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Published in: BMC Health Services Research 1/2015

Open Access 01-06-2015 | Research article

Health professional perspectives on systems failures in transitional care for patients with dementia and their carers: a qualitative descriptive study

Authors: Ashley Kable, Lynnette Chenoweth, Dimity Pond, Carolyn Hullick

Published in: BMC Health Services Research | Issue 1/2015

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Abstract

Background

Healthcare professionals engage in discharge planning of people with dementia during hospitalisation, however plans for transitioning the person into community services can be patchy and ineffective. The aim of this study was to report acute, community and residential care health professionals’ (HP) perspectives on the discharge process and transitional care arrangements for people with dementia and their carers.

Methods

A qualitative descriptive study design and purposive sampling was used to recruit HPs from four groups: Nurses and allied health practitioners involved in discharge planning in the acute setting, junior medical officers in acute care, general practitioners (GPs) and Residential Aged Care Facility (RACF) staff in a regional area in NSW, Australia. Focus group discussions were conducted using a semi-structured schedule. Content analysis was used to understand the discharge process and transitional care arrangements for people with dementia (PWD) and their carers.

Results

There were 33 participants in four focus groups, who described discharge planning and transitional care as a complex process with multiple contributors and components.
Two main themes with belonging sub-themes derived from the analysis were:
Barriers to effective discharge planning for PWD and their carers - the acute care perspective: managing PWD in the acute care setting, demand for post discharge services exceeds availability of services, pressure to discharge patients and incomplete discharge documentation.
Transitional care process failures and associated outcomes for PWD – the community HP perspective: failures in delivery of services to PWD; inadequate discharge notification and negative patient outcomes; discharge-related adverse events, readmission and carer stress; and issues with medication discharge orders and outcomes for PWD.

