDS Soc. 2021;24(Suppl 3):e25739.CrossRefPubMedPubMedCentral
2.
go back to reference Beyrer C, Adimora AA, Hodder SL, Hopkins E, Millett G, Mon SHH, et al. Call to action: how can the US ending the HIV Epidemic initiative succeed? Lancet. 2021;397:1151–6.CrossRefPubMedPubMedCentral Beyrer C, Adimora AA, Hodder SL, Hopkins E, Millett G, Mon SHH, et al. Call to action: how can the US ending the HIV Epidemic initiative succeed? Lancet. 2021;397:1151–6.CrossRefPubMedPubMedCentral
3.
go back to reference Sullivan PS, Woodyatt C, Koski C, Pembleton E, McGuinness P, Taussig J, et al. A Data visualization and dissemination resource to support HIV Prevention and Care at the local level: analysis and uses of the AIDSVu Public Data Resource. J Med Internet Res. 2020;22:e23173.CrossRefPubMedPubMedCentral Sullivan PS, Woodyatt C, Koski C, Pembleton E, McGuinness P, Taussig J, et al. A Data visualization and dissemination resource to support HIV Prevention and Care at the local level: analysis and uses of the AIDSVu Public Data Resource. J Med Internet Res. 2020;22:e23173.CrossRefPubMedPubMedCentral
4.
go back to reference Randell R, Alvarado N, McVey L, Ruddle RA, Doherty P, Gale C et al. Requirements for a quality dashboard: Lessons from National Clinical Audits. AMIA Annu Symp Proc. 2019; 2019:735 – 44. Randell R, Alvarado N, McVey L, Ruddle RA, Doherty P, Gale C et al. Requirements for a quality dashboard: Lessons from National Clinical Audits. AMIA Annu Symp Proc. 2019; 2019:735 – 44.
5.
go back to reference Dowding D, Randell R, Gardner P, Fitzpatrick G, Dykes P, Favela J, et al. Dashboards for improving patient care: review of the literature. Int J Med Inform. 2015;84:87–100.CrossRefPubMed Dowding D, Randell R, Gardner P, Fitzpatrick G, Dykes P, Favela J, et al. Dashboards for improving patient care: review of the literature. Int J Med Inform. 2015;84:87–100.CrossRefPubMed
6.
go back to reference Bollaerts K, De Smedt T, Donegan K, Titievsky L, Bauchau V. Benefit-risk monitoring of vaccines using an interactive dashboard: a methodological proposal from the ADVANCE Project. Drug Saf. 2018;41:775–86.CrossRefPubMedPubMedCentral Bollaerts K, De Smedt T, Donegan K, Titievsky L, Bauchau V. Benefit-risk monitoring of vaccines using an interactive dashboard: a methodological proposal from the ADVANCE Project. Drug Saf. 2018;41:775–86.CrossRefPubMedPubMedCentral
7.
go back to reference Buttigieg SC, Pace A, Rathert C. Hospital performance dashboards: a literature review. J Health Organ Manag. 2017;31:385–406.CrossRefPubMed Buttigieg SC, Pace A, Rathert C. Hospital performance dashboards: a literature review. J Health Organ Manag. 2017;31:385–406.CrossRefPubMed
8.
go back to reference Wu E, Villani J, Davis A, Fareed N, Harris DR, Huerta TR, et al. Community dashboards to support data-informed decision-making in the HEALing communities study. Drug Alcohol Depend. 2020;217:108331.CrossRefPubMedPubMedCentral Wu E, Villani J, Davis A, Fareed N, Harris DR, Huerta TR, et al. Community dashboards to support data-informed decision-making in the HEALing communities study. Drug Alcohol Depend. 2020;217:108331.CrossRefPubMedPubMedCentral
9.
go back to reference Egan M. Clinical dashboards: impact on workflow, care quality, and patient safety. Crit Care Nurs Q. 2006;29:354–61.CrossRefPubMed Egan M. Clinical dashboards: impact on workflow, care quality, and patient safety. Crit Care Nurs Q. 2006;29:354–61.CrossRefPubMed
10.
