Skip to main content
Top
Published in: BMC Geriatrics 1/2015

Open Access 01-12-2015 | Research article

Family visits in shared-housing arrangements for residents with dementia – a cross-sectional study on the impact on residents’ quality of life

Authors: Johannes Gräske, Saskia Meyer, Andreas Worch, Karin Wolf-Ostermann

Published in: BMC Geriatrics | Issue 1/2015

Login to get access

Abstract

Background

Shared-housing arrangements (SHA) are a German type of small-scale living arrangements for people with dementia (PwD). The involvement of family members is one core domain of SHA. But it has not been investigated yet, what are factors associated with family visits and if family involvement within SHA contributes to better residents’ quality of life (QoL).

Method

A cross-sectional study including all SHA in Berlin/Germany was performed. Main parameters of interest were residents’ QoL (QUALIDEM) and frequencies of family visits within the SHA. Besides descriptive analyses we used logistic regression and ANCOVA to analyze the data.

Results

58 SHA with 396 residents (78.4 years, 69.4% female) participated in the study. Older (OR: 1.034; 95% CI: 1.005; 1.064) and female residents (OR: 2.006; 95% CI: 1.018; 3.950) got more often visited by family members. An active participation of family members in SHA contributes on average to a better QoL in terms of social relationship and social isolation (all ANCOVA p < 0.005). A decreased QoL was found for people without family visits compared to those without family members.

