Skip to main content
Top
Published in: BMC Health Services Research 1/2024

Open Access 01-12-2024 | Dementia | Research

Implementation of the Dementia Isolation Toolkit in long-term care improves awareness but does not reduce moral distress amongst healthcare providers

Authors: Anne Marie Levy, Alisa Grigorovich, Josephine McMurray, Hannah Quirt, Kaitlyn Ranft, Katia Engell, Steven Stewart, Arlene Astell, Kristina Kokorelias, Denise Schon, Kevin Rogrigues, Mario Tsokas, Alastair J. Flint, Andrea Iaboni

Published in: BMC Health Services Research | Issue 1/2024

Login to get access

Abstract

Background

Healthcare providers may experience moral distress when they are unable to take the ethically or morally appropriate action due to real or perceived constraints in delivering care, and this psychological stressor can negatively impact their mental health, leading to burnout and compassion fatigue. This study describes healthcare providers experiences of moral distress working in long-term care settings during the COVID-19 pandemic and measures self-reported levels of moral distress pre- and post-implementation of the Dementia Isolation Toolkit (DIT), a person-centred care intervention designed for use by healthcare providers to alleviate moral distress.

Methods

Subjective levels of moral distress amongst providers (e.g., managerial, administrative, and front-line employees) working in three long-term care homes was measured pre- and post-implementation of the DIT using the Moral Distress in Dementia Care Survey and semi-structured interviews. Interviews explored participants’ experiences of moral distress in the workplace and the perceived impact of the intervention on moral distress.

Results

A total of 23 providers between the three long-term care homes participated. Following implementation of the DIT, subjective levels of moral distress measured by the survey did not change. When interviewed, participants reported frequent experiences of moral distress from implementing public health directives, staff shortages, and professional burnout that remained unchanged following implementation. However, in the post-implementation interviews, participants who used the DIT reported improved self-awareness of moral distress and reductions in the experience of moral distress. Participants related this to feeling that the quality of resident care was improved by integrating principals of person-centered care and information gathered from the DIT.