Conclusions

Although acute care HPs do engage in required discharge planning for people with dementia, participants identified critical issues: pressure on acute care health professionals to discharge PWD early, the requirement for JMOs to complete discharge summaries, the demand for post discharge services for PWD exceeding supply, the need to modify post discharge medication prescriptions for PWD, the need for improved coordination with RACF, and the need for routine provision of medication dose decision aids and home medicine reviews post discharge for PWD and their carers.
Literature
1.
go back to reference Chenoweth L, Kable A, Pond D. Research in hospital discharge procedures addresses gaps in care continuity in the community, but leaves gaping holes for people with dementia - a review of the literature. Australas J Ageing. 2015;34(1):9–14.CrossRefPubMed Chenoweth L, Kable A, Pond D. Research in hospital discharge procedures addresses gaps in care continuity in the community, but leaves gaping holes for people with dementia - a review of the literature. Australas J Ageing. 2015;34(1):9–14.CrossRefPubMed
2.
go back to reference Grealish L, Jamieson M, Brown J, Draper B, Moore B, Proctor M, et al. The interaction between Hospital and Community-based Services for People with Dementia and their Carers. Sydney, NSW: Alzheimer's Australia NSW; 2013. Grealish L, Jamieson M, Brown J, Draper B, Moore B, Proctor M, et al. The interaction between Hospital and Community-based Services for People with Dementia and their Carers. Sydney, NSW: Alzheimer's Australia NSW; 2013.
3.
go back to reference Kable A, Pond D. Discharge Planning and Continuity of Care. In: Critical Conversations for Patient Safety. Australia: Pearson Australia; 2014. p. 84–91. Kable A, Pond D. Discharge Planning and Continuity of Care. In: Critical Conversations for Patient Safety. Australia: Pearson Australia; 2014. p. 84–91.
6.
go back to reference Australian Institute of Health and Welfare. Australian Hospital Statistics 2011–2012. Emergency department care. In: Government A, editor. Health Services Series No 45. Cat No HSE 126. Canberra: AIHW; 2013. Australian Institute of Health and Welfare. Australian Hospital Statistics 2011–2012. Emergency department care. In: Government A, editor. Health Services Series No 45. Cat No HSE 126. Canberra: AIHW; 2013.
7.
go back to reference Ministers Dementia Advisory Group. Dementia in Acute Care Forum Report. Canberra: Ministers Dementia Advisory Group; 2012. Ministers Dementia Advisory Group. Dementia in Acute Care Forum Report. Canberra: Ministers Dementia Advisory Group; 2012.
8.
go back to reference Australian Institute of Health and Welfare: Dementia care in hospitals: costs and strategies. In. Edited by Government A, vol. Cat. no. AGE 72. Canberra AIHW; 2013. Australian Institute of Health and Welfare: Dementia care in hospitals: costs and strategies. In. Edited by Government A, vol. Cat. no. AGE 72. Canberra AIHW; 2013.
9.
go back to reference Cummings E, Showell C, Roehrer E, Churchill B, Turner B, Yee K, Wong M, Turner P: A Structured Evidence-Based Literature Review on Discharge, Referral and Admission. University of Tasmania, Australia: Australian Commission on Safety and Quality in Health Care and NSW Health; 2010. Cummings E, Showell C, Roehrer E, Churchill B, Turner B, Yee K, Wong M, Turner P: A Structured Evidence-Based Literature Review on Discharge, Referral and Admission. University of Tasmania, Australia: Australian Commission on Safety and Quality in Health Care and NSW Health; 2010.
11.
go back to reference Kable A, Gibberd R, Spigelman A. Adverse events in surgical patients in Australia. Int J Qual Health Care. 2002;14(4):269–76.CrossRefPubMed Kable A, Gibberd R, Spigelman A. Adverse events in surgical patients in Australia. Int J Qual Health Care. 2002;14(4):269–76.CrossRefPubMed
12.
go back to reference Kripalani S, LeFevre F, Phillips C, Williams M, Basaviah P, Baker D. Deficits in Communication and Information Transfer Between Hospital-Based and Primary Care Physicians. J Am Med Assoc. 2007;297(8):831–41.CrossRef Kripalani S, LeFevre F, Phillips C, Williams M, Basaviah P, Baker D. Deficits in Communication and Information Transfer Between Hospital-Based and Primary Care Physicians. J Am Med Assoc. 2007;297(8):831–41.CrossRef
13.
go back to reference Groene RO, Orrego C, Suñol R, Barach P, Groene O. "Its like two worlds apart": an analysis of vulnerable patient handover practices at discharge from hospital. BMJ Qual Saf. 2012;21 Suppl 1:i67–75.CrossRefPubMedPubMedCentral Groene RO, Orrego C, Suñol R, Barach P, Groene O. "Its like two worlds apart": an analysis of vulnerable patient handover practices at discharge from hospital. BMJ Qual Saf. 2012;21 Suppl 1:i67–75.CrossRefPubMedPubMedCentral
14.