Conclusions

The involvement of family members in SHA is common but on a similar level compared to other care arrangements. Staff should convince available family members to visit PwD, in order to improve residents QoL. However, the response rate in the present study was about 13%, which may limit the results.
Literature
1.
go back to reference Wimo A, Prince M. World Alzheimer Report 2010. Alzheimer’s Disease International: The Global Economic Impact of Dementia; 2010. Wimo A, Prince M. World Alzheimer Report 2010. Alzheimer’s Disease International: The Global Economic Impact of Dementia; 2010.
2.
go back to reference Gustavsson A, Svensson M, Jacobi F, Allgulander C, Alonso J, Beghi E, et al. Cost of disorders of the brain in Europe 2010. Eur Neuropsychopharmacol. 2011;21(10):718–79.CrossRefPubMed Gustavsson A, Svensson M, Jacobi F, Allgulander C, Alonso J, Beghi E, et al. Cost of disorders of the brain in Europe 2010. Eur Neuropsychopharmacol. 2011;21(10):718–79.CrossRefPubMed
3.
go back to reference Luppa M, Luck T, Weyerer S, König H-H, Brähler E, Riedel-Heller SG. Prediction of institutionalization in the elderly. A systematic review Age Ageing. 2010;39(1):31–8.CrossRefPubMed Luppa M, Luck T, Weyerer S, König H-H, Brähler E, Riedel-Heller SG. Prediction of institutionalization in the elderly. A systematic review Age Ageing. 2010;39(1):31–8.CrossRefPubMed
4.
go back to reference Moise P, Schwarzinger M, Um M. Dementia care in 9 OECD countries: a comparative analysis. Paris: OECD Publishing; 2004.CrossRef Moise P, Schwarzinger M, Um M. Dementia care in 9 OECD countries: a comparative analysis. Paris: OECD Publishing; 2004.CrossRef
5.
go back to reference Annerstedt L. Development and consequences of group living in Sweden: a new mode of care for the demented elderly. Soc Sci Med. 1993;37(12):1529–38.CrossRefPubMed Annerstedt L. Development and consequences of group living in Sweden: a new mode of care for the demented elderly. Soc Sci Med. 1993;37(12):1529–38.CrossRefPubMed
6.
go back to reference Wolf-Ostermann K, Worch A, Meyer S, Gräske J. Ambulant betreute Wohngemeinschaften für Menschen mit Pflegebedarf - Eine Studie zu gesetzlichen Rahmenbedingungen und Versorgungsangeboten in Deutschland [Shared-housing arrangements for care-dependent persons : Legal frameworks and numbers in Germany.]. Z Gerontol Geriat. 2014;47(7):583–9.CrossRef Wolf-Ostermann K, Worch A, Meyer S, Gräske J. Ambulant betreute Wohngemeinschaften für Menschen mit Pflegebedarf - Eine Studie zu gesetzlichen Rahmenbedingungen und Versorgungsangeboten in Deutschland [Shared-housing arrangements for care-dependent persons : Legal frameworks and numbers in Germany.]. Z Gerontol Geriat. 2014;47(7):583–9.CrossRef
7.
go back to reference Verbeek H, Rossum E, Zwakhalen SMG, Kempen GIJM, Hamers JPH. Small, homelike care environments for older people with dementia: a literature review. Int Psychogeriatr. 2009;21(02):252–64.CrossRefPubMed Verbeek H, Rossum E, Zwakhalen SMG, Kempen GIJM, Hamers JPH. Small, homelike care environments for older people with dementia: a literature review. Int Psychogeriatr. 2009;21(02):252–64.CrossRefPubMed
8.
go back to reference Fischer T, Worch A, Nordheim J, Wulff I, Gräske J, Meye S, et al. Ambulant betreute Wohngemeinschaften für alte, pflegebedürftige Menschen – Merkmale, Entwicklungen und Einflussfaktoren [Shared-housing arrangements for care-dependent older persons - characteristics, development and drivers]. Pflege. 2011;23(2):97–109.CrossRef Fischer T, Worch A, Nordheim J, Wulff I, Gräske J, Meye S, et al. Ambulant betreute Wohngemeinschaften für alte, pflegebedürftige Menschen – Merkmale, Entwicklungen und Einflussfaktoren [Shared-housing arrangements for care-dependent older persons - characteristics, development and drivers]. Pflege. 2011;23(2):97–109.CrossRef
9.
go back to reference Gräske J, Worch A, Meyer S, Wolf-Ostermann K. Ambulant betreute Wohngemeinschaften für pflegebedürftige Menschen in Deutschland - Eine Literaturübersicht zu Strukturen, Versorgungsoutcomes und Qualitätsmangagement [Shared-housing arrangements for care-dependent people in Germany. A literature overview of structures, outcomes and quality management]. Bundesgesundheitsblatt. 2013;56(10):1410–7.CrossRef Gräske J, Worch A, Meyer S, Wolf-Ostermann K. Ambulant betreute Wohngemeinschaften für pflegebedürftige Menschen in Deutschland - Eine Literaturübersicht zu Strukturen, Versorgungsoutcomes und Qualitätsmangagement [Shared-housing arrangements for care-dependent people in Germany. A literature overview of structures, outcomes and quality management]. Bundesgesundheitsblatt. 2013;56(10):1410–7.CrossRef
10.