go back to reference Braunstein SL, Coeytaux K, Sabharwal CJ, Xia Q, Robbins RS, Obeng B, et al. New York City HIV Care Continuum dashboards: using Surveillance Data to improve HIV Care among people living with HIV in New York City. JMIR Public Health Surveill. 2019;5:e13086.CrossRefPubMedPubMedCentral Braunstein SL, Coeytaux K, Sabharwal CJ, Xia Q, Robbins RS, Obeng B, et al. New York City HIV Care Continuum dashboards: using Surveillance Data to improve HIV Care among people living with HIV in New York City. JMIR Public Health Surveill. 2019;5:e13086.CrossRefPubMedPubMedCentral
11.
go back to reference Joshi A, Amadi C, Katz B, Kulkarni S, Nash D. A human-centered platform for HIV Infection reduction in New York: development and usage analysis of the ending the epidemic (ETE) dashboard. JMIR Public Health Surveill. 2017;3:e95.CrossRefPubMedPubMedCentral Joshi A, Amadi C, Katz B, Kulkarni S, Nash D. A human-centered platform for HIV Infection reduction in New York: development and usage analysis of the ending the epidemic (ETE) dashboard. JMIR Public Health Surveill. 2017;3:e95.CrossRefPubMedPubMedCentral
12.
go back to reference Barbazza E, Ivankovic D. What makes COVID-19 dashboards actionable? Lessons learned from international and country-specific studies of COVID-19 dashboards and with dashboard developers in the WHO European Region. Eur J Pub Health. 2021; 31. Barbazza E, Ivankovic D. What makes COVID-19 dashboards actionable? Lessons learned from international and country-specific studies of COVID-19 dashboards and with dashboard developers in the WHO European Region. Eur J Pub Health. 2021; 31.
13.
go back to reference Ivankovic D, Barbazza E, Bos V, Brito Fernandes O, Jamieson Gilmore K, Jansen T, et al. Features constituting Actionable COVID-19 dashboards: descriptive Assessment and Expert Appraisal of 158 public web-based COVID-19 dashboards. J Med Internet Res. 2021;23:e25682.CrossRefPubMedPubMedCentral Ivankovic D, Barbazza E, Bos V, Brito Fernandes O, Jamieson Gilmore K, Jansen T, et al. Features constituting Actionable COVID-19 dashboards: descriptive Assessment and Expert Appraisal of 158 public web-based COVID-19 dashboards. J Med Internet Res. 2021;23:e25682.CrossRefPubMedPubMedCentral
14.
go back to reference van Elten HJ, Sulz S, van Raaij EM, Wehrens R. Big Data Health Care innovations: performance dashboarding as a process of collective sensemaking. J Med Internet Res. 2022;24:e30201.CrossRefPubMedPubMedCentral van Elten HJ, Sulz S, van Raaij EM, Wehrens R. Big Data Health Care innovations: performance dashboarding as a process of collective sensemaking. J Med Internet Res. 2022;24:e30201.CrossRefPubMedPubMedCentral
15.
16.
go back to reference Alvarenga MOP, Dias JMM, Lima B, Gomes ASL, Monteiro GQM. The implementation of portable air-cleaning technologies in healthcare settings - a scoping review. J Hosp Infect. 2023;132:93–103.CrossRefPubMed Alvarenga MOP, Dias JMM, Lima B, Gomes ASL, Monteiro GQM. The implementation of portable air-cleaning technologies in healthcare settings - a scoping review. J Hosp Infect. 2023;132:93–103.CrossRefPubMed
17.
go back to reference Schoville RR, Titler MG. Guiding healthcare technology implementation: a new integrated technology implementation model. Comput Inf Nurs. 2015;33:99–107. quiz E1.CrossRef Schoville RR, Titler MG. Guiding healthcare technology implementation: a new integrated technology implementation model. Comput Inf Nurs. 2015;33:99–107. quiz E1.CrossRef
18.
go back to reference Struik MH, Koster F, Schuit AJ, Nugteren R, Veldwijk J, Lambooij MS. The preferences of users of electronic medical records in hospitals: quantifying the relative importance of barriers and facilitators of an innovation. Implement Sci. 2014;9:69.CrossRefPubMedPubMedCentral Struik MH, Koster F, Schuit AJ, Nugteren R, Veldwijk J, Lambooij MS. The preferences of users of electronic medical records in hospitals: quantifying the relative importance of barriers and facilitators of an innovation. Implement Sci. 2014;9:69.CrossRefPubMedPubMedCentral
19.
