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Published in: Diabetes Therapy 1/2014

Open Access 01-06-2014 | Original Research

Diabetes Education: the Experiences of Young Adults with Type 1 Diabetes

Authors: Janice Wiley, Mary Westbrook, Janet Long, Jerry R. Greenfield, Richard O. Day, Jeffrey Braithwaite

Published in: Diabetes Therapy | Issue 1/2014

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Abstract

Introduction

Clinician-led diabetes education is a fundamental component of care to assist people with Type 1 diabetes (T1D) self-manage their disease. Recent initiatives to incorporate a more patient-centered approach to diabetes education have included recommendations to make such education more individualized. Yet there is a dearth of research that identifies patients’ perceptions of clinician-led diabetes education. We aimed to describe the experience of diabetes education from the perspective of young adults with T1D.

Methods

We designed a self-reported survey for Australian adults, aged 18–35 years, with T1D. Participants (n = 150) were recruited by advertisements through diabetes consumer-organizations. Respondents were asked to rate aspects of clinician-led diabetes education and identify sources of self-education. To expand on the results of the survey we interviewed 33 respondents in focus groups.

Results

Survey: The majority of respondents (56.0%) were satisfied with the amount of continuing clinician-led diabetes education; 96.7% sought further self-education; 73.3% sourced more diabetes education themselves than that provided by their clinicians; 80.7% referred to diabetes organization websites for further education; and 30.0% used online chat-rooms and blogs for education. Focus groups: The three key themes that emerged from the interview data were deficiencies related to the pedagogy of diabetes education; knowledge deficiencies arising from the gap between theoretical diabetes education and practical reality; and the need for and problems associated with autonomous and peer-led diabetes education.

Conclusion

Our findings indicate that there are opportunities to improve clinician led-diabetes education to improve patient outcomes by enhancing autonomous health-literacy skills and to incorporate peer-led diabetes education and support with clinician-led education. The results provide evidence for the potential value of patient engagement in quality improvement and health-service redesign.
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Metadata
Title
Diabetes Education: the Experiences of Young Adults with Type 1 Diabetes
Authors
Janice Wiley
Mary Westbrook
Janet Long
Jerry R. Greenfield
Richard O. Day
Jeffrey Braithwaite
Publication date
01-06-2014
Publisher
Springer Healthcare
Published in
Diabetes Therapy / Issue 1/2014
Print ISSN: 1869-6953
Electronic ISSN: 1869-6961
DOI
https://doi.org/10.1007/s13300-014-0056-0

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