Conclusions

This study highlights the prevalence and exacerbation of moral distress amongst providers during the pandemic and the myriad of systemic factors that contribute to experiences of moral distress in long-term care settings. We report divergent findings with no quantitative improvement in moral distress post-intervention, but evidence from interviews that the DIT may ease some sources of moral distress and improve the perceived quality of care delivered. This study demonstrates that an intervention to support person-centred isolation care in this setting had limited impact on overall moral distress during the COVID-19 pandemic.
Appendix
Available only for authorised users
Literature
2.
go back to reference Riedel P, Kreh A, Kulcar V, Lieber A, Juen B. A scoping review of moral stressors, moral distress and moral Injury in healthcare workers during COVID-19. Int J Environ Res Public Health. 2022;19(3):1666–85.CrossRefPubMedPubMedCentral Riedel P, Kreh A, Kulcar V, Lieber A, Juen B. A scoping review of moral stressors, moral distress and moral Injury in healthcare workers during COVID-19. Int J Environ Res Public Health. 2022;19(3):1666–85.CrossRefPubMedPubMedCentral
3.
go back to reference Campbell SM, Ulrich CM, Grady C. A broader understanding of moral distress. Am J Bioeth. 2016;16(12):2–9.CrossRefPubMed Campbell SM, Ulrich CM, Grady C. A broader understanding of moral distress. Am J Bioeth. 2016;16(12):2–9.CrossRefPubMed
5.
go back to reference Bradshaw A, Dunleavy L, Garner I, Preston N, Bajwah S, Cripps R, et al. Experiences of staff providing specialist palliative care during COVID-19: a multiple qualitative case study. J R Soc Med. 2022;115(6):220–30.CrossRefPubMedPubMedCentral Bradshaw A, Dunleavy L, Garner I, Preston N, Bajwah S, Cripps R, et al. Experiences of staff providing specialist palliative care during COVID-19: a multiple qualitative case study. J R Soc Med. 2022;115(6):220–30.CrossRefPubMedPubMedCentral
6.
go back to reference Haslam-Larmer L, Grigorovich A, Quirt H, Engel K, Stewart S, Rodrigues K, et al. Prevalence, causes, and consequences of moral distress in healthcare providers caring for people living with dementia in long-term care during a pandemic. Dementia (London). 2023;22(1):5–27. https://doi.org/10.1177/14713012221124995. Haslam-Larmer L, Grigorovich A, Quirt H, Engel K, Stewart S, Rodrigues K, et al. Prevalence, causes, and consequences of moral distress in healthcare providers caring for people living with dementia in long-term care during a pandemic. Dementia (London). 2023;22(1):5–27. https://​doi.​org/​10.​1177/​1471301222112499​5.
9.
go back to reference Laher Z, Robertson N, Harrad-Hyde F, Jones CR. Prevalence, Predictors, and Experience of Moral Suffering in Nursing and Care Home Staff during the COVID-19 Pandemic: A Mixed-Methods Systematic Review. Int J Environ Res Public Health. 2022;19(15):9593. https://doi.org/10.3390/ijerph19159593. Laher Z, Robertson N, Harrad-Hyde F, Jones CR. Prevalence, Predictors, and Experience of Moral Suffering in Nursing and Care Home Staff during the COVID-19 Pandemic: A Mixed-Methods Systematic Review. Int J Environ Res Public Health. 2022;19(15):9593. https://​doi.​org/​10.​3390/​ijerph19159593.
11.
go back to reference Cohen-Mansfield J, Meschiany G. Direct and indirect effects of COVID-19 on long-term care residents and their family members. Gerontol. 2022;68(7):808–16.CrossRef Cohen-Mansfield J, Meschiany G. Direct and indirect effects of COVID-19 on long-term care residents and their family members. Gerontol. 2022;68(7):808–16.CrossRef
12.
go back to reference Pijl-Zieber EM, Awosoga O, Spenceley S, Hagen B, Hall B, Lapins J. Caring in the wake of the rising tide: moral distress in residential nursing care of people living with dementia. Dementia. 2018;17(3):315–36.CrossRefPubMed Pijl-Zieber EM, Awosoga O, Spenceley S, Hagen B, Hall B, Lapins J. Caring in the wake of the rising tide: moral distress in residential nursing care of people living with dementia. Dementia. 2018;17(3):315–36.CrossRefPubMed
13.
go back to reference Wiersma E, Marcella J, McAnulty J, Lou KM. “That just breaks my heart”: moral concerns of direct care workers providing palliative care in LTC homes. Can J Aging. 2019;38(3):268–80.CrossRefPubMed Wiersma E, Marcella J, McAnulty J, Lou KM. “That just breaks my heart”: moral concerns of direct care workers providing palliative care in LTC homes. Can J Aging. 2019;38(3):268–80.CrossRefPubMed
14.
go back to reference Iaboni A, Grigorovich A, Barned C, Rodrigues K, Pia K, Chu CH, et al. Development and dissemination of an ethical guidance and person-centred isolation care planning tool to support the care of people with dementia during the COVID-19 pandemic. Alzheimers Dement. 2021;17:e054003.CrossRefPubMed Iaboni A, Grigorovich A, Barned C, Rodrigues K, Pia K, Chu CH, et al. Development and dissemination of an ethical guidance and person-centred isolation care planning tool to support the care of people with dementia during the COVID-19 pandemic. Alzheimers Dement. 2021;17:e054003.CrossRefPubMed
15.