go back to reference van Walraven C, Oake N, Jennings A, Forster AJ. The association between continuity of care and outcomes: a systematic and critical review. J Eval Clin Pract. 2010;16:947–56.CrossRefPubMed van Walraven C, Oake N, Jennings A, Forster AJ. The association between continuity of care and outcomes: a systematic and critical review. J Eval Clin Pract. 2010;16:947–56.CrossRefPubMed
15.
go back to reference Ziaeian B, Araujo KLB, Van Ness PH, Horwitz LI. Medication Reconciliation Accuracy and Patient Understanding of Intended Medication Changes on Hospital Discharge. J Gen Intern Med. 2012;27(11):1513–20.CrossRefPubMedPubMedCentral Ziaeian B, Araujo KLB, Van Ness PH, Horwitz LI. Medication Reconciliation Accuracy and Patient Understanding of Intended Medication Changes on Hospital Discharge. J Gen Intern Med. 2012;27(11):1513–20.CrossRefPubMedPubMedCentral
16.
go back to reference Wardle J, Adams J. Indirect and non-health risks associated with complementary and alternative medicine use: An integrative review. Eur J Integr Med. 2014;6(4):409–22.CrossRef Wardle J, Adams J. Indirect and non-health risks associated with complementary and alternative medicine use: An integrative review. Eur J Integr Med. 2014;6(4):409–22.CrossRef
17.
go back to reference Coleman EA, Boult C. The American Geriatrics Society Health Care Systems Committee. Improving the quality of transitional care for persons with complex care needs. J Am Geriatr Soc. 2003;51:556–7.CrossRefPubMed Coleman EA, Boult C. The American Geriatrics Society Health Care Systems Committee. Improving the quality of transitional care for persons with complex care needs. J Am Geriatr Soc. 2003;51:556–7.CrossRefPubMed
18.
19.
20.
go back to reference Miles M, Huberman A. Qualitative data analysis - An expanded sourcebook. 2nd ed. Thousand Oaks: Sage Publications; 1994. Miles M, Huberman A. Qualitative data analysis - An expanded sourcebook. 2nd ed. Thousand Oaks: Sage Publications; 1994.
22.
go back to reference NSW Health PD, Health Services Performance Improvement Branch. In: Department of Health N, editor. Care Coordination: Planning from Admission to Transfer of Care in NSW Public Hospitals. Sydney: NSW Department of Health; 2011. NSW Health PD, Health Services Performance Improvement Branch. In: Department of Health N, editor. Care Coordination: Planning from Admission to Transfer of Care in NSW Public Hospitals. Sydney: NSW Department of Health; 2011.
23.
go back to reference Wee S-L, Vrijhoef HJM. A conceptual framework for evaluating the conceptualization, implementation and performance of transitional care programmes. J Eval Clin Pract. 2015;21:221–8.CrossRefPubMed Wee S-L, Vrijhoef HJM. A conceptual framework for evaluating the conceptualization, implementation and performance of transitional care programmes. J Eval Clin Pract. 2015;21:221–8.CrossRefPubMed
24.
go back to reference Coleman EA. Falling Through the Cracks: Challenges and Opportunities for Improving Transitional Care for Persons with Continuous Complex Care Needs. J Am Geriatr Soc. 2003;51(4):549–55.CrossRefPubMed Coleman EA. Falling Through the Cracks: Challenges and Opportunities for Improving Transitional Care for Persons with Continuous Complex Care Needs. J Am Geriatr Soc. 2003;51(4):549–55.CrossRefPubMed
25.
go back to reference Piraino E, Heckman G, Glenny C, Stolee P. Transitional care programs: who is left behind? A systematic review. Int J Integr Care. 2012;12:18.CrossRef Piraino E, Heckman G, Glenny C, Stolee P. Transitional care programs: who is left behind? A systematic review. Int J Integr Care. 2012;12:18.CrossRef
28.
go back to reference Snow V, Beck D, Budnitz T, Miller DC, Potter J, Wears RL, et al. Transitions of Care Consensus Policy Statement American College of Physicians- Society of General Internal Medicine-Society of Hospital Medicine- American Geriatrics Society- American College of Emergency Physicians- Society of Academic Emergency Medicine. J Gen Intern Med. 2009;8:971–6.CrossRef Snow V, Beck D, Budnitz T, Miller DC, Potter J, Wears RL, et al. Transitions of Care Consensus Policy Statement American College of Physicians- Society of General Internal Medicine-Society of Hospital Medicine- American Geriatrics Society- American College of Emergency Physicians- Society of Academic Emergency Medicine. J Gen Intern Med. 2009;8:971–6.CrossRef
29.
go back to reference Nelson JM. Transitional care can reduce hospital readmissions. Am Nurse Today. 2015;10:8. Nelson JM. Transitional care can reduce hospital readmissions. Am Nurse Today. 2015;10:8.
30.
go back to reference Greenwald J, Denham C, Jack B. The Hospital Discharge: A review of a High Risk Care Transtion With Highlights of a Reengineered Discharge Process. J Patient Saf. 2007;3(2):97–104.CrossRef Greenwald J, Denham C, Jack B. The Hospital Discharge: A review of a High Risk Care Transtion With Highlights of a Reengineered Discharge Process. J Patient Saf. 2007;3(2):97–104.CrossRef