go back to reference Woods B, Keady J, Seddon D. Involving families in care homes. A relationship-centred approach to dementia care. London: Jessica Kingsley Publishers; 2008. Woods B, Keady J, Seddon D. Involving families in care homes. A relationship-centred approach to dementia care. London: Jessica Kingsley Publishers; 2008.
11.
go back to reference Tornatore JB, Grant LA. Family caregiver satisfaction with the nursing home after placement of a relative with dementia. J Gerontol B Psychol Sci Soc Sci. 2004;59(2):80–8.CrossRef Tornatore JB, Grant LA. Family caregiver satisfaction with the nursing home after placement of a relative with dementia. J Gerontol B Psychol Sci Soc Sci. 2004;59(2):80–8.CrossRef
12.
go back to reference Hertzberg A, Ekman S-L, Axelsson K. Relatives are a resource, but…’: Registered Nurses’ views and experiences of relatives of residents in nursing homes. J Clin Nurs. 2003;12(3):431–41.CrossRefPubMed Hertzberg A, Ekman S-L, Axelsson K. Relatives are a resource, but…’: Registered Nurses’ views and experiences of relatives of residents in nursing homes. J Clin Nurs. 2003;12(3):431–41.CrossRefPubMed
13.
go back to reference Bauer M, Nay R. Improving family–staff relationships in assisted living facilities: the views of family. J Adv Nurs. 2011;67(6):1232–41.CrossRefPubMed Bauer M, Nay R. Improving family–staff relationships in assisted living facilities: the views of family. J Adv Nurs. 2011;67(6):1232–41.CrossRefPubMed
14.
go back to reference Rich SE, Williams CS, Zimmerman S. Concordance of family and staff member reports about End of life in assisted living and nursing homes. Gerontologist. 2010;50(1):112–20.CrossRefPubMed Rich SE, Williams CS, Zimmerman S. Concordance of family and staff member reports about End of life in assisted living and nursing homes. Gerontologist. 2010;50(1):112–20.CrossRefPubMed
15.
go back to reference Robison J, Curry L, Gruman C, Porter M, Henderson CR, Pillemer K. Partners in caregiving in a special care environment: cooperative communication between staff and families on dementia units. Gerontologist. 2007;47(4):504–15.CrossRefPubMed Robison J, Curry L, Gruman C, Porter M, Henderson CR, Pillemer K. Partners in caregiving in a special care environment: cooperative communication between staff and families on dementia units. Gerontologist. 2007;47(4):504–15.CrossRefPubMed
16.
go back to reference Volicer L, DeRuvo L, Hyer K, Piechniczek-Buczek J, Riordan ME. Development of a scale to measure quality of visits with relatives with dementia. JAMDA. 2008;9(5):327–31.PubMed Volicer L, DeRuvo L, Hyer K, Piechniczek-Buczek J, Riordan ME. Development of a scale to measure quality of visits with relatives with dementia. JAMDA. 2008;9(5):327–31.PubMed
17.
go back to reference Piechniczek-Buczek J, Riordan ME, Volicer L. Family member perception of quality of their visits with relatives with dementia: a pilot study. JAMDA. 2007;8(3):166–72.PubMed Piechniczek-Buczek J, Riordan ME, Volicer L. Family member perception of quality of their visits with relatives with dementia: a pilot study. JAMDA. 2007;8(3):166–72.PubMed
18.
go back to reference Maas ML, Reed D, Park M, Specht JP, Schutte D, Kelley LS, et al. Outcomes of family involvement in care intervention for caregivers of individuals with dementia. Nurs Res. 2004;53(2):76–86.CrossRefPubMed Maas ML, Reed D, Park M, Specht JP, Schutte D, Kelley LS, et al. Outcomes of family involvement in care intervention for caregivers of individuals with dementia. Nurs Res. 2004;53(2):76–86.CrossRefPubMed
19.
go back to reference Clarke A, Jane Hanson E, Ross H. Seeing the person behind the patient: enhancing the care of older people using a biographical approach. J Clin Nurs. 2003;12(5):697–706.CrossRefPubMed Clarke A, Jane Hanson E, Ross H. Seeing the person behind the patient: enhancing the care of older people using a biographical approach. J Clin Nurs. 2003;12(5):697–706.CrossRefPubMed
20.
go back to reference Steinberg M, Shao H, Zandi P, Lyketsos CG, Welsh-Bohmer KA, Norton MC, et al. Point and 5-year period prevalence of neuropsychiatric symptoms in dementia: the Cache County Study. Int J Geriatr Psychiatry. 2008;23(2):170–7.CrossRefPubMedPubMedCentral Steinberg M, Shao H, Zandi P, Lyketsos CG, Welsh-Bohmer KA, Norton MC, et al. Point and 5-year period prevalence of neuropsychiatric symptoms in dementia: the Cache County Study. Int J Geriatr Psychiatry. 2008;23(2):170–7.CrossRefPubMedPubMedCentral
21.
go back to reference Kellett U, Moyle W, McAllister M, King C, Gallagher F. Life stories and biography: a means of connecting family and staff to people with dementia. J Clin Nurs. 2010;19(11–12):1707–15.PubMed Kellett U, Moyle W, McAllister M, King C, Gallagher F. Life stories and biography: a means of connecting family and staff to people with dementia. J Clin Nurs. 2010;19(11–12):1707–15.PubMed
22.