go back to reference Zandieh SO, Yoon-Flannery K, Kuperman GJ, Langsam DJ, Hyman D, Kaushal R. Challenges to EHR implementation in electronic- versus paper-based office practices. J Gen Intern Med. 2008;23:755–61.CrossRefPubMedPubMedCentral Zandieh SO, Yoon-Flannery K, Kuperman GJ, Langsam DJ, Hyman D, Kaushal R. Challenges to EHR implementation in electronic- versus paper-based office practices. J Gen Intern Med. 2008;23:755–61.CrossRefPubMedPubMedCentral
21.
go back to reference Adler-Milstein J, Holmgren AJ, Kralovec P, Worzala C, Searcy T, Patel V. Electronic health record adoption in US hospitals: the emergence of a digital advanced use divide. J Am Med Inform Assoc. 2017;24:1142–8.CrossRefPubMedPubMedCentral Adler-Milstein J, Holmgren AJ, Kralovec P, Worzala C, Searcy T, Patel V. Electronic health record adoption in US hospitals: the emergence of a digital advanced use divide. J Am Med Inform Assoc. 2017;24:1142–8.CrossRefPubMedPubMedCentral
22.
go back to reference Public Health Service Act, 42. Title XXVI HIV Health Care Services Program U.S.C. §§ 2601–2695. (2015). Public Health Service Act, 42. Title XXVI HIV Health Care Services Program U.S.C. §§ 2601–2695. (2015).
23.
go back to reference Creger T, Burgan K, Turner WH, Tarrant A, Parmar J, Rana A, et al. Using implementation mapping to ensure the success of PrEP optimization through enhanced Continuum Tracking (PrOTECT) AL-A Structural intervention to Track the Statewide PrEP Care Continuum in Alabama. J Acquir Immune Defic Syndr. 2022;90:161–S6.CrossRef Creger T, Burgan K, Turner WH, Tarrant A, Parmar J, Rana A, et al. Using implementation mapping to ensure the success of PrEP optimization through enhanced Continuum Tracking (PrOTECT) AL-A Structural intervention to Track the Statewide PrEP Care Continuum in Alabama. J Acquir Immune Defic Syndr. 2022;90:161–S6.CrossRef
26.
go back to reference Weiner BJ, Lewis CC, Stanick C, Powell BJ, Dorsey CN, Clary AS, et al. Psychometric assessment of three newly developed implementation outcome measures. Implement Sci. 2017;12:108.CrossRefPubMedPubMedCentral Weiner BJ, Lewis CC, Stanick C, Powell BJ, Dorsey CN, Clary AS, et al. Psychometric assessment of three newly developed implementation outcome measures. Implement Sci. 2017;12:108.CrossRefPubMedPubMedCentral
27.
go back to reference Proctor E, Silmere H, Raghavan R, Hovmand P, Aarons G, Bunger A, et al. Outcomes for implementation research: conceptual distinctions, measurement challenges, and research agenda. Adm Policy Ment Health. 2011;38:65–76.CrossRefPubMed Proctor E, Silmere H, Raghavan R, Hovmand P, Aarons G, Bunger A, et al. Outcomes for implementation research: conceptual distinctions, measurement challenges, and research agenda. Adm Policy Ment Health. 2011;38:65–76.CrossRefPubMed
28.
go back to reference Brooke J. SUS: a quick and dirty usability scale. Usability Eval Ind. 1995; 189. Brooke J. SUS: a quick and dirty usability scale. Usability Eval Ind. 1995; 189.
29.
go back to reference Sekhon M, Cartwright M, Francis JJ. Acceptability of healthcare interventions: an overview of reviews and development of a theoretical framework. BMC Health Serv Res. 2017;17:88.CrossRefPubMedPubMedCentral Sekhon M, Cartwright M, Francis JJ. Acceptability of healthcare interventions: an overview of reviews and development of a theoretical framework. BMC Health Serv Res. 2017;17:88.CrossRefPubMedPubMedCentral
30.
go back to reference Grant R. Data visualization: charts, maps, and interactive graphics. Boca Raton: CRC Press, Taylor & Francis Group; 2019. Grant R. Data visualization: charts, maps, and interactive graphics. Boca Raton: CRC Press, Taylor & Francis Group; 2019.
31.
go back to reference Sosulski K. Data visualization made simple: insigts into becoming visual. New York, New York: Routledge; 2019. Sosulski K. Data visualization made simple: insigts into becoming visual. New York, New York: Routledge; 2019.