go back to reference Canadian Institute for Health Information. Pandemic Experience in the Long-Term Care Sector: How Does Canada Compare With Other Countries?. Ottawa, ON: CIHI; 2020. Canadian Institute for Health Information. Pandemic Experience in the Long-Term Care Sector: How Does Canada Compare With Other Countries?. Ottawa, ON: CIHI; 2020.
16.
go back to reference Canadian Institute for Health Information. The Impact of COVID-19 on Long-Term Care in Canada: Focus on the First 6 Months. Ottawa, ON: CIHI; 2021. Canadian Institute for Health Information. The Impact of COVID-19 on Long-Term Care in Canada: Focus on the First 6 Months. Ottawa, ON: CIHI; 2021.
18.
go back to reference Castle NG, Engberg J. The health consequences of using physical restraints in nursing homes. Med Care. 2009;47(11):1164–73.CrossRefPubMed Castle NG, Engberg J. The health consequences of using physical restraints in nursing homes. Med Care. 2009;47(11):1164–73.CrossRefPubMed
19.
go back to reference Tomaselli G, Buttigieg SC, Rosano A, Cassar M, Grima G. Person-centered care from a relational ethics perspective for the delivery of high quality and safe healthcare: a scoping review. Front Public Heal. 2020;8(March):1–11. Tomaselli G, Buttigieg SC, Rosano A, Cassar M, Grima G. Person-centered care from a relational ethics perspective for the delivery of high quality and safe healthcare: a scoping review. Front Public Heal. 2020;8(March):1–11.
20.
go back to reference van der Geugten W, Jacobs G, Goossensen A. The struggle for good care: moral challenges during the COVID-19 lockdown of Dutch elderly care facilities. Int J Care Caring. 2022;6(1–2):157–77.CrossRef van der Geugten W, Jacobs G, Goossensen A. The struggle for good care: moral challenges during the COVID-19 lockdown of Dutch elderly care facilities. Int J Care Caring. 2022;6(1–2):157–77.CrossRef
21.
go back to reference Kirkham J, Shorey CL, Iaboni A, Quirt H, Grigorovich A, Astell A, et al. Staff perceptions of the consequences of COVID-19 on quality of dementia care for residents in Ontario long-term care homes. Int J Geriatr Psychiatry. 2022;37(6) Kirkham J, Shorey CL, Iaboni A, Quirt H, Grigorovich A, Astell A, et al. Staff perceptions of the consequences of COVID-19 on quality of dementia care for residents in Ontario long-term care homes. Int J Geriatr Psychiatry. 2022;37(6)
22.
go back to reference Rushton CH. In Crit ical care. AACN Adv Crit Care Vol. 2016;27(1):111–9. Rushton CH. In Crit ical care. AACN Adv Crit Care Vol. 2016;27(1):111–9.
24.
go back to reference Rey L, Tremblay MC, Brousselle A. Managing tensions between evaluation and research: illustrative cases of developmental evaluation in the context of research. Am J Eval. 2014;35(1):45–60.CrossRef Rey L, Tremblay MC, Brousselle A. Managing tensions between evaluation and research: illustrative cases of developmental evaluation in the context of research. Am J Eval. 2014;35(1):45–60.CrossRef
25.
go back to reference Iyamu I, Berger M, Fernando S, Snow ME, Salmon A. Developmental evaluation during the COVID-19 pandemic: practice-based learnings from projects in British Columbia. Canada Eval J Australas. 2023;23(1):23–39.CrossRefPubMed Iyamu I, Berger M, Fernando S, Snow ME, Salmon A. Developmental evaluation during the COVID-19 pandemic: practice-based learnings from projects in British Columbia. Canada Eval J Australas. 2023;23(1):23–39.CrossRefPubMed
28.
go back to reference Guest G, Bunce A, Johnson L. How many interviews are enough?: an experiment with data saturation and variability. Field methods. 2006;18(1):59–82.CrossRef Guest G, Bunce A, Johnson L. How many interviews are enough?: an experiment with data saturation and variability. Field methods. 2006;18(1):59–82.CrossRef
29.
go back to reference Awosoga O, Pijl EM, Hagen B, Hall B, Sajobi T, Spenceley S. Development and validation of the moral distress in dementia care survey instrument. J Adv Nurs. 2018;74(11):2685–700.CrossRefPubMed Awosoga O, Pijl EM, Hagen B, Hall B, Sajobi T, Spenceley S. Development and validation of the moral distress in dementia care survey instrument. J Adv Nurs. 2018;74(11):2685–700.CrossRefPubMed
30.
go back to reference Giannetta N, Villa G, Pennestrì F, Sala R, Mordacci R. Instruments to assess moral distress among healthcare workers: A systematic review of measurement properties. Int J Nurs Stud. 2020:111. Giannetta N, Villa G, Pennestrì F, Sala R, Mordacci R. Instruments to assess moral distress among healthcare workers: A systematic review of measurement properties. Int J Nurs Stud. 2020:111.
31.
go back to reference Braun V, Clarke V. Using thematic analysis in psychology 2006;3(2):77–101. Braun V, Clarke V. Using thematic analysis in psychology 2006;3(2):77–101.
34.
go back to reference Van Diepen C, Fors A, Ekman I, Hensing G. Association between person-centred care and healthcare providers’ job satisfaction and work-related health: a scoping review. BMJ Open. 2020;10(12) Van Diepen C, Fors A, Ekman I, Hensing G. Association between person-centred care and healthcare providers’ job satisfaction and work-related health: a scoping review. BMJ Open. 2020;10(12)
35.