go back to reference Port CL, Zimmerman S, Williams CS, Dobbs D, Preisser JS, Williams SW. Families filling the Gap: comparing family involvement for assisted living and nursing home residents with dementia. Gerontologist. 2005;45 suppl 1:87–95.CrossRefPubMed Port CL, Zimmerman S, Williams CS, Dobbs D, Preisser JS, Williams SW. Families filling the Gap: comparing family involvement for assisted living and nursing home residents with dementia. Gerontologist. 2005;45 suppl 1:87–95.CrossRefPubMed
23.
go back to reference Gaugler JE, Zarit S, Pearlin L. Family involvement following institutionalization: modeling nursing home visits over time. Int J Aging Hum Dev. 2003;57(2):91–117.CrossRefPubMed Gaugler JE, Zarit S, Pearlin L. Family involvement following institutionalization: modeling nursing home visits over time. Int J Aging Hum Dev. 2003;57(2):91–117.CrossRefPubMed
24.
go back to reference Verbeek H, Zwakhalen SMG, van Rossum E, Ambergen T, Kempen GIJM, Hamers JPH. Dementia care redesigned: effects of small-scale living facilities on residents, their family caregivers, and staff. JAMDA. 2010;11(9):662–70.PubMed Verbeek H, Zwakhalen SMG, van Rossum E, Ambergen T, Kempen GIJM, Hamers JPH. Dementia care redesigned: effects of small-scale living facilities on residents, their family caregivers, and staff. JAMDA. 2010;11(9):662–70.PubMed
25.
go back to reference Andrén S, Elmståhl S. Former family Carers’ subjective experiences of burden. Dementia. 2002;1(2):241–54.CrossRef Andrén S, Elmståhl S. Former family Carers’ subjective experiences of burden. Dementia. 2002;1(2):241–54.CrossRef
26.
go back to reference Gaugler JE, Kane RL. Families and assisted living. Gerontologist. 2007;47 (suppl 1):83–99.CrossRef Gaugler JE, Kane RL. Families and assisted living. Gerontologist. 2007;47 (suppl 1):83–99.CrossRef
27.
go back to reference Gräske J, Wulff I, Fischer T, Meye S, Worch A, Wolf-Ostermann K. Ambulant betreute Wohngemeinschaften für ältere, pflegebedürftige Menschen – Unterstützung von Angehörigen und Ehrenamtlichen [Shared-housing arrangements for care dependent older persons. Support from family members and volunteers]. Pflegezeitschrift. 2011;64(11):664–9. Gräske J, Wulff I, Fischer T, Meye S, Worch A, Wolf-Ostermann K. Ambulant betreute Wohngemeinschaften für ältere, pflegebedürftige Menschen – Unterstützung von Angehörigen und Ehrenamtlichen [Shared-housing arrangements for care dependent older persons. Support from family members and volunteers]. Pflegezeitschrift. 2011;64(11):664–9.
28.
go back to reference Dobbs D, Munn J, Zimmerman S, Boustani M, Williams CS, Sloane PD, et al. Characteristics associated with lower activity involvement in long-term care residents with dementia. Gerontologist. 2005;45 (suppl 1):81–6.CrossRef Dobbs D, Munn J, Zimmerman S, Boustani M, Williams CS, Sloane PD, et al. Characteristics associated with lower activity involvement in long-term care residents with dementia. Gerontologist. 2005;45 (suppl 1):81–6.CrossRef
29.
go back to reference Garms-Homolová V. Assessment für die häusliche Versorgung und Pflege [Resident Assessement Instrument - Home Care RAI HC 2.0]. Bern: Huber; 2002. Garms-Homolová V. Assessment für die häusliche Versorgung und Pflege [Resident Assessement Instrument - Home Care RAI HC 2.0]. Bern: Huber; 2002.
30.
go back to reference Ettema TP, Dröes R-M, de Lange J, Mellenbergh GJ, Ribbe MW. QUALIDEM: development and evaluation of a dementia specific quality of life instrument. Scalability, reliability and internal structure. Int J Geriatr Psychiatry. 2007;22(6):549–56.CrossRefPubMed Ettema TP, Dröes R-M, de Lange J, Mellenbergh GJ, Ribbe MW. QUALIDEM: development and evaluation of a dementia specific quality of life instrument. Scalability, reliability and internal structure. Int J Geriatr Psychiatry. 2007;22(6):549–56.CrossRefPubMed
31.
go back to reference Ettema TP, Dröes R-M, de Lange J, Mellenbergh GJ, Ribbe MW. QUALIDEM: development and evaluation of a dementia specific quality of life instrument – validation. Int J Geriatr Psychiatry. 2007;22(5):424–30.CrossRefPubMed Ettema TP, Dröes R-M, de Lange J, Mellenbergh GJ, Ribbe MW. QUALIDEM: development and evaluation of a dementia specific quality of life instrument – validation. Int J Geriatr Psychiatry. 2007;22(5):424–30.CrossRefPubMed
32.
go back to reference Gräske J, Verbeek H, Gellert P, Fischer T, Kuhlmey A, Wolf-Ostermann K. How to measure quality of life in shared-housing arrangements? A comparison of dementia-specific instruments. Qual Life Res. 2014;23(2):549–59.CrossRefPubMed Gräske J, Verbeek H, Gellert P, Fischer T, Kuhlmey A, Wolf-Ostermann K. How to measure quality of life in shared-housing arrangements? A comparison of dementia-specific instruments. Qual Life Res. 2014;23(2):549–59.CrossRefPubMed
33.