31.
go back to reference Karaksha A, Hattingh H, Hall T. Quality of Discharge Summaries sent by a Regional Hospital to General Practitioners. J Pharm Pract Res. 2010;40(3):208–10.CrossRef Karaksha A, Hattingh H, Hall T. Quality of Discharge Summaries sent by a Regional Hospital to General Practitioners. J Pharm Pract Res. 2010;40(3):208–10.CrossRef
32.
go back to reference Royal Pharmaceutical Society: Hospital referral to community pharmacy: An innovators' toolkit to support the NHS in England. London: Royal Pharmaceutical Society; 2014. Royal Pharmaceutical Society: Hospital referral to community pharmacy: An innovators' toolkit to support the NHS in England. London: Royal Pharmaceutical Society; 2014.
33.
go back to reference Hesselink G, Schoonhoven L, Barach P, Spijker A, Gademan P, Kalkman C, et al. Improving Patient Handovers from Hospital to Primary Care A Systematic Review. Ann Intern Med. 2012;157(6):417–28.CrossRefPubMed Hesselink G, Schoonhoven L, Barach P, Spijker A, Gademan P, Kalkman C, et al. Improving Patient Handovers from Hospital to Primary Care A Systematic Review. Ann Intern Med. 2012;157(6):417–28.CrossRefPubMed
34.
go back to reference Gandara E, Moniz T, Ungar J, Lee J, Chan-Mcrae M, O'Malley T, et al. Communication and Information Deficits in Patients Discharged to Rehabilitation Facilities: An Evaluation of Five Acute Care Hospitals. J Hosp Med. 2009;4(8):E28–33.CrossRefPubMed Gandara E, Moniz T, Ungar J, Lee J, Chan-Mcrae M, O'Malley T, et al. Communication and Information Deficits in Patients Discharged to Rehabilitation Facilities: An Evaluation of Five Acute Care Hospitals. J Hosp Med. 2009;4(8):E28–33.CrossRefPubMed
35.
go back to reference Göbel B, Zwart D, Hesselink G, Pijnenborg L, Barach P, Kalkman C, et al. Stakeholder perspectives on handovers between hospital staff and general practitioners: an evaluation through the microsystems lens. BMJ Qual Saf. 2012;21:i106–13.CrossRefPubMedPubMedCentral Göbel B, Zwart D, Hesselink G, Pijnenborg L, Barach P, Kalkman C, et al. Stakeholder perspectives on handovers between hospital staff and general practitioners: an evaluation through the microsystems lens. BMJ Qual Saf. 2012;21:i106–13.CrossRefPubMedPubMedCentral
36.
go back to reference Bauer M, Fitzgerald L, Koch S. Hospital Discharge as Experienced by Family Carers of People with Dementia: A Case for Quality Improvement. J Healthc Qual. 2011;33(6):9–16.CrossRefPubMed Bauer M, Fitzgerald L, Koch S. Hospital Discharge as Experienced by Family Carers of People with Dementia: A Case for Quality Improvement. J Healthc Qual. 2011;33(6):9–16.CrossRefPubMed
37.
go back to reference Wong ELY, Yam CHK, Cheung AWL, Leung MCM, Chan FWK, Wong FYY, et al. Barriers to effective discharge planning: a qualitative study investigating the perspectives of frontline healthcare professionals. BMC Health Serv Res. 2011;11:242.CrossRefPubMedPubMedCentral Wong ELY, Yam CHK, Cheung AWL, Leung MCM, Chan FWK, Wong FYY, et al. Barriers to effective discharge planning: a qualitative study investigating the perspectives of frontline healthcare professionals. BMC Health Serv Res. 2011;11:242.CrossRefPubMedPubMedCentral
38.
go back to reference Hesselink G, Flink M, Olsson M, Barach P, Dudzik-Urbaniak E, Orrego C, et al. Are patients discharged with care? A qualitative study of perceptions and experiences of patients, family members and care providers. BMJ Qual Saf. 2012;21:i39–49.CrossRefPubMed Hesselink G, Flink M, Olsson M, Barach P, Dudzik-Urbaniak E, Orrego C, et al. Are patients discharged with care? A qualitative study of perceptions and experiences of patients, family members and care providers. BMJ Qual Saf. 2012;21:i39–49.CrossRefPubMed
39.
go back to reference NSW Agency for Clinical Innovation: Building Partnerships: A Framework for Integrating Care for Older People with Complex Health Needs. Chatswood, Australia: Agency for Clinical Innovation; 2014. NSW Agency for Clinical Innovation: Building Partnerships: A Framework for Integrating Care for Older People with Complex Health Needs. Chatswood, Australia: Agency for Clinical Innovation; 2014.
40.
go back to reference Productivity Commission. Caring for Older Australians, Report No. 53. Canberra: Commonwealth of Australia; 2011. Productivity Commission. Caring for Older Australians, Report No. 53. Canberra: Commonwealth of Australia; 2011.
Metadata
Title
Health professional perspectives on systems failures in transitional care for patients with dementia and their carers: a qualitative descriptive study
Authors
Ashley Kable
Lynnette Chenoweth
Dimity Pond
Carolyn Hullick
Publication date
01-06-2015
Publisher
BioMed Central
Published in
BMC Health Services Research / Issue 1/2015
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/s12913-015-1227-z

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