go back to reference Van Den Pol-Grevelink A, Jukema JS, Smits CHM. Person-centred care and job satisfaction of caregivers in nursing homes: a systematic review of the impact of different forms of person-centred care on various dimensions of job satisfaction. Int J Geriatr Psychiatry. 2012;27(3):219–29.CrossRefPubMed Van Den Pol-Grevelink A, Jukema JS, Smits CHM. Person-centred care and job satisfaction of caregivers in nursing homes: a systematic review of the impact of different forms of person-centred care on various dimensions of job satisfaction. Int J Geriatr Psychiatry. 2012;27(3):219–29.CrossRefPubMed
37.
go back to reference Griffiths AW, Surr CA, Creese B, Garrod L, Chenoweth L. The development and use of the assessment of dementia awareness and person-centred care training tool in long-term care. Dementia. 2019;18(7–8):3059–70.CrossRefPubMed Griffiths AW, Surr CA, Creese B, Garrod L, Chenoweth L. The development and use of the assessment of dementia awareness and person-centred care training tool in long-term care. Dementia. 2019;18(7–8):3059–70.CrossRefPubMed
38.
go back to reference Kong EH, Kim H, Kim H. Nursing home staff’s perceptions of barriers and needs in implementing person-centred care for people living with dementia: a qualitative study. J Clin Nurs. 2022;31(13–14):1896–906.CrossRefPubMed Kong EH, Kim H, Kim H. Nursing home staff’s perceptions of barriers and needs in implementing person-centred care for people living with dementia: a qualitative study. J Clin Nurs. 2022;31(13–14):1896–906.CrossRefPubMed
39.
go back to reference McArthur C, Bai Y, Hewston P, Giangregorio L, Straus S, Papaioannou A. Barriers and facilitators to implementing evidence-based guidelines in long-term care: a qualitative evidence synthesis. Implement Sci. 2021;16(1) McArthur C, Bai Y, Hewston P, Giangregorio L, Straus S, Papaioannou A. Barriers and facilitators to implementing evidence-based guidelines in long-term care: a qualitative evidence synthesis. Implement Sci. 2021;16(1)
40.
go back to reference Zahiriharsini A, Gilbert-Ouimet M, Langlois L, Biron C, Pelletier J, Beaulieu M, et al. Associations between psychosocial stressors at work and moral injury in frontline healthcare workers and leaders facing the COVID-19 pandemic in Quebec, Canada: a cross-sectional study. J Psychiatr Res. 2022;155(April):269–78.CrossRefPubMedPubMedCentral Zahiriharsini A, Gilbert-Ouimet M, Langlois L, Biron C, Pelletier J, Beaulieu M, et al. Associations between psychosocial stressors at work and moral injury in frontline healthcare workers and leaders facing the COVID-19 pandemic in Quebec, Canada: a cross-sectional study. J Psychiatr Res. 2022;155(April):269–78.CrossRefPubMedPubMedCentral
41.
go back to reference Rushton CH. Cultivating moral resilience shifting the narrative from powerlessness to possibility. Am J Nurs. 2017;117(2):S11–5.CrossRefPubMed Rushton CH. Cultivating moral resilience shifting the narrative from powerlessness to possibility. Am J Nurs. 2017;117(2):S11–5.CrossRefPubMed
42.
go back to reference Chiafery MC, Hopkins P, Norton SA, Shaw MH. Nursing ethics huddles to decrease moral distress among nurses in the intensive care unit. J Clin Ethics. 2018;29(3):217–26.CrossRefPubMed Chiafery MC, Hopkins P, Norton SA, Shaw MH. Nursing ethics huddles to decrease moral distress among nurses in the intensive care unit. J Clin Ethics. 2018;29(3):217–26.CrossRefPubMed
43.
go back to reference Mcgilton KS, Krassikova A, Wills A, Bethell J, Boscart V, Escrig-pinol A, et al. Nurse practitioner led implementation of huddles for staff in long term care homes during the COVID-19 pandemic. BMC Geriatr. 2023;23:713.CrossRefPubMedPubMedCentral Mcgilton KS, Krassikova A, Wills A, Bethell J, Boscart V, Escrig-pinol A, et al. Nurse practitioner led implementation of huddles for staff in long term care homes during the COVID-19 pandemic. BMC Geriatr. 2023;23:713.CrossRefPubMedPubMedCentral
44.
go back to reference Poikkeus T, Numminen O, Suhonen R, Leino-Kilpi H. A mixed-method systematic review: support for ethical competence of nurses. J Adv Nurs. 2014;70(2):256–71.CrossRefPubMed Poikkeus T, Numminen O, Suhonen R, Leino-Kilpi H. A mixed-method systematic review: support for ethical competence of nurses. J Adv Nurs. 2014;70(2):256–71.CrossRefPubMed
47.
go back to reference Glowinski BJ, Vellani S, Aboumrad M, Beogo I, Franke T, Havaei F, et al. The Canadian long-term care sector COVID-19 collapse: innovations to support people in the workforce. Healthc Q. 2022;2022:20–6.CrossRef Glowinski BJ, Vellani S, Aboumrad M, Beogo I, Franke T, Havaei F, et al. The Canadian long-term care sector COVID-19 collapse: innovations to support people in the workforce. Healthc Q. 2022;2022:20–6.CrossRef
Metadata
Title
Implementation of the Dementia Isolation Toolkit in long-term care improves awareness but does not reduce moral distress amongst healthcare providers
Authors
Anne Marie Levy
Alisa Grigorovich
Josephine McMurray
Hannah Quirt
Kaitlyn Ranft
Katia Engell
Steven Stewart
Arlene Astell
Kristina Kokorelias
Denise Schon
Kevin Rogrigues
Mario Tsokas
Alastair J. Flint
Andrea Iaboni
Publication date
01-12-2024
Publisher
BioMed Central
Published in
BMC Health Services Research / Issue 1/2024
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/s12913-024-10912-5

Other articles of this Issue 1/2024

BMC Health Services Research 1/2024 Go to the issue