go back to reference Gräske J, Fischer T, Kuhlmey A, Wolf-Ostermann K. Dementia-specific quality of life instruments and their appropriateness in shared-housing arrangements - a literature study. Geriatr Nurs. 2012;33(3):204–16.CrossRefPubMed Gräske J, Fischer T, Kuhlmey A, Wolf-Ostermann K. Dementia-specific quality of life instruments and their appropriateness in shared-housing arrangements - a literature study. Geriatr Nurs. 2012;33(3):204–16.CrossRefPubMed
34.
go back to reference Wetzels RB, Zuidema SU, Jonghe JFM, Verhey FRJ, Koopmans RTCM. Determinants of quality of life in nursing home residents with dementia. Dement Geriatr Cogn Disord. 2010;29:189–97.CrossRefPubMed Wetzels RB, Zuidema SU, Jonghe JFM, Verhey FRJ, Koopmans RTCM. Determinants of quality of life in nursing home residents with dementia. Dement Geriatr Cogn Disord. 2010;29:189–97.CrossRefPubMed
35.
go back to reference Cohen-Mansfield J, Marx MS, Rosenthal AS. A description of agitation in a nursing home. J Gerontol. 1989;44(3):M77–84.CrossRefPubMed Cohen-Mansfield J, Marx MS, Rosenthal AS. A description of agitation in a nursing home. J Gerontol. 1989;44(3):M77–84.CrossRefPubMed
36.
go back to reference Cohen-Mansfield J. Instruction Manual for the Cohen-Mansfield Agitation Inventory (CMAI). The Research Institute of the Hebrew Home of Greater Washington: Washington; 1991. Cohen-Mansfield J. Instruction Manual for the Cohen-Mansfield Agitation Inventory (CMAI). The Research Institute of the Hebrew Home of Greater Washington: Washington; 1991.
37.
go back to reference Reisberg B, Ferris S, de Leon M, Crook T. The Global Deterioration Scale for assessment of primary degenerative dementia. Am J Psychiatry. 1982;139(9):1136–9.CrossRefPubMed Reisberg B, Ferris S, de Leon M, Crook T. The Global Deterioration Scale for assessment of primary degenerative dementia. Am J Psychiatry. 1982;139(9):1136–9.CrossRefPubMed
38.
go back to reference Ward-Griffin C, Oudshoorn A, Clark K, Bol N. Mother-adult daughter relationships within dementia care. J Fam Nurs. 2007;13(1):13–32.CrossRefPubMed Ward-Griffin C, Oudshoorn A, Clark K, Bol N. Mother-adult daughter relationships within dementia care. J Fam Nurs. 2007;13(1):13–32.CrossRefPubMed
39.
go back to reference Armstrong P, Armstrong H, Grant K, Amaratunga C, Asrmstrong P, Boscoe M, et al. Thinking it through: woman, work and caring in the new millenium. In: Caring for/caring about: women, home care, and unpaid caregiving. 1st ed. Ontario: Garamond Press Ltd; 2004. p. 5–43. Armstrong P, Armstrong H, Grant K, Amaratunga C, Asrmstrong P, Boscoe M, et al. Thinking it through: woman, work and caring in the new millenium. In: Caring for/caring about: women, home care, and unpaid caregiving. 1st ed. Ontario: Garamond Press Ltd; 2004. p. 5–43.
40.
go back to reference Bauer M, Nay R. Family and staff partnerships in long-term care. A review of the literature. J Gerontol Nurs. 2003;10:46–53.CrossRef Bauer M, Nay R. Family and staff partnerships in long-term care. A review of the literature. J Gerontol Nurs. 2003;10:46–53.CrossRef
41.
go back to reference Pillemer K, Hegeman CR, Albright B, Henderson C, Morrow-Howell N. Building bridges between families and nursing home staff: the partners in caregiving program. Gerontologist. 1998;38(4):499–503.CrossRefPubMed Pillemer K, Hegeman CR, Albright B, Henderson C, Morrow-Howell N. Building bridges between families and nursing home staff: the partners in caregiving program. Gerontologist. 1998;38(4):499–503.CrossRefPubMed
42.
go back to reference Gräske J, Fischer T, Kuhlmey A, Wolf-Ostermann K. Quality of life in dementia care – differences in quality of life measurements performed by residents with dementia and by nursing staff. Aging Ment Health. 2012;16(7):818–27.CrossRef Gräske J, Fischer T, Kuhlmey A, Wolf-Ostermann K. Quality of life in dementia care – differences in quality of life measurements performed by residents with dementia and by nursing staff. Aging Ment Health. 2012;16(7):818–27.CrossRef
43.
go back to reference Spector A, Orrell M. Quality of life (QoL) in dementia: a comparison of the perceptions of people with dementia and care staff in residential homes. Alzheimer Dis Assoc Disord. 2006;20(3):160–5.CrossRefPubMed Spector A, Orrell M. Quality of life (QoL) in dementia: a comparison of the perceptions of people with dementia and care staff in residential homes. Alzheimer Dis Assoc Disord. 2006;20(3):160–5.CrossRefPubMed
Metadata
Title
Family visits in shared-housing arrangements for residents with dementia – a cross-sectional study on the impact on residents’ quality of life
Authors
Johannes Gräske
Saskia Meyer
Andreas Worch
Karin Wolf-Ostermann
Publication date
01-12-2015
Publisher
BioMed Central
Published in
BMC Geriatrics / Issue 1/2015
Electronic ISSN: 1471-2318
DOI
https://doi.org/10.1186/s12877-015-0012-5