32.
go back to reference Marshall BDL, Yedinak JL, Goyer J, Green TC, Koziol JA, Alexander-Scott N. Development of a Statewide, publicly accessible Drug Overdose surveillance and information system. Am J Public Health. 2017;107:1760–3.CrossRefPubMedPubMedCentral Marshall BDL, Yedinak JL, Goyer J, Green TC, Koziol JA, Alexander-Scott N. Development of a Statewide, publicly accessible Drug Overdose surveillance and information system. Am J Public Health. 2017;107:1760–3.CrossRefPubMedPubMedCentral
33.
go back to reference Waye KM, Yedinak JL, Koziol J, Marshall BDL. Action-focused, plain language communication for Overdose prevention: a qualitative analysis of Rhode Island’s Overdose surveillance and information dashboard. Int J Drug Policy. 2018;62:86–93.CrossRefPubMed Waye KM, Yedinak JL, Koziol J, Marshall BDL. Action-focused, plain language communication for Overdose prevention: a qualitative analysis of Rhode Island’s Overdose surveillance and information dashboard. Int J Drug Policy. 2018;62:86–93.CrossRefPubMed
34.
go back to reference Ghazisaeidi M, Safdari R, Torabi M, Mirzaee M, Farzi J, Goodini A. Development of performance dashboards in Healthcare Sector: key practical issues. Acta Inf Med. 2015;23:317–21.CrossRef Ghazisaeidi M, Safdari R, Torabi M, Mirzaee M, Farzi J, Goodini A. Development of performance dashboards in Healthcare Sector: key practical issues. Acta Inf Med. 2015;23:317–21.CrossRef
35.
go back to reference van Deen WK, Cho ES, Pustolski K, Wixon D, Lamb S, Valente TW, et al. Involving end-users in the design of an audit and feedback intervention in the emergency department setting - a mixed methods study. BMC Health Serv Res. 2019;19:270.CrossRefPubMedPubMedCentral van Deen WK, Cho ES, Pustolski K, Wixon D, Lamb S, Valente TW, et al. Involving end-users in the design of an audit and feedback intervention in the emergency department setting - a mixed methods study. BMC Health Serv Res. 2019;19:270.CrossRefPubMedPubMedCentral
36.
go back to reference Arikan F, Kara H, Erdogan E, Ulker F. Barriers to Adoption of Electronic Health Record Systems from the perspective of nurses: a cross-sectional study. Comput Inf Nurs. 2021;40:236–43. Arikan F, Kara H, Erdogan E, Ulker F. Barriers to Adoption of Electronic Health Record Systems from the perspective of nurses: a cross-sectional study. Comput Inf Nurs. 2021;40:236–43.
37.
go back to reference Kruse CS, Kristof C, Jones B, Mitchell E, Martinez A. Barriers to Electronic Health Record Adoption: a systematic literature review. J Med Syst. 2016;40:252.CrossRefPubMedPubMedCentral Kruse CS, Kristof C, Jones B, Mitchell E, Martinez A. Barriers to Electronic Health Record Adoption: a systematic literature review. J Med Syst. 2016;40:252.CrossRefPubMedPubMedCentral
38.
go back to reference Assefa Y, Gilks CF. Ending the epidemic of HIV/AIDS by 2030: will there be an endgame to HIV, or an endemic HIV requiring an integrated health systems response in many countries? Int J Infect Dis. 2020;100:273–7.CrossRefPubMed Assefa Y, Gilks CF. Ending the epidemic of HIV/AIDS by 2030: will there be an endgame to HIV, or an endemic HIV requiring an integrated health systems response in many countries? Int J Infect Dis. 2020;100:273–7.CrossRefPubMed
Metadata
Title
A mixed methods evaluation assessing the feasibility of implementing a PrEP data dashboard in the Southeastern United States
Authors
Kaylee Burgan
C. Greer McCollum
Alfredo Guzman
Brooke Penney
Samantha V. Hill
Kachina Kudroff
Shey Thorn
Toya Burton
Kelly Turner
Michael J. Mugavero
Aadia Rana
Latesha Elopre
Publication date
01-12-2024
Publisher
BioMed Central
Published in
BMC Health Services Research / Issue 1/2024
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/s12913-023-10451-5

Other articles of this Issue 1/2024

BMC Health Services Research 1/2024 Go to the issue