Other articles of this Issue 1/2015

BMC Geriatrics 1/2015 Go to the issue
Live Webinar | 27-06-2024 | 18:00 (CEST)

Keynote webinar | Spotlight on medication adherence

Live: Thursday 27th June 2024, 18:00-19:30 (CEST)

WHO estimates that half of all patients worldwide are non-adherent to their prescribed medication. The consequences of poor adherence can be catastrophic, on both the individual and population level.

Join our expert panel to discover why you need to understand the drivers of non-adherence in your patients, and how you can optimize medication adherence in your clinics to drastically improve patient outcomes.

Prof. Kevin Dolgin
Prof. Florian Limbourg
Prof. Anoop Chauhan
Developed by: Springer Medicine
Obesity Clinical Trial Summary

At a glance: The STEP trials

A round-up of the STEP phase 3 clinical trials evaluating semaglutide for weight loss in people with overweight or obesity.

Developed by: Springer Medicine

Highlights from the ACC 2024 Congress

Year in Review: Pediatric cardiology

Watch Dr. Anne Marie Valente present the last year's highlights in pediatric and congenital heart disease in the official ACC.24 Year in Review session.

Year in Review: Pulmonary vascular disease

The last year's highlights in pulmonary vascular disease are presented by Dr. Jane Leopold in this official video from ACC.24.

Year in Review: Valvular heart disease

Watch Prof. William Zoghbi present the last year's highlights in valvular heart disease from the official ACC.24 Year in Review session.

Year in Review: Heart failure and cardiomyopathies

Watch this official video from ACC.24. Dr. Biykem Bozkurt discusses last year's major advances in heart failure and cardiomyopathies.